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Dr Trevor Marshall
Foundation Staff
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Posted: Fri Apr 13th, 2012 16:32 |
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The disposable pad units are excellent for placing the stimulation around a joint, or on a leg or arm, for example. The neck units are very specialized, I believe. The neck units are used a lot in Japan.
But it is not legal to use these without a doctor's prescription in some areas of the world - check your location before you buy them.
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Seth
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Posted: Fri Apr 13th, 2012 16:51 |
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I just came up with a great alternative to the disposable pads..
I'll post some more info when I get my little test unit.
____________________
Sarcoidosis |dx-Sep'09|Ph1-Mar'10|Ph2-Jul'10|Ph3-Jan'11|O-only-Aug'11|bone marrow biopsy|splenomegaly,lungs,joint/muscle/stomach pain,sweats,fatigue,headaches,mood swings,brain fog |25D<10ng/ml-Dec'10-June'11| DEATH TO THE BUGS!
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HBOE
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Posted: Thu Jun 14th, 2012 04:40 |
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I've had the TENS unit at home now for about two weeks. My main reason for getting one was because of all the hot spots I get from my neck and shoulders dowm to my lower back. It truly helps relieve pain so I can join the world without being all loopy from pain pills and muscle relaxers. The problem I have is that the pads don't last more than 1 day because of something weird going on with my skin. I'm taking care of the pads exactly like they said and have called them to come up with a different solution. They have just mailed me disposable pads, so we'll see if that helps. I don't yet understand the difference in my skin but will try to figure out. God Bless! Shellie 
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MP start Mar'12 (no breaks) | Fibromyalgia, Arthritis, CHF, OCD, BPD, trigeminal neuralgia | IBS, visceral hypersensitivity, brain fog, eye inflammation, joint pain, nerve pain. | last 25D=14 ng/ml May 28
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Seth
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Posted: Thu Jun 14th, 2012 13:38 |
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Shellie,
I havent used my TENS unit as much as I thought I would. My initial idea was to sew conductive thread into various places on some stretchy, form-fitting sports gear and attach domes for the wires to clip onto.
You could try using medical tape to secure the pads, even if they have no 'stick' left. (like the stuff they tape cotton wool to your arm with after you get a blood test).
Seth
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Sarcoidosis |dx-Sep'09|Ph1-Mar'10|Ph2-Jul'10|Ph3-Jan'11|O-only-Aug'11|bone marrow biopsy|splenomegaly,lungs,joint/muscle/stomach pain,sweats,fatigue,headaches,mood swings,brain fog |25D<10ng/ml-Dec'10-June'11| DEATH TO THE BUGS!
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HBOE
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Posted: Sat Jun 16th, 2012 02:12 |
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| There is either a lose in translation or brain fog on my part but I really got a chuckle so thank you. I am allergic to the tape they use after a blood test (also bandaids) so I have them use the kinda sticky and colorful stuff they wrap around your arm. I only know it as horse wrap. I did happen to get a different brand of electrodes two days ago from my physical therapist and they work a lot better. Also I'm not having a reaction to them. I had a question about mind racing. I know we are supposed to take it easy, but I feel like I'm in a panic and trying to keep up with my brain. Also I was trying to look up something about metals in our body but I guess I don't know how to work the site yet. Is there a way to get to something other than just other peoples postings? I was looking for some actual studies. Am I the only one who feels completely incompetent? God Bless! Shellie
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MP start Mar'12 (no breaks) | Fibromyalgia, Arthritis, CHF, OCD, BPD, trigeminal neuralgia | IBS, visceral hypersensitivity, brain fog, eye inflammation, joint pain, nerve pain. | last 25D=14 ng/ml May 28
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Seth
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Posted: Sat Jun 16th, 2012 02:28 |
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Shellie,
Have a look at http://www.mpkb.org
Probably easiest to do a search for potassium, calcium, etc or whichever metals you're thinking of.
Hopefully the brain overactivity/anxiety is over quickly!
____________________
Sarcoidosis |dx-Sep'09|Ph1-Mar'10|Ph2-Jul'10|Ph3-Jan'11|O-only-Aug'11|bone marrow biopsy|splenomegaly,lungs,joint/muscle/stomach pain,sweats,fatigue,headaches,mood swings,brain fog |25D<10ng/ml-Dec'10-June'11| DEATH TO THE BUGS!
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HBOE
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Posted: Tue Jun 19th, 2012 03:19 |
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| Seth, I thank you for your help. I was wondering "who are you"? What's it like where your at? Have you ever been to the USA? Do you have a family with all their support and love? And of course unique personalities and problems of their own. How long have you been sick before finding the MP? How did you hear about the MP? I've never really been anywhere, so I try to imagine what other places are like. Usually I'm way off. What are some of your worst IP's? I hope that's not too many questions. If it is, I would understand if you only answered 6 of my questions, Ha Ha Ha! Just Kidding, Shellie
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MP start Mar'12 (no breaks) | Fibromyalgia, Arthritis, CHF, OCD, BPD, trigeminal neuralgia | IBS, visceral hypersensitivity, brain fog, eye inflammation, joint pain, nerve pain. | last 25D=14 ng/ml May 28
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Seth
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Posted: Tue Jun 19th, 2012 12:14 |
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HBOE wrote:
Seth, I thank you for your help. I was wondering "who are you"? What's it like where your at? Have you ever been to the USA? Do you have a family with all their support and love? And of course unique personalities and problems of their own. How long have you been sick before finding the MP? How did you hear about the MP? I've never really been anywhere, so I try to imagine what other places are like. Usually I'm way off. What are some of your worst IP's? I hope that's not too many questions. If it is, I would understand if you only answered 6 of my questions, Ha Ha Ha! Just Kidding, Shellie
Inigo Montoya: 'who are you?'
Man in black: 'No-one of consequence'
i'm from NZ which is a great country.
Where I'm at is Dublin, Ireland, and iit's a Dirty Old Town (quite accurately described by the Pogues).
i've been to Seattle.. Its a pretty cool city. Lived in Vancouver for a while and loved it.
My family is great. Though they're on the other side of the world, I get support and love.
I got diagnosed with sarc in 2009 and I immediately began searching for an alternative to what the medical community currently offers (steroids, etc).
My worst IPs.. i dont know.. Pains that I never felt before. I can handle the pain. The worst is the stress it puts on your loved ones, esp when you just want to be treated normally (which is impossible).
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Sarcoidosis |dx-Sep'09|Ph1-Mar'10|Ph2-Jul'10|Ph3-Jan'11|O-only-Aug'11|bone marrow biopsy|splenomegaly,lungs,joint/muscle/stomach pain,sweats,fatigue,headaches,mood swings,brain fog |25D<10ng/ml-Dec'10-June'11| DEATH TO THE BUGS!
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leroybrown
Board Staff
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Posted: Tue Jun 19th, 2012 13:02 |
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I love that song by The Pogues. My friend and I staggered home singing that one summer night in St. John's, all uphill.
Deb
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Life could be worse. Things could get bad. - Barney Bentall
Aplastic anemia Apr/10, PRCA Jan/09, Agranulocytosis 1991
25D = 25 1,25D = 58 Aug 18/09|25D<4.8 Mar/10|10.8 Nov/12
Ph1: Sept 29/09 benicar q8hrs * Nov 26/09 q6hrs *
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HBOE
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Posted: Tue Jun 19th, 2012 19:32 |
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I really like your name. It's very individual. Whay do you mean by "no one of consequence"? Everyone in this world is of consequence in each their own way.
I guess I thought Dublin, Ireland was green and flowing. I guess I watch too much TV.
What is Pogues?
I was in Seattle before and we went to the Space Needle, but I thought it was way too expensive.
I heard Vancouver is beautiful. My favorite nurse just moved there. What a lose for Butte, but I don't blame her.
What exactly is sarc? How smart of you to look for an alternative to steroids. They are extremely hard to wean off of.
I guess I don't believe in the word "normal". Who exactly defines the word. We're all unique. And I feel everyone is a "Hero" in their own way. We all have struggles, just some of us more than others. (a lot more) But sometimes that makes us stronger and more blessed, more empathetic towards other people and their situations. I see a lot of that in you. I hope you realize how amazing you are in your own way. God Bless! Shellie
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MP start Mar'12 (no breaks) | Fibromyalgia, Arthritis, CHF, OCD, BPD, trigeminal neuralgia | IBS, visceral hypersensitivity, brain fog, eye inflammation, joint pain, nerve pain. | last 25D=14 ng/ml May 28
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Frenchie
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Posted: Wed Jun 20th, 2012 08:57 |
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HBOE wrote:What is Pogues?
http://www.youtube.com/watch?v=kVUZuVZWHkk
The dirty old town was Salford in the industrial north of England, Ewan MacColl who wrote the song in 1949 had grown up there after his Scottish father had moved to get work in the foundry, and the song is about the lot of a young man in and industrial town during the depression.
When your health allows you should make a trip to Ireland and Scotland, it is not too expensive in the off season i.e. not May through August, plus when the tourists are away you get to meet the locals. Both countries have an ancient culture stretching back three thousand years, just be prepared for changeable weather.
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Gulf War Syndrome, 1,25D 62 pg/ml Oct09, Ph1Jan10, 25D 9 ng/ml Mar 13
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Seth
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Posted: Wed Jun 20th, 2012 17:24 |
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There you go. I never paid enough attention to the lyrics and assumed it was a song about Dublin (which, to me, is definitely a dirty old town).
I'm not sure why so many Americans go mad for Ireland. I guess it's a great place to visit..
We seem to have tourists here all year (I suppose there are fewer in the winter months).
____________________
Sarcoidosis |dx-Sep'09|Ph1-Mar'10|Ph2-Jul'10|Ph3-Jan'11|O-only-Aug'11|bone marrow biopsy|splenomegaly,lungs,joint/muscle/stomach pain,sweats,fatigue,headaches,mood swings,brain fog |25D<10ng/ml-Dec'10-June'11| DEATH TO THE BUGS!
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