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Aunt Diana
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| Joined: | Fri Sep 30th, 2005 |
| Location: | Boquette, Panama |
| Posts: | 1987 |
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Posted: Mon Apr 30th, 2012 02:09 |
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Jory....to answer your question about coconut oil and the itching....NO Correlation.
I only used coconut oil for a very brief period. I'm sorry I even mentioned it...I'm sure Dr. Marshall knows what he is talking about and he does not recommend it.
The itching stopping had nothing to do with Coconut OIL.
Looking back on my healing trajectory, itching has been there for many years...sometimes more, sometimes less. And hard to know its importance when suffering from so many other symptoms simultaneously.
The important thing is my itching has stopped completely. I have none. And that has been for several months now.Last edited on Mon Apr 30th, 2012 02:11 by Aunt Diana
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Lyme 1987, neuro cardio fatigue achiness brain fog depression, anxiety. Pacemaker, D.1,25 32; D <5; 12/07 <6, hydrocodone, lorazapam, benedryl, zantac, colase, Noirs, cover-up or avoid sun, house <30lux. Feb 08 Phase 3. 6/08 D <4, D1,25
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Jory
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| Joined: | Sun Dec 11th, 2011 |
| Location: | R'dam, Netherlands |
| Posts: | 147 |
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Posted: Mon Apr 30th, 2012 07:31 |
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Thank you aunt Diana for your response  .
Since I am using the crème Gerard mentioned "hypoallergenic Zwitsal Zinkzalf (15% ZnO) for baby's as sunscreen topical".
My itching seems to clear after a few days of using and it looks like my skin is healing too. I am just not sure if it really is due that crème. The zinc layer could also block the affected skin from being in contact with any chemical substance.
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MP start Nov'11 (no breaks) | CFS sympt '08 ; food-allergies ,-intolerances ; low thyroid ; insomnia ; neuro symptoms| homebound '10, '11| last 25D= 20 ng/L mar'12
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Kas
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Posted: Wed Aug 29th, 2012 14:38 |
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I have been suffering from an intolerable all- over body itching for the past two weeks. I can't sleep at night and look and feel exhausted.
This came out of the blue. My kidney and liver tests are stable and not any worse, so I have ruled that out as a cause. My sugar levels ( pre diabetes( are normally good, but slightly up today, I think because of he stress of not sleeping. I itch all day, too, but the nights are the worst.
I tried benedryl and reactine with no improvement. Creams just give very temporary respite.
I need my sleep, I need to work, and this is really pulling me down.
I am going to up my olmetec and see if that helps.
Will see the dermatologist today ( got a cancellation this morning) and perhaps ask for a skin test. I don't want to take any pred.
This is driving me CRAZY and I can't deal with it much longer at night. I have absolutely no rash, but can itch from the top of my head to the bottom of my feet.
Is this an IP?
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Sarc Dx by splenectomy 03- Lungs, lymph nodes, liver, later in kidneys. Anemia. Started MP 2004. Non- stop now since 2007. No abx since March 2008.Olmetec only. Natural progesterone cream one daily x 3 weeks a month; cal / mag supplement. B12 when levels
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leroybrown
Board Staff
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Posted: Wed Aug 29th, 2012 14:43 |
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Kas - can you get to sleep if you take benadryl? It sounds like a horrible IP. At least I had a rash!
Deb
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Life could be worse. Things could get bad. - Barney Bentall
Aplastic anemia Apr/10, PRCA Jan/09, Agranulocytosis 1991
25D = 25 1,25D = 58 Aug 18/09|25D<4.8 Mar/10|10.8 Nov/12
Ph1: Sept 29/09 benicar q8hrs * Nov 26/09 q6hrs *
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Kas
Member
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Posted: Wed Aug 29th, 2012 14:45 |
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Deb,
The benedryl did nothing for me- no sleep, no itch improvement at all.
I going to try and take some quercetin today.
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Sarc Dx by splenectomy 03- Lungs, lymph nodes, liver, later in kidneys. Anemia. Started MP 2004. Non- stop now since 2007. No abx since March 2008.Olmetec only. Natural progesterone cream one daily x 3 weeks a month; cal / mag supplement. B12 when levels
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leroybrown
Board Staff
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Posted: Wed Aug 29th, 2012 14:49 |
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That's too bad. Is it worse at night or when you get hot? I am fighting off a candida or other fungal thing and it gets way worse and flares when I get hot. My husband had intolerable itching with not much rash, and it turned out to be fungal. He's been on diflucan, he now takes it every 3 days and he's so much better. I'm taking nystatin. So it could be fungal, even if there's no rash.
Deb
____________________
Life could be worse. Things could get bad. - Barney Bentall
Aplastic anemia Apr/10, PRCA Jan/09, Agranulocytosis 1991
25D = 25 1,25D = 58 Aug 18/09|25D<4.8 Mar/10|10.8 Nov/12
Ph1: Sept 29/09 benicar q8hrs * Nov 26/09 q6hrs *
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Kas
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Posted: Wed Aug 29th, 2012 15:14 |
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I can't take the anti- fungals easily because of my liver. I think Diflucan really messed it up years ago.
I will let you know how things go and what the derm has to say - although he will probably just want to prescribe steroids, which I don't want to use.
I itch all day, but, yes, it is far worse at night.
I think a sleeping pill to knock me out might give some much - needed relief.Last edited on Wed Aug 29th, 2012 15:16 by Kas
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Sarc Dx by splenectomy 03- Lungs, lymph nodes, liver, later in kidneys. Anemia. Started MP 2004. Non- stop now since 2007. No abx since March 2008.Olmetec only. Natural progesterone cream one daily x 3 weeks a month; cal / mag supplement. B12 when levels
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leroybrown
Board Staff
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Posted: Wed Aug 29th, 2012 15:23 |
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Yeah, diflucan goes through the liver but apparently nystatin doesn't. You may want to check with your MP doc, I believe we have the same one.
Deb
____________________
Life could be worse. Things could get bad. - Barney Bentall
Aplastic anemia Apr/10, PRCA Jan/09, Agranulocytosis 1991
25D = 25 1,25D = 58 Aug 18/09|25D<4.8 Mar/10|10.8 Nov/12
Ph1: Sept 29/09 benicar q8hrs * Nov 26/09 q6hrs *
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Cynthia Schnitz
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| Joined: | Thu Dec 25th, 2008 |
| Location: | N., USA |
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Posted: Wed Aug 29th, 2012 18:12 |
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Well, what ever you take, it is a lot safer to use it topically than systemically (by mouth). What ever he gives you, I would water it down to the lowest effective topical formulation, and only use at night. That may mitigate the effects on your progress.
Cynthia
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MP start 10/08 (no breaks) | Spondylitis 97, early Diverticulosis 98, early AMD 08, Calcium anomaly 95, TypeII Diabetes(?) 02 | 25D=10.1ng/ml 12/12, (preMP 125D/25D=47/43) | My progress
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Hoffer
Member*
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Posted: Wed Aug 29th, 2012 18:34 |
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Kas wrote:
I can't take the anti- fungals easily because of my liver. I think Diflucan really messed it up years ago.
Kas,
Have you had your liver function tested recently - in particular your Bilirubin level? I don't want to scare you, but intolerable itching without a rash could be related to liver damage. If you haven't had blood work done on your liver recently, you should probably get it done just to rule things out.
Hoffer
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MP Oct'10 (no breaks) | CFS '87| Brain-fog, IBS, depression, inflammation, nerve pain| last 25D=6 Feb '13
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Kas
Member
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Posted: Wed Aug 29th, 2012 18:37 |
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I had it done on Aug 17, so less than two weeks' back, when I was already itching like this, and it was al liver tests werel in the normal range.
Kidneys are stable at creatinine 108, eGFR 45, which is where I have been for the past two years, more or less, and hemoglobin is very low.Last edited on Wed Aug 29th, 2012 18:37 by Kas
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Sarc Dx by splenectomy 03- Lungs, lymph nodes, liver, later in kidneys. Anemia. Started MP 2004. Non- stop now since 2007. No abx since March 2008.Olmetec only. Natural progesterone cream one daily x 3 weeks a month; cal / mag supplement. B12 when levels
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leroybrown
Board Staff
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Posted: Wed Aug 29th, 2012 18:49 |
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My husband had tests done too and nothing showed up. Then he saw a couple of doctors who said it "couldn't be" fungal, but yet it was. He was in agony for a year and a half with bleeding spots all over from scratching. If you're itchy and scratching so much you bleed, you shouldn't use white sheets.  He couldn't sleep, or work or think. He's so much better now.
Deb
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Life could be worse. Things could get bad. - Barney Bentall
Aplastic anemia Apr/10, PRCA Jan/09, Agranulocytosis 1991
25D = 25 1,25D = 58 Aug 18/09|25D<4.8 Mar/10|10.8 Nov/12
Ph1: Sept 29/09 benicar q8hrs * Nov 26/09 q6hrs *
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Kas
Member
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Posted: Wed Aug 29th, 2012 20:39 |
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Back from dermatologist ( got a lucky cancellation!), and he made an "X" on my arm with his fingers,which stayed red and raised for a while. He said I am releasing histamines.
He prescribed a drug called Zaditen - 1 mg twice daily. I hope this is OK to take with the MP. He says it will not affect kidneys or liver, but could cause drowsiness/dizziness.
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Sarc Dx by splenectomy 03- Lungs, lymph nodes, liver, later in kidneys. Anemia. Started MP 2004. Non- stop now since 2007. No abx since March 2008.Olmetec only. Natural progesterone cream one daily x 3 weeks a month; cal / mag supplement. B12 when levels
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Gerard
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| Joined: | Fri Feb 25th, 2011 |
| Location: | Netherlands |
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Posted: Wed Aug 29th, 2012 20:44 |
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Hi Kas,
Could a food allergy be involved: dairy, wheat, gluten or a contact-allergy (sheets, detergent etc.)?
To decrease my itching I stopped eating dairy and wheat and increased the dosage of OM to 40mg q2.5h.
I also take at night a "Scottish Shower" ( 1 min. very hot water and 15 sec. cold water, repeating 5-10 times) afterwards coconut oil with OM as topical to be able to fall asleep.
The itching seems to calm down since a day or two.
Hope it works with you too.
Gerard
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MP start Jan'11 (no breaks) | rhinitis'78, sinusitis'78, COPD'82, asthma'82, eyes CSC left'86/right'99, hypertension,'99 hypercholesterolemia'03, legs varicose veins'03, tinnitus'05, hearing loss'05, BPH'06 | last 25D= 6 ng/mL Oct.2012
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Kas
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Posted: Wed Aug 29th, 2012 21:06 |
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Thanks for the good advice, Gerard.
I eat no gluten and very little dairy, and I have not changed any detergents, soaps etc, which are all without perfumes etc, anyway.
I have increased my olmetec, and will do so again tonight, and perhaps try one of the pills the doc prescribed, just to get good night's sleep, if nothing else.
I like the idea of your showering and will definitely try that!
Thanks.
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Sarc Dx by splenectomy 03- Lungs, lymph nodes, liver, later in kidneys. Anemia. Started MP 2004. Non- stop now since 2007. No abx since March 2008.Olmetec only. Natural progesterone cream one daily x 3 weeks a month; cal / mag supplement. B12 when levels
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Joyful
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| Joined: | Sat Jun 9th, 2007 |
| Location: | North America |
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Posted: Thu Aug 30th, 2012 04:26 |
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Dear Kas,
I am so sorry you are suffering with this! 
I like Gerard's suggestions.
There are many kinds of antihistamines so you may have other options if the one the dermatologist prescribed isn't good.
Note: PLEASE everyone reading this take this advice... SEARCH for internet information on EVERY drug you are prescribed... type in "<drug name>-side-effects" in your search and find out what others have experienced.
The reports on this page suggest rare-but-possible adverse liver effects:
http://sideeffects101.com/drug-side-effects/z/zaditen-blood-alkaline-phosphatase-increased.htm
During the intolerable itching phase of my own illness I found hydroxyzine at very low doses to help somewhat.
Last edited on Thu Aug 30th, 2012 04:36 by Joyful
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Forums • Be Kind, We Are All Fragile • Conferences
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PGA Terry
Member
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Posted: Thu Aug 30th, 2012 05:11 |
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| Kas......have you tried showering with Selsun Blue? Go to page one on this thread and starting about half way down on the page there is a discusion on this...Terry
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Ank spondylitis/RA - Ph1Aug07 Ph2Jan08 Ph3Mar09, Tylenol, Vits for malabsorption: cal-mag boron melatonin, vit b,c,e, multi-mineral, 4/09-125D=20, 4/12-25D=4.5
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leroybrown
Board Staff
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Posted: Thu Aug 30th, 2012 12:00 |
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Kas, are you having a bad ragweed season in Toronto this year? Hopefully you'll feel better soon.
Deb
____________________
Life could be worse. Things could get bad. - Barney Bentall
Aplastic anemia Apr/10, PRCA Jan/09, Agranulocytosis 1991
25D = 25 1,25D = 58 Aug 18/09|25D<4.8 Mar/10|10.8 Nov/12
Ph1: Sept 29/09 benicar q8hrs * Nov 26/09 q6hrs *
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Kas
Member
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Posted: Thu Aug 30th, 2012 14:22 |
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Maybe. It's been hot and wet a lot.
I took one zaditen last night, and boy, did it ever knock me for a loop! I slept like a log finally. Woke up once, all groggy and dizzy to use the bathroom, with only slight itching. Still some mild itching this morning, but tolerable. I will hold off on the day pill, as I need to drive today and get things done, and I can't be out of things. I will take one again tonight, though.
@Terry - going to get some Selsun Blue shampoo and give it a try. I generally use natural products, but if this works, what the heck!! Thank you.Last edited on Thu Aug 30th, 2012 15:27 by Kas
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Sarc Dx by splenectomy 03- Lungs, lymph nodes, liver, later in kidneys. Anemia. Started MP 2004. Non- stop now since 2007. No abx since March 2008.Olmetec only. Natural progesterone cream one daily x 3 weeks a month; cal / mag supplement. B12 when levels
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Cynthia Schnitz
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Posted: Thu Aug 30th, 2012 21:22 |
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| You may also have been in a sleep deprived condition when you went to bed last night. Cynthia
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MP start 10/08 (no breaks) | Spondylitis 97, early Diverticulosis 98, early AMD 08, Calcium anomaly 95, TypeII Diabetes(?) 02 | 25D=10.1ng/ml 12/12, (preMP 125D/25D=47/43) | My progress
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