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edj2001
Advocate
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Posted: Thu May 15th, 2008 03:20 |
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Sounds like the “MP team Nobel” did a great job in Karolinska!!!  It must be one of the big reasons for the surge in interest on the web site. Hope the MP board can find a way to continue the amazing work being done. I saw today that Medco statistics show that 51% of the insured American population is taking at least one prescription drug for chronic illness. It doesn’t look like the benefits of 50+ years of supplementing with vitamin D are any where to be found.  The biggest increase is in prescription usage by children. I hope the MP reaches “critical mass” ASAP to stop this madness. Referrals are the best form of advertisement.
The BIG news is my bladder scan last week was negative for cancer. 
I had surgery to remove a tumor in January 2007. Surgery was again necessary to remove two additional tumors in June 2007. However, since then, I have been cancer free as determined visually with scans every three months and a FISH chromosome assay of the bladder wash last December. The good news about the FISH assay is that it would have tested positive if cancer was present in any of the other components of the urinary tract system, e.g. kidneys, prostrate, & plumbing.
I elected not to use the conventional BCG or chemo treatments and depended on the MP to activate the VDR and gain a healthy immune system to eliminate bacterial intracellular infection, and the resulting inflammation, and fight the cancer.
After the research I did on conventional treatments I much prefer a healthy immune system to achieve good health. The BCG decision was a “no-brainer” because using TB bacteria doesn’t make any sense! Chemo was also an easy decision once I determined the side effects including damage to the immune system, loss of cognitive ability, and short term survival statistics probably due to the compromised immune function.
Thanks again to Dr. Marshall and the moderators to help me walk through the decision making process of avoiding conventional therapies.
I completed 7 credit hours of Biotechnology at Collin College last week and maintained my 4.0 GPA. My class presentation/report was based on VDR homeostasis. I mention that for three reasons: first, to be able to say I know what the acronym FISH stands for and what it does; two, to show my brain fog is getting better; and three, to brag a little, not bad for an old dog competing with the 20 year old genius lab partner.
My last series of blood tests all showed in the normal range except for BUN which was 30 mg/dL (7-25), and low Lymphocytes 551 cells/mL (850-3900. I expect my kidneys are doing their job.
All in all, things continue to slowly get better thanks to the MP.
Moderator add:
Gene: numerous improvements
edj2001/ Gene: Everything is going the way MP said it would
Last edited on Thu May 15th, 2008 08:58 by edj2001
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Sarc98 A.Fib uveitis sk cancer basal/melanoma colon tmr bladder tmr bph| digitex propafenone Armour proscar Guaifensin Aspirin| 1,25D=50 10/05| 25D=7 4/08| Gene's Story| avd l&D|
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expate
Member in Phase 2
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Posted: Sat May 17th, 2008 17:21 |
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Thanks for posting in the Alumni Forum. It inspires and encourages those of us who are in the public part of the site to see how you continue to progress after moving on.
Odette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 ng/ml (4/08), 25 - D 34 ng/ml (8/08), started Ph1 7/17/08, Covered up. NoIRs. Home low light.
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edj2001
Advocate
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Posted: Tue Sep 9th, 2008 23:32 |
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I am relieved to say my latest bladder scan was negative for any signs of cancer tumors.
I am still dealing with a productive cough, fatigue, asthenia, tinnitus, and left flank discomfort which is a new symptom. Many other symptoms are resolved.
A recent blood assay showed high potassium so I took a look at my diet and found I was eating a lot of high potassium foods. Some of which were seasonal fruits from Costco so you know it was in "high quantity". Also turns out chocolate is a high potassium food.
I noted from the MP ABC of FAQ that a diuretic can be used that allows for depletion of potassium.
After two weeks watching my diet, taking this diuretic, increasing benicar to every 4 hours, hydrating, adding some salt to increase BP, and reducing the abx dose, my potassium number was a comfortable 4.3 (3.5 - 5.3 mmol/L).The highest previous number was 6.3. The flank pain is almost gone now.
My new doc panicked when she saw the 6.3 number and insisted that I stop the benicar immediately for fear of stroke. I argued that I have been on benicar 2.5 years and never had a potassium reading over 5.3 so something else had changed not the benicar. In fact, I told her that benicar is organ protective and I was planning to start taking it every 4 hours which I did.
However, it was necessary for me to acknowledge that I was acting on my own decision and she was officially warning me to stop benicar. I suppose it was a legal precaution on her part and I told her I understood her position and appreciated that she would continue to prescribe the meds for me under the circumstances.
Soooo, it is good to see the new numbers and things have settled down. 
Thanks to the ARF, Dr. Marshall, Meg, Barb, and all the other volunteers who have devoted so much to make this possible. You are the greatest!!!
Gene
Last edited on Tue Sep 9th, 2008 23:52 by edj2001
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Sarc98 A.Fib uveitis sk cancer basal/melanoma colon tmr bladder tmr bph| digitex propafenone Armour proscar Guaifensin Aspirin| 1,25D=50 10/05| 25D=7 4/08| Gene's Story| avd l&D|
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Aunt Diana
Advocate
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Posted: Wed Sep 10th, 2008 08:43 |
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| What great news!! Thanks for telling us and best wishes for continued improvement.
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Lyme 1987, neuro cardio fatigue achiness brain fog depression, anxiety. Pacemaker, D.1,25 32; D <5; 12/07 <6, Oxycodone, lorazapam, benedryl, zantac, colase, Noirs, cover-up or avoid sun, house <30lux. Feb 08 Phase 3. 6/08 D <4, D1,25 21
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