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CelticLadee member

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Posted: Sat Mar 12th, 2005 21:46 |
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DAY 206 - (full protocol) - THUR. 3 PM. - FRI. 3 PM. - 03/10-11/2005.
PHASE 2 @ DAY 49 / LEVEL 1 / CYCLE 4 / DAY 3.
Benicar 40 mg. q6h. / 50 mg. Mino / No Z / No Q.
Sleep: 10-6. Many awakenings but so tired feeling went right back to sleep each time. Nap 1:00 - 1:15 pm.
Sx: Symptoms settling down. Left leg achy... looks to me like I'm developing some varicose veins. ugh. I suppose it is partially why this left leg has been chronically achy. Didn't notice the twisted blue veins in two spots bulging on inner thigh until this week. Cough once in awhile.... no phelgm today. Right breast sore last couple days. Brain fog. Emotional. Abdomen has sore areas. Had some heartburn after dinner Fri evening & Benicar seemed to make stomach hurt worse for awhile.
Ex: The usual... not so stiff today... walk was normal pace.
Comments: Feeling pretty good today. Vacuumed part of the house.
  
DAY 207 - (full protocol) FRI. 3 PM. - SAT. 3 PM. - 03/11-12/2005.
PHASE 2 @ DAY 50 / LEVEL 1 / CYCLE 4 / DAY 4.
Benicar 40 mg. q6h. / No Mino / No Z / No Q.
Sleep: 10:30 - 8:00. Woke up at 3 am. .. needed Benicar legs & shoulders achy. Cricket was sick so took her out. Back to sleep around 4 am. - 8 am. with some brief wake ups. Nap 1-2:30 pm. off and on.
Sx: Sore, achy, burning overall mildly. Clear cough. Left chest, armpit & up neck stiff and achy. Fingers joints stiff and sore. Brain fog. Abdomen still has sore areas. Some extra fatigue today.
Ex: None
Comments: Not feeling quite as good as yesterday but not as bad as day 1 or 2. I am in good spirits. Things aren't bothering me and I feeling optimistic. 
  
CL 
____________________ FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee member

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Posted: Mon Mar 14th, 2005 21:14 |
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DAY 208 - (full protocol) - SAT. 3 PM. - SUN. 3 PM. - 03/12-13/2005.
PHASE 2 @ DAY 51 / LEVEL 1 / CYCLE 4 / DAY 5.
Benicar 40 mg. q4h. /increased to 100 mg. Mino / No Z / No Q.
Initial Sx: Woozy head, sharp pain in palm of left hand sudden then gone. Fatigue. Jaws buzzy and abdomen feels tight & bloated. Metallic taste in mouth. Legs, arms & hands buzzy feeling. Burning stomach.
Sleep: 10 - 8. Took a long time to get to sleep as I feel wired from the Mino. Woke up multiple times with very achy body. Could not get back to sleep. Took extra Benicar at 2 am. & 6 am. to help calm the herxing. Finally went back to sleep then. Woke up tired. Nap from 1-2 pm. I slept hard & woke up feeling much better rest of the day.
Sx: Widespread body aches. Left chest especially sore & tender. Left neck/ear pain. Am still feeling somewhat bloated but tummy area isn't as sore and tight as yesterday. Left leg was very achy and uncomfortable for about 12 hours. Some little bumps on scalp sore.
Ex: Cricket and I walked to the paperbox twice today but the paper wasn't there either time.
Comments: Today I feel like I was put in a rock tumbler and the rocks won! Not unbearable herx but I am very sore almost every area imagineable. By evening the herxing has all but stopped and I am feeling much better and a lot less sore. 24 hours of discomfort but I feel good about it..... I think I killed a good batch of those nasty critters!
 
DAY 209 - (full protocol) - SUN. 3 PM. - MON. 3 PM. - 03/13-14/2005.
PHASE 2 @ DAY 52 / LEVEL 1 / CYCLE 4 / DAY 6.
Benicar 40 mg. q6h. / No M / No Z / Q x 1 / Tylenol 500 x 1.
Sleep: 10-6. Could not get to sleep so at 11 pm. took Quercetin. Still could notsleep so about 45 min. later took a Tylenol 500. This all seemed to help me as nextthing I knew I was asleep finally. Slept restlessly with many awakenings but seemedto fall asleep fairly soon. Woke up tired. Nap from 1 - 1:30 pm.
Sx: When trying to get to sleep a few spots on my scalp kept itching & the itchy/sore bumps are scabbed over from scratching them. Also I kept jolting in bed as pin stabs would suddenly hit the back of my right leg and then it would itch afterward. Right leg had a sore spot at same area yesterday. Also kept feeling like a bug crawling on me and had to keep rubbing various spots until theQuercetin and Tylenol kicked in. A few mild sore spots today but nothing like yesterday.
Ex: The usual.
Comments: Feeling better today and at 3 pm. will try the 100 mg. Mino again.
  
Welcome back conference goers. Hope you had a marvelous time.
CL 
Last edited on Mon Mar 14th, 2005 21:19 by CelticLadee
____________________ FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee member

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Posted: Wed Mar 16th, 2005 22:03 |
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DAY 210 - (full protocol) - MON. 3 PM. - TUES. 3 PM. - 03/14-15/2005.
PHASE 2 @ DAY 53 / LEVEL 1 / CYCLE 4 / DAY 7.
Benicar 40 mg. q6h. / 100 mg. Mino / No Z / No Q.
Sleep: 10:15 - 6:15. Slept fairly well with a few awakenings but went right back to sleep. No nap today.
Sx: Nothing much worth mentioning... just a few transient aches & sore spots. Feeling very good! Very little if any reaction from Mino so far. Quite a contrast from day 208! Must mean the Z has decayed enough now to not cause such a big stir and/or I am getting enough Zith+Mino susceptible bugs killed to not have such a strong reaction. Had a sense of well being all day .... felt well ... like the window Reenie talks about when you feel wonderful for a change! Very cool! Is this a flicker of light at the end of the tunnel that Dr. Trevor refers to giving us the hope to carry on? I think it is! 
Ex: The usual.
   
DAY 211 - (full protocol) - TUES. 3 PM. - WED. 3 PM. - O3/15-16/2005.
PHASE 2 @ DAY 54 / LEVEL1 / CYCLE 4 / DAY 8.
Benicar 40 mg. q6h. / No Mino / No Z / No Q.
Sleep: 10-6. Woke up at 2:30 so took Benicar. Could not get back to sleep until 5:30 am. Nap 8-9 am. Nap 1:30 -2:30 pm.
Sx: Well, the window has slammed back shut for now. But that was a nice 12 hour break. Tonight (Tues) I feel like I'm catching a cold. Sinuses are irritated, sneezing and have a sore throat. I am wondering because I didn't do my nap if I over taxed my system. Had restless legs again and neuropathy in the night. Fatigue today so took a couple of naps. Leg muscles cramping when cold & prone to chills on this rainy, windy day so am now wearing two pairs of sweatpants which improved my symptoms. It is 70 degrees in the house but I guess the dampness penetrates. Have been fighting off constipation this week by eating extra salads, carrots, etc. but I may have to bring out the MOM again. I always drink lots of water and do daily take a probiotic.
Ex: The usual.
  
CL 
Last edited on Thu Mar 17th, 2005 02:39 by CelticLadee
____________________ FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee member

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Posted: Fri Mar 18th, 2005 22:08 |
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DAY 212 - (full protocol) - WED. 3 PM. - THURS. 3 PM. - 03/16-17/2005.
PHASE 2 @ DAY 55 / LEVEL 1 / CYCLE 4 / DAY 9.
Benicar 40 mg. q6h. / 100 mg. Mino / No Z / Q x 1 / Tylenol 500 x 1.
Sleep: 10-6:30. Insomnia.Went to bed at my usual 10 pm. time but could not get to sleep. At 12 am. I took Quercetin, at 1 pm. took Tylenol, 2:30 am. took Benicar. THEN I finally fell asleep. Probably got just about 4 hours sleep. Nap from 9-10 am.slept good. Nap from 2-2:30 but didn't sleep.... just rested.
Sx: Sinuses membranes are very dry, tiny bit of blood. Fatigue and a little bit achy and stiff. Queasy tummy Thurs. afternoon a few hours. Inner thighs burning tonight. .
Ex: The usual.
  
DAY 213 - (full protocol) - THURS. 3 PM. - FRI. 3 PM. - 03/17-18/2005.
PHASE 2 @ DAY 56 / LEVEL 1 / CYCLE 4 / DAY 10.
Benicar 40 mg. q6h. / No Mino / No Z / Q x 1.
Sleep: 10-6. Insomnia. Could not get to sleep. At 11:00 pm took Quercetin. Slept off & on from 12-6. Probably got about 4-5 hours sleep. Hubby home & got busy helping him & forgot morning nap although I needed it. Nap: 1-2 pm. slept hard.
Sx: Fatigue is bad today. Achy & burning muscles. Brain fog is bad today.
Ex: The usual.
  
CL 
____________________ FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee member

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Posted: Mon Mar 28th, 2005 20:58 |
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DAY 214 - (full protocol) - FRI. 4 PM. - SAT. 3 PM. - 03/18-19/2005.
PHASE 2 @ DAY 57 / LEVEL 1 / CYCLE 5 / DAY 1.
Benicar 40 mg. q4h. / 100 mg. Mino 3 pm. / Z / No Q. / Tylenol 500 as needed.
Sleep: 11-8. Slept until 2 am. took Benicar. Slept until 6 am. took Benicar. Did not have to set alarm cause my body just woke me up needing Benicar. Nap 1:30 -2:30 pm.
Sx: Achy muscles & stiff joints. Mild headache, wet nose & cough w/ phelgm. Eyes irritated, malaise, and queasy tummy at times. Fatigued. Transient sore spots.
Ex: None.
DAY 215 - (full protocol) - SAT. 3 PM. - SUN. 3 PM. - 03/19-20/2005.
PHASE 2 @ DAY 58 / LEVEL 1 / CYCLE 5 / DAY 2.
Benicar 40 mg. q4h. / No Mino/ No Z / No Q.
Sleep: 10:30 - 7:30. Again did not have to set alarm cause my body just woke me up needing Benicar at 2 am. and 6 am. Nap from 1:45 - 2:45 pm.
Sx: Chest aches, coughing phelgm, a couple mild bronchial spasms. Some heart palpitations & heart pain twinges. Some pain in left side of neck under ear area. Queasy tummy at times. Mild headache for a few hours but went away on own. Cricket jumped on my left chest area under my collarbone and it was intensely painful for a few minutes. Felt like a red hot poker stabbing me where her little foot stepped on me.
Ex: The usual.
DAY 216 - (full protocol) - SUN. 3 PM. - MON. 3 PM. - 03/20-21/2005.
PHASE 2 @ DAY 59 - LEVEL 1 / CYCLE 5 / DAY 3.
Benicar 40 mg. q4h. / 100 mg. Mino 3 pm. / No Z / No Q.
Sleep: 10-6. Again did not have to set alarm cause my body just woke me up needing Benicar at 2 am. and 6 am. Nap from 1:00 - 1:45 pm.
Sx: Chest pressure, heart palpitations, chest ache & sore, cough, phelgm, sore spots on head that scabbed now have twinges of pain. Eyes irritated with mild headache. Shoulders, back, arms, legs, fingers transient aches. Nose is wet.
Ex: The usual.
DAY 217 - (full protocol) - MON. 3 PM. - TUES. 3 PM. - 03/21-22/2005.
PHASE 2 @ DAY 60 - LEVEL 1 / CYCLE 5 / DAY 4.
Benicar 40 mg. q6h. / No. Mino / No Z / No Q.
Sleep: 10-6. Woke up at 4 am. and took Benicar. Slept pretty good with only two or so awakenings. Felt rested when I got up. Nap 12:45 - 1:15 pm.
Sx: Sinuses irritated, bronchials irritated, coughing, phelgm, spots on head hurt at times, mild headache & nose is wet. Transient aches and pains and sore spots. Left eye mild pain at times.
Ex: The usual.
DAY 218 - (full protocol) - TUES. 3 PM. - WED. 3 PM. - 03/22-23/2005.
PHASE 2 @ DAY 61 - LEVEL 1 / CYCLE 5 / DAY 5.
Benicar 40 mg. q6h. / 100 mg. Mino 3 pm./ No Z / No Q.
Sleep: 10:30 - 6. Woke up at 4 am and took Benicar. Woke up feeling tired. Nap: 12:45 - 1:45 pm.
Sx: Some fatigue this morning. (wed.) Same sx listed yesterday more mild today.
Ex: The usual.
DAY 219 - (full protocol) - WED. 3 PM. - THURS. 3 PM. - 03/23-24/2005.
PHASE 2 @ DAY 62 / LEVEL 1 / CYCLE 5 / DAY 6.
Benicar 40 mg. q6h. / No Mino / No Z / No Q.
Sleep: 10:30 - 6. Woke up at 4 am and took Benicar. Woke up feeling tired. Nap: 9-10 am. Nap: 1:30 -2:15 pm.
Sx: Some fatigue this morning ( thurs.) Things settled down except for sore spots. All week have had sore spot on right hip and left shoulder. Feels like bruise but no bruising evident and have had no injury to areas. Other sore spots have come & gone also. Emotional today....cry easily.
Ex: The usual.
DAY 220 - (full protocol) - THURS. 3 PM. - FRI. 3 PM. - 03/24-25/2005.
PHASE 2 @ DAY 63 / LEVEL 1 / CYCLE 5 / DAY 7.
Benicar 40 mg. q6h. / 100 mg. Mino 3 pm. / No Z / No Q.
Sleep: 10:30 - 6. Woke up at 4 am and took Benicar. Woke up feeling tired again. Nap: 9-10 am. Nap: 1-2 pm. Lay down for 15 minutes 3:30 pm. just to rest not sleep.
Sx: Malaise, bone pain in right leg few hours, sinuses slightily irritated, some sneezing. Brain fog & melancholy. Ringing in ears. Chills for an hour 6:30-7:30 pm. Sinuses starting to ache around eyes. Nose membranes feel dried out. Not a good day! Fatigue through out the day.. Sore spots.
Ex: The usual.
DAY 221 - (full protocol) - FRI. 3 PM. - SAT. 3 PM. - 03/25-26/2005.
PHASE 2 @ DAY 64 / LEVEL 1 / CYCLE 5 / DAY 8.
Benicar 40 mg. q6h. / No Mino / No Z / No Q.
Sleep: 10-8. Woke up at 3 am. took Benicar. Could not get back to sleep so after an hour took Tylenol 500 mg. & Quercetin 400 mg. Slept from 5-8 am.
Sx: Feeling better today. Fatigue let up. No naps needed today. Pain under ribs, digestive organ areas, increased when took Mino. at 3 pm. continued through evening.
Ex: None.
DAY 222 - (full protocol) - SAT. 3 PM. - SUN. 3 PM. - 03/26-27/2005.
PHASE 2 @ DAY 64 / LEVEL 1 / CYCLE 5 / DAY 9.
Benicar 40 mg. q6h. / 100 mg. Mino 3 pm. / No Z / No Q.
Sleep: 10-7:15 am. Woke up at 1:30 am but went back to sleep. Woke up at 3:30 am. took Benicar and slept until 7:15 am. Nap: 1-2 pm. but just slept 1/2 hour.
Sx: Top of head hurts sometimes, right hip sore, various aches and pains & some burning sensations. Sinuses feel irritated....no headache but feel like one is working up. Around eyes, etc. feel touchy. Haven't felt pain in digestive organs under ribs today except for a few minutes & the pressure/soreness like I got kicked there is gone. Feeling irritable today. Itchy and sore bumps on scalp have come back again & scalp is sore.
Ex: The usual.
HAPPY EASTER EVERYBODY!
DAY 223 - (full protocol) - SUN. 3 PM. - MON. 3 PM. - 03/27-28/2005.
PHASE 2 @ DAY 65 / LEVEL 1 / CYCLE 5 / DAY 10.
Benicar 40 mg. q6h. / No Mino / No Z / No Q.
Sleep: 10-6:30 am. Woke up at 1:30 am but went back to sleep. Woke up at 3:30 am. took Benicar and slept until 5:45 am. Got up to let Cricket out and went back to bed until 6:30 am. Feeling tired. Nap: 9-10 am. Nap: 1-1:30 pm. lay down but didn't sleep.
Sx: Top of head still has twinges of pains periodically. Itchy and sore bumps have scabbed up from scratching my scalp.Scalp is only slightily sore now. Some mild transient aches shoulders & legs. Sinuses and eyes are feeling better today. A bit of chest pressure this afternoon with some very mild heart palpitations.
Ex: The usual.
Comments: Although I have quite a bit going on herxing I am not feeling miserable. Sometimes I do admit I have had short periods of feeling bad & get tired of not feeling good but about then I have a period of lesser symptoms. However, I did not see a solid pattern of my symptoms lessening in this cycle as day 10 approached. Symptoms wax and wane and change almost daily.
CL
____________________ FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee member

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Posted: Thu Apr 7th, 2005 22:37 |
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Observations: Although I have quite a bit going on herxing I am not feeling miserable. Sometimes I do admit I have had short periods of feeling bad & get tired of not feeling good but about then I have a period of lesser symptoms. However, I did not see a solid pattern of my symptoms lessening in cycle 5 as day 10 approached. Symptoms wax and wane and can change almost daily. Insomnia continues to plague me although I am getting better sleep than prior to MP. Another problem I have is I continue to have chills easily if the weather turns to cold and raining although the house is always 70 degrees. I have noticed over the last month or more improvement in the ability to stretch muscles without cramps or spasms grabbing hold. With the onset of more sinus irritation I have had more pre-headache manifestations but they have not bloomed into more than few mild headaches resolved with one Tylenol. Food intolerance continues to resolve and digestion has improved over the months on the MP. Presently I feel continual manifestations of the Zithromax invading the deeper tissues and have had multiple sore spots as well as increased irritation in the heart, digestive & reproductive organs, lungs, sinuses, top of head & scalp. My newest symptom, never had before, is the lung irritation. I have had my bronchials inflamed before and during MP but this is lower and deeper in the lung lobes. I feel I am making progress.
DAY 224 - (full protocol) - MON. 3 PM. - TUES.. 3 PM. - 03/28-29/2005.
PHASE 2 @ DAY 66 / LEVEL 1 / CYCLE 6 / DAY 1.
Benicar 40 mg. q6h. / 50 mg. Mino 3 pm./ Z/ No Q.
I went ahead and increased the Z because I figured I am having continuous herxing anyway and maybe it would change with an increase??? and the tablet I cut weeks ago has probably lost some strength sitting around all this time so can afford to take more of it. We will see if my deductions are correct or not.
Initial Sx: Felt energized and all sx improved.
Sleep: 10:15 - 6:00. Woke up at 2 am. but went right back to sleep. Woke up at 3:30 am. took Benicar and slept until 6 am. Nap. 9:15 am. - 10:15 am. Nap: 12:45 - 1:15 pm. didn't sleep... just rested.
Sx: Some fatigue, some mild transient aches in large muscles. Left leg some muscle twitches for awhile. A 3 star day.
Ex: Walked to the paperbox with Cricket early AM.
DAY 225 - (full protocol) - TUES. 3 PM. - WED. 3 PM. - 03/29-30/2005.
PHASE 2 @ DAY 67 / LEVEL 1 / CYCLE 6 / DAY 2.
Benicar 40 mg. q6h. / No Mino / No Z / No Q.
Sleep: 10:30 - 6. Woke up at 3:30 am. took Beni. and then slept until 6 am. Nap: 1-2 pm.
Sx: Twitchy feelings in left leg off and on. Felt better today than I have felt in quite awhile. Not much going on.... a 4 star day.
Ex: The usual.
DAY 226 - (full protocol) - WED. 3 PM. - THURS. 3 PM. - 03/30-31/2005.
PHASE 2 @ DAY 68 / LEVEL 1 / CYCLE 6 / DAY 3.
Benicar 40 mg. q6h. / 50 mg. Mino 3 pm / No Z / Quercetin 400 x1 / Tylenol 500 x1.
Sleep: Insomnia. Could not go to sleep so at 12 am. took Q. & Tylenol. Slept from 12:30 am. - 6 am. Alarm woke me to take Benicar then slept from 6 am - 6:45 am. Nap: Slept from 12:45 - 1:45 pm.
Sx: Before and after lunch today I felt sickish with some heart pressure so took BP... it was fine 116/61 but I noted I was skipping heartbeats frequently. Feeling better after my nap. If arrhythemia returns I will increase beni to q4h. Not feeling too bad... a 3 star day.
Ex: The usual.
DAY 227 - (full protocol) - THURS. 3 PM. - FRI. 3 PM. - 03/31-04/01/2005.
PHASE 2 @ DAY 69 / LEVEL 1 / CYCLE 6 / DAY 4.
Benicar 40 mg. q6h. / No Mino / No Z / No Q.
Sleep: 10-6. Insomnia. Woke up at 2 am. went to bathroom. Woke up at 3:00 am took Benicar. Woke up at 6:00 am. turned off alarm. Woke up at 6:45 am. and got up. Nap: 1 - 2 pm.
Sx: Heart area soreness sometimes a tiny pinch pain. Lungs irritated & sore....periodically short wheezy spell.....mostly dry cough but sometimes tiny bit of phelgm. Some transient mild aches and pains. Two old sprain injuries kicked up that I haven't been bothered with for years and years....right ankle and right wrist pain. Not feeling too bad ... a 3 star day.
Ex: The usual.
DAY 228 - (full protocol) - FRI. 3 PM. - SAT. 3 PM. - 04/01-02/2005.
PHASE 2 @ DAY 70 / LEVEL 1 / CYCLE 6 / DAY 5.
Benicar 40 mg. q6h. / 100 mg. Mino / No Z / Q 400 x 1 / Tylenol x 1.
Sleep: 10-6. Insomnia. Could not get to sleep. At 11:30 pm. took Q. & Ty. Slept from 12 am.until 4:15 am. Aches woke me up to take Benicar. Nap: 1-2 pm.
Sx: Woke up with cramps in my right ovary. Transient aches and pains and some burning & prickling sensations. Shoulders seem to be pretty sore and heart area. Lungs irritated and coughing. A little bit of phelgm. Teeth sensitive, eyes burning & nose wet. Leg muscles feel like they want to cramp a bit at times. Not feeling too bad. 3 star day
Ex: None.
DAY 229 - (full protocol) - SAT. 3 PM. - SUN. 3 PM. - 04/02-03/2005.
PHASE 2 @ DAY 71 / LEVEL 1 / CYCLE 6 / DAY 6.
Benicar 40 mg. q6h. / No Mino / No Z / Q 400 x 1 / Tylenol 500 x 1
Sleep: 10-6. Insomnia. Could not get to sleep. At 11 pm took Q & Ty. Slept from 11:30 - 3:30 am. then slept from 4-6 am. Nap:
Sx: Lung irritation and cough & a little bit of phelgm. Fatigue. Cold rainy day is giving me the chills. Feeling okay. 3 star day.
Ex: The usual.
DAY 230 - (full protocol) - SUN. 3 PM. - MON. 3 PM. - 04/03-04/2005.
PHASE 2 @ DAY 72 / LEVEL 1 / CYCLE 6 / DAY 7.
Benicar 40 mg. q4h. (doctor apptmt. today ... going out for the day) / 100 mg. Mino / No Z / Q 400 x 1 / Tylenol 500 x 1.
Sleep: 10-7. Insomnia. Could not get to sleep so took Q & Tylenol. Slept from 11-2. Irritable bladder had to use the bathroom.Took Benicar at 2 am. Slept from 4-6 am. Took Benicar at 6 am. Slept from 6:15-7:00 am. No naps today cause I'm on the road.
Sx: Lung irritation & coughing sometimes. Some chest pressure and heart palpitations. Some sore spots and burning sensations in muscles. Feeling good. Forgot to mention that I have had ovary pain, bladder irritation & urgency the past few days. Should make my day trip more interesting! haha. 3 star day.
Ex: The usual.
DAY 231 - (full protocol) - MON. 3 PM. - TUES. 3 PM. - 04/04-05/2005.
PHASE 2 @ DAY 73 / LEVEL 1 / CYCLE 6 / DAY 8.
Benicar 40 mg. q6h. / No Mino / No Z / Q 400 x 1 / Tylenol 500 x 1.
Sleep: 10-6. Insomnia. Could not get to sleep. Took Q & Tylenol. Slept from 11 - 2. Irritable bladder had to use the bathroom. Slept from 2:30-4:30 am. woke up without alarm took Benicar. Slept until 6 am. Nap at 9-10 am. Nap at 1-2 pm. Nap: 3:30-4 pm.
Sx: Fatigue!!! Feeling wiped out today. Can't seem to do anything without waves of it making me want to go lay down again. I got way too much light yesterday for sure sitting in the doctors waiting room without my NoIRs...just sunglasses on! Duh...I know! When you sit in front of a wall of windows without NoIRs you are exposing your eyes to natural light. I was on time & didn't think I was going to have to wait longer than a couple of minutes. Duh...I know! When are doctors ever on time??? Reminder to make my apptmt. first one of the day. haha. Lungs still irritated and coughing sometimes. Nose wet. Various transient aches and sore spots. Eyes somewhat irritated & burning more easily today when in front of monitor. 2 star day.
Ex: The usual.
DAY 232 - (full protocol) - TUES. 3 PM. - WED. 3 PM. - 04/05-06/2005.
PHASE 2 @ DAY 74 / LEVEL 1 / CYCLE 6 / DAY 9.
Benicar 40 mg. q6h. / 100 mg. Mino / No Z /Q 400 x1 / Tylenol 500 x 1.
Sleep: 10:30-6. Insomnia. Could not get to sleep. Took Q & Tylenol. Slept from 12:30 - 1:30 am. Irritable bladder had to use the bathrroom twice. Slept from 1:30 - 3:30 am. woke up without alarm took Benicar. Slept from 4-6 am. Nap: 1:15 - 2 pm.
Sx: Surprising enough after a rough night I am not feeling fatigued today. In fact I had a lot of energy so I put it to good use and rearranged a lot of things in our storage closets. Now my shoulder muscles are sore and burning but I have the satisfaction of having this job done finally after months of it bugging me. I woke up with a mild sore throat & wet nose but it left me after a few hours. Slight lung irritation this afternoon. 4 star day.
Ex: The usual.
DAY 233- (full protocol) - WED. 3 PM. - THURS. 3 PM. - 04/06-07/2005.
PHASE 2 @ DAY 75 / LEVEL 1 / CYCLE 6 / DAY 10.
Benicar 40 mg. q6h. / No Mino / No Z / No Q.
Sleep: 10-7. Took about an hour to get to sleep. Woke up at 12 am. to go to the bathroom. Slept until 4:30 am. woke up and took Benicar. Slept until 7 am.
Sx: Most all sx have calmed. Slight achiness in back and shoulders from working yesterday. Lung irritation & sore throat gone. Still have wet nose.
Ex: None.... was raining hard so hubby retrived the paper for me.
Not as energetic so 3 star day.
Observation: This cycle 6 I can see more clearly that day 2, 9 and 10 were less herxing days. I strongly sense that Z is doing a good job and I feel less infected. I have more frequent moments of feeling wellness.... moments I feel like "my old self". This is very encouraging for me!!!
CL 
____________________ FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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Arlene member
| Joined: | Tue Nov 16th, 2004 |
| Location: | New Jersey USA |
| Posts: | 385 |
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Posted: Mon Apr 11th, 2005 23:12 |
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Dear CL,
Glad to hear you are your young self again !!
Best wishes, Arlene
____________________ CFS'93,Lyme/Borreliosis'02,hypothyroid,restless leg, sleep distb, Synthriod,Mirapex,Ambien,DHEA. 12/2/04-Benicar q6h, Mino start 12-31-04, Quercitin Q8H, 1,25D/D 11/04-68/18, 1/05-40/28, 9/05-14/9 PhaseII 4-19-05
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CelticLadee member

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Posted: Mon Apr 18th, 2005 00:37 |
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DAY 234 - (full protocol) THURS. 3 PM. - FRI. 3 PM. - 04/07-08/2005.
PHASE 2 @ DAY 76 / LEVEL 1 / CYCLE 7 DAY 1.
Benicar 40 mg. q6h. / 100 mg. Mino / Z / Q 400 x 1 / Tylenol 500 x 1.
Initial Sx: Jaw/teeth irritation. Back of thighs burning sensation. Pain in the left side of head above ear (same location where a bump erupted a couple of days ago). Sometimes pain is in deep quick painful stabs and sometimes just achy. Ovary ache, back ache upper abdomen and shoulders ache. Chills.
Sleep: 10-7. Could not get to sleep for sometime. Went to the bathroom at 12 am. Slept until 3:30 am. woke up w/o alarm took Benicar. Slept until 7 am. Nap: 1-1:30 pm.
Sx: Left shoulder and chest ache. Back aches too. Emotional. Constipated took MOM. Wet nose.
Ex: Walked Cricket to the paperbox and back. Sun was getting pretty bright.
3 star day.
DAY 235 - (full protocol) FRI. 3 PM. - SAT. 3 PM. - 04/08-09/2005.
PHASE 2 @ DAY 77 / LEVEL 1 / CYCLE 7 / DAY 2.
Benicar 40 mg. q6h. / No Mino / No Z / Q 400 x1 / Tylenol 500 x 1.
Sleep: 10-8. Insomnia. Could not get to sleep. Must of been after midnight before I did. Woke up at 2 am. went to the bathroom. Woke up at 3:30 w/o alarm and took Benicar. Woke up several times after that but stayed in bed until 8 am.napping off and on.
Sx: Fatigue. Grouchy. Lung irritation is returning. Some head pains. Cognitive/short term memory problems increased. Wet nose.
Ex: None.
3 star day.
DAY 236 - (full protocol) - SAT. 3 PM. - SUN. 3 PM. - 04/09-10/2005.
PHASE 2 @ DAY 78 / LEVEL 1 / CYCLE 7 / DAY 3.
Benicar 40 mg. q6h. / 100 mg. Mino / No Z / No Q.
Sleep: 10-6. Went to sleep after 1/2 hr. or so. Slept until 2 am. went to bathroom. Slept until 3:30 am. woke up w/o alarm, took Benicar. Slept until 6 am..
Sx: Some head pains. Left side back ache. Some cognitive short term memory problems increased. Wet nose. Emotional. Felt better today.
Ex: The usual.
3.5 star day
DAY 237 - (full protocol) SUN. 3 PM. - MON. 3 PM. - 04/10-11/2005.
PHASE 2 @ DAY 79 / LEVEL 1 / CYCLE 7 / DAY 4.
Benicar 40 mg q6h. / No Mino / No Z / No Q.
Sleep: 10-6:45. Went to sleep after about 1/2 hour. Slept until 2 am. went to bathroom. Slept until 4:30 am. woke w/o alarm took Benicar. Slept until 6:45 am.
Sx: Left shoulder aches. Wet nose/sneezy.
Ex: The usual.
3 star day.
DAY 238 - (full protocol) - MON. 3 PM. - TUES. 3 PM. - 04/11-12/2005.
PHASE 2 @ DAY 80 / LEVEL 1 / CYCLE 7 / DAY 5.
Benicar 40 mg. q6h. / 100 mg. Mino / No Z / No Q.
Sleep: 10-6. Slept until 2 am. woke up to use bathroom. Slept until 3:30 took benicar. Slept until 6 am. Nap was interrupted.
Sx: Not much going on. A little bit of achiness in the shoulders & back.
Ex: The usual.
3.5 star day.
DAY 239 - (full protocol) - TUES. 3 PM. - WED. 3 PM. - 04/12-13/2005.
PHASE 2 @ DAY 81 / LEVEL 1 / CYCLE 7 / DAY 6.
Benicar 40 mg. q6h. / No Mino / No Z / No Q.
Sleep: 10-6. Slept until 2 am. woke up to use bathroom. Slept until 3:30 took benicar. Slept until 6 am. Nap was interrupted again.
Sx: Not much going on. A little bit of achiness in the shoulders & back. Some left side chest soreness tonight.
Ex: The usual.
3 star day
DAY 240 - (full protocol) - WED. 3 PM. - THURS. 3 PM. - 04/13-14/2005.
PHASE 2 @ DAY 82 / LEVEL 1 / CYCLE 7 / DAY 7.
Benicar 40 mg. q6h. / 100 mg. Mino / No Z / No Q./ Tylenol 500 x 1.
Sleep: 10-6. Insomnia. Slept from 10:30 pm.-1:30 am. Woke up at 1:30 am. went to bathroom. Still awake...took Benicar at 2:30 am. Got up to go to bathroom at 3 am. Slept from 4-6 am. Nap: 9-10 am.
Sx: Shoulder, back & head pains. These pains were worse than I have had for quite awhile. Right side head pain in chronic problem area ... this pain was quick stab and intense. Very painful ... caused me to grab my head and then message that specific area for awhile. Felt like something snapped & recoiled in there. Had a slight fear of micro? stroke cause I could feel slight numbness at this spot afterward for quite awhile. This area has been prone to intense pain and numbness throughout my illness. Was one of my first sx areas and one of the most persistent too. Lack of appetite at lunch time...kinda queasy tummy. Melancholy and dark thoughts today. Not a good day.
Ex: The usual.
2 star day.
DAY 241 - (full protocol) - THURS. 3 PM. - FRI. 3 PM. - 04/14-15/2005.
PHASE 2 @ DAY 83 / LEVEL 1 / CYCLE 7 / DAY 8.
Benicar 40 mg. q6h. / No Mino / No Z / No Q. / Tylenol 500 x1
Sleep: 10-6. Insomnia. Slept from 10:30 pm.-1:30 am. Woke up at 1:30 am. went to bathroom. Still awake...took Benicar at 2:30 am. Slept til 6 am. Nap: 1-2 pm.
Sx: A bit of chest pressure & heart skipping beats when first laying down for about 5-10 min. Left shoulder sore and aches. Slight headache before bed so took some Tylenol.
Ex: The usual.
3 star day.
DAY 242 - (full protocol) - FRI. 3 PM. - SAT. 3 PM. - 04/15-16/2005.
PHASE 2 @ DAY 84 / LEVEL 1 / CYCLE 7 / DAY 9.
Benicar 40 mg. q6h. / 100 mg. Mino / No Z / No Q.
Sleep: 10-6. Slept from 10:30 - 4:30 am. That was NICE!!! Took Benicar. Tossed and turned until 6 am. and then got up. Nap: 1:30 - 2:30 pm.
Sx: A bit of chest pressure and heart skipping beats. Left shoulder still achy. Itchy bumps on left side of my neck. Right side ache for a couple hours.
Ex: The usual.
3 star day.
DAY 243 - (full protocol) - SAT. 3 PM. - SUN. 3 PM. - 04/16-17/2005.
PHASE 2 @ DAY 85 / LEVEL 1 / CYCLE 7 / DAY 10.
Benicar 40 mg. q6h. / No Mino / No Z / No Q/ Tylenol 500 x 1.
Sleep: 10-6. Took Tylenol before bed for achy body. Slept from 10:30 pm. - 2:00 am. Got up and used the bathroom. Then slept until 3:30 am. woke up to take Benicar w/o alarm. Slept until 6 am. Nap: 9-10 am. Nap: 1-2 pm.
Sx: Fatigue. A bit of chest pressure and skipping heart beats. Sore throat. Irritable & depressed. Left shoulder achy + various aches and sore spots.
Ex: The usual.
2.5 star day.
Observations: Had less good moments then during cycle 6. More fatigue and more aches and pains. But then during menses things are always worse for me. Next cycle should hopefully improve.
CL 
____________________ FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee member

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Posted: Wed Apr 27th, 2005 21:33 |
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DAY 244 - (full protocol) - SUN. 3 PM. - MON. 3 PM. - 04/17-18/2005.
PHASE 2 @ DAY 86 / LEVEL 1 / CYCLE 8 / DAY 1.
Benicar 40 mg. q6h. / 100 mg. Mino / Z / No Q/ Tylenol 500 x 1.
Sleep: 10:30-6:30. Some insomnia. Slept until 1 am. got up to use the bathroom. Slept until 2:30 woke up w/o alarm took Benicar. Slept until 6:30 am. Nap: 9-10. Nap: 1-2 pm.
Sx: Initially has some sinus pressure nose and top of head. Queasy tummy ... loss of appetite. Fatigue. Depression. Brain fog. Heart skipping beats when I first lay down for about 10 minutes. Transient pains.
Ex: The usual.
2.5 star day.
DAY 245 - (full protocol) - MON. 3 PM. - TUES. 3 PM. - 04/18-19/2005.
PHASE 2 @ DAY 87 / LEVEL 1 / CYCLE 8 / DAY 2.
Benicar 40 mg. q6h. / No Mino / No Z / No Q.
Sleep: 10:30-6.30. Less insomnia. Slept until 1 am. got up to use the bathroom. Slept until 3:30 am. woke up w/o alarm took Benicar. Slept until 6:30 am. Nap 1-1:30 pm.
Sx: Transient pains. Wet nose. Not as fatigued as yesterday. Good energy levels for me today. Better mood. Brain fog.
Ex: The usual.
3.5 star day.
DAY 246 - (full protocol) - TUES. 3 PM. - WED. 3 PM. - 04/19-20/2005.
PHASE 2 @ DAY 88 / LEVEL 1 / CYCLE 8 / DAY 3.
Benicar 40 mg. q6h. / 100 mg. Mino / No Z / No Q.
Sleep: 10:30-6. Slept until 1 am. got up to use the bathroom. Slept until 2:30 am. woke up w/o alarm took Benicar. Slept until 6:00 am. Nap: 10-11 am. Nap 2-3:00 pm.
Sx: Tues. before taking Mino some sneezing. Itchy bronchials. Heart skipping beats sometimes and slight chest pressure. Brain fog. Mood equal to yesterday.
Ex: The usual. Stopped and pulled some weeds and later in the day took out the garbage and stopped and pulled some more weeds. Bad idea... too much sun and not covered up so had some sun sickeness. Woozy head and fatigue.
3 star day.
DAY 247 - (full protocol) - WED. 3 PM. - THURS. 3 PM. - 04/20-21/2005.
PHASE 2 @ DAY 89 / LEVEL 1 / CYCLE 8 / DAY 4.
Benicar 40 mg. q6h. / No Mino / No Z / Quercetin 400 x 1
Sleep: 10:30-7:00. Took Quercetin before bed to see if it would help relax me... feeling a bit wired lately. Slept until 1 am. got up to use the bathroom. Slept until 3:30 am woke up w/o alarm took Benicar. Slept until 6 am. woke up very tired. Took Cricket out then went back to bed until 7 am. and slept good. Felt better when I woke up. Nap: 1-2 pm.
Sx: Transient aches in back and shoulders. Skipping heart beats in 10-15 minute episodes several times today. Some mild chest pressure. Brain fog. After 3 pm. dose of Mino nose got wet again and have some sneezing tonight. When breath in deep left chest below collar bone is very tender and sore feeling. Mood is improving.
Ex: The usual.
3 star day.
DAY 248 - (full protocol) - THURS. 3 PM. - FRI. 3 PM. - 04/21-22/2005.
PHASE 2 @ DAY 90 / LEVEL 1 / CYCLE 8 / DAY 5.
Benicar 40 mg. q6h. / 100 mg. Mino / No Z / Q 400 x 1
Sleep: 10-6. Took Q. at bedtime with Beni to help alleviate heart herx. Slept until 1 am. got up to use the bathroom. Woke up at 3:30 am. w/o alarm and took Benicar. Slept until 6 am. & got up. Nap: 1-2 pm. just rested did not sleep today cause the cable man was here installing it. WOO HOO... broadband!
Sx: Mid back pain & some leg pains is transient. Heart skipping beats and chest pressure at times. Pain in ovaries especially right side most of the day.
Ex: The usual.
3 star day.
DAY 249 - (full protocol) -FRI. 3 PM. - SAT. 3 PM. - 04/22-23/2005.
PHASE 2 @ DAY 91 / LEVEL 1 / CYCLE 8 / DAY 6.
Benicar 40 mg. q6h. / No Mino / No Z / Q 400 x1
Sleep: 10:30-7. Took Q at bedtime with Beni to help alleviate heart herx. Slept until 1 am. got up to use the bathroom. Woke up at 3:30 am. w/o alarm and took Benicar. Slept until 6 am. Then napped until 7 am. & got up. Nap: 1-1:45 pm. just rested did not sleep.
Sx: Cough Sat. morning. Felt more rested today than yesterday. Legs burning a tiny bit and one small cramp in left leg tried to catch a couple times. Transient left side chest pain. Tinnitus & pressure in left ear all day & a raised sore spot on my scalp like the one I had before but in a new place on back of head toward the right side. Last time was toward the left side at the back of head.
Ex: None.
2.5 star day.
DAY 250 - (full protocol) - SAT. 3 PM. - SUN. 3 PM. - 04/23-24/2005.
PHASE 2 @ DAY 92 / LEVEL 1 / CYCLE 8 / DAY 7.
Benicar 40 mg. q6h. / 100 mg. Mino / No Z / Q. 400 x 1
Sleep: 10:30-8:00. Slept until 1 am wike up to use the bathroom. Slept until 3:30 woke up w/o alarm to take Benicar. Slept until 6 am. woke up to turn off alarm. Slept until 8:00. This is unusual for me to sleep so late. Nap: 2-3 pm. I did not sleep .. just rested.
Sx: Woke up with tinnitus & pressure still in my left ear. Transient pain in left side of head. Left shoulder blade area & left chest transient pains. . Left leg and foot exeriencing neuropathy this afternoon. Neck feels stiff & slightily aches.
Ex: None
2.5 star day.
DAY 251 - (full protocol) - SUN. 3 PM. - MON. 3 PM. - 04/24-25/2005.
PHASE 2 @ DAY 93 / LEVEL 1 / CYCLE 8 / DAY 8.
Benicar 40 mg. q6h. / No Mino / No Z / Q. 400 x1
Sleep: 10-6. Slept until 1 am. woke up to use the bathroom. Slept until 2:30 am woke up w/o alarm to take Benicar. Slept until 6 am. and got up. Nap: 10-11 am.
Sx: Tinnitus & ear pressure gone. Still skipping some heartbeats for short periods infrequently through out the day accompanied by chest pressure.. Lungs irritated...once in awhile wheezy & cough. Slight sinus headache through the day.
Ex: The usual.
3 star day.
DAY 252 - (full protocol) - MON. 3 PM. - TUES. 3 PM. - 04/25-26/2005.
PHASE 2 @ DAY 94 / LEVEL 1 / CYCLE 8 / DAY 9.
Benicar 40 mg. q6h. / 100 mg. Mino / No Z / Q. 400 x 1 / Tylenol 500 x1
Sleep: 10-6. Insomnia. Woke up every hour or two throughout night. Slept lightily. Took Benicar at 3:15 am. Got up at 6 am. Nap: 8:30-9:30 am.
Sx: Mon. eve the skipping heart beats and chest pressure continued and worsened after Mino dose so took some Quercetin. Tummy slightily queasy so drinking mint tea. Slight headache continues. Felt mildly-moderately sickish most of day and evening with queasy tummy and overall icky feeling = Malaise. Drank peppermint tea to help tummy. Transient aches and burning limbs. Took Tylenol during night to help Woke up fatigued. This morning still feel mildly malaise and left upper quadrant of back sore and achy. Heart area sore. Lung irritation with cough and a little bit of phelgm.
Ex: The usual.
2 star day.
DAY 253 - (full protocol) - TUES. 3 PM. - WED. 3 PM. - 04/26-27/2005.
PHASE 2 @ DAY 95 / LEVEL 1 / CYCLE 8 / DAY 10.
Benicar 40 mg. q6h. / No Mino / No Z / No Q.
Sleep: 10:30-7. Some insomnia. Woke up at 2 am. to go to the bathroom. Laid awake for an hour and a half or so. Took Benicar at 2:30 am. Slept until 6 am. alarm woke me up.. turned it off and slept until 7 am. .
Sx: Wed. afternoon I began to feel better... sx settling down. Feeling better today (Tues.). Some very mild transient aches & heart skipping beats periodically is about all that I notice today. Emotional state is much better as well.
Ex: The usual walk to the paper box & Woo Hoo..... Vacuumed the house. 
3.5 star day.
Observations: My hubby put black plastic on all four large living room windows which brought the light levels down considerably from just the window blinds blocking light. My increased herxing seems to coincide with this decrease of light exposure. I assume I am killing more bugs because of this therefore having more trouble herxing with this cycle to the end days of it. My cardiac herxing has increased but not quite to the point whereby necessary to take Benicar q4h in my opinion. Getting close to that point in my view however and will change dosage if it becomes necessary. I think when I begin cycle 9 it will be clear to me which way I am going to go. This herx has not been intolerable but I find myself not enjoying life as much as before herx increased. This has weighed on my emotions and I feel more cranky from it and slightily depressed even. Phase 2 has definitely been harder on my emotions overall. I am much more restricted with increased light sensitivity which adds to my frusteration. I am determined to get through this but it isn't for the faint of heart and find myself needing to bolster up my spirits more frequently than ever during the MP. So I will trudge on ahead taking one day at a time and hope for a good day to come my way. I do not mean to sound morose as I am resilent. I was hoping to increase my Z by now but there is no way at this point in time. I am satisfied that I am killing enough bugs!
CL 
Last edited on Wed Apr 27th, 2005 21:34 by CelticLadee
____________________ FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee member

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Posted: Sat May 7th, 2005 21:52 |
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DAY 254 - (full protocol) - WED. 3 PM. - THURS. 3 PM. - 04/27-28/2005.
PHASE 2 @ DAY 96 / LEVEL 1 / CYCLE 9 / DAY 1.
Benicar 40 mg. q6h. / 100 mg. Mino / Z / No Q.
Sleep: 10-6. Slept until 1:30 am and woke up to use the bathroom. Slept until 6 am. alarm and took Benicar and got up. (8hrs w/o Beni) Nap: 9:30 -11 am.
Sx: Wed. eve = Right ovary painful. Burning sensations in limbs and some aches. Thurs.= Left ovary painful. Lungs irritated and coughing a little phelgm.
Ex: Walked with Cricket to the paperbox and back.
2.5 star day.
DAY 255 - (full protocol) - THURS. 3 PM. - FRI. 3 PM. - 04/28-29/2005.
PHASE 2 @ DAY 97 / LEVEL 1 / CYCLE 9 / DAY 2.
Benicar 40 mg. q6h. / No Mino / No Z. / No Q.
Sleep: Thurs. afternoon 3:00 pm laid down to rest for 1/2 hour. Insomnia... went to bed my usual 10 pm. and couldn't get to sleep. Around 12 am. took Quercetin & Tylenol and that did the trick. Woke up at 2 am. to go to the bathroom. Woke up at 3:30 w/o alarm to take Benicar. Alarm at 6 am. so got up. Nap: 8:30-10:00 am.
Sx: Thurs. eve had a pinched feeling in my heart for a couple of hours. Still coughing a little phelgm as lungs feel slightily wheezy.. irritated. Ovaries stopped hurting . Feeling more tired.
Ex: The usual.
3 star day.
DAY 256 - (full protocol) - FRI. 3 PM. - SAT. 3 PM. - 04/29-30/2005.
PHASE 2 @ DAY 98 / LEVEL 1 / CYCLE 9 / DAY 3.
Benicar 40 mg. q6h. / 100 mg. Mino / No Z. / Q 400 x1 / Tylenol 500 x 1.
Sleep: 11-8. Slept from 11-3 took benicar then slept until 6 am alarm. Then slept until 8 am. Nap: 2-2:45 pm.
Sx: Skipping heart beats, sinus pain and eyes achy. Transient pain and burning limbs, back, neck, wrists, left chest.
Ex: None.
2.5 star day.
DAY 257 - (full protocol) - SAT. 3 PM. - SUN. 3 PM. - 04/30-5/01/2005.
PHASE 2 @ DAY 99 / LEVEL 1 / CYCLE 9 / DAY 4.
Benicar 40 mg. q6h. / No Mino / No Z. / No Q.
Sleep: 10-7. Slept from 10 -1:30 am. went back to sleep until 3:30. Woke up w/o alarm and took Benicar. Slept until 6 am. when alarm went off. Slept until 7am. Nap: 9:30 -10:45.
Sx: Sat. pm... Feeling pretty good. Sx mild...transient aches and sore spots. Wet nose. Sun.am. ...Fatigue. Mild transient sore spots and aches. Some burning sensations in legs. Wet nose and cough. Some periods of heart skipping beats.
Ex: The usual..
3.5 star day.
Went outdoors for 15 min. and weeded around my clematis. This was followed by fatigue from sun exposure.
DAY 258 - (full protocol) - SUN. 3 PM. - MON. 3 PM. - 05/01-02/2005.
PHASE 2 @ DAY 100 / LEVEL 1 / CYCLE 9 / DAY 5.
Benicar 40 mg. q6h. / 100 mg. Mino / No Z. / Q 400 x 1.
Sleep: 10-8. Insomnia. Didn't sleep from 1- 4 am. Nap: 1-1:45 pm.
Sx: Feeling pretty good again. Just some mild transient sore spots and aches.
Ex: The usual.
3 star day.
DAY 259 - (full protocol) - MON. 3 PM. - TUES. 3 PM. - 05/02-03/2005.
PHASE 2 @ DAY 101 / LEVEL 1 / CYCLE 9 / DAY 6.
Benicar 40 mg. q6h. / No Mino / No Z. / No Q.
Sleep: 10-6. Insomnia. Didn't sleep from 1-3 am. Nap: 1-2 pm.
Sx: Fatigue. Legs feel odd for short time... not quite a burning sensation... buzzy? For short time some little pains in head/scalp come and go. Tranisent widespread very mild aches. (Tues. PM) Mild lung irritation..dry cough. Mild chest pressure...some skipping beats once in awhile.
Ex: The usual.
Happy 2nd birthday Cricket! 05/03/05.    
3 star day.
DAY 260 - (full protocol) - TUES. 3 PM. - WED. 3 PM. - 05/03-04/2005.
PHASE 2 @ DAY 102 / LEVEL 1 / CYCLE 9 / DAY 7.
Benicar 40 mg. q6h. / 100 mg. Mino / No Z. / No Q.
Sleep: 10-6. Slept until 2:30 am. took Benicar and slept until 6 am. Pretty good sleep. Nice change. Nap: 1-2 pm.
Sx: Some mild transient aches. Some fatigue. Wet nose. Some transient quick intense pains in bowels and uterus.
Ex: The usual.
3 star day.
DAY 261 - (full protocol) - WED. 3 PM. - THURS. 3 PM. - 05/03-04/2005.
PHASE 2 @ DAY 103 / LEVEL 1 / CYCLE 9 / DAY 8.
Benicar 40 mg. q6h. / No Mino / No Z. / No Q.
Sleep: 10-6. Slept until 1:00 am. went to bathroom. Slept until 3:30 am. took Benicar and slept until 6 am. Vivid & colorful dreams.Nap: 1-2 pm.
Sx: Mild transient aches. Legs feel buzzy again.
Ex: The usual.
3 star day.
DAY 262 - (full protocol) - THURS. 3 PM. - FRI. 3 PM. - 05/04-05/2005.
PHASE 2 @ DAY 104 / LEVEL 1 / CYCLE 9 / DAY 9.
Benicar 40 mg. q6h. / 100 mg. Mino / No Z. / No Q.
Sleep: 10-7:30. Insomnia. Awake from 1:30-4:30 am.Vivid & colorful dreams. Nap: 9:00-11 am.
Sx: Mild transient aches, some sore spots and mild burning in legs. Fatigue. Heart skipping beats periodically.
Ex: None.
3 star day.
DAY 263 - (full protocol) - FRI. 3 PM. - SAT. 3 PM. - 05/05-06/2005.
PHASE 2 @ DAY 105 / LEVEL 1 / CYCLE 9 / DAY 10.
Benicar 40 mg. q6h. / No Mino / No Z. / No Q.
Sleep: 10-7:30. Insomnia. Awake at 1:30 am. for an hour. Woke up at 4:30 am. took Benicar. Got back to sleep after an hour or so. Woke up at 7:30 am. Vivid colorful dreams. Not feeling so fatigued this morning as I have been most of this week. Nap:
Sx: Mild transient aches, some sore spots. Heart skipping beats periodically.
Ex: None
3 star day.
Observations: This cycle was much easier for me. I was not plagued by the dark moods for one thing. Fatigue seems to becoming more problematic for me but I do feel less sick...that is to say generally I feel better. Although the disease is still very apparent I feel I have not been herxing much and can tolerate more herx. After discussing things with hubby he agrees it is time to try increasing 2nd abx dose. It has taken me 105 days to reach level 2 and I am so hoping this will not be the standard each level or I will be in PH2 longer than anyone I have read about. This doesn't make sense to me as others are so much more seriously symptomatic. I wonder why this has been so difficult for me and if it will continue to take so much time. I am regularly strict & concise in my avoidance of food with D as well as light exposure. I wear my NoIRs except when sleeping and I seldom venture outdoors. I have the luxury of working in our home office and seldom need to go anywhere. These are not variables in my slow progress as far as I can tell. The Z just seems to hit me really hard... even from day one. Trying to focus on being positive about the efficient bug killing going on and not focus so much on time but it is hard to do. I want to get on with this, go into remission, and be able to do more. I have been doing the MP for 9 months straight now and I hope to be able to speed things up eventually. Yeh, I know it isn't a race, etc. But somedays I feel impatient to live another way besides MP life style no matter how grateful I am for its benefits. These are the struggles we all must face and deal with the best we can. I am determined to make it!!! I am determined to get well!!! Hoping the best for all of you fellow MPers too..... YOU CAN DO IT!!! 
CL 
____________________ FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee member

|
Posted: Tue May 17th, 2005 21:18 |
|
DAY 264 - (full protocol) - SAT. 3 PM. - SUN. 3 PM. - 05/07-08/2005.
PHASE 2 @ DAY 106 / LEVEL 2 / CYCLE 10 / DAY 1.
Benicar 40 mg. q6h. / 100 mg. Mino / Z / No Q.
Sleep: 10:30-6:30. Slept until 1 am. woke up briefly. Woke up at 2:30 am. achy... took Benicar. Slept until 6:30 am. Nap: 1-2 pm.
Sx: Initial reaction to abx = buzzy head and tingly lips.for 15 min. Back ache and left chest ache magnified for a few minutes. Brain fog increasing as face and jaws become numbish. Fatigue worsening. Sat. evening sore throat and cold sore starting. Sunday transient aches, sore spots. Cold sore growing but sore throat improving. Bowels sluggishe so took MOM before bed. Lots of phone calls for Mom's Day.... after each one I had to lay down to recoop.... quite a bit of a drain on energy and causes increase in sx.
Ex: Walked to the paperbox with Cricket.
2 star day.
DAY 265 - (full protocol) - SUN. 3 PM. - MON. 3 PM. - 05/08-09/2005.
PHASE 2 @ DAY 107 / LEVEL 2 / CYCLE 10 / DAY 2.
Benicar 40 mg. q6h. / No mg. Mino / No Z / Quercetin 400 x1 / Tylenol 500 x 1.
Sleep: 10:30-7:30. Woke up at 1:30 am. with my body really burning and aching almost everywhere possible. Took a Tylenol 500. That took the edge off but I still could not sleep. 2:30 am. took my Benicar. Still could not sleep so at 3:30 am. took Quercetin. Slept from 4-7:30 am. Woke up very fatigued. Nap: 9-10 am. Nap: 1-1:45 pm. only slept a few minutes though.
Sx: Fatigue. Ovaries and stomach ached for awhile. Queasty tummy for awhile. Mon. morning hours legs burning and tend to feel like they want to have muscle cramps. Tinnitus but very mild. Things settled down after my 3 pm. Mino.
Ex: Didn't get the paper a.m. so after dark p.m. walked down to get paper with Cricket.
2.5 star day.
DAY 266 - (full protocol) - MON. 3 PM. - TUES. 3 PM. - 05/09-10/2005.
PHASE 2 @ DAY 108 / LEVEL 2 / CYCLE 10 / DAY 3.
Benicar 40 mg. q6h. / 100 mg. Mino / No Z / Quercetin 400 x 1 / Tylenol 500 x 1.
Sleep: 10:30-7:00. Woke up at 1 am. and could not go back to sleep. Took Benicar at 2:30 am. Took Quercetin at 3:30 am. Took Tylenol at 4:00 am. Slept from 5:00 am. - 7:00 am. Nap:
Sx: Feeling better today. For a short time had some nerve pain around cold sore and also site of past shingles. The increase dose of Z seems to have stirred up the herpes within. Some very mild transient aches and burning. Nothing lasting.
Ex: The usual.
3 star day.
DAY 267 - (full protocol) - TUES. 3 PM. - WED. 3 PM. - 05/10-11/2005.
PHASE 2 @ DAY 109 / LEVEL 2 / CYCLE 10 / DAY 4.
Benicar 40 mg. q6h. / No Mino / No Z / Quercetin 400 x 1 / Tylenol 500 x 1.
Sleep: Went to bed at 10:30 pm. Insomnia very bad. Could not sleep. Took Quercetin and Tylenol but didn't help. Finally did sleep for around an hour 12-1 am. Then was awake the rest of the night. Got up at 5:30 am. Nap 8:30-11:30 am. Rested on the bed from 1-1:45 pm but could not sleep.
Sx: Insomnia at its worst last night. Body was achy, sore spots & burning and scalp and face itchy through the night. Some fatigue today but mostly just tired. Sx aren't as intense today.
Ex: The usual.
2 star day
DAY 268 - (full protocol) - WED. 3 PM. - THURS. 3 PM. - 05/11-12/2005.
PHASE 2 @ DAY 110 / LEVEL 2 / CYCLE 10 / DAY 5.
Benicar 40 mg. q6h. / 100 mg. Mino / No Z / No Q.
Sleep: 10-6. Slept good until around 1 am. but went back to sleep. Woke up at 5:30 am. and took Benicar. Best night I have had in a long while. Nap: 1-2 pm.
Sx: Didn't have any sx complaints today. Woo Hoo! Tonight I have a bit of a sore throat but not too bad.
Ex: The usual.
Activities: I felt so good I went to the WalMart to pick up some perxonal items, filled the car with gas and got my haircut. Didn't have any effects afterward so far.
4 star day. Woo Hoo!
DAY 269 - (full protocol) - THURS. 3 PM. - FRI. 3 PM. - 05/12-13/2005.
PHASE 2 @ DAY 111 / LEVEL 2 / CYCLE 10 / DAY 6.
Benicar 40 mg. q6h. / No Mino / No Z / No Q.
Sleep: 10-6. Slept good until around 2 am. but went back to sleep. Slept until 3 am. woke up w/o alarm to take Benicar. Slept off and on until 6 am. and got up. Felt very tired and a bit rummy. Nap: 8:30-10 am.
Sx: Fatigued today... not sure if it is from my outing yesterday. Stiff and achy feeling too. Cold sore still has nerve pain and gland is getting sore now. Sore throat & cough. Sore eyes.
Ex: The usual.
3 star day.
DAY 270 - (full protocol) - FRI. 3 PM. -SAT. 3 PM. - 05/13-14/2005.
PHASE 2 @ DAY 112 / LEVEL 2 / CYCLE 10 / DAY 7.
Benicar 40 mg. q6h. / 100 mg. Mino / No Z / No Q.
Sleep: 11-7:30. Slept until 1 am. woke up went to the bathroom. Slept until 2 am. woke up took Benicar. Slept until 7:30 am. Nap:
Sx: Have a little bit of chest pressure today and noticed some skipping heart beats. Still a bit stiff and achy but not as bad as yesterday. Right hip was especially aching when I woke up this morning. Its calming down a bit now. Right middle finger very sore. Cold sore still bothering me but not as bad as yesterday.
Ex: None.
Activities: After dark went out and potted some geraniums and did some flower bed clean up. Total time about an hour.
3 star day.
DAY 271 - (full protocol) - SAT. 3 PM. - SUN. 3 PM. - 05/14-15/2005.
PHASE 2 @ DAY 113 / LEVEL 2 / CYCLE 10 / DAY 8.
Benicar 40 mg. q6h. / No Mino / No Z / No Q / Tylenol 500 x 1
Sleep: 11-7. Slept until 4:30 am. woke up w/o alarm and took Benicar. Slept until 7 am. Felt rested when I woke up for a change. Nap: 12:30-1:30 pm.
Sx: Mild headache in forehead so took Tylenol at 6 pm. on Sat. A little bit of achy, burning muscles this morning (Sun.) in legs, arms and back. Maybe from doing gardening last night though. Bowels sluggish so took MOM before bed last night (Sat.) All is well today. Right middle finger still sore. Cold sore is finally healing.
Ex: The usual.
3 star day.
DAY 272 - (full protocol) -SUN. 3 PM. -MON. 3 PM. - 05/15-16/2005.
PHASE 2 @ DAY 114 / LEVEL 2 / CYCLE 10 / DAY 9.
Benicar 40 mg. q6h. / 100 mg. Mino / No Z / No Q.
Sleep: 11-6 am. Slept until 1 am. woke up briefly and then slept until 3:30 am. Woke up w/o alarm and took Benicar. Nap: 9-10 am. Nap: 1-1:45 pm. didn't sleep, just rested.
Sx: Fatigue. Itchy rash on left side of neck. Mild sore throat. For a short time a little bit of a wet nose.
Ex: The usual.
3 star day.
DAY 273 - (full protocol) - MON. 3 PM. - TUES. 3 PM. - 05/16-17/2005.
PHASE 2 @ DAY 115 / LEVEL 2 / CYCLE 10 / DAY 10.
Benicar 40 mg. q6h. / No Mino / No Z / No Q.
Sleep: 10-5. 5:30-7. Slept until 11:30 pm. got up to go to the bathroom. Slept until 1 am. got up to go to the bathroom. Slept until 3:45 am. woke up w/o alarm to take Benicar. Cricket woke me at 5 am. to go out. Went back to bed and slept until 7 am. Nap: 12:45-1:30 PM.
Sx: Not feeling too bad today. Some skipping heart beats & mild left chest pressure/ache at times. Some mild aching left back upper quandrant. Itchy neck rash is healing quickly.
Ex: None.
3 star day.
Upon doctors recommendations I will be changing second abx. Works out for me to start new abx in about 21 day so in the meanwhile I will be on the PH1 program. It will be very interesting to me to see how I feel during this time.
CL 
Last edited on Tue May 17th, 2005 21:22 by CelticLadee
____________________ FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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jolbell69 Health Professional

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Posted: Tue May 17th, 2005 21:40 |
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Dearest CL,
I find it interesting that you talk about having herpes flares. This has happened to me too, although I am only taking Benicar still at the mo`. I have had many cold-sores over the past 11 months, since starting Benicar. I wonder what the link is??
Keep it going!!
Jo.x
____________________ DX:ChronicBorreliosis&Bartonella,ME/CFS,AutoimmuneThyroid&Hypoadrenia.
TX:Armour90mg,Prozac.Started MP:19may04.
25,D=16.7ng/ml,(Jan05).Benicar,40mg,q6h.Restart 8May09 after 5months break.VitD,25=8ng/ml(May09)
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Aussie Barb member

| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19536 |
| Status: |
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Posted: Tue May 17th, 2005 21:45 |
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Hi Girls
This topic may be helpful My 1,25D is low -could viral infection be the cause? ..
Barb ...
____________________ ♥Barb♥: Dx Inflammation - Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04-Aug2010| barbliv @ hotmail.com | ABC of MP| Barb's Story|
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CelticLadee member

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Posted: Tue May 17th, 2005 23:17 |
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Hello Jo and Barb,
Thank you very much for your replies. 
It is very common for herpes viruses to flare up when the immune system is stressed out so it doesn't surprise me at all to have these flares erupting for us. We are certainly putting our immune systems under greater stress as we go through the MP. It is therefore, a reminder it is greatly needed to eat, sleep and live properly during the MP in my opinion. Our immune system needs all the help it can get! 
That is a very interesting thread Barb... I had previously read it and felt very good about killing the bacteria off first, knowing that our viral infections will also be taken care of as the immune system gains strength when not plagued by these pesky bugs. Doc TM has always stated that this is so and that fact has always encouraged me greatly. I have had a lot of trouble with the herpes family... shingles, cold sores, pericarditis. I was on transfer factor for herpes for 6 mo. this was about 4 mo. before I started the MP and although it helped in a minor degree it actually made some of my sx worse. Therefore I do not recommend treating the viral infections first. It puts a strain on the immune system and I think from my experience it made the bacteria/inflammation increase. Anyway, it made my head feel like it was going to literally split wide open whereas the benicar and abx resolved this very debilitating sx for me.
The MP is certainly a marvelous breakthrough for all of us. The road is rough at times but as the cwd bacteria infection becomes less it is great to look forward to feeling improved health. When I have a break through day like I did on day 5 of cycle 10 I find myself feeling very positive about the future.
Yes... WE ARE GOING TO MAKE IT.... one day at a time. Bless ya both. 
CelticLadee 
____________________ FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee member

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Posted: Sun May 22nd, 2005 23:07 |
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Went off second abx in preparation to start a different one.
DAY 274 - (full protocol) - TUES. 3 PM. - WED. 3 PM. - 05/17-18/2005.
PHASE 2 @ DAY 116. / falling back on PH1 abx waiting to start new second abx. when system is clear of Z.
Benicar 40 mg. q4h. / No Mino / No Z / No Q. / Tylenol 500 x 2.
Sleep: 10-6. Restless night of insomnia... woke up almost every hour. Nap: 10-11 am.
Sx: Fatigue, spinal headache, queasy tummy ,,, these sx were brought on by light exposure to my eyes. I took my benicar before I left and took it every 4 hours today. Transient aches various areas.
Ex: The usual.
Activities: Had to renew my drivers license so I was driving & out and about for an hour. Had to remove NoIR's under flourescent lighting during required eye test and picture taking for license examiner about 10-15 minutes at the most. I had Keto cream on face and neck, gloves, NoIRs, & dark clothing covering my entire body. But due to the eyes being exposed so badly with no choice I had a reaction.
2.5 star day.
DAY 275 (full protocol) - WED. 3 PM. - THURS. 3 PM. - 05/18-19/2005.
PHASE 2 @ DAY 117. / falling back on PH1 abx waiting to start new second abx. when system is clear of Z.
Benicar 40 mg. q6h. / 100 mg. Mino / No Z / Quercetin 400 x 1.
Sleep: 10-6. Woke up around 1:30 am. but went back to sleep. Woke up at 4:30 am. w/o alarm to take Benicar. Got up at 6:15 am. Nap: 12:30-1:30 pm.
Sx: Extra achy today. Widespread. Glad pains are short lived or I would be miserable. By end of day was tired of all the aches going on wearing me down.
Ex: The usual.
2.5 star day.
DAY 276 - (full protocol) - THURS. 3 PM. - FRI. 3 PM. - 05/19-20/2005.
PHASE 2 @ DAY 118. / waiting to start new second abx. when system is clear of Z./ started Mino daily to stop herxing.
Benicar 40 mg. q6h. / 50 mg. Mino daily / No Z / Quercetin 400 x 2
Sleep: 11-8. Woke up around 1:30 am. but went back to sleep. Woke up at 4:30 am. w/o alarm to take Benicar. Got up at 5:50 am. to let Cricket out then went back to bed at 6 am. and slept until 8 am. Nap: 1-2 pm.
Sx: Sleeping in did me good. Don't feel so fatigued this morning. I have been noticing my "FM type" chronic aches and pains are coming back in waves and the pain intensity is increasing with time. It is becoming most uncomfortable as I am no longer use to it after all this time without it at this level. I haven't had the left chest pain under my collar bone for such a long time on the Z and today it hit me for an hour or so. Skipping heart beats are increasing too. I haven't had cramps in my legs for a long time either and this morning I was fighting leg muscle cramps in my calves. My hands, arms and legs are becoming more achy, stiff and burning more intensely in spots. My former Shingles site is having periodic flare ups of prickly pains. I have a mild headache right eye & sinuses. It is like I am regressing now that I'm going off the Z. I took Q. a couple times with the Benicar to calm things down with little result. After talking to my advisor I think my immune system is turned on cause this is worse than my usual herxing. I will now take 50 mg. of Mino everyday to see if it will stop my immune system.. I find it enlightening to know that when my immune system is running off I am quickly beginning to feel almost as bad as before I started the MP. Guess I would have to believe I still have a lot of bugs to kill as I seem to have a lot of inflammation.
Ex: None this morning... slept in too late this morning and sun was too much so didn't go out. After dark walked around our little courtyard and looked at the flowers growing, etc.
2 star day.
DAY 277 (full protocol) - FRI. 3 PM. - SAT. 3 PM. - 05/20-21/2005.
PHASE 2 @ DAY 119. / waiting to start new second abx. when system is clear of Z.
Benicar 40 mg. q6h. / 50 mg. Mino daily / No Z / No Q.
Sleep: 11-8:30. Woke up around 2:30 am. so went to the bathroom and also took my Benicar hoping I could sleep until at least 6 am. Cricket wanted out at 5:30 am. after taking care of her went back to bed and slept until 8:30 am. Nap: 2-2:45 pm
Sx: After I took the 50 mg. Mino at 3 pm. my sx began to settle down much to my relief. Feeling a little cross and fatigued today (Sat.) but am not in so much pain now. I am relieved the solution worked so effectively and quickly. Such an interesting epidsode. Feeling just the usual mild soreness, transient aches and burning sensations now.
Ex: None.
3 star day.
DAY 278 (full protocol) - SAT. 3 PM. - SUN. 3 PM. - 05/21-22/2005.
PHASE 2 @ DAY 120. / waiting to start new second abx. when system is clear of Z.
Benicar 40 mg. q6h. / 50 mg. Mino / No Z / No Q.
Sleep: 10:30-7:00. Woke up around 2:30 am. so went to the bathroom and also took my Benicar hoping again I could sleep until at least 6 am. Alsrm woke me at 6 am. so I turned it off and slept until 7 am. Nice. Nap:
Sx: Nothing much going on. Just some very mild soreness, transient aches and burning sensations which are part of "my normal" daily life. After I took my mino I had mild tinnitus for a few hours.
Ex: The usual walk to the paperbox with Cricket.
3 star day.
CL 
____________________ FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee member

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Posted: Fri May 27th, 2005 01:05 |
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DAY 279 (full protocol) - SUN. 3 PM. - MON. 3 PM. - 05/22-23/2005.
PHASE 2 @ DAY 121. / waiting to start new second abx. when system is clear of Z.
Benicar 40 mg. q6h. / 50 mg. Mino / No Z / No Q./ Tylenol 500 x 1
Sleep: 10-6. Woke up at 2:30 am so got up to use the bathroom and also took my Benicar. Nap: 1-1:45 pm.
Sx: After I took my mino I had a pain in my liver for about 10 minutes and then mild tinnitus. Nose got wet and stuffy too. Mon. am having increased tinnitus, head pressure, chest pressure and skipping heart beats. Mild headache and feel a little bit yucky. As the day progressed towards my 3 pm. Mino dose I begain to feel worse so took my abx 15 min. early. It helped a little bit and then the Benicar at 4 pm. also helped a little bit so I am convinced this is all because of my run away immune system making me feel sick. Took Tylenol to help with pain.
Ex: The usual.
2.5 star day.
DAY 280 (full protocol) - MON. 3 PM. - TUES. 3 PM. - 05/23-24/2005.
PHASE 2 @ DAY 122. / waiting to start new second abx. when system is clear of Z.
Benicar 40 mg. q6h. / 50 mg. Mino / No Z / No Q./ Tylenol 500 x 1.
Sleep: 10-6. Woke up at 1 am. but went back to sleep. Woke up at 3:30 am w/o alarm and took Benicar. Nap: 1-1:45 pm.
Sx: Right side ache in temple, eye and sinuses. This is a chronic sx that seemed to go away on Zith and now has returned. Feeling better than yesterday but still having some the yucky feelings... malaise. Tinnitus has been mild to non existent as well as chest pressure and head pressure until 4 pm. began to increase. Took Tylenol to help with pain. Right hip aching a bit tonight ... haven't had that for a long while. Tylenol isn't stopping it.
Ex: The usual.
3 star day.
DAY 281 (full protocol) - TUES. 3 PM. - WED. 3 PM. - 05/24-25/2005.
PHASE 2 @ DAY 123. / waiting to start new second abx. when system is clear of Z.
Benicar 40 mg. q4h. / 50 mg. Mino / No Z / No Q.
Sleep: 10-6. Woke up at 1:30 am. but went back to sleep. Woke up at 3zm w/o alarm and took Benicar. Nap: 1-2 pm.
Sx: Right side sinus and eye mild ache. Tinnitus mild but annoying. Right hip has transient ache. After eye exam my eyes feel gritty from excessive light exposure. Wed. eve had some sharp pains for awhile in my liver area.
Ex: The usual.
Activities: Had an eye exam today. Took extra Benicar to help with light exposure.
3 star day.
DAY 282 (full protocol) - WED. 3 PM. - THURS. 3 PM. - 05/25-26/2005.
PHASE 2 @ DAY 124. / waiting to start new second abx. when system is clear of Z.
Benicar 40 mg. q6h. / 100 mg. Mino / No Z / No Q.
Sleep: 10-5:30. Woke up at 1:30 am but went back to sleep. Woke up at 4 am. w/o alarm and took Benicar. Nap: 12:30-2:30 am.
Sx: Felt really good when I got up! Woo Hoo! Had a pretty uneventful day sx wise.
Ex: The usual
Activities: Vacuumed the house and watered outdoor pots.
4 star day.
Took 100 mg. Mino at 3 pm. and then will skip it tomorrow. Want to see if I can go back on schedule now w/o immune system acting up.
CL 
____________________ FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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spacee member
| Joined: | Sun Sep 12th, 2004 |
| Location: | Florida USA |
| Posts: | 274 |
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Posted: Sat May 28th, 2005 01:22 |
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A 4 atar day for Memorial Day Weekend...woohoo! That is good to hear!
Spacee
____________________ CFS/FM/tachycardia/bladder and skin inflammation. C-Diff overgrowth 1995
clonazapan 1gm HS, Xanax .50mg HS, Premarin .625, Ultram 50mg BID Restart 9/15,NoIRs, No Vit D diet,Probiotics,11/12/04 25D=25, 1,25D=70, 9/9/05 25D 14, 1,25D 37. Beni Q6H, Mino 10
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CelticLadee member

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Posted: Sun May 29th, 2005 21:11 |
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Thanks Spacee. It is a nice break to not be herxing and feeling the benefits of these months of MP. Good to know I am getting well!!! 
DAY 283 (full protocol) - THURS. 3 PM. - FRI. 3 PM. - 05/26-27/2005.
PHASE 2 @ DAY 125. / waiting to start new second abx. when system is clear of Z.
Benicar 40 mg. q6h. / No Mino / No Z / No Q.
Sleep: 10-6. Woke up at 1:30 am. but went back to sleep. Woke up at 2:30 am. w/o alarm to take Benciar. Nap: 12:30-2:30 pm.
Sx: Not much sx until Fri. eve my spine from base of skull to mid back became very achy and stiff. Mild tinnitus.
Ex: Listened to my new CD and danced around the house.After sunset walked around the property with Cricket and hubby. Beautiful warm evening.
3.5 star day
DAY 284 (full protocol) - FRI. 3 PM. - SAT. 3 PM. - 05/27-28/2005.
PHASE 2 @ DAY 126. / waiting to start new second abx. when system is clear of Z.
Benicar 40 mg. q6h. / 100 Mino / No Z / No Q.
Sleep: 10-7:30. Woke up at 1 am. and 2 am but went back to sleep. Woke up at 4 am. w/o alarm to take Benicar. Nap: 1-1:30 but couldn't sleep.
Sx: Throat is sore like strep but think it is just a herx. Right leg achy. Transient aches & stiffness. Some brain fog. Mild tinnitus.
Ex: Listened to my new CD and danced around the house.After sunset walked around the property with Cricket and hubby. Beautiful but windy evening.
3.5 star day
DAY 285 (full protocol) - SAT. 3 PM. - SUN. 3 PM. - 05/28-29/2005.
PHASE 2 @ DAY 127. / waiting to start new second abx. when system is clear of Z.
Benicar 40 mg. q6h. / No Mino / No Z / No Q.
Sleep: 10:30-6. Woke up at 1 & 2 am. but went back to sleep. Woke up at 3:30 am. w/o alarm to take Benicar. Nap: 12:30-1:45 pm.
Sx: Sore throat has calmed down to barely noticeable. Right leg is still achy & stiff too. Transient aches & stiffness. Mild tinnitus.
Ex: The usual walk to the paperbox with Cricket. Then I washed my sport coupe! Woo Hoo. I think it is the first time (or at least the first time since winter '04 for sure) I've been able to do that since I started the MP. I am feeling strong. Since I haven't used many muscles much the last 10 months on the MP I sure do get sore from all this extra activity (washing car/walking property/dancing around the house) but I don't mind so much. wink. I am happy to be feeling SO GOOD! Light sensitivity has gone down very considerably with the herxing going.
4 star day    
CL 
____________________ FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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spacee member
| Joined: | Sun Sep 12th, 2004 |
| Location: | Florida USA |
| Posts: | 274 |
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Posted: Mon May 30th, 2005 01:58 |
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Yes, it has been a long time since you have washed your car. I remember when I was first here reading your posts. I told my hubby that you were up washing your car before daylight. He just looked at me and didn't say anything. hahaha Remember me writing you about that. That was before Christmas I think.
You Go Girlfriend! Spacee
____________________ CFS/FM/tachycardia/bladder and skin inflammation. C-Diff overgrowth 1995
clonazapan 1gm HS, Xanax .50mg HS, Premarin .625, Ultram 50mg BID Restart 9/15,NoIRs, No Vit D diet,Probiotics,11/12/04 25D=25, 1,25D=70, 9/9/05 25D 14, 1,25D 37. Beni Q6H, Mino 10
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CelticLadee member

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Posted: Tue May 31st, 2005 01:25 |
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Hi ya Spacee ... You got me curious so I read my old posts and found it! You won't believe how long ago it was I last washed my car! It was Aug. 29th! I was shocked. Of course hubby has washed it for me since, but the point is it was such a long time ago I felt I could do it! wow. So much herxing in between I just could never rise up to the occasion. The good news is after I washed my car this time other than a bit of a very mild small headache from outdoor light exposure and a few sore muscles I didn't have an adverse reaction. I took some Benicar and the headache left. I am truely feeling good these days. I still have some troubles but I just don't feel so toxic, so infected, so worn out, so sickish. This is a good break for me. Will be back on the second abx soon though so my break will end in about a week. But I feel refreshed and ready to go back at it after only a few days of feeling good. I want to get totally well as this feeling good but not totally well isn't good enough! But making progress and am happy to know it! Hope this encourages all who read this thread. As our good friend Barney says and we love to quote: "We will make it" CL 
____________________ FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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