The Marshall Protocol Study Site Home

Search
   
Members

Calendar

Help

Home
Search by username
Not logged in - Login | Register 


Joyful's progress
 Moderated by: Aussie Barb  

New Topic

Reply

Print
AuthorPost
Joyful
Research Team


Joined: Sat Jun 9th, 2007
Location: West Coast, USA
Posts: 507
Status:  Offline
 Posted: Sun Apr 27th, 2008 17:04

Quote

Reply
This is a mid-cycle update...

Saturday, 26Apr08   ~ 81 days in Phase 2 ~ 19 days so far in this cycle ~
________________________________________________________________

Light Exposure

Stayed @ home most of the time in low to medium lux, without NoIRs.
Nighttime in car: {11}{14} 20 min, w/ hat + 2% NoIRs..
Indoors, medium lit: {11}{14} 3 hrs, w/ hat + without NoIRs.

Computer use, mostly without 40% NoIRs:  {cycle day} total number hours per day
{10} 11, {11} 11, {12} 10, {13} 9, {14} 7, {15} 4, {16} 7, {17} 5, {18} 10, {19} 5.
________________________________________________________________

Symptoms
  • All symptoms tolerable •

4
• sleep (up at night, sleeping during day)
days:{10} thru {13}
4 • muscles (twitches/tension/pain: neck/back/arms) days:{10}{13} thru{19}
4 • joints (pain; different joints at different times; hip, knee, finger, TMJ) days:{11}{13} thru {16}
4 • sinuses (heavy drainage; irritated/sore throat) day:{12}
3 • skin(irritation around front of neck, very itchy around ankles) days:{14} thru {18}  

Other ‘baseline’ symptoms (From most to least noticeable)
Sleep rhythm off (up nights, sleep days); minor neuro symptoms; jaw clenching; fatigue; sinus drainage; irritation/sore throat; dry/peeling lips; joints ‘popping’ with minor movement; chemical sensitivity; dizzy standing up; gummy/irritated eyes after sleeping; skin: face dry, various minor eruptions, random itchiness (histamine); light sensitivity.

Sleep  {cycle day} total number hours per day
{10} 16, {11} 5, {12} 5, {13} 12, {14} 6, {15} 14, {16} 12, {17} 8, {18} 10, {19} 13.
________________________________________________________________

Comments
> I plan to continue to stretch this cycle out, waiting until after the resolution of a major (stressful) family related situation that will be in process for another week.
________________________________________________________________

:cool: Something to Celebrate! :cool:

Great going @ DMM 2008 to Team Autoimmunity Reseaerch Foundation!!!


Starting dates: Benicar: 1Jul07, Ph1: 12Jul07, ModPh1: 14Sep07, Ph2: 8Feb08



____________________
Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
Joyful
Research Team


Joined: Sat Jun 9th, 2007
Location: West Coast, USA
Posts: 507
Status:  Offline
 Posted: Mon May 5th, 2008 22:58

Quote

Reply
Now on a (hopefully) short MP vacation...

Monday, 5May08  ~ 83 days on Phase 2 ~ day 6 of MP vacation
________________________________________________________________

Light Exposure

Stayed @ home most of the time in low to medium lux, with 40% NoIRs as needed.
Nighttime in car: two times 20 min, w/ hat + 2% NoIRs.
Indoors, medium lit: two times 3 hrs, w/ hat + without NoIRs.
________________________________________________________________

Symptoms
  • All symptoms tolerable •

4 • joints (pain; intermittent; hip, fingers) about 30% of the time
4 • muscles (twitches/tension/pain: neck/back/arms) about 30% of the time
4 • sinuses (heavy drainage; sinus headaches) a couple days
3 • skin(unusually itchy around ankles, on shins) a couple of days
________________________________________________________________

Comments

> On MP 'vacation' due to an extension of the end point of the family situation needing my support and availability. Stopped regular MP medications on April 29th. (This is at the 10 month point in my time on the MP.) Still following all guidelines for light/D avoidance.

> Sleep is now fairly normal with 7-8 hours from around 12am to 7-8am.

> Symptoms have minimised with the exception of the incident with the right hip.
________________________________________________________________

:) Thank you! :)


Starting dates: Benicar: 1Jul07, Ph1: 12Jul07, ModPh1: 14Sep07, Ph2: 8Feb08



____________________
Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
Joyful
Research Team


Joined: Sat Jun 9th, 2007
Location: West Coast, USA
Posts: 507
Status:  Offline
 Posted: Mon Jun 2nd, 2008 05:05

Quote

Reply
Sunday, 1Jun08  ~ 31 days on MP break ~  back on Benicar starting today

________________________________________________________________

Light Exposure

Staying @ home most of the time in low to medium lux, with 40% NoIRs as needed.

________________________________________________________________

Symptoms


2back pain (left side under shoulder blade) during May - MP break
2sinuses (constant drainage, irritated sore/throat) during May - MP break
2vision (both close and far vision is blurred) during May - MP break

Other ‘baseline’ symptoms (From most to least noticeable)
Minor neuro symptoms; sinus drainage; irritation/sore throat; gummy/irritated eyes after sleeping; deep fatigue in afternoons; skin: face dry, various minor eruptions, random itchiness (histamine). ________________________________________________________________

Comments

> I had some inflammation issues during my break and one of the doctors I don’t usually work with from my HMO decided to order every test in the book, including a CT Scan.

> From the blood tests, my ALT came up a little high at 51 units/L (ref range 5-35 units/L). Which is a really good reason to get back on the Benicar right away. We will retest this in 4-6 weeks.

> Also, two UA tests run two weeks apart both showed trace amounts of blood present in the urine. A culture did not show infection, but something is not happy somewhere in the UT because the tests for Epithelial Cells & Bacteria also reported as “FEW.” I hope that whatever this is will also resolve once back on the protocol.

> Since I knew from my reading on the MP site that a CT Scan was going to mean 50 times the ionizing radiation of one normal X-ray, I did not lightly decide to submit to the test. After weighing the risk of the radiation over the benefit of perhaps learning the source of these undiagnosed abdominal symptoms that have come and gone for a couple of years, and considering that it would be at no expense to me, I went ahead and had the scan done. The results should be available within the next week.

> One doctor (my MP doctor) decided on a mild shingles diagnosis from the symptoms at the beginning of my break and the other doctor (my HMO doctor) was not convinced. Whatever it was, it seemed to respond to the L-Lysine (1000mg three times per day). The ‘nerve pain’ on the back, lower left rib cage still is present when standing or reclining, but it is more a dull ache than anything. That same area feels ‘tingly’ or itchy on and off. Also, when the iodine infusion was released during my CT Scan that specific area burned for a few moments.
________________________________________________________________

:) Something to Celebrate :)

During my 'break' I noticed that my light sensitivity was very mild, my sleep patterns were wonderfully normal, and my mood was great even with trips to doctors during the day a couple of times.



____________________
Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
Joyful
Research Team


Joined: Sat Jun 9th, 2007
Location: West Coast, USA
Posts: 507
Status:  Offline
 Posted: Mon Jun 9th, 2008 00:09

Quote

Reply
Sunday, 8Jun08  ~ 7 days into MP restart ~  back on Minocycline 5Jun08

________________________________________________________________

Light Exposure

Staying @ home most of the time in low to medium lux, without 40% NoIRs mostly.
Daytime in car: Mon 2hrs, Wed 2hrs, Sun 30 mins; w/ hat + 2% NoIRs
Indoors brightly lit: Mon 2hrs, Wed 2 hrs; w/ hat + 10% NoIRs
Nighttime in car: Mon 20 mins, Fri 20 mins; 2% NoIRs
________________________________________________________________

Symptoms


4 • muscles (spasms/tension/pain: back/neck/ legs) Mon, Fri
4 • vision (close and far vision is blurry) daily
2 • sinuses (drainage; irritated/sore throat) daily

Other ‘baseline’ symptoms (From most to least noticeable)
Minor neuro symptoms; sinus drainage; irritation/sore throat; gummy/irritated eyes after sleeping; deep fatigue in afternoons; skin: face dry, various minor eruptions, random itchiness (histamine). ________________________________________________________________

Comments

> So far, four days of Minocycline @ 50mg every other day. I started at 50mg because my past experience was that 25mg did not modulate the immune response enough to allow an optimal ebb and flow of IP

> Being back on the Benicar is helping me to feel less inflammation symptoms. However, there seems to be more temperature deregulation events (heat waves).

> CT Scan findings were mostly “unremarkable” with exception of two apparently minor items. The first is a 3mm lesion in the right kidney. I have no idea if there is any action recommended for that. I have an appointment this week to discuss the other minor finding that I will not even comment on at this point because I don’t understand enough to do so.

> I am still experiencing ‘nerve pain’ on my back, along the bottom of my rib cage when standing or reclining, but it continues to be more a dull ache than anything. That same area feels ‘tingly’ or itchy on and off.

> The changes in my vision came so unexpectedly that I am fairly sure it is inflammation. The OD has scheduled another exam for the 18th to see if there is an improvement after more time on the Benicar. If not, I will be needing to get glasses in order to read the signs on the freeway and street signs as well. I have never had difficulty with my far vision before now, so it's really disconcerting for me.

> Light sensitivity went from minimal to significant starting around Friday (second day on Mino).
________________________________________________________________

:) Something to Celebrate :)

The new MP 'community' site for us to enjoy (outside of the member reporting functions here on this study site).

Many thanks to John McDonald for graciously volunteering to moderate our new MP-lifestyles.org forum!


Starting dates: Benicar: 1Jul07, Ph1: 12Jul07, ModPh1: 14Sep07, Ph2: 8Feb08



____________________
Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
Joyful
Research Team


Joined: Sat Jun 9th, 2007
Location: West Coast, USA
Posts: 507
Status:  Offline
 Posted: Sun Jun 15th, 2008 21:31

Quote

Reply
Sunday, 15Jun08  ~ 15 days into MP restart ~  back on Minocycline 5Jun08

________________________________________________________________

Light Exposure

Staying @ home most of the time in low to medium lux, without NoIRs.
Daytime in car: Wed 30 mins, Thu 1 hrs; Fri 30 mins, w/ hat + 2% NoIRs
Indoors brightly lit: Wed 1 hrs, w/ hat only; Fri 30 mins, w/ hat + 10% NoIRs
________________________________________________________________

Symptoms


4 • muscles (spasms/pain: torso/legs) Wed (caused by sun/light exposure :?)

Other ‘baseline’ symptoms (From most to least noticeable)
Minor neuro symptoms; sinus drainage; irritation/sore throat; gummy/irritated eyes after sleeping; skin: various minor eruptions, random itchiness. ________________________________________________________________

Comments

> Vision seems to be improving. :D

> Inflammation symptoms are all back to baseline. :)

> Light sensitivity is back at pre-break levels. :cool:

________________________________________________________________

:) Something to Celebrate :)

Contagious Joy! ~ :dude: ~ One week closer to wellness!



____________________
Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
Joyful
Research Team


Joined: Sat Jun 9th, 2007
Location: West Coast, USA
Posts: 507
Status:  Offline
 Posted: Sun Jun 29th, 2008 07:46

Quote

Reply
Saturday, 28Jun08   ~ 95 days in Phase 2 ~ 10 days in this cycle ~
________________________________________________________________

Light Exposure

Stayed @ home most of the time in low to medium lux, without NoIRs.
No daytime trips this cycle.
________________________________________________________________

Symptoms


6 • muscles (spasms/pain: torso/legs) on days: {3}{4}

Other ‘baseline’ symptoms (From most to least noticeable)
Minor neuro symptoms; sinus drainage; irritation/sore throat; gummy/irritated eyes after sleeping; skin: various minor eruptions, random itchiness.

Sleep  {cycle day} total number hours per day
{1} 10, {2} 9, {3} 10, {4} 10, {5} 11, {6} 12, {7} 8, {8} 12, {9} 10, {10} 8.
________________________________________________________________

Comments

> Dropped the daily L-Lysine as I am not seeming to need it currently. Only adding cal/mag supplement when normal diet is lacking (3-5 days/week).

> Higher temperature weather led to higher symptoms days 3-4 (only air conditioner is a window unit in the home office).
________________________________________________________________

:cool: Something to Celebrate! :cool:

Felt really good & pain free on Friday...
It’s nice to have a good day after those peak IP days. :cool:


Starting dates: Benicar: 1Jul07, Ph1: 12Jul07, ModPh1: 14Sep07, Ph2: 8Feb08



____________________
Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
Joyful
Research Team


Joined: Sat Jun 9th, 2007
Location: West Coast, USA
Posts: 507
Status:  Offline
 Posted: Tue Jul 8th, 2008 18:17

Quote

Reply
Tuesday, 8Jul08   ~ 105 days in Phase 2 ~ 10 days in this cycle ~
________________________________________________________________

Light Exposure

Stayed @ home most of the time in low to medium lux, without NoIRs.
No daytime trips this cycle.
________________________________________________________________

Symptoms


6 • neuro (hypersensitivity, cognitive) on days: {5}{6}{7}{10}
4 • lymph (swelling, nausea on TMJ movement) on day: {7}

Other ‘baseline’ symptoms (From most to least noticeable)
Moderate neuro symptoms; skin: oily, gritty, various minor eruptions, random itchiness; gummy/irritated eyes after sleeping; irritation/sore throat; sinus drainage.

Sleep  {cycle day} total number hours per day
{1} 10, {2} 10, {3} 12, {4} 9, {5} 8, {6}10, {7} 10, {8} 7, {9} 13 {10} 2.
________________________________________________________________

Comments

> Reintroduced the daily L-Lysine as I developed a canker sore on the inside of my lower lip after being off it for a week.

> Skin is changing with more oil and 'grit' especially on the face. Hair has evenly thinned to less than 50% of 'normal' ... guess the hair follicles are all 'resting' at the same time! :(

________________________________________________________________

:cool: Something to Celebrate! :cool:

Felt really good & pain free on day 8.
Them bugs are a dyin'. ;)


Starting dates: Benicar: 1Jul07, Ph1: 12Jul07, ModPh1: 14Sep07, Ph2: 8Feb08



____________________
Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
Joyful
Research Team


Joined: Sat Jun 9th, 2007
Location: West Coast, USA
Posts: 507
Status:  Offline
 Posted: Sat Jul 19th, 2008 05:35

Quote

Reply
Friday, 18Jul08   ~ 115 days in Phase 2 ~ 10 days so far in this cycle ~
________________________________________________________________

Light Exposure

Stayed @ home most of the time in low to medium lux, with 40% NoIRs.
No daytime trips this cycle.
________________________________________________________________

Symptoms


6 • neuro (hypersensitivity, cognitive) levels by day: 4/6/4/2/4/4/4/4/2/2
4 • esophageal (feeling of tightness, hard to swallow) on day: {6}

Other ‘baseline’ symptoms (From most to least noticeable)
Moderate neuro symptoms; increased light sensitivity; eyes feel especially dry, easily irritated; dizziness on standing; numbness in arms upon waking in morning; sticky palms of hands; skin: oily, gritty, various minor eruptions, random itchiness; gummy eyes after sleeping.

Sleep  {cycle day} total number hours per night
{1} 13, {2} 7, {3} 9, {4} 8, {5} 8, {6}6, {7} 11, {8} 10, {9} 11 {10} 10.
________________________________________________________________

Comments

> With the increase in neurological IP/herx, I was not able to sleep deeply on my own and have needed to go back to taking 6-12mg hydroxyzine and .67mg Valium at bedtime.

> Due to the hotter weather locally, it has been more difficult to determine if changes in the antibiotic doses are the cause of my increased neurological IP. So, I will be stretching out this cycle just a little while longer before progressing into Phase 3 next cycle.

> Some of the neuro IP has proven to be from an increase in light sensitivity because on day {2}, when I returned to wearing the 40% NoIRs at the computer, the worst of the symptoms began to resolve. :cool:

________________________________________________________________

Something to Celebrate!

Life is good. ;)  My latest 25D test just came back at 17 ng/mL.


Start Benicar: 1Jul07, Ph1: 12Jul07, ModPh1: 14Sep07, Ph2: 8Feb08



____________________
Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
Joyful
Research Team


Joined: Sat Jun 9th, 2007
Location: West Coast, USA
Posts: 507
Status:  Offline
 Posted: Tue Jul 29th, 2008 06:57

Quote

Reply
Monday, 28Jul08   ~ 125 days in Phase 2 ~ 20 days total in this cycle ~
________________________________________________________________

Light Exposure

Stayed @ home most of the time in low to medium lux, without 40% NoIRs.
No daytime trips this cycle.
________________________________________________________________

Symptoms


6 • neuro (hypersensitivity, cognitive) levels by day: 2/4/6/4/4/2/0/2/2/4
4 • muscle (pain, spasms) levels by day: 4/2/0/0/0/0/2/4/4/0
4 • eyes ( feeling irritated, gritty, loss of lower eyelashes) on days: {16-20}

Other ‘baseline’ symptoms (From most to least noticeable)
Moderate neuro symptoms; increased light sensitivity; eyes feel especially dry, easily irritated; dizziness on standing; numbness in arms upon waking in morning; tire easily from simple activities; skin: oily, gritty, various minor eruptions, random itchiness; gummy/gritty eyes after sleeping.

Sleep  {cycle day} total number hours per night
{11} 13, {12} 10, {13} 8, {14} 9, {15} 9, {16} 12, {17} 11, {18} 12, {19} 4, {20} 8.
________________________________________________________________

Comments

> Continued with an extension of this cycle with Minocycline @ 25mg q48h.

>  Due to the hotter weather locally, it continues to be difficult to determine if the lower dosage of Mino is a factor in my increased neuro IP.

>  Muscle pain and spasms seem to be tied directly to light activities such as cooking and turning to reach objects to the side, such as the bed lamp.

>  Even with more light reducing measures in place, the neuro IP is still a significant source of symptoms with the (new) throat tightness, hypersensitivity and cognitive issues coming and going with the abx cycles.

________________________________________________________________

Something to Celebrate!

Our MP nurse-moderators rock! ;)  Life is good.


Start Benicar: 1Jul07, Ph1: 12Jul07, ModPh1: 14Sep07, Ph2: 8Feb08



____________________
Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
Joyful
Research Team


Joined: Sat Jun 9th, 2007
Location: West Coast, USA
Posts: 507
Status:  Offline
 Posted: Sat Aug 9th, 2008 02:25

Quote

Reply
Thursday, 7Aug08  8 days in Phase 3 ~
________________________________________________________________

Light Exposure

Stayed @ home most of the time in low to medium lux, without 40% NoIRs.
No daytime trips this cycle.
________________________________________________________________

Symptoms


6 • muscle (pain, spasms, fatigue) levels by day: 6/2/3/5/4/4/6/4
6 • neuro
(hypersensitivity, cognitive) levels by day: 6/6/6/6/4/2/6/6
4 • lymph
(stiff neck, swelling) levels by day: 2/2/4/4/4/4/2/2
4 • eyes
(feeling irritated, gritty, loss of lower eyelashes) on days: {all}

Other ‘baseline’ symptoms (From most to least noticeable)
Moderate neuro symptoms; down/bedrest more, increased light sensitivity; eyes feel especially dry, easily irritated; dizziness on standing; numbness in arms upon waking in morning; tire easily from simple activities; skin: oily, gritty, various minor eruptions, random itchiness; gummy/gritty eyes after sleeping.

Sleep  {cycle day} total number hours per night
{1} 10, {2} 14, {3} 13, {4} 12, {5} 9, {6} 12, {7} 6, {8} 13.
________________________________________________________________

Comments

>  Stayed on extension of previous cycle for two more days before starting Phase 3 on July 31st. Decided to start new cycle after 8 days due to increasing levels of intolerable hypersensitivity leading to insomnia.

> More bed rest and longer sleeping times (though not on the ‘correct’ schedule) seem to be necessary to minimise the muscle pain/spasms.

> I have begun to use gentle soaping/rinsing of my eyelash areas daily for the blepharitis flare.

>  I choose to take Benicar at q4h through-out this entire cycle because I was already at a less than comfortable level of neurological IP/herx moving into Phase 3. This has really helped keep things nearer to the tolerable range for me.

________________________________________________________________

Something to Celebrate!

Finally! I'm in on Phase 3! ;)  Life is always good.


Ph1: Jul07; ModPh1: Sep07; Ph2: Feb08; Ph3: Aug08

Last edited on Sat Aug 9th, 2008 02:31 by Joyful



____________________
Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
Joyful
Research Team


Joined: Sat Jun 9th, 2007
Location: West Coast, USA
Posts: 507
Status:  Offline
 Posted: Tue Aug 19th, 2008 05:50

Quote

Reply
Sunday, 17Aug08  ~ 18 days in Phase 3 ~
________________________________________________________________

Light Exposure

Stayed @ home most of the time in low to medium lux, without 40% NoIRs.
No daytime trips this cycle.
________________________________________________________________

Symptoms


6 • muscle (pain, spasms, fatigue) levels by day: 2/2/2/2/4/4/4/4/4/4
6 • neuro (hypersensitivity, cognitive) levels by day: 6/4/4/4/6/6/6/6/4/4
6 • lymph
(stiff neck, swelling) levels by day: 2/6/4/4/6/6/6/4/4/4
4 • eyes (feeling irritated, gritty, red at base of eyelashes) on days: {all}

Other ‘baseline’ symptoms (From most to least noticeable)
Moderate neuro symptoms; difficult to get to sleep; tire easily from simple activities; eyes feel especially dry, easily irritated; dizziness on standing; numbness in arms upon waking in morning; light sensitivity; skin: oily, gritty, various minor eruptions, random itchiness; gummy/gritty eyes after sleeping.

Sleep  {cycle day} total number hours per night
{1} 10, {2} 9, {3} 9, {4} 6, {5} 11, {6} 4, {7} 7, {8} 10, {9} 10, {10} 3.
________________________________________________________________

Comments

> Stayed low activity to minimise the muscle pain/spasms, but didn’t get as much sleep. More hours at the computer.

> Continued gentle soaping/rinsing of eyelash areas daily for the blepharitis flare.

> Continued to take Benicar at q4h this cycle to keep level of neurological IP/herx tolerable.

________________________________________________________________

Something to Celebrate!

Community life is happening over on MP-Lifestyles.org
  ;)  Thanks, I needed that.


Ph1: Jul07; ModPh1: Sep07; Ph2: Feb08; Ph3: Aug08



____________________
Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
Joyful
Research Team


Joined: Sat Jun 9th, 2007
Location: West Coast, USA
Posts: 507
Status:  Offline
 Posted: Thu Aug 28th, 2008 08:31

Quote

Reply
Wednesday, 27Aug08  ~ 28 days in Phase 3 ~
________________________________________________________________

Light Exposure

Stayed @ home most of the time in low to medium lux, without 40% NoIRs.
Daytime trips on days {1} and {9} this cycle. Very sensitive to sunlight in eyes, on skin.
Found I needed both wraparound on top of fitover 2% NoIRs for daytime in car.
________________________________________________________________

Symptoms


8 • muscle (pain, spasms, fatigue) levels by day: 4/4/4/6/6/6/4/2/6/8
8 • neuro (hypersensitivity, cognitive) levels by day: 6/2/4/4/4/4/4/4/6/8
6 • lymph
(stiff neck, swelling) levels by day: 2/2/2/6/6/6/4/4/4/2
4 • eyes (feeling irritated, gritty, red at base of eyelashes) on days: {all}

Other ‘baseline’ symptoms (From most to least noticeable)
Moderate neuro symptoms; difficult to get to sleep; tire easily from simple activities; eyes feel especially dry, easily irritated; dizziness on standing; numbness in arms upon waking in morning; light sensitivity; skin: oily, gritty, various minor eruptions, random itchiness; gummy/gritty eyes after sleeping.

Sleep  {cycle day} total number hours per night
{1} 12, {2} 6, {3} 15, {4} 6, {5} 14, {6} 7, {7} 11, {8} 7, {9} 11, {10} 8.
________________________________________________________________

Comments

> Trip on day 1 was avoidable, but enjoyable. Stayed low activity from then on until doctor’s appointment on day 9, awoke on day 10 to nasty stabbing pain behind right shoulder blade.

> Continued gentle soaping/rinsing of eyelash areas daily for the blepharitis.

> Continued to take Benicar at q4h this cycle to keep level of neurological IP/herx tolerable.

________________________________________________________________

Something to Celebrate!

2 weeks to the 6th Annual Congress on Autoimmunity
:) Thanks, Trevor & team for all your hard work!


Ph1: Jul07; ModPh1: Sep07; Ph2: Feb08; Ph3: Aug08



____________________
Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08

 Current time is 06:36
Page:  First Page Previous Page  1  2  3   




Powered by WowBB 1.7 - Entire site Copyright © 2004-2007 Autoimmunity Research Foundation, All Rights Reserved
Click here to view our PRIVACY POLICY
Page processed in 0.3646 seconds (35% database + 65% PHP). 19 queries executed.