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katydid
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Posted: Sun May 21st, 2006 16:32 |
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I found out yesterday just how fun light exposure is. I had to be out for longer than usual, and I forgot my hat! Even though I have long, dark hair that covers my neck and sides of my face, I think the hat really helps, even if only a ball cap.
When I got home I had a much higher pulse, some muscle weakness, very slight anxiety, and major insomnia. Did finally sleep, (after extra Flexeril), but only for a few hours. Feel okay today, but not as good as before the exposure. Still feel a bit "antsy", as my mother used to say, and also have achey muscles.
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CFS.D's 12/05 25D-7, 1,25D-19,not Quest.Vicodin 10-325 1 PRN.Flexeril 10 mg qday.Westhroid 60 mg.12/27/05 Avoid sun,D Noir's.
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Morris W. Milnes
Member
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Posted: Thu Jun 15th, 2006 00:36 |
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I have also come to a conclusion. I am dangerously reactive to sunlight. when I cross that threshold the reaction is very damaging especially to my lungs.
Now on the good side, Once the sun is below the horizon I can go out and enjoy the glowing sky with no detectable reaction. I went to a party the other day well covered on a heavily overcast day and spent a couple hours in a garage with the door open after having removed hat glove and glasses-no reaction.
Today I went out well covered with K cream for about 10 min. each way taking my wife to her cataract surgery and I was exceedingly blue and short of breath. I didn't take my oxygen because of how good I had felt and how good my walk was the previous night. Fortunately they were very nice there and just plugged me into their in house Oxygen while I sat with Sharon. My fingernails remained blue for a long time and I felt really bad, but when they checked Sharons Oxygen saturation at 100% they checked mine and it was 97%. Strange. I did not feel well all day, but am better now although I still seem to need to do the oxygen. I have figured out that the last 4 times I have been out in bright sun, 2 of which were my drs. appointments, I have had this kind of bad reaction.
I have come to a conclusion about my bad light exposure problems. I am so thoroughly covered that if it's cloudy or late I don't have a problem. If it's bright I do and when I have problems it's when I can feel the suns heat burning through my shirt. I had kind of been of the opinion that Dr. Marshall can't be right about IR creating D. I should have known that was a really bad thought. I'm looking into some of the long insulated underwear to wear under my clothes when I have to go out in bright sun.
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Diag: Sarcoidosis by median stenoscopy 1986. VitD tests 25D=16/ 1,25D=37/ Avoid Vit D 11/04/ Benicar 4QD/ Started Mino QOD 4/6/05 7/06 1,25D=21, 6/07 25D <7 Mag Citrate 1 tsp daily. Calcium 1200mg daily, Vit C 250 mg daily,Synthroid.1mg daily.
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lucindarose
Member in Phase 2
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Posted: Wed Aug 23rd, 2006 07:41 |
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Avoiding Light and D: this site is a godsend to me:
Hi
I had severe hypercalcaemia at 3.66 mmol. Initial Vit D results were 25D=44 and 1,25D=129. Unfortunately for me, however, this was discovered due to persistant frank haematuria, which, following a renal ultrasound revealed bilateral nephrocalcinosis and markedly reduced renal function. Following lengthy investigations of virtually every body part, I was diagnosed with neurosarcoidosis, which looking at the Hypervitaminosis D symptoms, I have probably had for many, many years!!
My thirst was incredible. I was drinking constantly throughout the day (and night) and passing vast quantities of very dilute urine which also led to a diagnosis of diabetes insipidus as there was thickening of the pituitary stalk and meninges on my MRI scan.
I am not on the MP (yet!) as my current physicians will not entertain it. But it was through this site that I learned that I must avoid all dietry vitamin D and sunlight/bright lights. Thankfully due to following this advice (which my doctors never gave me and STILL insist that it is unneccesary!), my serum calcium has remained normal now for some time. I remain on 2.5mg/day Prednisolone but I am hoping to be off this soon.
I asked my doc about water intake and whether it 'flushes' the calcium out of the body and he said that it does not. I was told, however, to increase my salt intake as this would help to get rid of it in the urine. I did follow this advice for a while but a) my BP is raised, b) I now have Stage 3 CKD and high salt is contraindicated and c) if you have nephrocalcinosis you shouldn't increase the calcium throughput in the kidney (if that makes sense?) as it makes the nephrocalcinosis worse.
Anyway, do follow all the fantastic advice the moderators give - this site has been such a godsend to me and I'm sure many others.
Best wishes
Anna.
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Sarcoidosis hypercalcemia nephrocalcinosis/frank hematuria LVH pituitary stalk lesion 125D128 MP 01/07 ModPh2 05/07 Jan08 25D9 NoIRs fulltime student MP restart 02/08
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Aussie Barb
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Posted: Thu Dec 28th, 2006 14:48 |
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VEZ wrote:
I spent a week in LA for the holidays and the sun just about did me in. I was feeling so great here in NE Ohio with the overcast days and it took exactly 2 days to have severe neuro effects from the sun even though I wore many layers of zinc oxide and kept covered with a leather coat when in the car and wore my stongest Noirs. Only had two trips out doors in the car but the house was full of sun light which I tried to avoid as much as possible and also wore my blocker and Noirs 2%. My room was dark so that helped but I can tell you that sun caused some severe neuro symptoms.
 On day 3 in LA I had what I will call a neuro break.....Everything went black for about 30min (I thought I had lost my eyesight) and I had my first panic attack. My HR was about 150 for about an hour and I couldn't put two words together correctly! I was pretty much useless the rest of the trip. I took more benicar out there than I thought possible, between 220-280mg per day just to survive. (BENICAR DID HELP ME THROUGH THIS)
The flight home was dark which helped to start the calming of all that negative neuro activity. Today I feel exhausted and plan to lay low.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Tue Jan 23rd, 2007 16:48 |
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Store Lights: heat..
Ames wrote:
Two days ago I went shopping with my friend. We were in the make-up section looking for eyeshadow when my friend realized she couldn't find her sunglasses. Everyone in the make-up department started searching for them. My job was to sit on a chair and watch our bags! The lights were incredibly bright. I was wearing my medium pair on Noirs. However what started to bother me the most was the HEAT generated by the lights. I remember thinking to myself "I feel as if I am cooking in a giant oven." The sunglasses were finally found, but after an hour and a half long search.
Yesterday morning I woke up feeling strange. I was on my computer reading an email when all of a sudden the room started to spin. It was spinning so fast I couldn't even focus on an object. I thought I might faint but didn't. The feeling did not pass. I fell into bed and was struck with intense waves of nausea. I stumbled to the toilet and tried to vomit but couldn't. I had to lie in bed for three hours straight, eyes closed, with the sensation that my head was spinning. I took 2 extra benicar...one normally, one sublingually. The benicar definitely helped...after a few hours I was able to get out of bed. I made oatmeal and was able to keep it down.
The rest of the day I dosed benicar every 3 hrs and still felt terrible. My throat hurt. I had strange head and skull pain. I was very emotional and wanted to cry. The strange part was that my body felt as if it was on fire. I felt very feverish. I forced myself to take a cold shower which seemed to help. I kept an ice pack on my head for a while which also helped. Periodically I would get the shivers and small convulsions.
Today I feel much better but still not my usual self. Clearly those lights REALLY did me in! I haven't had hyper-D sxs like this since the first week I started the MP. The strange part was that my sxs felt like a sun flare.
This experience reminded me that I still have to be very careful about light exposure and that I am still very iight sensitive. It also reminded me that when I am in a situation where I find the lighting to be uncomfortable I should leave immediately. I should have waited in the car while my friend looked for her glasses. I have to put myself first!
This will not happen again!
Amy
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Tue Jan 23rd, 2007 16:52 |
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Patrickburke wrote: re heat
Hi Amy,
You are not alone with your heat sensitivity  . Since day 1 of the MP I noticed that anything hot would have a bad effect on me. Such things as halogen lights, ovens, radiators, hot showers, baths etc, even once a kettle would send me dizzy  . We have large overhead radiant heaters at work and walking under those was always a recipe for a dizzy spell. Obviously since I was under them the effect could not be caused by convecting hot air and so had to be caused by radiation (the IR  ) and as I was wearing noirs it had to be my skin reacting and as I was always covered up it had to be passing through my clothes also I have never been able to find a way to avoid this effect from IR .
However, and this is where it gets good, today at work I was sat right between 2 radiators for many minutes and they had no effect on me (other that feeling quite nice) for the first time since being on the MP. So the effect is wearing off at last  .
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Sun Jul 15th, 2007 16:22 |
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patrickburke
Member in Phase 3
I am prompted to write in a little greater detail about how my suddenly decreased light sensitivity has affected me. It's good to read of other similar progress.
I too am erring on the side of caution which is why I am keeping all my No 35 Noirs. As I have been wearing contact lenses since Christmas I have not used the fitovers anyway so I may as well give them away if anyone in the UK wants them. I have had no takers yet though. I used to get literally blinded by even a tiny flash of light especially fluorescents, now I don't get anything like that .
I have noticed that if I have a long day in full daylight I do start to get some slight mental issues mainly jumbling my words up a little, consequently I am still avoiding as much light as I can when I can without interfering with my new lit up lifestyle . Eg my office at work is still blacked out from sunlight with only tungsten incandescent lighting. I still have my blinds and heavy curtains closed at home unless I am expecting a visitor. But I don't mind any of this at all. I can go wherever I want and do whatever I want whenever I want to . If my words get a little jumbled at the end of a long enjoyable day of that then so be it. It's easily tolerable.
In the past I have been incapacitated and blinded for 30 mins or more by a flash of light through the side of my Noirs and brought to my knees, almost fainting, with dizziness if I wasn't wearing a strong enough pair.
Take care all.
October 07:
Just for the record. I still cover up, I am still wary of daylight even though I can handle as much as I reasonably need to. I still wear a hat. My office is still boarded up and lit by tungsten even though fluorescents don't bother me any more. My PC monitors are still set to lowish light even though I don't feel the need. But I have not had to wear my Noirs once since the 23rd June 2007 . What a great day that was .
Within the last few days I have noticed that I can recall some telephone numbers again, I lost this ability many years ago when the brain fog started setting in.
June 2008
I had some Corning GlareCutter prescription lenses which for me were better with CRT's, and fluorescents than any Noir which I believe was due to better blue filtration.
However, I never really tried them outside as I did not have faith in their ability to filter out the IR in daylight. But then I hardly ever went out in the daylight anyway so it wasn't much of an issue.
Personally, remembering that I seemed at the time to have extreme light sensitivity, I could not tolerate even artificial light or heat (IR) on my skin and I had to ensure that whilst I was laid on my couch at night exhausted in the dark watching my dimmed down TV with my 10% Noirs I also had to ensure for example that I was wearing socks (and cover my hands) as I would feel the muscle twitching starting in my feet and then all the other light exposure sx's would follow. I wore 10% Noirs so that I could lower the brightness of the TV more and so lower my whole body light exposure while still being able to just see the TV. The same applies to computer monitors and lighting of course.........indoors at night 10% Noirs = lower light levels falling on your skin than if you are using 2%.
Hang in there, I don't wear any eye protection at all now and often have to turn the lights up . But it took 26 months .
Russ replies:
Patrick, I also notice that covering up my skin helps even for exposure to non-natural light like the computer screen and flourescents in stores. Crazy. I know the sensitivity will drop eventually. That will be a day to celebrate.
P Bear, did you find halogen lights to be worse than flourescents or both equally bad?
The halogens were much worse for me. ~ P.B.
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Pat. Pulmonary Sarcoidosis dx 5/04; No D tests; Avoiding D/light+noirs since 6/04; Noirs ended 6/07; Benicar 40mg q6h; Mino q48h; abx2+3.
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Meg Mangin R.N.
Research Team
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Posted: Tue Nov 20th, 2007 21:56 |
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-I have been inside with my 10% noirs on and my blinds closed for about 32 hours now and already see a dramatic decrease in pain....stayed inside in the daytime for 3 days last week and pain improved. Had some commitments to fulfill but from now on I'll do errands at night and be more careful about time spent going back and forth to work. ~candi
-Natural is to a minimum now. Have made more adjustments at work and at home. You were right! I was getting tired and weak because of light exposure. The last few days has been a big difference. ~Simon
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Meg Mangin R.N.
Research Team
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Posted: Thu Dec 13th, 2007 21:03 |
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Last night we ran our space heater, hoping to avoid turning up the central heat, but I didn't realize that it was a quartz heater which used IR for heat! After 30 minutes, I developed some serious photosensitivity, which has yet to resolve; although it is improving.
Wow! What a lesson! ~VirginiaGal
-Well I really have to thank you Meg. Over the past few days I've really been watching my sun exposure, covering up with thick clothing and wearing a beanie and socks etc, put zinc heavily on any exposed areas and closing curtains at all times around the house and also avoiding any outside contact when possible. I must say that I'm feeling so much better! I just feel relaxed, more clear and focused its great. Its got me thinking though since I havent really gone up to this level of light avoidance in all my treatment so far. I wonder how much of my symptoms, particulalry mental are due to light exposure instead of herx? Anyway, I guess all i can do is keep going, but I think if I continue this level of light avoidance, I think I will be able to handle the (the antbiotic) much easier. (originally I thought it was the (antibiotic) alone causing the angry and depressed phases i was having). ~Jimmy_jimjim
-No appreciable light exposure since last update. With no appreciable exposure, symptoms have improved and are tolerable. This has been a real learning experience for her. But at least we know there is a direct link between increased exposure and all her weird movement symptoms. ~Mindy
-Over all I'm feeling better. the more I protect myself from the sun and stay inside, the better I am. ~candi
-Light exposure kept at a minimum, except for two times when I got more exposure than usual. It was interesting to note that following the light exposure, I became quite disoriented, couldn't think straight and felt as if I were having an emotional meltdown. Seems that my tolerance to light waxes and wanes and that I am now in a state of increased sensitivity. Extra Benicar eased up the neuro symptoms, especially when I just let it dissolve under my tongue. ~Adrianne
-Feeling very much like my old tortured self (pre-MP). That's two weeks in a row of extra light exposure and I really feel it! ~janicew
-For some reason many people don't seem to read or understand that you can get as much light exposure in a very cloudy and rainy day as you can on a bright and sunny day. The uv rays and infrared come through in any daylight at all.....Dr. Marshall says somewhere that his "eureka" moment came one day when he was in a scandinavian country where there was little light yet he still felt as bad as he had in sunnier climates. So dark and rainy days make little difference in the light exposure you recieve....same goes for sitting in shade. Reflective light bounces off surfaces and there you are! Higher 1,25-D.
I find I am feeling so much better now that I have simply resolved myself to live indoors during daylight hours. I'm feeling so much better and my symptoms are so much more tolerable that it takes a team of wild horses to get me outside in the daylight. (I am an artist by the way.....and no one loves light more than artists.) I figure it's a temporary situation, and I can tolerate anything as long as the end is in sight, and that it will bring me my health back.
I know it's hard....but it is worth it. ~Aunt Diana
-Resting has proved itself along with staying out of daylight to minimize my herx. I have still managed to do some chores around the house with less distress. So seem to be back on a more even keel. Hmmmm, do I hear someone whispering in my ear..."listen to your Moderators??!" ~Deb Grabetz
-I used to go outside during the day with protections until a month ago when I experienced substancial difference between sun flares and immunpathologies. In fact, the later sx--mainly of the neurological kind--, diminishes considerably if I stay at home with NoIRs until darkening, comparing with not staying at home till that time. ~CarlJB
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Meg Mangin R.N.
Research Team
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Posted: Sun Dec 30th, 2007 06:00 |
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-I used to feel quite good in the sun, but over the years I felt the need to cover up more and more because I found that even though in the moment the sun made me feel good, during the day or two following exposure I would feel debilitated. I started to wear the darkest photo-gray sunglasses I could get when I was 18 because due to eye strain and headaches I could not tolerate bright sunlight. At the same time at work, I would always need more light than anyone else to be able to see well enough to do my job safely.
Upon starting the MP I became terribly light sensitive and had to use my darkest pair of NOIRS (a special brand of sunglasses) to watch TV or use the computer. I ended up having to purchase dark glacier glasses and had to wear the darkest NOIRs over them in order to go outside in daylight or to drive. It seemed as if I could see like an owl in very low light conditions - this after a lifetime of relative night blindness. I also found I was very sensitive to heat radiation, even if I was well covered up. If out too long, the heat would knock me down and the following day many of my symptoms were exacerbated.
My light and heat sensitivity have slowly improved and I can now drive on cloudy days with NOIR equivalent sunglasses that block less light, and if sunny, I can usually get by with less protection as well. I no longer find the need to wear a face mask in order to block sun, but I stick to a big hat and gloves with long sleeves and long pants.
During the first year, I was amazed by how just a few minutes of exposure to halogen lights at a store like Lowe’s would make me feel ready to pass out - it was such a profound reaction to bright lights, even with the strongest NOIRs on.
I was usually able to control my level of immunopatholgy by carefully monitoring the rate at which I increased my antibiotics. I was also very strict about controlling sun and heat exposure and made sure to rest sufficiently. ~P.Bear, RN
See P.Bear's interview
-Increase in trigeminal neuralgia type headaches however 3-4 when they happen. Seems a direct result of accidental light exposure tho'. A couple of times I've gone outside without my hat. ~Ceredwym
- My husband put up more shades in my house over Christmas so I have been feeling better. ~candi
-Ever since I stepped up my sun avoidance I have been feeling so much more stable, pretty much all my symptoms have stablized and feeling better in multiple respects. Particularly mentally I feel much more relaxed and can sort of deal with things better. I still feel very cloudy and depressed but not the overwhelming waves of sadness, hopelessness etc I used to get. Also my chemical sensitivities are so much better, I can now pretty much correlate a rise in these certain symptoms with times that I have had too much sun. ~Jimmy_jimjim
-Have discovered that my BP goes up and down directly related to the amount of light I'm getting! Surprise, surprise! Will be wearing my NoIRs while driving at night, too. ~Cowgirl
-One day I had a 1.5 hour trip in car (all MP covered) & ended up with a nasty headache behind my eyes, which stopped when I returned home within 10 minutes. ~Pundun
-went outside to hang washing on the line i didnt have Noir's on and i think this is what triggered the headaches. ~Sophie
-Social - Noirs but forgot hat - Big mistake - Bad IP for a few days after outing. ~DianeW
-Also had too much sun exposure during outing while visiting construction site for an hour +. (Very covered, but very bright, hot day) Took extra Beni. Sun exposure caused fatigue, sweats, joint pain, and brain fog. ~FortWorthKaren
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Meg Mangin R.N.
Research Team
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Posted: Fri Jan 11th, 2008 00:07 |
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-In retrospect, I'm realizing that a lot of my anger, irritability, weepiness, and depression - although missing my recently departed pet, are probably the result of getting too much light in my eyes over the course of going to vet visits, sunny exam rooms, etc. I also was wearing my Noirs less during that time.
My photosensitivity has been much less and I kept trying to take off my glasses to see, only to realize I was NOT wearing glasses, so figured it was time to go without them in my low luxe home and office. After not wearing them for 4 hours at work yesterday, I came home and felt so angry, weepy and jumping out of my skin whole body pressure, it was very clear to me it had come from the light in my eyes from that morning, because I had felt fine when I went into work, and enjoyed my patients. I don't have this reaction in the sun fully covered and with 2% Noirs, or with tv or the computer. Also it felt like someone had come into my house and replaced all the lightbulbs with a higher watt. So...once again will wear the Noirs inside my office and home for awhile longer. ~drvikki
-After I got MORE serious about light avoidance, within about 8 days the BP went to NORMAL. (I understand it was MORE than JUST the "less light" that made it happen, but that really seemed to tip the scales.) Three weeks ago it was 298/130 after over exposure to light for 5 days. Today it was 119/83! I've taken nothing FOR blood pressure since starting the MP. My family, my doctor, and I are plain flabbergasted! You all SAID it would come down. Whew! This is SUCH a RELIEF! (I do know it may wellrollercoaster again, but still!) ~Cowgirl
-Just a note about my symptoms and light exposure.
I've been feeling so fatigued the past few weeks I decided to go back into "troglodite mode"  Been staying inside most of the day, covering double-layered when going out and using my NoIR fitovers again (had practically abandoned them except for long car trips, using my tinted Rx glasses instead, which let light in on the sides & underneath). Also, I realised that I was getting too much light indoors because this new house has no curtains. It is shady, but the incident light must have been getting to me.
So - for the past 4 days, since avoiding light diligently I FEEL SO MUCH BETTER!
Yeah, yeah, I know, everybody TOLD ME SO... *looks sheepish* ... but it hadn't provoked any symptoms for months... until this new abx combo.
PS - I'm having curtains made tomorrow!  Claudia
-Interestingly, staying out of the lights has made me much calmer. I can talk now and think a bit more clearly. I had to return something to a store and was in there for 15 minutes or so and noticed just how uncomfortable, irritable, brain wouldn't function, confused, etc. As upsetting as this is, it really shows me how lights effected my brain and emotional fuctions. ~juliemomof3
-Would like to note that I haven't taken lexapro for 3 weeks and am doing great. Here is what I am finding out. Staying out of lights (all sun and bright lights) in making an amazing difference in my anxiety, ability to communicate and happiness. The way I know this is when I have to go into a store (groceries or church) there is this dramatic response that is only calmed down by laying in a dark room and possibly a nap. Though I can trace light being a factor since 1995 when I had my first ever migraine, the horrible pain went silent in 2000. I had a very challenging, demanding job where I wrote memos requesting something other than florescent lights. I knew they bothered me, but didn't know why. Then the migraines stopped, but I was driving to an edit session and suddenly didin't know where I was or why I was driving. That was the beginning of countless psychiatrist visits and drugs that never, ever helped me. I thought it was anxiety. Confusion set it and though there were months where I felt like my old self, eventually in 2003 I felt sick, physically and mentally (brain fog, sadness and anxiety, pain and all the other physical symptoms mentioned here on this site) all the time. It was lights. Cause - bacteria. ~juliemomof3
After Ryan's game (the sun and watching him get injured) sent me into the roughest time yet on MP. My intent was to sit in shade where I was okay before, but this time there was no shade. I will not go to daytime game again. The reaction was extreme. I couldn't even think enough to go on the site to report almost suicidal, can't go on thoughts. I haven't gotten that bad before. The head and back pain was extreme and I upped benicar and stayed completely out of lights. Not fully recovered yet. ~juliemomof3
-Find that decreased sunlight really decreased irritability and paranoia (or, those people after me just went away!) ~JohnP
-The sun exposure was big, I had to go out three consecutive days, although well covered, noirs, zinc, hat etc, but it was too much and I had a sun flare, it was intense, nausea, rheumatic pain, GI symptomps, strong stomach cramps, diarreah, bodypain, eyepain restleness, headache, ulcered tongue, flulike state. It felt like punishment of hell.... ~marion villa
Last edited on Sat Oct 4th, 2008 16:17 by Meg Mangin R.N.
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Meg Mangin R.N.
Research Team
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Posted: Thu May 8th, 2008 01:19 |
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-what sunscreen where u using and did it help? ~Schesche
-You ask a tricky question but the answer is simple......I don't use any. I tried K cream and zinc but they were of no real use to me. I am afraid that I was one of those very light sensitive MPers like you. I was light sensitive for around 2 years and nothing really helped me except the night . Not even when I laminated my windows with aluminium and then backed them up with concave reflective aluminium venetian blinds and heavy duty lined dark velvet curtains as well. I had the inside of my house at 0.1lux in full sun.....it was my sanctuary!!! but I could still feel the heat of the sun. I am pretty sure that if I could have afforded to have my house air conditioned that would have been a great help and reduced the temperature of the walls that I can only assume were radiating IR during those hot summer days. At least you can be sure the MP is working for you with your high degree of light sensitivity and rest assured that one day it will pass. ~patrickburke
-Start by being very strict. Give it a couple of months without doing anything but the MP. Then you can start feeling your way toward allowing some activities back in to see where you can get away with it. Once you start, a "healthy" lifestyle is: lots of rest, the right foods, and staying out of the sun. Out of the sun means being inside, no windows. Being outside, even covered, will give you problems if you push it. Noirs on a sunny day can be marginal at best, as you'll discover soon enough. Neural effects = No Fun.
I've watched any number of people in denial about light, and then watched them crash and burn. Just accept the restrictions and don't learn the hard way. It's very demoralizing and not a good start. Two years from now, you'll thank me for advising you to save your strength. You'll need it all down the road. ~Knochen
-Since my kids are out of school and out of sports I can tell that it is helping my recovery by dealing with less sun. ~jarjar
- I stayed home most of the last week. Almost there was no pain at all during that time. In Wednesday, I went out covered up. But, I stayed an a hour in an office that was strongly exposed to sun radiation (not direct light) without wearing sunglasses. The effect was unbelievable. Just three hours later, I felt extreme depression and fatigue which I fought with lots of Benicar (every 2 to 3 hours for the next 9 hours). Results were good. At the night I was able to sleep well.
What amazes me is the effect of sunlight on me. If stay at home, symptoms would be moderate. despite the increase on antibiotic (I added Mino from 50 MG to 100 MG with no noticeable effect). But sun light has significant effect on me. ~Salam Jul08
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