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Verena
Member*
| Joined: | Sat Dec 19th, 2009 |
| Location: | Germany |
| Posts: | 528 |
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Posted: Sat Jul 10th, 2010 14:14 |
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Hello Annemarie,
thanks for organizing the meeting from me and Michael, too. It was good to meet you all. We have been talking about a fundraising society in Amsterdam. In Germany, we are now starting to put up such a society. Our first meeting will be on October 9th in Heidelberg, Germany (the city also known for it's touristic qualities).
Here is the link to the invitation (it is in Germany)
http://www.autoimmun.net/forum/viewtopic.php?f=9&t=100
The subtitle will be "Curing Autoimmundiseases with Sartans"
We try to invite researches and healthcare professionals who have been working with Olmesartan and other Sartans.
Best, Verena
____________________
Migraine 1976 - 2011, Eye Inflammation 1992 - 2011, Multiple Sclerosis s. 2007, Benicar: Oct. 09, Phase 1: March 10, mod. Phase 2: Sept. 10, back to Phase 1 Dec. 10, Benicar only 40mg q4 Dec. 11. Benicar only q6 Feb. 12. D pre MP: 25: 19,6 ng/ml 1,25: 54,
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Limburg
Member
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Posted: Sat Jul 10th, 2010 19:28 |
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Hi Verena,
How good of you!!!
We will note this date in our agenda's and are going to come ( if we are allowed)
In the past I, (Annemarie) had family in Heidelberg, so it would be nice to see this city again 
If there is anything we can do to help, please let us know
Annemarie and Anne
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MS,DX 1997,Auto-immune hepatitis,DX 2008, MP start jan.2009. SMT: 1/20 in september 2010 and 1/20 in september 2012, came down from 1/160 in december 2008. P-ANCA 1/32 in september 2012.
VitaminD. january 2011:12.4 ng/ml, september 2012: 19ng/ml.
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Verena
Member*
| Joined: | Sat Dec 19th, 2009 |
| Location: | Germany |
| Posts: | 528 |
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Posted: Sun Jul 11th, 2010 14:16 |
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Annemarie,
everybody who wants to attend is warmly welcome!
I did not dare to ask yet, but if anyone of the Autoimmune research foundation (Dr. Marshall, Dr. Blaney, Amy, Paul) happens to be around, we would very much like to ask you to give a lecture 
Best, Verena
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Migraine 1976 - 2011, Eye Inflammation 1992 - 2011, Multiple Sclerosis s. 2007, Benicar: Oct. 09, Phase 1: March 10, mod. Phase 2: Sept. 10, back to Phase 1 Dec. 10, Benicar only 40mg q4 Dec. 11. Benicar only q6 Feb. 12. D pre MP: 25: 19,6 ng/ml 1,25: 54,
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Alejandro
Member*
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Posted: Mon Jul 12th, 2010 18:01 |
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Here some additional words about the Goal setting of the new institution:
- We would like to encourage more Doctors to support the MP, even if it is Off-label
- We would like to promote the exchange with Print and online-Media, promoting the
success of MP. Look for additional funding facilities within Germany.
- Focus remains on healing, not only on investigation (there are plenty of other
similar institutions supporting investigation, with poor success)
- Continue offering free material on MP and MP Science in German, as started in my Blog and Community autoimmun.net.
- Support German speaking exchange between MP Patients. The experience has shown, that only a minority has enough English Skills to actively participate in curemyth1.org. The first months of the (beta) community shows that this offer is being actively used.
- Show to interested patients that the MP has been successfully applied in a large number of individuals with good success.
- Promote the awareness of the MP Science in the Heidelberg Medical Community, this City has extensive medical research facilities
- Look for additional interested participants who are willing to support the mentioned ideas
We are in the good position that Verena is already experienced in public communication and has of course invaluable legal expertise.
Currently we are actively looking for potential supporters. We need at least 7 individuals in order to be able to fulfill the German legal requirements for such a non-Profit Organization. Of course we would like to be in close contact with the ARF, while being an independent entity.
Any support is welcome 
Kind regards,
Alejandro
http://autoimmun.net
Last edited on Mon Jul 12th, 2010 18:08 by Alejandro
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Skin Sarcoidosis (2004) 1,25 D3 : 46 pg/ml (was 63 pg/ml) 25 D :18 ng/ml (now increased in Summer, was 9 ng/ml). EBV
MP since Dec 2009. Only Olmesartan 3x40 mg
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Ute
Health Professional
| Joined: | Sun Sep 30th, 2007 |
| Location: | Germany |
| Posts: | 71 |
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Posted: Sat Aug 28th, 2010 17:44 |
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25./26. Sept. 2010 international expert conference in Dortmund/ Germany
CFS/ME in 21.Century – search for trailblazing diagnostics and therapy possibilities
Program http://tinyurl.com/3x24z5m
Dr. Judy Mikovits, WPI/ USA: XMRV in CFS and Cancer
Prof. Dr. Martin Pall, USA
Dr. Lorenzo Lorusso / Dr. Enrica Capelli, Italy: Clinical Approach and Research in Progress
Dr. Barbara Baumgarten, Oslo: Das ME/CFS-Center an der Universitätsklinik Oslo.
Last edited on Sat Aug 28th, 2010 18:08 by Ute
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CFS/FM/IBS part.thyroidectomy osteopenia food sensit 125D71 25D10.8 Ph1Nov07 Ph2Jan08 Ph3May08 T3/T4 cal/mag Tri-Est Progest./ Milk thistle
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Dr Trevor Marshall
Foundation Staff
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Posted: Sat Aug 28th, 2010 19:46 |
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I will be in Scotland on Sept 19/20/21, and in Germany / Norway / Sweden around the start of October - Heidelberg on 9th October...
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minski2
Member
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Posted: Sat Aug 28th, 2010 22:32 |
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Just in time for October Fest!!!!!!!!!!
Dian
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PTLDS,Hashimoto's Disease:INT.1-25D38,25D37;PH1Sept09,PH2Nov09,PH36/1/10 ;current 25D-6.3
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Alejandro
Member*
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Posted: Fri Sep 10th, 2010 11:34 |
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here the official invitation (in German)
http://autoimmun.net/2010/09/prof-dr-trevor-marshall-in-heidelberg-am-8102010/
We are very proud that Trevor vist us in Germany!
In the meanwhile several MP-Patients and interested people have contacted us and plan to attend the event.
Cheers,
Alex
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Skin Sarcoidosis (2004) 1,25 D3 : 46 pg/ml (was 63 pg/ml) 25 D :18 ng/ml (now increased in Summer, was 9 ng/ml). EBV
MP since Dec 2009. Only Olmesartan 3x40 mg
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titta
Health Professional
| Joined: | Wed Jul 4th, 2007 |
| Location: | United Kingdom |
| Posts: | 272 |
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Posted: Sat Sep 11th, 2010 00:56 |
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Hello Trevor,
sorrily I did not get a place in the Vit D Summit in Glasgow.
Are you able to meet me?
Will others be able to come, too?
Take care,
Titta
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MP start Jul'07 | Sarcoidosis
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Dr Trevor Marshall
Foundation Staff
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Posted: Sat Sep 11th, 2010 01:41 |
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Besides yourself, PatrickBurke is visiting on Sunday, as is Morag, and NickBowler. Anybody else in the Glasgow area is welcome. We will work out a tentative schedule about the middle of this week, I think
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Limburg
Member
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Posted: Thu Nov 11th, 2010 20:37 |
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Dutch MP members meeting on november 21
Dutch MP members, partners and people who are interested in MP are welcome on november 21 on a get together in the afternoon.
We have a small program for the afternoon:
Verena Schindler-Derichs will explain the new German foundation.
Ron van den Dungen will tell us the latest news about MP
Anne Ypeij is as usual chairman of the day.
People who are interested, mail to: marshallprotocol@live.nl for more information.
Hope to see you on november 21!
Annemarie
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MS,DX 1997,Auto-immune hepatitis,DX 2008, MP start jan.2009. SMT: 1/20 in september 2010 and 1/20 in september 2012, came down from 1/160 in december 2008. P-ANCA 1/32 in september 2012.
VitaminD. january 2011:12.4 ng/ml, september 2012: 19ng/ml.
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Limburg
Member
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Posted: Mon Nov 22nd, 2010 20:05 |
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Our meeting last sunday, november 21:
We met with 15 people, already following the MP, or interested in the MP.
Anne started the afternoon with a talk about diseases. What it is what we feel when we feel sick, and what is health? Why can we feel sick when we are going to be healthy and the other way around.
Verena on her turn explained about the new foundation in Germany, which goal it is, to raise funds for clinical study to the MP.
Ron talked about the MP and the importance of olmesartan.He succeeded very well in making the MP more understandable for people who are not (yet) on the MP.
We (Anne, Verena, Ron, Annemarie) want to thank everyone who joined the meeting for their contribution that sunday; Thank you, all!
People who want to have the presentations Ron and Anne gave, mail to: marshallprotocol@live.nl
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MS,DX 1997,Auto-immune hepatitis,DX 2008, MP start jan.2009. SMT: 1/20 in september 2010 and 1/20 in september 2012, came down from 1/160 in december 2008. P-ANCA 1/32 in september 2012.
VitaminD. january 2011:12.4 ng/ml, september 2012: 19ng/ml.
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Alejandro
Member*
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Posted: Tue Nov 23rd, 2010 08:21 |
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sounds good and great job. Things start to move on in Westeurope, thats positive.
Hope to see you in Germany again (;-)
Alex
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Skin Sarcoidosis (2004) 1,25 D3 : 46 pg/ml (was 63 pg/ml) 25 D :18 ng/ml (now increased in Summer, was 9 ng/ml). EBV
MP since Dec 2009. Only Olmesartan 3x40 mg
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Diesel
Member
| Joined: | Sat Dec 19th, 2009 |
| Location: | Netherlands |
| Posts: | 32 |
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Posted: Tue Nov 23rd, 2010 17:43 |
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My wife and I thank all of you Annemarie , Anne, Ron and Verena for organizing this meeting in Roermond and for giving us the latest updates. It was nice to meet again with the MP members who we already met in Amsterdam on May 10th and to meet some new people who are interested in the MP. It seems the MP is slowly getting a place on the map in Holland and more and more people are showing an interest.
We are looking forward to a next meeting and meet you all again and maybe some more and new people. It’s nice to share stories of progress on the MP and learning from each other.
Regards,
Diesel
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Vit.B12 Hydroxo-cobalamin injection dependant 1995 Sublingual Methyl-cobalamin and Adenosyl-cobalamin tabl. 2008
Osteoporosis 2007 True knowledge exists in knowing that you know nothing
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Ron
Foundation Staff
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Posted: Tue Nov 23rd, 2010 19:40 |
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Indeed it was a wonderful day.
Thank you, Annemarie for organizing this event in this nice town in Limburg.
Anne, thanks for your presentation and the 'confessions' as a medic. It seemed to have helped greatly in bringing across my own message.
Verena, thank you for bringing so many people in from Germany. Very nice to continue making this an international effort.
Someone asked about side effects. The answer probably should be that by practicing the MP you get to know more and more very nice, intelligent and open minded people.
Ron
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MP Knowledge Base
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A.Klaas
Member
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Posted: Wed Dec 1st, 2010 19:28 |
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It was a pleasure to co-operate with you, Ron. I think we made three good presentations.
I hope, and I'm sure, we'll continue this way! Thanks for your support!
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Vitamin D 25: 18,4 ng/ml! october 2012
Diagnose: High Cholesterol, symptoms: none
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Ron
Foundation Staff
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Posted: Thu Feb 24th, 2011 20:31 |
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This is great, now we can have "enriched" cornflakes in our country too:
http://www.kelloggs.nl/nl/gezondheid/beleid-en-voeding/kelloggs-ontbijtgranen-en-vitamine-d
Kellog's press release as PDF
 
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MP Knowledge Base
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Verena
Member*
| Joined: | Sat Dec 19th, 2009 |
| Location: | Germany |
| Posts: | 528 |
| Status: |
Offline
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Posted: Fri Feb 25th, 2011 07:36 |
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Oh, congratulations 
____________________
Migraine 1976 - 2011, Eye Inflammation 1992 - 2011, Multiple Sclerosis s. 2007, Benicar: Oct. 09, Phase 1: March 10, mod. Phase 2: Sept. 10, back to Phase 1 Dec. 10, Benicar only 40mg q4 Dec. 11. Benicar only q6 Feb. 12. D pre MP: 25: 19,6 ng/ml 1,25: 54,
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Limburg
Member
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Posted: Thu Mar 24th, 2011 21:06 |
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MP meeting for 'Dutchies" on may 22.
Bijeenkomst MP belangstellenden.
Op zondag 22 mei van 14-17 uur is er weer een bijeenkomst gepland voor mensen die het MP volgen en andere belangstellenden.
Deze keer gaan we naar Eindhoven, centraal gelegen voor veel mensen.
Er is geen echt programma voor deze dag, wel volop gelegenheid voor discussie, vragen en ervaringen.
Aangezien we voor het gebruik van de ruimte een vergoeding moeten betalen, vragen we een vrijwillige kleine bijdrage.
Wilt u deelnemen aan deze middag, stuur dan vóór 15 mei 2011 een email naar: marshallprotocol@live.nl
Vriendelijk uitnodigend,
Ron van den Dungen.
Annemarie Otermans
Anne Ypeij
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MS,DX 1997,Auto-immune hepatitis,DX 2008, MP start jan.2009. SMT: 1/20 in september 2010 and 1/20 in september 2012, came down from 1/160 in december 2008. P-ANCA 1/32 in september 2012.
VitaminD. january 2011:12.4 ng/ml, september 2012: 19ng/ml.
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Verena
Member*
| Joined: | Sat Dec 19th, 2009 |
| Location: | Germany |
| Posts: | 528 |
| Status: |
Offline
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Posted: Fri May 27th, 2011 05:57 |
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Annemarie, Anne and Ron
thank you again for organizing the Meeting in Eindhoven. It is amazing, that you have the energy to organize meetings again and again. You are really the Dutch Hart of the MP! Thank you!!!
Verena
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Migraine 1976 - 2011, Eye Inflammation 1992 - 2011, Multiple Sclerosis s. 2007, Benicar: Oct. 09, Phase 1: March 10, mod. Phase 2: Sept. 10, back to Phase 1 Dec. 10, Benicar only 40mg q4 Dec. 11. Benicar only q6 Feb. 12. D pre MP: 25: 19,6 ng/ml 1,25: 54,
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