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Aunt Diana
Member Advocate
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Posted: Wed Feb 27th, 2008 16:58 |
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Hi Heather,
There is a great website http://www.coolibar.com with an online catalog for special sunblocking garments. They have all sorts of things that have come in very handy for me. It's not cheap but very high quality and what I have bough so far still looks like new.
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Lyme 1987, neuro cardio fatigue achiness brain fog depression, anxiety. Pacemaker, D.1,25 32; D <5; 12/07 <6, Oxycodone, lorazapam, benedryl, zantac, colase, Noirs, cover-up or avoid sun, house <30lux. Feb 08 Phase 3. 6/08 D <4, D1,25 21
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Meg Mangin R.N.
Research Team (on leave)
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Posted: Wed Feb 27th, 2008 18:45 |
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Thanks for letting us know you are feeling well despite continuing photosensitivity. When measuring outdoor lux, you need a professional UV meter with a UV filter to get a good measure.
Please see Suggested tests to monitor your progress on the MP.
Please post in the phases 2 and 3 forum for instructions before you begin.
You're doing a good job.............
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Nothing contained in this site is or should be considered, or used as a substitute for, medical advice, diagnosis or treatment by your physician.
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HeatherK
Member in Phase 2
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Posted: Wed Sep 24th, 2008 04:55 |
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ONE YEAR ON THE MP!!! I MADE IT! Sept 20th
I'd like to report my progress, after evaluating where I have come too in the past year. It was a tough year, many rough days, but in many ways seemed to go fast ( I slept a lot ) yet some of those rough days were long! By the grace of God, I got through the year and it was well worth it.
I can now climb stairs several times a day. Before the MP, I only ascended once, to go to bed at night, never standing up, but with hands on the steps ahead of me, bending over, because orthostatic intolerance/fatigue was soo bad. I have now occasionally surprised myself because I just found myself ...amazingly RUNNING... up the stairs like I used to 8 years ago ( but not on herxing days)
Energy levels all around are much better, gotta a ways to go yet to sustain energy in any activity, but my walks at night are good, 5 telephone poles lengths here in the country. I haven't tried further lenghts lately but am walking this briskly now most days.
A plus I did not expect , and didn't notice untill this summer, that my hair has thickened considerably and have some gray reversal going on.!!! Love it! 
Sleep has improved greatly, restless legs only bother me occasionally now, usually indicating a need to increase Mino. I have now graduated from my couch to a recliner chair , sitting up much more. I do not clean my house yet, and getting the supper meal cooked and on the table is the biggest feat of the day still.
I am still very much in the darkened house, rarely going out in daylight as light sensitivity is the biggest thing I deal with now. I am getting out to shop after dark occasionally now as the days lengthen.
Realistically I have a long ways to go yet, but I now see it for myself and feel that I am stronger, and Friends tell me I LOOK and SOUND better.
The light in the tunnel has gotten much closer.!
A Mighty ThankYou to Dr. Marshall and his devoted team for this opportunity for renewed health.
Gratefully , Heather
( in Phase Two.)
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CFS for 5 yrs+, Started MP Sept20/07.25=24pg/ml, 1,25=47.5pg/ml. Dec/07 25D= 14.4 Started Phase Two Mar 4/08; Sept 08 25D=8. In blackout home, wearing NoIRs, presumed celiac, wheat,dairy free.
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