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Knochen
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| Joined: | Thu Feb 23rd, 2006 |
| Location: | USA |
| Posts: | 369 |
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Posted: Sun Mar 18th, 2007 01:44 |
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Yesterday, I felt quite depressed and couldn't stop the tears. I am dealing with difficult circumstances but yesterday the glass was more half empty than half full. Perhaps that was another IP symptom.
I get the worst of the neural symptoms with light exposure. Your situation sounds pretty typical, and the fact you've only had the 10% NoIRs make it a strong possibility that you had a light induced flare, IMHO. Not a lot of fun! (I ran the snow blower to clear the driveway today and suffered -OK, am suffering - from the glare that got around my 2% glasses. The effort of doing the work probably contributed as well.)
We all end up finding our limits on the MP, and maybe you found one yesterday with extra stress and light. Just remember to click your heels together and say "There's no place like herx" to keep your perspective.  Other than that, be willing to let things go for a bit and retreat or rest as you need it. Treat those neural reactions  with respect.
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Reiter's Syndrome 25+ yrs, fatigue, joints, muscles, migraine, brainfog| 25D <4 ng/ml |Benicar May06|Ph1 June06|Ph 2 Sept06|Ph 3 Jan 07|NoIRs K-Cream Zinc Oxide cream - Always covered!
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Adrianne
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Posted: Sun Mar 18th, 2007 02:22 |
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Knochen, thanks for your input! I think you hit the nail on the head. Yesterday I spent a good part of the day running errands all over the place and then going to the chiropractor. It was a bright sunny day and I was wearing a 3/4 sleeve cardigan, so there was some sun exposure on my arms, as well as my neck and face. I started to fall apart emotionally not long after arriving home from my outing. Even though I did not mention this in my posting, you already knew!
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CFS Ph1Jan07 ModPh2Apr07 Ph2Aug07 Ph3Feb08 L-tryptophan benadryl 25D<7(Mar08) NoIRs limited outings covered
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Adrianne
Member
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Posted: Tue Mar 20th, 2007 02:05 |
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Today I took my third dose of 75 mg. mino. After I take it I feel it circulating throughout my system in a pleasant kind of way for several hours. Anyway, since I have been on 75 mg. of mino, I have had only very mild IP. I have been experiencing pain in the joints of my fingers, especially on the right hand. They come, stay awhile and then leave. I have been also getting the sharp pains through my knees again. These hit suddenly and can be intense. I don't think I've posted about the ringing in my ears before. This started to happen quite frequently when I began the MP. I am still experiencing occassional ringing. I also get short-lived pain in either of my ears from time to time.
I am quite surprised at the milder response that I am getting on 75 mg compared to when I was at 50 mg. I am wondering if increasing the Benicar to q6h around the same time that I increased my mino dosage, has anything to do with it. So, no gory details to report at the moment but I'll be sure sure to let you know when they start showing up!
Wanted to add that I purchased a Timex pill-minder box which has 4 boxes and alerts me to take my Benicar 4 x daily. No more late doses for me!
Last edited on Tue Mar 20th, 2007 02:31 by Adrianne
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CFS Ph1Jan07 ModPh2Apr07 Ph2Aug07 Ph3Feb08 L-tryptophan benadryl 25D<7(Mar08) NoIRs limited outings covered
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jcwat101
Support Team
| Joined: | Tue Jul 20th, 2004 |
| Location: | Pasadena, USA |
| Posts: | 2047 |
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Posted: Fri Mar 23rd, 2007 21:12 |
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Adrianne,
I just wondered if you were using anything to protect the areas of skin exposed to the light? You might look at the Sunscreen Overview post ( http://marshallprotocol.com/forum2/7758.html) for information on some of the options.
Joyce Waterhouse
P.S. I just saw your post from a few days ago, so it appears you are working on trying the zinc oxide. If it alone isn't enough, some use both zinc oxide and keto cream (though covering up well is best)Last edited on Fri Mar 23rd, 2007 21:18 by jcwat101
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20 yrs with CFS/FM/Lyme/IBS, food sensitivities; 1,25D/25D 8/04:64/11 http://SynergyHN.wordpress.com
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Adrianne
Member
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Posted: Sat Mar 24th, 2007 01:43 |
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Thanks Joyce! I am still waiting for the zinc oxide to arrive. I am going to mix it with my favorite natural moisturizing cream. A sunscreen solution is a must for me because it gets VERY HOT and VERY HUMID here in North Carolina and covering up completely may not always be an option. Also, thank you for directing to me to the link on sunscreen. It has such a wealth of information!
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CFS Ph1Jan07 ModPh2Apr07 Ph2Aug07 Ph3Feb08 L-tryptophan benadryl 25D<7(Mar08) NoIRs limited outings covered
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Adrianne
Member
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Posted: Mon Mar 26th, 2007 01:16 |
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Beni 40mg q6h, Mino 100mg q48h, probiotics
Hello everybody! After relatively mild IP symptoms on 75 mg. mino (compared to 50 mg.), I took my first dose of 100 mg. mino yesterday morning. I was a little apprehensive but so far all is tolerable.
Yesterday I started out with some more ringing in my ears. Also had pain in my left ear. By the way, I don't seem to be hearing very well lately. There is some pressure in my left ear. I hope that this is due to IP and that it will eventually resolve.
I have also developed swollen ankles, especially the right one. There is some pain associated with the swelling. This is a symptom that has re-appeared from last year. Wondering if it is IP or I am just reacting to the warmer weather.
Another condition that is exacerbated is my carpal tunnel problem. I usually have problems with it only at night and it usually involves numbness and tingling. Now I am feeling more pain and tenderness in the wrists and the tingling and numbness occur even in the daytime.
Dental pain has been intense at times in two problem areas. I am waiting a bit to have it checked out because hopefully these are IP symptoms which will resolve.
Fatigue is ever-present but I am keeping up pretty well with all the basic (really basic) responsibilities. Vacuuming never seems to get done and I can't seem to get help with it. The other day, I walked into Costco and they had all these Roomba robot vacuums stacked up near the entrance. I decided to give it a try. Well, it would have worked out except that it kept getting caught in the fringes of all my area rugs. So back to the ol' vacuum cleaner which I just may have the energy to push around between mino doses!
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CFS Ph1Jan07 ModPh2Apr07 Ph2Aug07 Ph3Feb08 L-tryptophan benadryl 25D<7(Mar08) NoIRs limited outings covered
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MarkN
Member
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Posted: Wed Mar 28th, 2007 04:06 |
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Mom,
Sounds like you are a mess, I'm happy for you.
Sorry to hear about the vacuuming. I'll have to check my calendar.
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General insanity (Aspergers ??), CFS, some joint paint ...
11/06:1,25D=37 25D=43, 12/09:25D=5.4 ... Avoid D 12/06 ... PhaseOne 1/07, PhaseTwo 3/07, PhaseThree 9/07
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19536 |
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Posted: Wed Mar 28th, 2007 04:32 |
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Thank you Adrianne
Benicar: If your Dr agrees: to minimise symptoms - you can take extra half tablet (20mg) Benicar any time during cycle, or adjust dosage to 40mg Q4H. see also BenicarQuiklink many Members report chewing or sublingual gives faster absorption/relief..
Using your Dr approved pain med regularly can be helpful.
see this FAQ Where can I find phase two and three? for information re sending an email for the Questionnaire to fill and return so that you have plenty of time to read and discuss the Information with Staff before going to your Dr.
When you are given feedback and access to the Information in the Phase 2/3 Forum -
We then encourage you to begin a new progress report there in that forum to discuss the Staff recommendations as to which meds and dosing are most suitable to your individual situation, in preparation for discussing with your Dr so s/he can write the scripts. Thank you.. all best, Barb ...
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♥Barb♥: Dx Inflammation - Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04-Aug2010| barbliv @ hotmail.com | ABC of MP| Barb's Story|
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Adrianne
Member
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Posted: Thu Jan 31st, 2008 23:40 |
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I have just hit the one year mark on the MP! On this day last year I started taking Benicar to do a therapeutic probe. I was astonished at the changes that started to take place. After taking Benicar for only a couple of days, I started to experience deep, refreshing sleep. This was wonderful since I had struggled with insomnia for a few years. Also, after two weeks on Benicar I had not had even one migraine headache. This was wonderful to me since I had battled chronic migraine headaches for at least 30 years. I was convinced that the MP was for me.
My MP journey to date has been nothing short of amazing. I started out with many health problems which I had considered to be separate issues. I had always addressed each problem with an appropriate treatment. However, I had so many problems it was hard to deal with them all and I wasn't ever able to actually get anything resolved. How wonderful it was to learn, after being on the MP for a while, that practically all of my health issues were being addressed because the underlying problem was inflammation due to the presence of CWD bacteria.
The MP, over the course of a year, has targeted just about every health issue I have been dealing with and even health issues which I had dealt with in the past that seemed to have left a population of CWD bacteria behind (areas of old injuries and illnesses). I have experienced almost continual immunopathology symptoms, some mild, some quite intense and frightening.
Areas if improvement include:
No headaches of any kind (migraine, tension or sinus). If I feel headachy, extra Benicar melts it away within moments.
Better digestion and bowel function
Symptoms of hypoglycemia: gone for the most part
Muscle pain and achiness greatly reduced. Extra Benicar helps with this symptom also.
Improvement in long-standing inflammation in the left TMJ/ear area. Have a ways to go before it is resolved but I am definitely making progress.
Heart symptoms (rapid and sometimes irregular heartbeats, pain) occur only very occassionally at this time.
Kidney pain - only occassionally and very mild
Dental pain much reduced, especially the area where a molar was extracted years ago. It used to ache off and on but now there is no pain at all.
Joints in fingers don't ache very much any more.
Energy level has increased. This is more noticeable at the end of an antibiotic cycle when herxing decreases for me.
These are some some obvious improvements but I am experiencing consistent herxing and so I know that many more good things are in the works. I will be entering Phase 3 in a couple of days and I am looking forward to killing lots more bugs with the "big guns".
With PERSISTENCE and PATIENCE the MP can work miracles!
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CFS Ph1Jan07 ModPh2Apr07 Ph2Aug07 Ph3Feb08 L-tryptophan benadryl 25D<7(Mar08) NoIRs limited outings covered
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eClaire
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| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1507 |
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Posted: Wed Feb 6th, 2008 01:01 |
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| Congrats Adrianne on all the positive changes that your first year on the MP has brought! And thanks for being the supportive person that you are! Claire
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12/2006 (-2 mo); CFS FMS MCS COPD hypermob IBS/GERD osteopor food/animal/plant allergies; sleep difficulties, exhaustion, muscle weakness, pain, post exertional malaise; 25D<4 summer 2010
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Adrianne
Member
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Posted: Tue Dec 2nd, 2008 07:48 |
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MP Meds: 40 mg. benicar q8h with occassional 20 mg. in-betweeners + Phase 3 meds
Light: More exposure due to Thanksgiving travel. No noticable adverse effects.
Symptoms: Lots happening in my head. Have been feeling stuffy and clogged up. Occassional post nasal drip and lots of sneezes. Left ear has been feeling stopped up and have had much difficulty hearing conversation not directed toward me. Dental pain. especially in root-canaled tooth.
Joint pain and tenderness, especially left elbow (mostly upon awakening) and rt. big toe. Fleeting, sharp pains in knees, achiness in fingers.
Parasthesia in right hand when sleeping.
Lots of general fatigue but this is offset somewhat by being able to sleep much better.
Loss sense of taste and of smell continues.
All IP has been quite tolerable!
Comments: For the first time since starting the MP, I did some travelling (for Thanksgiving) I was amazed at how well I weathered the trip! In fact, I fared better than I ever did during past trips! I felt fine the whole time and had a wonderful visit. I was covered and wearing NoIRs during the trip and I wore my 10% NoIRs indoors during daylight hours since the windows were not covered.
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CFS Ph1Jan07 ModPh2Apr07 Ph2Aug07 Ph3Feb08 L-tryptophan benadryl 25D<7(Mar08) NoIRs limited outings covered
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Adrianne
Member
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Posted: Sun Feb 1st, 2009 02:29 |
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Yey!! As of today I have completed two years on the MP! If I had to make one statement regarding my experience with the MP, it would be this: "Who knew I had so many bugs?!" (Answer: Dr. Marshall,, of course!) I have experienced immunopathology almost everywhere in my body. Turns out that all my problem areas have been nothing less than bug resorts! These bugs thrived and multiplied through the years with virtually no threat to their existence. Then one day, exactly two years ago, I decided on a whim to pop one of my son's Benicars just to see what would happen. I continued on and it did not take very long for me to realize that I had hit the jackpot, as far as my quest for health was concerned. As for the bugs, it probably didn't take too long for them to realize that there was trouble in paradise.
After two years, the bug-killing is continuing. I have had no shortage of IP symptoms, that's for sure. The first year, the MP was the focus of my life. There was no way it could have been anything less. However, this past year it has been pushed more and more into the background as my energy and zest for life have been increasing. Yes, there are the down times but I can pretty much regulate that with my antibiotics schedule and dosing. It is all second nature now and I don't have to give it very much thought for the most part. I am able to take care of cooking, essential cleaning, laundry, grocery shopping and other errands with relative ease. I have yet to tackle bigger household projects but I know that the ability to handle such things will come in time. I participate in a couple of church-related activities per week and no one outside of my family knows that I am on the MP, though they may be a little curious about my fit-over NoIRs which I wear outdoors, even on cloudy days or at dusk. I no longer wear them indoors, however, even if I am in a place where there is natural light coming in through the windows, and I find that I am perfectly comfortable with that. A few times during the day I will pop my head out the door to call my kitty in and I don't usually have my NoIRs on. Sometimes a big blast of sunshine hits my face and eyes and I have not noticed any averse reactions.
I am definitely still a work in progress. I still have immunopathology in my joints, heart, kidneys, colon, ears, skin etc. etc., but I FEEL BETTER IN EVERY WAY! Body is stronger and I certainly have more stamina. I have been exercising regularly pretty much for the past year. I started off really slowly but now I am able to do complete workouts (15 to 45 mins.) I have achieved some weight loss, almost 20 lbs, something that I was unable to succeed in pre-MP, no matter how much I exercised. Also, my mind has been sharper and clearer lately. However, my physical strength and mental clarity are totally dependent on a good night's rest. If I don't get good rest, I can't function well physically or mentally. Unfortunately, insomnia is still an issue as well as frequent wake-ups. I still allow myself the luxury of staying in bed late or taking a nap, if I need to. Also, I would like to mention that I am still migraine-free since starting the MP. This is huge because the headaches were excrutiating and they incapacitated me for 2-3 days at a time. I got them regularly for about 25 years.
Words are not adequate to express the gratitude which I feel for Dr. Marshall and his work. I not only get to experience my own recovery but I am watching my son, also on the MP, come back to life. This journey is certainly worth it.
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CFS Ph1Jan07 ModPh2Apr07 Ph2Aug07 Ph3Feb08 L-tryptophan benadryl 25D<7(Mar08) NoIRs limited outings covered
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Joyful
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| Joined: | Sat Jun 9th, 2007 |
| Location: | North America |
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Posted: Sun Feb 1st, 2009 06:22 |
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Wow... Thanks for posting. Your experience really is encouraging!!! 
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Shari Gold
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| Joined: | Sat Dec 27th, 2008 |
| Location: | Los Angeles |
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Posted: Sun Feb 1st, 2009 08:18 |
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Adrianne -
This is so amazing!!! I read your post at your one year mark and then jumped to this last post at your two year mark. I am in the beginning of my 7th month and it is nothing short of a miracle. For folks who are not as sick as we are .. trying to convey the MP experience and the shifts that are happening islike trying to speak an alien foreign language to earthlings.
Today I had a glimmer of what good is to come. Shopping in the grocery at night tonight, I felt light and no aches an pains. Driving home, my mind felt sharper than it has in years and while the lights were a little difficult at times to drive w/ I can't help but marvel at how the night seeems sharp and clear and shiny ... like I am seeing the world w/ new eyes for the first time.
Your post here really resonated w/ me .. it is nice to read someone's journey who is just a little bit ahead, but so much farther down the line!
Thank you!!!!
Shari
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PTLDS 19 years, FM, Chronic Fatigue, Peripheral Neuropathies, Spot of Morphea on Back Ph1 8/08 25D 20 1,25D 58, Ph2 10/08, Ph3 4/09
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Aunt Diana
Support Team
| Joined: | Fri Sep 30th, 2005 |
| Location: | Boquette, Panama |
| Posts: | 1987 |
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Posted: Sun Feb 1st, 2009 15:16 |
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| So happy to hear how well you are doing.
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Lyme 1987, neuro cardio fatigue achiness brain fog depression, anxiety. Pacemaker, D.1,25 32; D <5; 12/07 <6, hydrocodone, lorazapam, benedryl, zantac, colase, Noirs, cover-up or avoid sun, house <30lux. Feb 08 Phase 3. 6/08 D <4, D1,25
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expate
member
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Posted: Mon Feb 2nd, 2009 05:00 |
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Thank you for sharing. It is instruction for all who seek.
dette
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Hypervitaminosis D 1,25D 52 pg/ml (3/08), 49 pg/ml (2/11), 25D 38 (3/08), 25D 34 (8/08), 25D 29 (10/08), 25D 14 (3/09), 25D 15: D3=15, D2<4 (6/09) 25D=9 (1/27/10), 25D=9, D3 9, D2<4 (2/20/11): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08, Ph3 2/18/09
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Adrianne
Member
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Posted: Tue Feb 3rd, 2009 22:03 |
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Thank you Joyful, Shari, Diana and Odette! You all are a great encouragement to me, also.
Shari, I also enjoy those little glimpses of wellness which usually come so unexpectedly. I had one this past Sunday. We usually sit in the balcony at church. For quite a while walking up the stairs to the balcony was a major challenge. If no one was around my husband would push me up on my hindquarters just to give me a boost . Hoisting my weary body up the stairs was just too hard. I would usually arrive at the top breathless and feeling as I were going to black out. A lot of this had to do with the fact that I have to wake up quite early on Sundays and I am usually quite tired and I don't function well when I am tired. Anyway, this past Sunday I just bounded up the stairs feeling agile and as light as a feather. I wasn't even gasping for breath at the top. Just love those little surprises!
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CFS Ph1Jan07 ModPh2Apr07 Ph2Aug07 Ph3Feb08 L-tryptophan benadryl 25D<7(Mar08) NoIRs limited outings covered
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