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natalie17
Board Staff
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Posted: Mon May 19th, 2008 03:28 |
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Natalie's phase 1 thread - http://www.marshallprotocol.com/forum20/10017.html
Before I started the MP I was severely effected with CFS/ME/CFIDS for two years after being diagnosed with glandular fever in August of 2005. In March of 2007 I became worse after two courses of antibiotics (amoxicillin).
From that point on I was mainly bed bound (only up to use the loo/shower in a chair, had insane insomnia, had trouble digesting, had periods of paralysis at least once a week, extreme orthostatic intolerance, extreme congnitive dysfunction (unable to read, use the computer much or even look at too many things at once or my symptoms would increase). I found it difficult then to find peopel who were as ill as me with CFS/ME on the MP. A quick search now & a few pm's shows there are plenty of us.
I have been on the MP for 10 months. I was overwhelmed when my doctor first suggested it & sent me the information, but I soon got used to the lifestyle.
Although still mainly bed bound, I have experienced many improvements (I am smiling as I am writing this because when I think about the collectively, I have come such a long way). Some of these imrpovements include;
- Extreme insomnia has disappeared completely.
- Ability to digest a wider variety of foods.
- HUGELY improved cognitive function (I can now watch tv at night, listen to some music & use the pc for up to 6 hours a day - all impossible on any level pre-MP, amongst other things).
- I can now talk for more than 1 minute & no longer lose my voice for any amount of time.
- I no longer experience any paralysis (& haven't since beginning phase 2). This is the improvement that has made me the happiest  .
- I am now able to wander around a bit - I even regularly walk down the full flight of stairs in my home!
- I can have a visitor for up to 3 hours as opposed to the 20 minutes I could tolerate before, & carry conversation the whole time.
- I can talk on the phone again, it's still limited but was impossible before.
- I can read short articles & small sections of books.
- I had recurring "ear infections" that doctor's could not find evidence of before starting the Marshall Protocol. They have since resolved & I now know they weren't ear infections. I also experienced blocked ears & itchiness, as well as a strange dampness in the ears.
There are many more improvements, such as my family commenting on how much more clearly I speak, but as you can see even though I am still mainly bed bound, my health is improving already - & I wasn't expecting that until uch further into the protocol.
I am a vegetarian which makes the diet for the protocol a little more difficult, but I assure any vegetarians considering the protocol that it does not make it impossible. I would be happy to offer any food ideas to fellow vegetarians.
Things I have learnt on the MP/about the MP;
- An (at least) basic understanding of the science behind it helps you to understand what your body is experiencing.
- Go slowly. The moderators/other members/your doctor will say it a lot to you but slow & steady really will win the race. Never let your IP get out of hand (which will happen if you go too fast).
- Listen to your body. You get a lot better at this as you go along. I find now my body clearly tells me when it's time to change a dose & I find trying to plan it ahead (I will increase to x in x days) is useless.
- You really do need to be patient & the guidelines really are there for a reason. If you think that covering up in the sun or wearing NoIRS is silly a minute in the sun is good at proving most people wrong.
- Increasing the frequency of your benicar when IP worsens really does help.
Apart from this site, two things have helped me a lot through the MP - pm-ing other members & speaking to them, & http://www.bacteriality.com.
The only thing I regret about the MP is not learning about it & starting it sooner.
Natalie
June 08:
I took a break just 3 months into the protocol (I hadn't yet mastered managing IP & it got way out of hand) & even then, only being off the abx (still on the benicar) for 2 weeks, I noticed a huge improvement. This bed bound girl cleaned her room - wardrobe, draws, the lot - in one day! I was amazed. I haven't been able to do it again, but it's getting easier to feel the improvements through the 'IP fog' as I call it.
I didn't find it hard to go back on it because I knew if I felt that good after 3 months.. imagine how I'd feel after 3 years!
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CFS/ME| Inderal Clonazepam OC Protein Powder| Sept06 1,25D=75 Jan07 25D<4.4| avoid light D, NoIRs, always indoors| Ph2-Feb08 | ABCofMP
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