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Dr Trevor Marshall
Foundation Staff
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Posted: Thu Jan 6th, 2005 18:42 |
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This coming weekend (1pm, Jan 8 2005) I will be giving a talk about Chronic Lyme (etc) using presentation slides which I prepared for ILADS, Budapest, (and the other conferences of the past few months) to the Southern California Lyme Support Group, at Presbyterian Whittier Hospital.
http://www.whittierpres.com/
For more information please contact Earis Corman, Coordinator, Southern California Lyme Support, Phone: (562) 947-6123
..Trevor..Last edited on Fri Jan 7th, 2005 23:03 by Dr Trevor Marshall
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Tobi
member
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Posted: Mon Jan 10th, 2005 04:24 |
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I would be interested to hear how the meeting went - how was the information received? Were any of those who attended on the MP?
Tobi
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CFS,Rickettsia Conoori-,HHV6,Ureaplasma(all 3 culture,PCR) 25D 16.4ng/ml,1.25D 26pg/ml.Ratio 1,3 Blood probably NOT frozen Benicar 9/18/04 Mino 100mg 10/18/04 Phase 2 01/26/05
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Dr Trevor Marshall
Foundation Staff
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Posted: Mon Jan 10th, 2005 04:42 |
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Tobi,
As you probably know, it has been raining cats and dogs here in LA and the freeways were a mess, but the room was still 'full' with about 30 people, I guess. Particularly impressive to me was the presence of several whole families, mum, dad and kid(s). Lorraine Johnson (Lyme Times Editor and legal activist) was there, as she had missed my presentation at ILADS because of an early flight. There was one pair of dark glasses in the audience, but I will keep the name in confidence. She said she was doing well, at about month 3 of the MP. There was also a talk given by Frank Cuny, who has just managed (with Lorraine) to get the new bill (http://tinyurl.com/47qpb )passed through the CA legislature. This bill will protect Lyme Docs against the problems they are having with the Medical Boards in NJ and NY. The bill took effect on Jan 1. Lorraine spoke briefly as well.
We started about 1:15pm and I finally hit the road at about 5pm, two hours of formal meeting and a couple of hours of post-meeting informal-chat.
The presentation was similar to the one I did for the DVD, but of course I have corrected several mistakes I made during that (several months old) presentation, and added some new slides I have produced during the various recent conferences.
..Trevor..
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Tobi
member
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Posted: Mon Jan 10th, 2005 05:32 |
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Trevor,
I didn't know about the rain, living in Melbourme - 30 degrees today an 37 tomorrow. Makes staying indoors easy.
Sounds like a huge breakthrough with the bill protecting Lyme doctors. Will this free them to actually say "You have late stage Lyme disease" without being told "There is no such thing?"
Tobi
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CFS,Rickettsia Conoori-,HHV6,Ureaplasma(all 3 culture,PCR) 25D 16.4ng/ml,1.25D 26pg/ml.Ratio 1,3 Blood probably NOT frozen Benicar 9/18/04 Mino 100mg 10/18/04 Phase 2 01/26/05
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Dr Trevor Marshall
Foundation Staff
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Posted: Mon Jan 10th, 2005 05:49 |
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Tobi,
I don't think that will be a problem any more, as soon as the results from Dr Brian Fallon's big study are published. I think that one of the most important things his study did, was to prove that the disease exists, and that it can be objectively measured.
..Trevor..
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Tobi
member
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Posted: Mon Jan 10th, 2005 06:08 |
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This is so important. Imagine not swimming against the tide any longer. That energy could be put to use in getting well, rather than convincing your would-be helper (doctor) that you ar not "just depressed"and would benefit from a "bit of exercise" and some CBT!
Tobi
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CFS,Rickettsia Conoori-,HHV6,Ureaplasma(all 3 culture,PCR) 25D 16.4ng/ml,1.25D 26pg/ml.Ratio 1,3 Blood probably NOT frozen Benicar 9/18/04 Mino 100mg 10/18/04 Phase 2 01/26/05
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jcwat101
Support Team
| Joined: | Tue Jul 20th, 2004 |
| Location: | Pasadena, USA |
| Posts: | 2047 |
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Offline
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Posted: Thu Jan 20th, 2005 19:24 |
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I just want to say that I agree that the Whittier meeting went very well. I want to come out of the closet or the cave as the "person in dark colored glasses" in attendance, mentioned in Trevor's post. By the way, those weren't the glasses I usually wear. I find the 201s O.K. for brief times when I don't want to wear the clunkers, but I usually wear the others.
A lot of people asked me about my experiences on the Marshall Protocol after the meeting and were quite interested and encouraged. I must have had about 10 people ask for my doctor's name, primarily out of interest in possibly pursuing the MP.
And it was really great to meet Trevor and thank him for all his great work in person and to get a chance to talk for quite a while with him. I was really glad I braved the stormy California freeways to attend. And I really look forward to having the energy and vitality that Trevor has and feel confident that I will get there if I perservere.
Joyce
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20 yrs with CFS/FM/Lyme/IBS, food sensitivities; 1,25D/25D 8/04:64/11 http://SynergyHN.wordpress.com
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