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CelticLadee
member
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Posted: Tue Dec 21st, 2004 03:58 |
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Hi Tami!
Awwwww! Thanks. That's so nice to know. All of you keep me going I must tell you. Such a wonderful group of people here and am sorry we are all here cause we are sick. Love to hear we all get well soon!!! 
My baking happens once in awhile when I am feeling strong and is very therapeutic. I have to push the brain cells especially with a new recipe and push the body to stand around for a couple of hours. I always end up exhausted but happy. I hope you will be able to bake one day again soon too. The MP gives us hope of returning to do things we love. I hope to be doing more gardening this spring and summer. Even if I can just get out for an hour before sun up it makes me very happy.
Lovely to hear from you. 
CelticLadee
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FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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Reenie
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Posted: Tue Dec 21st, 2004 17:47 |
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CelticLadee says, "Doc wants me to be able to go 8 hours between Benicar doses before I move ahead to Phase 2. So I will be working on that and hopefully in a couple of weeks or so I can get the D's tested then move on."
How are you and Doc "determining" that you are able to go on q8h? I'm not sure I understand how you (or your Doc) can truly determine that, CL. 
Believe me, I put some thought into this one before responding. At first, I thought MAYBE you and Doc were going to try to determine this by your D tests, but then I remembered that D tests alone are NOT valid, since there are paracrine levels of D to be considered as well.
My understanding of a q8h dosing vs a q6h dosing interval of Benicar is that you mainly have NO wiggle-room for dosing timing error on the q8h.
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CelticLadee
member
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Posted: Tue Dec 21st, 2004 18:25 |
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Hi there Reenie,
Well, to answer your question I will use my own experience okay? You decide.
Around 5-6 hours after dosing with Benicar my sxs begin to feel worse. So at times I have taking the Benicar at 5 hrs instead of 6 hrs and then relieve of sx follows.
The way we understood it Doc says when I get to the place that sx don't begin to feel worse than I am comfortable with until around 8 hours from Benicar dose then she would be more comfortable with me going on to Phase 2. Also would mean that 100 mg. of Mino isn't causing too much herxing of course.
Then on Phase 2 when I am taking Benicar 8 hours if I need the Benicar at 4 hours it would be? or feel? more effective against any worse herxing that Phase 2 could dish out.
Right on. She made it clear I had to be cautious about not going over the 8 hour mark for Benicar dosing. The "wiggle room" was if dosing on 8 hrs. I can resort to 6 or 4 hrs. if needed and it would be more effective then.
I hope I explained this right but it is the way both hubby and I understood it so I'm confident we both heard the same thing. I bring him to help me in case my brain fog gets in the way. 
Anyway, she will have my D's redone along with some alks, etc. before I go to Phase 2 also to make sure she is comfortable with these readings before proceeding.
Thanks for your post HRH Queenie Reenie.
Celticladee
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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Reenie
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Posted: Tue Dec 21st, 2004 19:55 |
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Hi CL,
The way I understand this, is that you may not be able to "tell" what the Benicar blockade is doing for you specifically by how you feel.
I've never dosed Benicar by how I feel. I just take it q6h. 
The only time I really can "tell" anything, is by the time it's already too late, as if I've gotten too much sun exposure.
Personally, I wouldn't rely on my symptoms alone, but that the science and understanding says that if I dose q8h, I'm at the most "stretched out" level of a full Benicar blockade, just before the drug starts to lose its saturation level and begins to wane in my body.
If I dose more often, such as q6h, I have a better blockade in effect, never having to worry about the critical point at which the blockade begins to decay.
Besides, dosing less often may also cause a possibility for feeling better based on more inflammation due to less blockade. I don't know how you'd determine that.
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CelticLadee
member
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Posted: Wed Dec 22nd, 2004 21:44 |
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Thanks Reenie.... I'm a bit confused about what you said here "Besides, dosing less often may also cause a possibility for feeling better based on more inflammation due to less blockade. I don't know how you'd determine that." I've never felt better when I had less blockade since I started the MP. As the blockade decays I feel worse not better. The way I determine that is it coincides with the longer I wait for the next dose of Benicar the worse I begin to feel and after dosing I begin to feel better after awhile. Can you see how this is confusing to my experience? Am I missing something?
DAY 125 - SUN. 8 PM. - MON. 12/19-20/2004.
Benicar 40 mg. q6h until Mon. morn - Mon. afternoon q4h for traveling purposes.
No Minocycline
No Quercetin
Sleep: Slept okay.
Sx: Nothing worth reporting.
Ex: The usual walk with Cricket to the paperbox.
Went to my MP doc today so I didn't take Mino last night to make sure I felt up for it. I also took Benicar q4h to help with outdoor exposure sx. All was well from these precautions along with wearing NoIRS and covering up.
DAY 126 MON. 8PM. - TUES. 12/20-21/2004.
Benicar 40 mg. q8h
No Minocycline.
No Quercetin.
Sleep: Okay
Sx: Fine until Tues. afternoon began having left side chest pressure and heart palpitations & felt agitated.
Exercise: The usual walk with Cricket to the paperbox.
DAY 127 TUES. 4 PM. - WED. 12/21-22/2004.
Benicar 40 mg. q6h. After having increased heart palpitations & chest pressure decided to go back to q6h to see if that would eliminate the problem and thankfully it did.
Minocycline 100 mg. 12th dose. I am taking my Mino earlier than previously to see if I can sleep better at night. Instead of taking it at 8 pm. I am taking it at 4 pm.
No Quercetin
Tylenol 500 mg. at 11 pm. for right side sinus pain.
Sleep: I slept from 9-11 pm. and woke up with a sinus headache. Then I slept from 12 am. - 3 am. my usual bathroom run. Then slept until 6 am. & napped until 7 am.
I have a new Benicar schedule 9am./3pm./9pm./3am. I figured if I am going to wake up every night at 3 am. to tinkle I might as well make it my Benicar dose time.
Sx: Initial reaction to Mino. was increase in sinus pressure. Today have left side chest soreness, right sinus irritation. Some migrating aches and sore spots but nothing longlasting. Feeling pretty good today!
Ex: The usual.
Improvements: The last week or so the time I need to sleep at my 1-2 pm. nap time has been cut in half.
 CL
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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Aussie Barb
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Posted: Wed Dec 22nd, 2004 22:05 |
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Dear CL,
It seems that you experience the need of the Benicar around 6 hrly.. I do so myself.. or I feel sick and experience anxiety.
The phase 1 doc has all the information about the use of Benicar.
This FAQ How do I know if I'm ready for phase two?>>> "It's important not to stay in phase one too long. The bacteria that are resistant to minocycline may find the newly vacated inflammatory tissues a welcome place to multiply. That's why we want you to add a second antibiotic after 3 months or so on the MP.
If you are worried about too much Herx, you can start phase two with a reduced minocycline dosage to make sure you don't get sacked by the Herx and then ramp the mino back up to 100mg every other day." <<
this information may be reassuring for yourself and your Dr.
Barb ...
____________________
♥Barb♥: Dx Inflammation - Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04-Aug2010| barbliv @ hotmail.com | ABC of MP| Barb's Story|
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Reenie
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Posted: Thu Dec 23rd, 2004 21:25 |
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CL,
I think you and Barb answered your Benicar dosing questions.
It seems to me that you have some cardiac inflammation that the Benicar q6h protects you from. That seems to be your "minimum optimal dose" for adequate protection for you and your heart.
PS What I meant about feeling better from less blockade would be, by not having any herx reaction. This would cause one to think they felt better because they were not herxing, since herx makes one feel worse.
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CelticLadee
member
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Posted: Fri Dec 24th, 2004 17:49 |
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DAY 128 - WED. 4 PM. - THURS. 12/22-23/2004.
Benicar 40 mg. q6h
OOOoooops! I made a mistake! I took Minocycline on my off day!  I looked at the wrong reminder note to myself from the day before. Nothing happened but a stiff neck so guess I'll live. hehe.
Minocycline 100 mg. @ 4 pm. 13th dose.
No Quercetin.
Sleep: Slept from 10 - 12 am. Then 1-3 am. Then 6-8 am. Not a good night.
Sx: Woke up with a slightily stiff neck. My neck had bothered me while sleeping too making it difficult to get comfortable.
Exercise: The usual.
DAY 129 - THURS. 4 PM. - FRI. 12/23-24/2004.
Benicar 40 mg. q6h
No Minocycline
No Quercetin
Tylenol 500 mg. x2
Sleep: Slept from 10 - 1 am. Then 1:30 - 2:45 am. Then 3:00 am. - 6:30 am. Felt my sleep was better than the night before.
Sx: Around 4 pm. last night I turned slightily and a vertebrae pinched a nerve in my upper back causing instant bad pain & then tingling. (I think from the day before with the stiff neck it was just ripe for coming on) After that my upper back and neck were very tender, aching and I had to avoid any movement the rest of the evening or it would catch. Put on a ice pack & took Tylenol after it happened and then before bed. It is only a little sore today and feeling much better. Other than that I am feeling fine.
Exercise: The usual plus I did vacuum over 1/2 of the house.
MERRY CHRISTMAS EVERYONE! Hope you all have a good one.
CL
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee
member
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Posted: Tue Dec 28th, 2004 18:34 |
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DAY 130 - FRI. 4 PM. - SAT. 12/24-25/2004.
Benicar 40 mg. q6h
Minocycline 100 mg. 14th dose
No Quercetin needed.
Sleep: Slept from 11pm - 3am then 4am - 7am.
Sx: None.
Ex: None
DAY 131 - SAT. 4 PM. - SUN. 12/25-26/2004.
Benicar 40 mg. q6h
No Minocycline
No Quercetin.
Sleep: Same as last night.
Sx: None
Exercise: The usual.
DAY 132 - SUN, 4 PM - MON. 12/26-27/2004,
Benicar 40 q6h
Minocycline 100 mg. 15th dose.
Quercetin 400 mg. x 1 @ 3am. with Benicar - see if it will help me sleep.
Sleep: Slept from 10 pm - 1am. then 5 am. - 7am.
Sx: Insomnia
Exercise: the usual.
DAY 133 - MON. 4 PM. - TUES. 12/27-28/2004.
Benicar 40 mg. q6h
No Minocycline
No Quercetin
Sleep: Slept okay.
Sx: None.
Exercise: The usual.
I am feeling well & strong steadily now so know I am ready to start phase 2. I want to start ASAP but am required by MP doc to first get blood tests such as 1,25 & 25 D, the Alks, Trigs, etc. but I don't have a lab request. MP doc wants to see me on Benicar q8h first so I am at a stand still and don't know when I will be able to proceed.
CL
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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Dr Trevor Marshall
Foundation Staff
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Posted: Tue Dec 28th, 2004 21:53 |
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CL,
I can't recall anything in the protocol about making sure that you are back on q8h Benicar before starting Phase 2, in fact I recall just the opposite.
I recall we state it is important not to stay on phase 1 too long, as antibiotic resistant species might get a chance to repopulate the cleaned tissues. Maybe Doc has some other reason for delaying your progression to Phase 2. Feel free to ask Doc to give me a call, any time
..Trevor..
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Reenie
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Posted: Tue Dec 28th, 2004 21:56 |
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Hi CL,
I'm glad you're feeling better. Phase 2 is GOOD so far, but a little trickier.
As for your Benicar, I REALLY think you ought to STAY on the q6h dosing. Do you suppose you could be FIRM on that one and "tell" (in a nice way) your Dr she has to CALL Dr M for clarification on this one?
I KNOW your Dr also reads the board, so she may see some of the comments made to you about this. (I hope)
You see, CL, you could prob start Phase 2 with q8h, but from everything I understand and have discussed with the other staff members, you will most likely have probs and have to increase your dosage again, especially w/your cardiac involvement.
If you do decide to go with the less frequent Benicar dosing, it will most likely turn into an "I told you so," and NOT good for YOU, the patient. (customer)
Please let us know how it goes for you. (maybe when you complete your questionnaire, Meg will make some comments there, for you, if not here)
Happy New Year!
PS I just started exercising today... woohoo!  (I'll keep you posted)
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CelticLadee
member
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Posted: Tue Dec 28th, 2004 22:56 |
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Thank You Dr. T.M. and Reenie,
I very much appreciate your input and encouragement and support.
LOL.... well Dr. T.M. if you don't recall it in the MP then perhaps it doesn't exist! That cracks me up... You are the author after all. LOL
My MP doc is on holiday break vacation so I am unable to communicate with her until after the holidays. But I will let her know what you have told me and hopefully she will call you Dr. T.M. if needed.
This delay is really making me crazy but there is really nothing I can do. Hopefully the CWD bugs don't get any ideas in the meanwhile. I really do not want to fight again in won battle fields!  I wish I had my blood test lab request so at least I could be working on that!  It'll take a couple weeks to get the reports back! I can't figure out what is so important about 1,25 D test results now though as everything I read here discounts the value of this reading at this time unlike before you start the MP. But I do understand the need to first see how my liver and kidney functions, etc. are doing. That makes great sense to me.
Well, Reenie I wish my MP doc did read my progress reports but a couple of times she commented that she hadn't read them so I am doubtful. It is a bit much to ask for when she has a busy practice and a busy life.
Congrats! Totally cool that you are about to undertake some exercise! That is really one of my greatest desires. I would love to do some gentle Yoga or something to get my muscles toned. I look forward to the day when I have enough energy & health to walk Cricket further than the paperbox but I'm holding back while I fight the bugs. Maybe while I'm in this holding pattern I could venture out a little further? I can feel new life emerging in my body as the infection loses ground. I think walking would make me sleep better at night. Hey .. ya know I've noticed lately that it doesn't bother my eyes as much now when I take off my NoIR's to get a better look at something. That is a good sign too.
I am glad to hear that the P2 isn't so bad for you. Hope it goes as well for me... I try not to dread it. Keep up the good work Reenie!
Yeh, I would like to stay at q6h on the Benicar cause that is when I feel the best and I don't like the idea of being so close to the edge to when you lose the blockade. Mess up your time and you suffer for a few days. I like the cushion q6h gives me and if I happen to stretch it a little ... no harm done.
Thanks again for posting in my thread. Great to hear from both of you!
HAPPY NEW YEAR EVERYBODY!
CelticLadee
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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Reenie
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Posted: Tue Dec 28th, 2004 23:12 |
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CL,
I would like to suggest, you print out your last few pages of your progress report and hand it to your Dr. You can say, you'd like to have her include it in your chart. 
As for the walking you do, it's already MORE than I've been doing. I just started my Pilates tape and am signed up for a gentle yoga class one day a week, starting in a few weeks.
Then, as able, I'll add a walk to the mailbox for Sweetpea and Sly. They'll be sooooo excited about that!
All of this means I'm going to be going outside more often, too, which I think I can handle. I will slowly start to increase my daytime exposure, covered up, of course.
If you FEEL like you can do a little more now, while in a holding pattern, I'd encourage you to do it, CL. IMO, it will add to your stamina before plunging into Phase 2.
I'm not as sensitive in my eyes either, most of the time, but I find if I take off my NoIRs too much, when I put them back on, I get dizzy for a bit. That's definitely a warning.
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Reenie
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Posted: Wed Dec 29th, 2004 02:41 |
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Meg says, "We caution folks with a history of cardiac arrhythmias to take Benicar 40mg every six hours and to be on the alert for cardiac Herxheimer reactions."
http://www.marshallprotocol.com/forum22/1634.html
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CelticLadee
member
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Posted: Thu Dec 30th, 2004 21:34 |
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Hello HRH Queenie Reenie.... Thanks for your help!
DAY 134 - TUES. 4 PM. - WED. 12/28-29/2004.
Benicar 40 mg. q6h
Minocycline 100 mg. 16th dose.
No Quercetin.
Sleep: The usual 3 am. wake up. Slept okay.
Sx: Had a slight backache for less than a couple hours.
Ex: The usual.
DAY 135 - WED. 4PM. - THURS. 12/29-30/2004.
Benicar 40 mg. q6h.
No Minocycline.
No Quercetin.
Sleep: The usual 3 am. wake up. Slept okay.
Sx: Had some sacroiliac nerve pain down my left leg for a few minutes while standing. When I took my afternoon nap when I lay down my heart did flip flops for 5-10 minutes.
Ex: The usual.
Still feeling good and nothing much is going on.
CL Happy New Year everybody!
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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Reenie
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Posted: Thu Dec 30th, 2004 22:45 |
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CelticLadee says, "When I took my afternoon nap when I lay down my heart did flip flops for 5-10 minutes."
More info for Dr why you NEED to have Benicar q6h.
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CelticLadee
member
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Posted: Sat Jan 1st, 2005 21:46 |
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Good point Reenie.
DAY 136 - THURS. 4 PM. - FRI. 12/30-31/2004.
Benicar 40 mg. q6h.
Minocycline 100 mg. 17th dose.
No Quercetin.
Sleep: Okay, you are going to laugh but I think I found an answer for my sleep problem. Often times my hubby gets up and drinks a cup of milk to help him sleep. So since I can't drink our vit. D fortified milk but we do have Breyer's natural vanilla ice cream which isn't fortified with D ... I thought... WHY NOT? So I got up & I ate a couple of small scoops, went back to bed and then I slept really well. How about that for a wonderful sleep formula? LOL.
Sx: Nothing going on.
Ex: The usual.
DAY 137 - FRI. 4 PM. - SAT. 12/31/04 - 01/01/05.
Benicar 40 mg. q6h.
No Minocycline.
No Quercetin.
Sleep: Well, I thought since the Breyer's ice cream worked so well last night why not try it just before bed to see if it works again. Yep! It did. I slept so good. I enjoy this experiment and will continue it to see if continues to work for me. Best medicine I ever tasted. I slept so good last night I didn't need a nap today either! Of course, I'm not herxing either which makes a big difference too.
Sx: Nothing going on.
Ex: None.
Feeling really great!
Look out 2005 - I'm coming alive! Hope everybody increases in their wellness this year.
CL
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee
member
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Posted: Mon Jan 3rd, 2005 22:17 |
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DAY 138 FULL PROTOCOL.
DAY 152 SINCE STARTING MP.
SAT. 4 PM. - SUN. 01/01 -02/2005.
Benicar 40 mg. q6h.
Minocycline 100 mg. 18th dose.
No Quercetin.
Sleep: Well that didn't last long. The B ice cream didn't work tonight. I was awake from 2:30 am. - 5:30 am. 3 hours of tossing and turning! Taking Mino. earlier and eating ice cream don't always make a difference but during menses I have hormone shifts that can be impossible as far as getting good sleep. During menses all my sx flare up! Slept an hour at nap time 1-2 pm.
Sx: Feel like I'm catching a cold ... sniffles and bit of a sore throat.
Ex: Cricket & I took the usual fast walk to the paperbox. Wanted to increase my walk but it was so dark & cold I begged out.
DAY 139 - SUN. 4PM. - MON. 01/02-03/2005.
Benicar 40 mg. q6h.
No Minocycline.
No Quercetin.
Sleep: I slept better than last night. But woke up numerous times before falling to sleep again. Slept for an hour at nap time 1-2 pm.
Sx: Woke up with a muscle spasm in my left leg. I shot out of bed and walked it off before it got too serious. This area in my leg is a little sore today. Experienced some chest pressure and palpitations today. At times breathing felt labored. Sinuses still a bit stuffy and sniffly and head feels a little bit of pressure. Benicar fixes all of above until it starts to wear off.
Ex: The usual.
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee
member
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Posted: Wed Jan 5th, 2005 23:08 |
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DAY 140 - MON. 4 PM. - TUES. 12/3-4/2005.
Benicar 40 mg. q6h.
Minocycline 100 mg. 19th dose.
Quercetin 400 mg. at 1 pm.
Sleep: Had the usual wake ups & slept lightily in between them.
Sx: Chest pressure increased Some heart palpitations. Took Quercetin at 1 pm. to help out. Right side head & face sinuses acting up. Mon. night the initial reaction to the Minocycline was relief of these sx's but Tues. they came back full force.
Ex: The usual.
Talked with my MP doctor and she thinks I am having some cardiac herxing going on here. Will be going to the Quest Diagnostic lab tomorrow to have the D's retested. She agrees Benicar at q6h is okay and says she previously just wanted to see if I could do q8h. The chest pressure I am having isn't unbearable but it does make me uncomfortable at times and further limits my activities. At its worst I felt like I was going to burst but after taking Benicar & Quercetin and laying down it improved. During menses my sx always get worse so we will see how I feel over the next week and then see what the tests reveal. My first tests were done at DynaCare Labs and doc thinks my 1,25 D @ 63.9 may have been a lower reading than actuality based on her experiences with that lab.
DAY 141 - TUES. 4 PM. - WED. 12/4-5/2005.
Benicar 40 mg. q4h. (traveling on a bright sunny day.)
No Minocycline.
Quercetin 400 mg. @ 3:00 am.
Sleep: Slept okay ... usual multiple wake ups but went back to sleep.
Sx: Right side sinuses & right eye bothering me last night & today. My right eye has been bothering me a lot the last week or so. Maybe an eye herx?
Improvements: Chest pressure and heart palpitations almost non-existent today.
Spent the day riding in the car with hubby and Cricket on a bright sunny day. I did the full cover up except face and NoIRs at all times. Had a blood draw at Quest Diagnositic lab then visited my parents. Feeling okay so far & do feel much better than yesterday.
Ex: The usual.
CL
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee
member
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Posted: Fri Jan 7th, 2005 22:40 |
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DAY 142 - WED. 4 PM. - THURS. 01/05-06/2005.
Benicar 40 mg. q6h.
Minocycline 100 mg. dose 20.
No Quercetin.
Sleep: Slept fairly well.
Sx: Right eye is irritated - gritty & burning & achy. Brain feels a little swollen on right side and mind is sluggish affecting speech Thur. night.
Ex: The usual.
Day 143 - THURS. 4 PM. - FRI. 01/06-07/2005.
Benicar 40 mg. q6h.
No Minocycline.
Quercetin 400 mg. @ 3:00 am.
Sleep: Rough night. Woke up at 2:15 am. and the pain in my right eye spread behind it into the sinuses along the right side of my head. Right front tooth mildly aches. Was awake until after 5 am. in discomfort until Benicar and Quercetin hit me.
Sx: Right eye is still feelilng inflamed today - visually it looks okay - but it feels raw. Also sinus pressure at right temple area & around eye/nose area. This is the type of sx (but pain lessened) I lived with daily until the MP. This is classic for me - like revisiting a bad movie. Makes reading difficult at times.
You just never know from day to day what "in the world" you will experience! I thought I was over with right side sinus/eye/tooth inflammation and then it came back to bite me!
There are only two things I have done differently that we can think of that began my onset of herxing the past week (including the cardiac herx): 1. I ate a slice of Tillamook cheddar cheese. ( I gave it up 2001 because it increased the right side headache/sinus sx's) and 2. I started a new bottle of Minocycline - the capsules are a different color as they are a new batch. I can give up the cheese cause it was just an experiment anyway but I can't stop the Mino.
Ex: None. Felt too tired this morning and it was very cold & raining, which by the way, turned to snow later.
CL
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FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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