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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Thu Sep 1st, 2005 00:25 |
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| see Topic: An update on Dr Elias Zerhouni, Dr James P Kiley, and the NIH NHLBI
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
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Posted: Thu Sep 1st, 2005 15:59 |
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From Dr Trevor Marshall:
The Director's Pioneer awards are supposed to encourage change in medicine - to fund researchers who need to challenge the status quo in order to develop (and introduce) breakthroughs in medicine.
Dr Zerhouni and Dr Kington (Deputy Director, NIH) both told the COPR meeting in April that they were very unhappy with the way the first group of 'pioneers'were selected, but I suspect you won't hear any of that at the seminar on Sept 29th 
I have twice been rejected at the first stage of the Director's Pioneer award process. The first year I was nominated by an accomplished physician who has an MD, and two PhDs (universities of Oslo and Trontheim) and half a dozen recovered patients. This year I designated a Director at NIH and researchers at Cornell and Sloan-Kettering as referees (it was a different scheme this year). In neither case did my application get sorted into the top 25%. Hmmm...
In Feb 2004 we applied for a PA-03-171 grant for money to collect the medical records of the first 50 folks who were on the MP, gather them together, and then have them independently analyzed. NHLBI refused to back the application and it ended up with a Committee on the Aging, who, although the reviewers said it was a good application, eventually had no money available to fund it  There were so many steps at which that application was mishandled, both in CSR and NHLBI, that we do not believe that its demise was accidental.
I have been in contact with NCCAM, and have chatted at length with the Deputy Director. I later asked NCCAM to go as partial support on the grant application, but the Deputy Director declined, without citing a reason.
Thanks for any suggestions
Here is a copy of the PA-03-171 follow-up study application summary sheet
http://autoimmunityresearch.org/nih-pa-summary.pdf
and a copy of the pro-forma rejection
http://autoimmunityresearch.org/nih-pa-rejection.pdf
here is a copy of the 2005 Director's Pioneer award application
http://autoimmunityresearch.org/dp2005-complete.pdf
and the 2004 application is at this URL
http://autoimmunityresearch.org/dp2004.pdf
a copy of the submission I made to Dr Zerhouni at the April 2005 COPR meeting is here
http://autoimmunityresearch.org/copr-28apr05.pdf
and the audio of the presentation is here:
http://autoimmunityresearch.org/copr-28apr05.mp3
..Trevor..
I have replaced the pro-forma rejection with the detailed comments of the three reviewers. You will note that our complete application ended up being about one half of an inch thick by the time I dealt with "human subjects protection, Research Risks, Inclusion of women plan, Inclusion of Minorities plan, inclusion of children plan, etc, etc, etc."
The application was deemed technically acceptable. We jumped through all the hoops. The only remaining problem was that this research was not not worth funding. The "Epidemiology of Clinical Disorders and the Aging" study section had better things to spend their money on. NHLBI did not support the appication, nor did NCCAM. So there was no money. As a community, you have been Triaged...
..Trevor..Last edited on Mon Feb 26th, 2007 02:10 by
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Wed Sep 28th, 2005 00:36 |
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From http://nihroadmap.nih.gov/pioneer/symposium2005/
see AGENDA
Thursday 29th, 2005. 8.15am - 3pm
NIH Director's
Pioneer Award Symposium
Masur Auditorium
Clinical Center (Building 10)
NIH
Bethesda, Maryland.
& To view a Web broadcast of the symposium, go to http://videocast.nih.gov.
JRFoutin wrote: "RealPlayer is required for the NIH webcast. Those with just the windows media player will miss out on details if they haven't got it installed before the event.
I just loaded my machine with Realplayer. They don't need the expensive one, just the standard freebee."
World Clock
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
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Posted: Tue Oct 11th, 2005 02:48 |
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| Ival's Summary
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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