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Markt9452
Member in Phase 3
 

Joined: Sat Oct 27th, 2007
Location: Leamington, Ontario Canada
Posts: 102
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 Posted: Wed Apr 9th, 2008 18:53

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I think that it's probable that my 25D is approaching the 12ng/ml level or has reached it as it was 18.4 when I first started the D reduced diet.

My character of my herx is changing.   I am feeling pain in the nerve that runs down the back of my right leg and  terminates in the area of the Bakers Cyst on the back of my knee.

The Bakers Cyst is receding and I am quite optomistic about the new changes including the bleeding which I think is a result of inflammation of the nerves in that area. 

The common denominator in my new symptoms seems to be that the nerves are being affected.

I am certain this is as expected and in fact good news.:)

Mark

Noted



____________________
Th1 Inflammation Lyme vertigo fatigue brain fog skin lesions tinnitis 125D20 D2510 Ph1Feb08 Ph2Apr08 daily lite exp covered up NoIRs
Jeannine R.N.
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Joined: Sun Aug 28th, 2005
Location: Louisiana USA
Posts: 883
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 Posted: Thu Apr 10th, 2008 06:43

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Hi Mark,

Good to know you are seeing these changes. Can you please describe the bleeding? I assume it is tolerable, has stopped bleeding or is intermittent.

Jeannine



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CFS FM Lyme Morgellon's 125D49 Ph1Aug06 25D <4(april 08)Prozac Valium Aleve ModPh2May07 Ph2Apr08 NoIRs limited outings covered lo lux home
Markt9452
Member in Phase 3
 

Joined: Sat Oct 27th, 2007
Location: Leamington, Ontario Canada
Posts: 102
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 Posted: Thu Apr 10th, 2008 17:14

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MP 57 days

Hi Jeannine

I am experiencing small amounts of bright red blood after defacation.  The source appears to be the rectum or anus.  There is minimal amount of irritation in this area and the blood is only visible after defacation.  Stools appear somewhat thin, loose and are not maroon in color.  No clots are visible and no structural abnormalities are evident.


I am attributing the bleeding to normal activation of the immune system causing inflammation within the tissues where the activation occurs.

Thanks Jeannine:)
Mark

Thanks for the clarification. Noted.



____________________
Th1 Inflammation Lyme vertigo fatigue brain fog skin lesions tinnitis 125D20 D2510 Ph1Feb08 Ph2Apr08 daily lite exp covered up NoIRs
Markt9452
Member in Phase 3
 

Joined: Sat Oct 27th, 2007
Location: Leamington, Ontario Canada
Posts: 102
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 Posted: Tue Jun 17th, 2008 00:43

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April: Started Phase 2

MP 61 days
This protocol is going quite well.  Everything as expected with no surprises.  I am getting better. :)  I have excellant support from my Doctor.  Feeling very optomistic, fortunate and gratefull.

MP 75 days
Comments: This seems to be the pattern  - I experience some increase in IP followed by an improvement afterwards.  I think most of the healing right now is happening in my ear, jaw, brain,eyes and nerves.

The affect on my imaging systems is profound to say the least.  Color, clarity, resolution, peripheral vision, focus are all greatly improved

The sockets where my wisdom teeth were extracted have all re-healed themselves although my dentist had told me that they were fine I knew something just wasn't right.

I have reached a point where I actually look forward to the antibiotics, stabbing pains or an increase in IP because this is always followed by an improvement particularly in brain function.

I think I started the MP at the exact moment that I fell off the cliff so to speak.  That makes me a very lucky person.

Previously I could see the light at the end of the tunnel.  Now I am feeling a bit of the warmth from that light as it get's closer.  This is very nice.

MP 89 days

Comments:
I have just switched from taking compounded Olmesartan purchased from The Glebe Pharmacy in Ottawa to to the Montreal product. 

There is an obvious difference.  I experienced full body rushes, insomnia, fatigue, tinnitus, vertigo and general feelings of hormonal readjustment about an hour after taking the Montreal Olmesartan and this continues. 

I'm not really sure what to think about this.  I feel worse but my eyelids are slightly less red.  :?

Inflammation in the ear and fatigue has increased.
Parathesia has decreased.

The progress I am making is contrasted with an increased awareness that I am much sicker than I realized particularly in the neurological realm.  :(

I seem to have a better perspective on certain negative elements of my personality specifically; Intolerance, Opinionated, Anger, Obsessive. 

I seem to be relating to people in my life in a much more gentler and caring manner this week but I have still needlessly pissed off a couple of people in a couple of incidents where I was trying to enforce my version of reality in a confrontational manner.  :shock:

I will have to re-learn how to express myself in a more appropriate, less confrontational, constructive manner.

I am experiencing some noticeable improvements as a musician including; increased coordination, timing, increased complexity in composing, heightened awareness of tonal relationships on the fretboard, increased accuracy and speed in finger picking.

I have been successful this week at integrating a percussive tapping technique into my playing style that involves some very precise timing.  This is a huge breakthrough for me.

MP 96 days

Comments:
Rolling along... :cool:  Lots of bacterial killing now in Phase 2.  I stopped using Head and Shoulders with Pyrithione Zinc.  I consider this an absolute miracle since I have had severe Sebborrheic Dermatitis for a long time and not using it has never been an option...until now.  The oils from my skin are more waxy and less greasy now.

Lot's of healing sensations inside my ears and mastoid.  Something good is going on in there.

MP 110 days
Comments:
Things are going well.  I'm getting more familiar with phase 2.  Healing sensations have increased and IP is just about right.

MP 117 days
Continued improvement in symptoms.  The larger dermafibromatic lesions on my shins and eyelid areas are noticeably softer and have decreased in size by about 20%. 

There is the general feeling that the healing is slowly starting to gain some momentum particularly in my ears, skin, nerves and joints.

I am feeling much more relaxed.  I am also more sociable and tolerant.

The occassional sharp electrical shock sensation that ran from my mastoid to my feet is gone.  Paresthesia is quite different now.  My arms and legs are not falling asleep anymore during sleep.  Still a bit numb though.

Memory loss has increased.  I am having trouble remembering the names of people that I know very well.   This is contrasted by an increased ability to think in complex terms and solve problems.

I have not had swelling of the ankles or pain on the bottom of my feet in quite a while.

Panic attacks/Anxiety/Racing heart has decreased in severity by about 75%.  My heart rate sometimes gets a bit higher but I don't get that rush of anxiety chemicals/Adrenalin so much anymore.

The frequency or pitch of the tinnitus is of a lower value and volume.

MP 124 days

Palliative meds:
None
Light exposure: 2 hours per day covered with noirs.

Symptoms:
Brain Fog - 3
Fatigue - 5
Skin  - 2

Tinnitus - 2

Light sensivity - 2
Red eyelids - 2

Memory Loss - 5
Swelling of Mastoid  - 1.5
Joint Pain - 2
Twitching -  0

Irritability - 1.5

Vertigo - 3.5
Headaches - 1.5
paresthesia - 1
Abdominal Pain - 1.5
Malaise - 4

Comments:
I am experiencing a new kind of herx.  Pain in the region of the descending colon and general belly button region.  The left side of the abdomen just hurts. The lower frontal abdominal pain feels like an intense burning hunger.  I have had this before when I was around 9 years old - It's a strange enough feeling that I can clearly remember the first time I experienced this on a camping trip 32 years ago.  It would occur always in the morning after waking up.  Now it is back and occurs off and on.  This kind of herx was completely expected.

I have added abdominal pain and malaise to my symptoms list above.  Malaise being defined as feeling  "out of sorts" as compared to fatigue which is feeling tired.

Also - One of my stranger symptoms is completely gone - Every morning  - literally seconds after coming out of sleep, either one or both of my calf muscles would flex and then contract and would not relax.  Occasionally this would spread into the entire back of the leg.  The pain was excruciating and would literally have me rolling on the floor in pain until the muscles relaxed.  Occasionally I would have to massage the muscles to relax - this was done in a frenzy of pain rather than the usual relaxing kind of massage.

I've had that since I was a teenager and over the years I learned that the first thing to do upon waking was to consciencely make an effort to stop this from happening.

Some issues with sleep patterns being all over the map right now.  My body still wants to be completely spent of energy before retiring.  This is an established pattern with me.  I'm not good at slow and steady.  I have tended to accomplish tasks with a sort of "going into battle" mode  -  followed by burnout.

Swelling of the lymph nodes in throat greatly diminished.

Some weird neuropathy this week - I have never had a dyslexic incident until after cutting back the D foods.  This doesn't happen very often  - but a couple of times this week some letters were obviously reversed - but only for a moment.

My skin appears to be a couple of shades darker and I am developing a slight tan all over my body.

This is not only unusual because of my lack of sun exposure but because I have had intense extended periods of sun exposure in the past and was always white as a ghost regardless.

I am not as light sensitive anymore in the sense that light doesn't hurt my eyes as much anymore.  I am sensitive in the sense that I am intensely aware of any sources of radiation.  If a dim beam of light sneaks through the window blinds and hits my body I am instantly aware of it in a very physical way as if being touched.

Light still causes Neuro IP and headaches.

I always try to grow fingernails on my right hand longer to play the guitar.  They would usually break before they would get as long as I liked.  I couldn't break them now if I tried - and I have.  Actually I find myself cutting them back all the time because they are growing so fast.  There is nothing remotely brittle about my fingernails now.

I have not used Head and Shoulders for weeks now - I did not think this was possible before.

I can't remember the last time I had a twitch or tremor in my hands or face.

Dermafibromatic lesions continue to resolve slowly and steadily.

Tinnitus is now the occassional very dull roar -  like listening to a seashell -  only noticable before sleep when it is very quiet.

I can't find the Bakers cyst on back of my right knee anymore - It's hard to tell if it's completely gone because the knee joint is not swollen anymore.  :)  The cyst first appeared when I was 3 years old, was surgically removed and came back later.

Thank You MP Research Team!! :)
Mark



____________________
Th1 Inflammation Lyme vertigo fatigue brain fog skin lesions tinnitis 125D20 D2510 Ph1Feb08 Ph2Apr08 daily lite exp covered up NoIRs
Markt9452
Member in Phase 3
 

Joined: Sat Oct 27th, 2007
Location: Leamington, Ontario Canada
Posts: 102
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 Posted: Thu Jul 3rd, 2008 06:51

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MP 131 days

Palliative meds:
None
Light exposure: 2 hours per day covered with noirs.

Comments:

I have not had a single cold or flu since I stopped Vitamin D foods last fall.  While working in an office environment last winter and spring I made some observations about my co-workers.  All 30 of them without exception suffered colds and flus.  Some of them were sick multiple times.  I was the only person not to get sick.

MP 138 days

Symptoms:
Brain Fog - 3
Fatigue - 6
Skin  - 2

Tinnitus - 2

Light sensivity - 2
Red eyelids - 1.5

Memory Loss - 5
Swelling of Mastoid  - 1.5
Joint Pain - 3
Twitching -  0.5

Irritability - 3

Vertigo - 3
Headaches - 1.5
paresthesia - 0.5
Abdominal Pain - 3
Malaise - 6

Comments:

25HYDR  10.4  (Nov 6 2007 = 18.4)
1-25DIHY  19.6  (Dec 11 2007 = 50.8)



____________________
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Rico
Member in Phase 3
 

Joined: Wed May 31st, 2006
Location:  
Posts: 240
Status:  Online
 Posted: Thu Jul 3rd, 2008 22:16

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Mark, I, too, have not had any colds or flus ... since starting the MP just over 2 years ago. Ok, I did have a minor cold once but it lasted one day - unheard of for me before that - those darn things would always last for a week or three.

Nonetheless, I used to get colds/flus at least twice a year. Vastly improved even when in close contact with many others with them!

I guess the immune system is just working much better now...



____________________
No diagnosis/some symptoms; wife with Sarc on MP; Olm 40mg q6h| avoid D| 1,25D=63 25D=32 (May 2006) 1,25D=44; 25D=10(Dec 2006)PhaseI(May06) PhaseII(Aug06) PhaseIII(Aug07)
Markt9452
Member in Phase 3
 

Joined: Sat Oct 27th, 2007
Location: Leamington, Ontario Canada
Posts: 102
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 Posted: Fri Jul 4th, 2008 01:49

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Rico - Before the MP I would catch every single cold or flu that was going around.

And just like you said they would last for weeks.  My innate immune system wasn't working.  It just wasn't possible for the VDR to transcribe properly when my receptors were full of extraneous Vitamin D and bacterial ligands.

It seems to be working quite well now though.

Thanks Rico
Mark



____________________
Th1 Inflammation Lyme vertigo fatigue brain fog skin lesions tinnitis 125D20 D2510 Ph1Feb08 Ph2Apr08 daily lite exp covered up NoIRs
Markt9452
Member in Phase 3
 

Joined: Sat Oct 27th, 2007
Location: Leamington, Ontario Canada
Posts: 102
Status:  Offline
 Posted: Tue Aug 12th, 2008 01:18

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MP 145 days

I am feeling very tired.  My sleep pattern is reversed and I am experiencing lots of activity in the prefrontal cortex during sleep.  My memory is increasingly photographic  - If I can't remember something  - I sometimes see it's picture instead although I may not know what it is.

I have a new strange symptom.  As soon as my head hits the pillow - I start to salivate - a lot - I have to keep swallowing so that I don't start drooling.  At the same time I start to cough up fluid from my lungs.


Peripheral neuropathy has increased and it is hard to hold my arms up for any length of time.

The lumps in my earlobes are completely gone.

Fluttering and spasming inside ears has gone from 7 to a 1.

Hot showers are making me feel better.

I am frequently ravenous  - sometimes even after I have eaten.  Appetite is excellant.  I have stopped craving chocolate and am enjoying more fruit/vegetables.

Lesions on shins have started to itch somewhat - That is a first. They are still slowly shrinking.

I think malaise is the best way to describe how I am feeling now.  I am motivated but can't do very much.  Irritabiliy has gone to a 5 - I just can't deal very well with people right now.

I am monitoring neuro IP very carefully, taking it easy and avoiding stressfull situations.

My previous experience with the MP is telling me that I am now experiencing massive bacterial killing with all the associated IP. :shock:

MP 152 days

I am feeling optomistic and confident.  Subcutaneous nodules are resolving rapidly. Fibrotic lesion on right shin has gone from 2 cm to 4 mm diameter.

MP 159 days

All kinds of IP happening everywhere!! - Symptoms are tolerable.:cool:
Lot's of activity in jaw, mastoid and back of skull.
Small round opaque lesions on back of hands are gone. 

MP 180 days - 6 Months

Symptoms:
Brain Fog - 5
Fatigue - 5
Skin  - 2

Tinnitus - 2.5

Light sensivity - 3.5
Red eyelids - 1.5

Memory Loss - 4
Swelling of Mastoid  - 2.5
Joint Pain - 3
Twitching -  1.5

Irritability - 1.5

Vertigo - 4
Headaches - 1.5
paresthesia - 1
Abdominal Pain - 0.5
Malaise - 5

Comments:  I am experiencing slow steady improvement everywhere.  It is my observation that health problems that I wasn't aware of are being are brought to the surface or uncovered and then start to heal.  I've still got a long ways to go but the progress is consistant.

I have a lot less to say about things these days.  My perspective is different now and it feels as if I am seeing a lot of things for the first time and I am having to re-evaluate and re-learn.



____________________
Th1 Inflammation Lyme vertigo fatigue brain fog skin lesions tinnitis 125D20 D2510 Ph1Feb08 Ph2Apr08 daily lite exp covered up NoIRs

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