 |
| Author | Post |
|---|
Dr Trevor Marshall
Research Team
|
Posted: Mon Oct 11th, 2004 19:03 |
|
The AACFS conference was held at the Alliance Energy Center in Madison, Wisconsin, from Friday 8th Oct to Sunday 9th October 2004. On the Thursday before the conference there was a little publicized, but apparently quite good, "Panda" conference, at another venue in Madison. I missed Panda, so hopefully somebody else can report what happened in a subsequent message 
The conference was an amazing event, and I am sure that it represents a watershed in this this disease. I presented a poster display, where we could explain what the Marshall Protocol was all about, and how it worked. We distributed nearly 300 handouts "What is the Marshall protocol" to the attendees. The strong presence of recovered patients overhung the main medical conference, which, although they were still discussing whether CFS was a psychosomatic disease, nevertheless engaged in vigorous debate (and enquiry) during the breaks and social events. Here is a picture of the main conference hall during the opening presentation:-
(Click on the image for an enlarged view)
There were tables set-up in the area adjacent to the main conference hall which made it easy to have breakout discussions, as well as facilitating mingling, this photo should give you some idea of that area
(Click on the image for an enlarged view)
Although this was taken during a tea-break, this informal area was very busy most of the time. In fact, I probably spent more time talking one-on-one with physicians, researchers and patients at these tables that I spent in the main conference-hall sessions.
Here are some pictures from my scrap-book:-
Paula and Dr Rich Van Konynenburg (Click on the image for an enlarged view)
From left: Me, Dr David Berg, Dr Larry Sharp, Dr Jacob Teitelbaum (Click on the image for an enlarged view or the name for more info)
From Left: Sujay, TX LymeMom, Belinda, me, Meg and Paula. (Click on the image for an enlarged view)
From Left: Meg, Sujay, me, Belinda and Michele. (Click on the image for an enlarged view)
From Left: TexLymeMom, Meg, Belinda and Dr Luther Lindner. (Click on the image for an enlarged view)
The Poster display(Click on the image for an enlarged view)
If anybody else has some different photographs, please email them to me. I will massage into a suitable format and post them here for all to see.
In summary, this was an amazing conference, and I believe history will show it to have been a watershed in the way this disease is perceived and treated.
..Trevor..
ps: The Autoimmunity Research Foundation would appreciate donations to help defray the expense of AACFS, and the other conferences we need to attend. Donations can be made at URL
http://autoimmunityresearch.org/donate.htm
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19252 |
| Status: |
Online
|
|
Posted: Mon Oct 11th, 2004 19:06 |
|
Q: I need document to take to Dr. to show Marshall Protocol is same for CFS and Sarc
Reply from Dr Marshall >
The abstract of the poster presentation I made at AACFS is now online at URL
http://autoimmunityresearch.org/aacfs2004/aacfs.pdf
..trevor..
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
|
Jill
Guest
| Joined: | Sat Jul 17th, 2004 |
| Location: | Idaho USA |
| Posts: | 130 |
| Status: |
Offline
|
|
Posted: Mon Oct 11th, 2004 22:18 |
|
Thanks for the pics, it is fun to have faces to put with the familiar names we all know. congratulations on so many new contacts at the conference. I hope the word spreads rapidly.
Good to have you all back, too.
Jill
____________________
CFIDS20yrs, hypothyroid,iritis, neuropathy, hip joints; 9/11/01 25D32, 1,25D74
benicar 9/11/04 @40/6hr; mino start 10/20/04, now@50mg.
|
Betty G.
Member
|
Posted: Tue Oct 12th, 2004 15:02 |
|
| Great reading about the CFS conference, and seeing the photos of each of you! Glad you all were able to come back with more, and vice versa. Betty G., Iowa
____________________
res MP; dx 7-12-04 lyme(34yrs); 1-2-04 diabetes2, FMS-CFS34 yrs; IBS; OA; osteop, gerd; 12/04 sleep apnea/restless leg; D,25=21; 1-05 D,125=20. CRP 3.1 Meds: diflucan,biaxin & doxy + benecar 40 mg/day, synthroid, zoloft, baclofen, NOIR ambers 2-10%outside
|
FeatherRiver
Guest
|
Posted: Tue Oct 12th, 2004 17:34 |
|
Thank you! I appreciate the pictures and knowing who is who
Dr M - how did Dr. Teitelbaum and Dr Berg take your information? Will they considering using it?
____________________
DianaF:CFS,Fibro,RA since childhood, Dysautonomia
VitD 22/33, 7-04,Started Ben.MP 5-04 Ben 40mg q6h + Mino 100mg q48h + Quer as needed, Phase II Started Jan 15, 05 Ben 40mg q4h stopped mino and Z temp 2/22/05
|
Dr Trevor Marshall
Research Team
|
Posted: Tue Oct 12th, 2004 23:55 |
|
I have added another photograph to the top message, and in this one I almost managed to crack a smile
The Marshall protocol was the elephant in the conference hall. Everybody knew it was overhanging the other topics being discussed, as, if we were real, then most of the talk elsewhere in the conference was of little importance.
How many physicians start using the MP is a question mark, however. But having physicians at the conference informally spreading the word that the MP really works, meant that eveybody there had discussed the MP, even if it was in a corner, under their breath.
..Trevor..
|
DaveW
inactive member
|
Posted: Wed Oct 13th, 2004 21:52 |
|
Dr M.
Congrats (and thank-you) to all MP reps regarding the successful conference!
Regarding your absence of a smile - Not to worry........although we'd all like to see you happy......it would be totally out of character for an exorcist! :Þ
- DaveW
____________________
MP Aug14/04,Pre-MP D=19.6,1,25D=37 ratio 1.89 P2>12/27/04.Back to P1 fall/05.Back to P2 05/06. 21 yrs neuro-lyme not dx til 11/05. OlmesTR 40 mg/7hrs. Major: Weakness,IBS-C,pain,bad sleep,anxiety,depression,cognitive focus,memory,CMV,epilepsy & osteo
|
carol
Advocate
|
Posted: Wed Oct 13th, 2004 21:57 |
|
DaveW:
The Exorcist! That sums it up. I certainly feel like that little girl in the movie who's body was possessed.
Carol
____________________
rheumatoid arthritis dx '96...started MP 8/11/04...initial D tests (7/11/04): 25-D=32; 1,25-D=65...phase 2 started 12/6/04...phase 3 started 2/26/06...vicodin & valium as needed for pain...last 25-D=9 (5/08)
|
jcwat101
Research Professional
|
Posted: Thu Oct 14th, 2004 19:19 |
|
I am eager to read Paula's report on the conference. In the meantime, is there a web site with abstracts from the Poster sessions. Or, if not, could someone post Trevor's abstract for the poster session on the website?
Great to see the pictures of you all, including my friends, Paula, TX and Rich V.
Joyce
____________________
20 yrs with CFS/FM/Lyme/IBS, food sensitivities; 1,25D/25D 8/04:64/11 1/05:22/6 9/05:1,25D=12 10/06:22/8, 4/07:25/<4 chewed Ben. 40mg q8h; Mod. P2: 2/23/05, P2: 4/06; P3: 1/1/07
|
ShrnHml
Guest
|
Posted: Thu Oct 14th, 2004 21:33 |
|
WAY TO GO!!!
Sharon H.
____________________
Neuroborreliosis, MP 3/05, 1,25D 62; 3/06 25D<4, ModPh2 12/05, Premarin, Effexor, stopped Benicar 1/07....no longer in study
|
Dr Trevor Marshall
Research Team
|
Posted: Fri Oct 15th, 2004 01:02 |
|
Meg sent me two more photos, which I have added to the message at the top of this thread. Thanks Meg!
..Trevor..
|
Jessica
Member
| Joined: | Fri Jul 16th, 2004 |
| Location: | Ohio USA |
| Posts: | 84 |
| Status: |
Offline
|
|
Posted: Fri Oct 15th, 2004 13:27 |
|
Thank you for the update and the photos, it is nice to "see" you all!
I'm wondering how the conversations with Dr. Berg and others went? Did you have a chance to sit down and talk about the MP in detail and how it works or not with some of the other CFS research and protocols?
What did you think? Anything surprising?
Wishing us all well,
Jess
____________________
D's: 1,25 44,54,85,39,40 & D 25 76,54,36,40,26 Lymph 6-14% Mercury Tox., CFS, MCI, NCS, NICO, ISAC, Endo.dys.,etc.. Provigil,Armour,Cortef,Xyrem & Dilantin. MP 8/06-9/24/04
|
Rich Van Konynenburg
Health Professional
| Joined: | Sat Oct 16th, 2004 |
| Location: | |
| Posts: | 23 |
| Status: |
Offline
|
|
Posted: Sat Oct 16th, 2004 18:13 |
|
Hi, Trevor. It was fun to meet you and the rest of the gang at the AACFS conference. I particularly enjoyed meeting Paula, with whom I've communicated on and off the e-mail lists for several years, but had never actually met. I see that you have documented our meeting for posterity!
Paula--I'm hopeful that this photo will be worth a lot of money some day, as you become ever more famous and well-known!
Rich Van Konynenburg
|
Paula Carnes
Banned
|
Posted: Sun Oct 17th, 2004 13:42 |
|
Rich, you are the kindest person I have ever met. Thanks for all your work over the years on behalf of cfs and Lyme patients. I would like to become famous for a couple of books I want to write, if I ever finish the summary of the AACFS conf, that is. LOL But let's just forget that picture - not my best. It was a great picture of you. Perhaps we could crop it and enlarge the other picture of me, well, at least the face. The rest is already too large.
Paula Carnes
|
angela
Member
|
Posted: Thu Oct 28th, 2004 17:20 |
|
Hey everybody! Thank you for the link. I enjoyed seeing y'all.. Fun..
Paula, I'm the girl from SC.
Hope everyone is doing well.
~angela
____________________
Previous Diagnoses~ Depression, ADD, Fatigue, Otitis, Chronic Neurotoxin Mediated Illness,
Started the Marshall Protocol~ Sep.23, 2004
Benicar 40mg + Quercetin 400mg q6hrs
Added 50mg Minocycline~ Oct.25, 2004
No D's, ACE normal~ Therapeutic Probe
|
Current time is 23:06 | |
|
|
|
|
