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VEZ R.N.
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| Joined: | Fri May 19th, 2006 |
| Location: | USA |
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Posted: Fri Feb 29th, 2008 01:18 |
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Dental issues have been reported many times by Th1 disease sufferers and I think each of us has a story regarding them.
I have had everything from extreme jaw pain and difficulty even opening my mouth to gums aching and teeth shifting. (asymptomatic prior to MP) My gums were very receded around the many crowns I have had over the years; but I am happy to report that each area of recession has pulled up firmly around the base of the crowns.
There is no reason to believe that you won't have resolution to this difficulty as well as many other caused by your Th1 inflammatory disease.
Here are a few links that may answer more questions.
Members improvement in dental problems on the MP
DENTAL PROBLEMS and Th1 inflammation
Should I delay fixing dental problems?
topic DENTAL questions & suggestions
Warm Regards, VEZ
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Robertrr
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| Joined: | Thu Jul 14th, 2005 |
| Location: | Austin, Texas USA |
| Posts: | 385 |
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Posted: Fri Feb 29th, 2008 01:49 |
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Hi Mel,
I'm no expert here but in my opinion your gums can and will heal on the MP. I couldn't tell you how much. I, like you had a lot of gum issues about a year before my official dx of sarc. I had 3-4 fructations, receding gum tissue and bone loss. Scalings, etc. didn't do any good and my dentist sent me to a periodontist to have gum surgery. This was about the time I got dx'ed with Sarc and I really felt it all had to be related (I prob had it for many years but about 6-7 months of trying to get fitter and taking lots of omega 3 via fish oil and flax seed oil really kicked off the Sarc ....now I know it was due to high vit d).
I asked the periodontist about it...he was convinced periodontal disease and did the surgery. He did however take a biopsy of some of the diseased gum tissue and low and behold, sarcoidosis. He sent me to a Oral Surgeon that he knew for a consult and I was told that periodontal disease would look exactly like Sarc to a periodontist (and vice-versa). At this point (about 4 years ago) I was told I would lose 4-5 molars over the next several years.
Interestingly enough, after starting the MP, the gum tissue's have gotten healthy (the little that remains  ) and have stabalized. I have 1 tooth in particular that was very mobile...it still is mobile but less so than before (of course, a lot of the root is sticking out so not much remains).
If I had it all to do over again (hindsight is 20/20), I'd try 6 months on the MP before I let someone cut away on my gums....I might very well have had a lot less tissue removed. I know due to the gum loss I'd already experienced that it would not have returned completely well...but I bet I would have a lot more than I have now.
Good luck!
Robert
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Sarcoidosis 125D44 25D28 Ph1Jul05 Ph2Sep05 Ph3May06 D25-8(Feb07) May08 NoIRs outside otherwise normal light exposure
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Aunt Diana
Support Team
| Joined: | Fri Sep 30th, 2005 |
| Location: | Boquette, Panama |
| Posts: | 1986 |
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Posted: Fri Feb 29th, 2008 05:04 |
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Hi Mel,
All of my life my teeth and gums have been an issue for me. I think every tooth in my head has a root canaland a crown.. and most are only there because of the good dentists I have had since a child. When I was 20 I started to have gum problems and needed extensive curretage by a periodentist...expensive, time consuming and not fun. I could probably pay off the national debt if I had the money my teeth and gums have cost me.
My gums were under control at the start of the MP, but there were several areas that were borderline and needed constant attention....special toothbrush, water pic, dental floss and many trips to the dentist but I still had one area that was inflamed and never seemed to clear up.
Was I surprised...that six or so months into the protocol all of a sudden I realized my gums were the healthiest they have ever been in my life. I now have no pockets, my receding gum line has become "unreceded"...no more bleeding gums, they have never been so healathy...This pointed out to me how powerful the MP is and that it really is killing bacteria in areas I didn't even know I had any.
I believe now that all of my dental problems were most likely due to CWD bacteria.
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Lyme 1987, neuro cardio fatigue achiness brain fog depression, anxiety. Pacemaker, D.1,25 32; D <5; 12/07 <6, hydrocodone, lorazapam, benedryl, zantac, colase, Noirs, cover-up or avoid sun, house <30lux. Feb 08 Phase 3. 6/08 D <4, D1,25
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mebauer
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| Joined: | Wed Jan 9th, 2008 |
| Location: | Minnesota USA |
| Posts: | 142 |
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Posted: Fri Feb 29th, 2008 05:23 |
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Thank you all for your replies!!!! There is hope!!!!
I had beautiful healthy teeth and gums until all of this happened...my dentist used to compliment me every visit! I just really want the taste and gum issues to get better...
I know it seems odd, but I have nightmares about my teeth falling out or getting large gaps due to my "rotting" mouth. I literally wake up in a complete panic...I rarely had cavities all my life and at age 21 my whole life changed...I used to love to smile!
The MP is giving me hope! Thank you all!
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CFS peripheral neuropathy 125D54 25D18(Feb08) Ph1Feb08 Ph2April08 25D17(April08) Ph3Sept08 25D10(Nov08)25D10 (Nov09) 25D7 (May10)mag ox NoIRs covered up low lux room
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Dr. Greg Blaney
Health Professional
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Posted: Mon Mar 3rd, 2008 22:37 |
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| Prior and early on while on the MP, I had major periodontal disease and had been recommended to have extensive surgery. I asked to have any procedures delayed for 6 months. On re-evaluation, I had only two small pockets which were treated with laser surgery. My gums have remained healthy since and regression apparent prior has now resolved back to normal. Also, my calculus or tartar build-up is much, much less.
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59 year old male, started MP Dec 2004. Remaining symptoms are mild periodic tinnitus & dry skin. On Benicar 40 mg tid and azithromycin 125 mg q10d. Completed all phases including using Bactrim.
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mebauer
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| Joined: | Wed Jan 9th, 2008 |
| Location: | Minnesota USA |
| Posts: | 142 |
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Posted: Mon Mar 3rd, 2008 22:44 |
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Thanks for the reply!
Since starting the MP my mouth hurts really bad...I have a neuropathy and about a yr ago it moved from mainly my legs and arms to my face and mouth...whenever I am put on meds it gets worse and the Benicar is causing the same reaction.
My mouth feels so rotten and my teeth chatter due to my nerves (?). I have to eat soft foods as my mouth hurts so much esp. now.
I hope this goes away...I haven't had much luck with any other treatment, and the Beni is causing the increase in symptoms for me as well. I just hope this isn't causing more damage inside my mouth...that is my main concern.
Mel
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CFS peripheral neuropathy 125D54 25D18(Feb08) Ph1Feb08 Ph2April08 25D17(April08) Ph3Sept08 25D10(Nov08)25D10 (Nov09) 25D7 (May10)mag ox NoIRs covered up low lux room
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Dr. Greg Blaney
Health Professional
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Posted: Mon Mar 3rd, 2008 23:31 |
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| You can expect some aggravation of symptoms especially if you have had any infected tooth requiring a root canal or deep filling. Once started on minocycline, the gum inflammation and infection will improve. The tooth pain can wax and wane throughout the ramping up phase of the antibiotics but tend to be transient.
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59 year old male, started MP Dec 2004. Remaining symptoms are mild periodic tinnitus & dry skin. On Benicar 40 mg tid and azithromycin 125 mg q10d. Completed all phases including using Bactrim.
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Reenie
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| Joined: | Wed Jul 21st, 2004 |
| Location: | Phoenix, Arizona USA |
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Posted: Tue Mar 4th, 2008 01:58 |
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Also, my calculus or tartar build-up is much, much less.
Some time ago when many of us were near the end of Phase 1, some of us began to experience what appeared to be brown staining around the gum lines on our teeth.
At first I thought it was tea staining but then realized that as I began to have more IPR, the tartar build up had been greater and created this dark plaque build up. I began using Scope and a mouth rinse containing Cetylpyridinium chloride
and use it regularly but the stain and plaque have greatly diminished with time on the MP.
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mebauer
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| Joined: | Wed Jan 9th, 2008 |
| Location: | Minnesota USA |
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Posted: Tue Jan 6th, 2009 19:54 |
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I'm really noticing my teeth not being so white anymore. I use whitening toothpaste...Crest Pro-Health and the night and day whitening Crest toothpaste in combination. Is the Mino causing this???? What can I do???
Mel
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CFS peripheral neuropathy 125D54 25D18(Feb08) Ph1Feb08 Ph2April08 25D17(April08) Ph3Sept08 25D10(Nov08)25D10 (Nov09) 25D7 (May10)mag ox NoIRs covered up low lux room
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Dr Trevor Marshall
Foundation Staff
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Posted: Tue Jan 6th, 2009 21:04 |
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Whitening teeth is easy for a dentist to do, after you have completed your recovery. But are you sure it is not plaque? The bacterial flora on the teeth changes quite a lot as the Periodontitis disappears
Take a look at the info in the Knowledge Base:
http://mpkb.mp-dev.com/doku.php/home:othertreatments:mouthwash?s[]=cetylpyridinium
and even the draft document at:
http://mpkb.mp-dev.com/doku.php/home:symptoms:headandneck:dental?s[]=cetylpyridinium
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mebauer
Health Professional
| Joined: | Wed Jan 9th, 2008 |
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Posted: Tue Jan 6th, 2009 22:48 |
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Well, I did a lot of reading, and it sounds like the use of Minocycline for Acne is very common and at doses of 100mg or less it is unlikely to stain the teeth and esp. at older ages. Other sites just talked of the yellowing that happens. I know I've always used the Crest whitening and it worked before to keep my teeth white, but now they are dull and off white. I cant feel plaque on my teeth when i scrap them with my fingernail, so I'm not sure.
I read both of the post, it seems other members dealt with the discoloration for a bit, but attributed it to plaque. I will try the Pro-health mouthwash. I also read someones post that they use white strips and those work. If those work, would that be a good indicator it's not the Mino causing the worry??? Also, I usually put Mino on applesauce and take it that way, would it be better to put it in veg. capsules so it doesn't get on my teeth????
Thanks for your responses...my oral health is a big concern...TMJ, receeding gums and now this worry.
Mel
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CFS peripheral neuropathy 125D54 25D18(Feb08) Ph1Feb08 Ph2April08 25D17(April08) Ph3Sept08 25D10(Nov08)25D10 (Nov09) 25D7 (May10)mag ox NoIRs covered up low lux room
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Dr Trevor Marshall
Foundation Staff
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Posted: Tue Jan 6th, 2009 22:57 |
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The gums will get healthy again
I would take the mino in capsules, like everybody (or nearly everybody) else
The strips that use Hydrogen Peroxide for whitening are fine. And you can even use hydrogen peroxide and baking soda mouthwash, if you like I found it a pain to mix fresh each time, and just use the Viadent Advanced Care (mint) instead
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mebauer
Health Professional
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Posted: Tue Jan 6th, 2009 23:38 |
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Thanks so much! I find that each month around this time I begin to fixate on something new. I think it's a weird monthly herx. I get all worried and scared. It's kinda odd. In a week I'll probably be laughing about my latest paranoid episode. Can't wait until that goes away! 
I'll try your suggestions...and take the Mino in caps!
Mel
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CFS peripheral neuropathy 125D54 25D18(Feb08) Ph1Feb08 Ph2April08 25D17(April08) Ph3Sept08 25D10(Nov08)25D10 (Nov09) 25D7 (May10)mag ox NoIRs covered up low lux room
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Aunt Diana
Support Team
| Joined: | Fri Sep 30th, 2005 |
| Location: | Boquette, Panama |
| Posts: | 1986 |
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Posted: Wed Jan 7th, 2009 03:52 |
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I have spent half my life in a dentist's chair...or so it seems. When I was taking another antibiotic, in pretty large doses, pre MP days my teeth would get very discolored. I found I needed to have them professiionally cleaned 4 x a yr. I haven't really found the mino to a problem at all. I imagine this has something to do with personal chemistry.
My gums and teeth have never been in better condition than now. It's quite amazing how even my receding gum line has crept back into its more youthful position.
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Lyme 1987, neuro cardio fatigue achiness brain fog depression, anxiety. Pacemaker, D.1,25 32; D <5; 12/07 <6, hydrocodone, lorazapam, benedryl, zantac, colase, Noirs, cover-up or avoid sun, house <30lux. Feb 08 Phase 3. 6/08 D <4, D1,25
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PGA Terry
Member
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Posted: Wed Jan 7th, 2009 05:22 |
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I've been on pulsed dose mino for over 20 years. The first 18 years I used pulsed mino on The Road Back protocol. Early on my teeth had a gray area right at the gum level and lasted for several years. Now I can't see any discoloration.
I have noticed that my teeth do become dull and not as white over time and I attribute that to just eating and drinking. I use hydrogen peroxide to brush teeth nightly but use a nice glob of baking soda on a wet toothbrush a few nights in a row every month or so and that seems to take a film off the teeth and bring out the natural white color. If you try this it dosen't taste real good but after you rinse with water there is no aftertaste and leaves mouth feeling fresh.
Terry
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Ank spondylitis/RA - Ph1Aug07 Ph2Jan08 Ph3Mar09, Tylenol, Vits for malabsorption: cal-mag boron melatonin, vit b,c,e, multi-mineral, 4/09-125D=20, 4/12-25D=4.5
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Lee
Member
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Posted: Wed Jan 7th, 2009 14:37 |
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| I need a little more serious dental work and my dentist has suggested IV sedation for some of my trickier areas. I am in PH 3 working at C+Z+M. Would this be ok at this point in my recovery? I might put if off another 6 months but not another year. Thanks! HappY NeW YeaR to ALL!! Lee
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MP-Feb05 ABX Breaks 7mth, 18mth,3yr,5yr 2003 Sarc, Hyper-flex FM, Hashimotos, COPD, skin, joint pain and Glaucoma
2010 D25-4.8
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Dr Trevor Marshall
Foundation Staff
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Posted: Wed Jan 7th, 2009 15:06 |
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Lee,
I have no personal experience with IV sedation.
Note the info about epinephrine in the Knowledge Base:
http://mpkb.mp-dev.com/doku.php/home:special:dentist
This applies primarily to local anesthesia. All local anesthesia, even if IV sedation is used as well as the local.
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Lee
Member
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Posted: Wed Jan 7th, 2009 15:20 |
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Thanks! IV sedation is the alternative suggested to the epi-free shots I was given in the past that did not work. The numbness of the epi-free wears off on me in a matter of minutes and useless for any serious work. My dentist is wary of me as I moved and hyperventilated with his last (epi-free) work .... Lee
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MP-Feb05 ABX Breaks 7mth, 18mth,3yr,5yr 2003 Sarc, Hyper-flex FM, Hashimotos, COPD, skin, joint pain and Glaucoma
2010 D25-4.8
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Hogan
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| Joined: | Sun Mar 16th, 2008 |
| Location: | USA |
| Posts: | 361 |
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Posted: Tue May 18th, 2010 00:23 |
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I went to order a case of viadent mouthwash with Cetylpyridinium Chloride as I have done in the past and I can not find it in stock on any website that normally carries it. Does anyone know if it was discontinued? I have used crest pro health in the past but didn't like the taste or the blue feeling I get on my teeth.
Tried to call colgate but it was closed. Just wondering if anyone knew if it is discontinued?
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MP Start June'08|CFS and FM diagnosed 1990| Severe relapse after florquinoline antibiotics 2007|Chronic lung congestion and infections|Graves Disease diagnosed 18 months into MP. Dec 2007, 1,25D=69 25D=26, latest 25D is Nov 12, d25=10.
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Santa Monica
Member
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Posted: Tue May 18th, 2010 04:20 |
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Did a google search and found Viadent on a number of sites. Not sure if it's the version that has Cetylpyridinium Chloride, if there is more than one version. I have never used it.
Crest ProHealth has been shown to cause discoloration (you can even read about it on Amazon.com, and in posts on this MP site).
Here's somthing weird that I have been experiencing:
I stopped using dental products with flouride a few weeks ago, and have also been on a Benicar-only break for a couple weeks, and have noticed that my teeth are quite sensitive when I brush. I wonder what's going on there...
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Sarcoidosis (lungs&lymph), CFS, Hashimoto's | 125D43 25D24 Mar08 | Ph1Mar08 Ph2May08 AbxBreak/UTI Ph2Jun08 AbxBreakDec08 Ph2Jan09 Ph3Mar09 AbxBreakMar10 Ph3May10 | 25D32 (Apr08) 25D19 (Aug08) 125D54 (Aug08) 25D6 (Jan10) 25D12(July10) 25D 8 (Nov10) 25
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