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Adrianne
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Posted: Fri Feb 16th, 2007 02:43 |
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Adrianne on Benicar - http://www.marshallprotocol.com/forum19/8389.html
Well, I took my first dose of mino (25mg.) yesterday morning, February 14th. After a couple of hours it "hit" me. I felt very strange, a bit nauseated and felt unable to function. That feeling lasted for about an hour and I really haven't noticed anything since then.
My energy level has been better than normal and the brain fog that I experienced when on Benicar only has given away to clarity.
I asked my son (Mark N) who has become somewhat of an MP guru why I wasn't herxing. When he started on the mino his reaction was rapid and dramatic. He said that it was probably because my "D" levels were probably still too high and he is advising me to take it very slowly. He suggested dosing with mino every third day and to really be diligent about getting my "D" levels down.
I have not yet had a "D" test but am scheduled to have one done in a couple of weeks. I am fine-tuning my diet. Mark watches me in dismay as I eat these really wonderful chicken and apple sausages. They do not seem fatty to me but he says that all sausages have a lot of fat and that there is vitamin D in the fat and I am setting myself back by eating them
Terrible to live with the MP patrol monitoring me at all times (just kidding ) Anyway, it is almost fun to do the protocol together and we can laugh at each other in our NoIRs and rejoice in watching each other herx because we know that we are getting better.
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Adrianne
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Posted: Fri Feb 16th, 2007 14:16 |
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Would like to mention a couple of other things. My CBC results indicated that I was anemic and doc recommended an iron supplement. I started my iron supplementation the same day that I took my first dose of minocycline (February 14, AM). Around midday I noticed that the palms of my hands were discolored, kind of like an ashy black. I tried washing it off and it wouldn't come off. Then I found info on this website which contraindicated iron supplementation because it helps sustain the little buggers. I did not continue with the iron supplementation. The blackness on my palms faded after about an hour. Don't know if this was related to the mino or to to the iron supplement.
Also, have had severe muscle problems for about 30 years. The muscles in my neck and shoulder areas and more recently my hip area, are always in spasm. These spasms always worsen if I have even the most minute amounts of sugar, and it seems that sugar is present in just about everything these days. Chocolate and milk affect me in much the same way, though not as severe. My reaction to these things is just about instantaneous. Once my neck and shoulder muscles get sore and tighten up more it's just a matter of time before a migraine headache develops. Anyway, last night I had a teeny amount of fudge Rice Dream (an "ice cream" made from rice and sweetened with with rice syrup). Within moments I felt my neck muscles hurting. If I go to bed when this is happening I will most surely wake up quite ill the next day. Well, the Benicar has been relaxing me quite nicely and I am sleeping well since starting it. That alone has been a MAJOR improvement in my life. Well, guess what! I woke up this morning feeling perfectly fine. No achy neck,no migraine headache! I imagine it has has a lot to do with the Benicar addressing inflammation issues? I am also getting regular chiropractic treatment and I know that that is helping also.
By the way, I have been to many doctors in the past 30 years concerning this issue. Usually they would say that this was very strange and they didn't know how to help me.
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Posted: Fri Feb 16th, 2007 16:44 |
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Adrianne,
Have you considered that the hand discoloration may have been an immunopathologic reaction, particularly since it was temporary? Doctors usually assess skin color because pallor (paleness) or cyanosis (blue-coloration) may indicate anemia or poor blood flow/oxygenation.
Another likely explanation (especially if there was any pain in the hands) for discolored hands may be Raynaud's Syndrome, a collection of symptoms that some Th1 patients experience. Raynaud's is actually temporary spasms of periphery arteries. See Raynaud's Phenomenon and Hand Pain.
Please also see My doctor says I am anemic. What should I do?
Anemia and Th1 diseases
Belinda
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Posted: Sat Feb 17th, 2007 03:24 |
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| It does seem like sugar is present in everything these days because we consume so many processed foods. Foods in their natural state are recommended. For the occasional sweet tooth urge, you might try a product sweetened with Splenda or a sugar alcohol.
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Adrianne
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Posted: Mon Feb 19th, 2007 00:08 |
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Thank you Belinda and Meg. All feedback is much appreciated!
I took my first dose of mino (25mg) Feb. 14, as I reported. My son Mark encouraged me to wait a third day, as long as I was still herxing, before taking my next dose. I am glad that I did because that third day I experienced significant herxing all day long, more so than on the first two days. It was mainly in the form of fatigue, brain fog and a really runny nose! Yesterday I had my second dose of mino. This morning, when I woke up, my husband commented that I had been breathing normally as opposed to stopping breathing and then gasping for air. I guess I suffer from sleep apnea, though it has never been officially diagnosed. I certainly do feel more rested when I wake up now!
I also had lower back pain that started for no apparent reason. Hurt most with movement. Lasted a day and then just went away. Also experienced strange prickles on my skin in different areas.
Today, Sunday I spent most of the latter part of the day sneezing and blowing my nose, even though I know that I don't have a cold.
This herxing is most interesting! You never know what is coming next! 
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jrfoutin
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Posted: Mon Feb 19th, 2007 06:07 |
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Adrianne,
Some find immunopathologic responses increase more on the third day.
Meg Mangin R.N. recently wrote:
...if you are experiencing immunopathology symptoms on the third day, every 3rd day dosing of minocycline is a good strategy for you.
Some don't clear abx as quickly as others, so the expected response time frame may be slightly different. Charting can help you determine a pattern in your responses that will help you throughout the MP, and also can inform your discussions with doctor, too.
Best to you, Adrianne--Janet
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Adrianne
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Posted: Tue Feb 20th, 2007 12:35 |
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Yesterday was day 3 since my last mino dose. There was no noticable herxing so I decided to go ahead and take my next dose in the afternoon. Again, nothing. Went to sleep and was awakened by a really intense pain in my lower left breast. It hurt so badly and came and went throughout the night. It is sore and mildly painful this morning. I can't detect a lump or anything. I remember feeling pain there in the past. Would a breast exam and mammography be advisable at this time?
Also, a couple of years ago I had a heart incident, I think. For several weeks I had pain around the area of the heart where the aorta is. At least, that is what it felt like. I saw my doctor who is an MD and Naturopathic physician. He did some testing on me and said it was some kind of bacteria and gave me several supplements. It did eventually go away. Well, last night that pain came back, also.
Herxing, which I assume this is, can be scary sometimes!
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jrfoutin
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Posted: Tue Feb 20th, 2007 22:47 |
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Adrianne,
You may find a lot of previous aches and pains emerging. This is typical. If you have had anything that seemed to be around the heart, then do post for moderator input, chart and report patterns to your doctor.
As for testing every time you have an immunopathologic event, it is a great comfort to know there are not that many tests needed while you are doing the MP. Not only will the endless stream of testing be expensive and time consuming, it also may encourage health care providers to suggest or even insist on offering you options that will stop your progress on the MP.
Since you are not the first to notice these kinds of symptoms, there are MP resources to review that might help you as you learn to read your own immunopathologic responses and taking the correct action for each:
The symptoms experienced are due to Immunopathology.
The aim or the key is for you to achieve and maintain tolerable symptoms (physically, mentally, and emotionally) by adjustment of your meds dosing and schedule as suited individually to you within the guidelines.
If your Dr agrees: to minimise symptoms - you can take extra half tablet (20mg) Benicar any time during cycle, or adjust dosage to 40mg Q4H. see also in BenicarQuiklink many Members report chewing or sublingual gives faster absorption/relief..
My immunopathology symptoms are too strong. What should I do? ..
Any time that your symptoms are going past tolerable: please check these precautions and the options one at a time to assess: do not hesitate to use any of the adjustments suitable to you. Tools to check: << if having problems please check if you need to make adjustments in any area, and feel free to ask on the Board. thank you.
Phase One is the training ground for getting the feel of your immunopathological response symptoms and gaining personal experience in managing all aspects of MP. ie eg including your meds and etc..
When should I be concerned about cardiac symptoms?
Downloadable MP Documents These Quick-Scan Tracking Charts may be helpful to you in spotting patterns that can inform better decisions about MP abx options.
Best to you Adrianne--Janet
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Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2, 10/08 25D6.9
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Adrianne
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Posted: Thu Feb 22nd, 2007 00:31 |
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| I forgot to take my Benicar, for the first time, this afternoon. I was out doing errands when I started to feel fretful and somewhat depressed. I rushed home to take that missed dose. Within minutes I could feel blessed relief. I never before realized how much of an effect inflammation can have on your psyche! I really like the calm peaceful feeling that the Benicar promotes.
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Aussie Barb
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Posted: Thu Feb 22nd, 2007 00:52 |
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Thank you Adrianne
It is a good idea to always carry your meds with you in case of delays..
and as you have reported, it is all gained experience.. for yourself and for those reading here..
What times should I take my Benicar? What if I forget a dose?
all best, Barb ..
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Adrianne
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Posted: Thu Feb 22nd, 2007 16:24 |
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| Since starting the MP I have noticed a more rapid heartbeat. i notice it mainly when I am lying down to go to sleep or when I am doing physically demanding chores around the house. As I am working, I find myself getting very winded, very quickly. Are these symptoms related to herxing?
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Adrianne
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Posted: Thu Feb 22nd, 2007 17:28 |
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I just re-read your posting on "cardiac symptoms" and I understand this issue better now. It is quite mind-boggling to think that if I weren't addressing these inflammation issues now with the MP, what kind of life-threatening illness I would be dealing with in the future. The MP, with all of the inconveniences,is certainly worth it! 
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MarkN
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Posted: Thu Feb 22nd, 2007 21:48 |
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| Hi mom
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General insanity (Aspergers ??), CFS, some joint paint ...
11/06:1,25D=37 25D=43, 12/09:25D=5.4 ... Avoid D 12/06 ... PhaseOne 1/07, PhaseTwo 3/07, PhaseThree 9/07
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Adrianne
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Posted: Thu Feb 22nd, 2007 22:20 |
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Hi son . Thanks for encouraging me to go on the MP!
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Posted: Fri Feb 23rd, 2007 03:58 |
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| Immunopathology is the logical suspect for someone on the MP who develops tachycardia.
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Adrianne
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Posted: Wed Feb 28th, 2007 15:03 |
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I took my third dose of mino (50 mg.) yesterday morning. I was okay during the day and was able to keep busy with housework and go to the chiropractor later in the afternoon. The only herxing I had to deal with was occassional rapid heart beat and mild fatigue.
Last night, as I lay down to go to sleep, my rapid heartbeat continued. At one point it got so rapid for a few seconds that it was quite frightening. I tried not to lay on my left side not wanting to put pressure on the heart. After a long time, I finally fell asleep only to wake up at 4:30AM with chills. I put a couple extra blankets on but that did not help. I dealt with the chills for a couple of hours when my alarm to take Benicar went off. The chills were less bothersome after the Benicar and I was able to go back to sleep. When I woke up my heart was still beating rapidly.
This morning I am weak, my skin is sensitive to touch and I am running a low-grade fever (99.3). I wonder if going out yesterday in the bright sunshine brought on these more intense symptoms. I covered up as well as I could but sometimes exposure is unavoidable. I have not yet experienced any light sensitivity (at least with my eyes) and it is easy to forget the NoIrs because of that.
Still collecting all kinds of mucous in the back of my throat. Also, developed a crack in the fold line of my finger. Just appeared and was quite painful. I imagine that if the body has to develop cracks in the skin, it will do so to eliminate toxins.
Anyway, this episode is the most intense herxing I've experienced so far. Glad you are all here. Wouldn't want to go at this alone
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Carole
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Posted: Wed Feb 28th, 2007 20:22 |
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Hello, Adrianne!
It is very interesting how our bodies let us know in obvious ways when we need to be more attentive. The red flags are flying when your symptoms are sustained or your immune response becomes intolerable. Thankfully, Benicar adjustments can be a quick fix; but reducing the abx is another option. Do not be concerned in following the "suggested" timeline for ramping. Let your body tell you when the time is right. As members acquire more experience (even with trial and error), they become more attuned and proceed accordingly.
Yes, I'm afraid that exposure to light can present multiple challenges. When I was just 3-4 months into the MP, light filtering through the car window or brief gardening tasks outside (even with layers of clothing) presented immediate and delayed problems. Take heed to the warnings, Adrianne, as those pioneers have made impressive footsteps for all of us to follow.
Best wishes and take care as you begin the journey to wellness! . . . Carole
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Adrianne
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Posted: Wed Feb 28th, 2007 22:51 |
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Well, I had a very difficult day. Had fever, headache, achiness and intense fatigue. Really feels like have the flu. I have not had the flu or even a cold in many (at least 20) years. It is early evening and my temp is now 101.3. Can I take aspirin to relieve the head pain? I don't want to suppress any herxes but I feel awful. Will extra Benicar be a good alternative? I shall try that now. Will wait to hear about the aspirin. Thanks!
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jrfoutin
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Posted: Wed Feb 28th, 2007 22:59 |
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Adrianne,
Looking forward to seeing your D tests soon!
I totally agree with Carole. You don't have to have eye pain to be sensitive to light, either. AVOIDING SUNLIGHT and BRIGHT LIGHTS is helpful. A reminder that when you are going outdoors that extra Benicar as well as protecting yourself from light exposure by covering up to help keep symptoms minimal:
Dr Marshall says, "I used to make sure that I was never more than 4 hours from my last Benicar whenever I had to go outdoors. Then, after the exposure, I needed to keep the 4 hour going for 12 hours after the final exposure. Beyond that I could slip back to normal dosing, as the 1,25-D had dissipated ....
When and why should I vary my Benicar schedule?
Since you just started Mino a couple of weeks ago, you might like to learn about how to help put on the brakes with abx too if Benicar isn't enough (it usually is): rest, relaxation, and hydration etc.. Tools to check. We do not recommend the routine use of aspirin.
Rest is a very important part of managing and healing.. By being pushed to the limit of the tolerable immune response our body is working to capacity. Can't possibly explain how important Ph1 is to learn to take it easy. Your body has a big task to do. R&R helps.
Good to see your avatar Adrianne!--Janet
PAIN:
PAIN CONTROL
We do not recommend the routine use of aspirin.
You are right not to take pain meds unless you need them. Adjusting the MP meds is the best way to manage immunopathology. But if that is not enough, don't be afraid to try pain medication if you need it.
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Adrianne
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Posted: Thu Mar 1st, 2007 15:05 |
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I had a difficult night. I was very hot and was sweating profusely. Didn't get much sleep. This morning I was feeling nauseous and I was still sweating. Just a few minutes ago I started to feel really, really sick.Everything started to black out and sounds faded but I didn't lose consciousness. I started to sweat even more, soaking my clothes completely. This episode lasted about three minutes.
Now that it's over I feel much better. The only thing I really feel right now is the the painful stiffness in my neck which came with the fever.
I am planning to go back down to 25 mg. of mino for a while and see how it will go.
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