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CFS South Africa progress
 Moderated by: Aussie Barb  

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P.Bear R.N.
Research Team


Joined: Fri Dec 3rd, 2004
Location: Ozark Border, Missouri USA
Posts: 1895
Status:  Offline
 Posted: Thu Aug 21st, 2008 19:24

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Ross, Great news about your 25-D coming down! After you are on 100mg of Mino for a few weeks you may be ready for phase 2 if your reactions are not intolerable.

suggest to send for the questionnaire for phase 2 Q asap  so you will be able to discuss the next antibiotic with your doctor.Send an email to marshallprotocol2@yahoo.com with 'request Phase 2 Q' in the subject line.

Before you commence the next phase, please post in the Phases Two and Three forum so we can discuss the details of your next antibiotic. We look forward to welcoming you there when you have received a response to your completed questionnaire.

Where is the Phase 2/3 forum?

This link at the top Left of each page The Marshall Protocol Study Site - will take you to the main page.

Scroll down that page till you find the Phases Two and Three Forum - click to to get the page where you can post a new topic. We look forward to welcoming you there when you have received a response to your completed questionnaire. 

best, P.B.



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Nothing contained in this site is or should be considered, or used as a substitute for, medical advice, diagnosis or treatment by your physician.
natalie17
Member Advocate


Joined: Sun Jul 8th, 2007
Location: Melbourne, Australia
Posts: 646
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 Posted: Fri Aug 22nd, 2008 02:24

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Ross - 1,25-D fluctuates on the MP and doesn't need to be tested :)




____________________
CFS/ME| Inderal Clonazepam OC Protein Powder Calcium| Sept06 1,25D=75 Jan07 25D<4.4| avoid light D, NoIRs, always indoors| Ph2-Feb08 | ABCofMP
CFS South Africa
Member in Phase 2


Joined: Sat Mar 8th, 2008
Location: Johannesburg, South Africa
Posts: 50
Status:  Offline
 Posted: Wed Aug 27th, 2008 16:03

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Hi there

I'd like to post a new topic on the phase 2 and 3 forum, however I can't seem to find the right page - please advise as to where I can find it.

Regards,

Ross



____________________
CFS 2 Years - Swollen Glands - Chest Pain - Flu like symptoms - Sleep problems - Sinus congestion - Headaches. 25D 21.7 ng/mL(15 Aug) - 1.25 52.4 pg/mL(30 March) - Non MP meds - 1mg dormanoct tablet each night
Aussie Barb
Research Team


Joined: Thu Jul 22nd, 2004
Location: Australia
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 Posted: Wed Aug 27th, 2008 17:02

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Have you, as PB suggested,  "send for the questionnaire for phase 2 Q asap  so you will be able to discuss the next antibiotic with your doctor. Send an email to marshallprotocol2@yahoo.com with ' Your ID username, request Phase 2 Q' in the subject line."?  thanks, Barb ...



____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
CFS South Africa
Member in Phase 2


Joined: Sat Mar 8th, 2008
Location: Johannesburg, South Africa
Posts: 50
Status:  Offline
 Posted: Thu Sep 4th, 2008 18:45

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Hi there

I have had minimal IP in the last week on 75mg mino. Next week I'll be starting 100mg mino and when my IP is tolerable I will move onto phase 2, which should be in the next few weeks. Feeling pretty good and excited to start phase 2 soon. Got a cold/flu 3 weeks ago - it was the first time I had to take a few days off work in over a year. Put it down to the changing of seasons and the temperature change. Otherwise my immune system seems to be getting stronger and more resiliant to colds and flu.

 

Started MP 21 May

Started Mino 25mg every 48 hours 28 May

Started Mino 50mg every 48 hours 6 June

Dropped back to 25mg every 48 hours 3 July

Ramped back to 50mg mino every 48 hours 29 July 

Started Mino 75mg every 48 hours 13 August


MP meds: Benicar(votum 40mg) - every 1 hours, four times a day. Mino 75mg every 48 hours.
Palliative non-MP meds: 1mg dormanoct before a go to sleep

Light exposure: 1 hours sun exposure since last post

Symptoms: 

Brain Fog - 4
Insomnia - 4
Flu like symphoms - 4
Fatigue - 4
Post exercise fatigue - 4
Swollen/sore glands neck/shoulders - 4
Pain in chest - 4
Pain in ears - 3
Sinus congestion - 4
Red/sore eyes - 3
Head aches - 3




Regards,

Ross








____________________
CFS 2 Years - Swollen Glands - Chest Pain - Flu like symptoms - Sleep problems - Sinus congestion - Headaches. 25D 21.7 ng/mL(15 Aug) - 1.25 52.4 pg/mL(30 March) - Non MP meds - 1mg dormanoct tablet each night
CFS South Africa
Member in Phase 2


Joined: Sat Mar 8th, 2008
Location: Johannesburg, South Africa
Posts: 50
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 Posted: Thu Sep 11th, 2008 15:57

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Hi there

I started 100mg mino two days ago with little herx so far. However alot more fatigued. I'd like to stay on 100mg mino until the end of next week and then progress to phase 2.


 

Started MP 21 May

Started Mino 25mg every 48 hours 28 May

Started Mino 50mg every 48 hours 6 June

Dropped back to 25mg every 48 hours 3 July

Ramped back to 50mg mino every 48 hours 29 July 

Started Mino 75mg every 48 hours 13 August

Started Mino 100mg every 48 hours 9 Sep


MP meds: Benicar(votum 40mg) - every 6 hours, four times a day. Mino 100mg every 48 hours.
Palliative non-MP meds: 1mg dormanoct before a go to sleep

Light exposure: 3 hours sun exposure since last post

Symptoms: 

Brain Fog - 4
Insomnia - 4
Flu like symphoms - 4
Fatigue - 6
Post exercise fatigue - 4
Swollen/sore glands neck/shoulders - 4
Pain in chest - 4
Pain in ears - 3
Sinus congestion - 4
Red/sore eyes - 3
Head aches - 3


Question - I'd like to progress to phase 2 in the next 10 days - I have been given approval to start the next stage. Is there anything I need to be aware of before I start the next stage - and should I post a new topic in stage 2 and 3 before I start?

Regards,

Ross



____________________
CFS 2 Years - Swollen Glands - Chest Pain - Flu like symptoms - Sleep problems - Sinus congestion - Headaches. 25D 21.7 ng/mL(15 Aug) - 1.25 52.4 pg/mL(30 March) - Non MP meds - 1mg dormanoct tablet each night
VEZ R.N.
Board Staff
 

Joined: Fri May 19th, 2006
Location:  Ohio, USA
Posts: 2469
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 Posted: Thu Sep 11th, 2008 23:45

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Thanks for the update C.

Plan looks good, you will be posting in the Phase II section.  Please read over the phase II guidelines to prepare.

Keep up the nice work.

Best, VEZ:D



____________________
lung gran x13 yrs neuro cardiac smp chronic cough joint pain TMJ pain tinnitus Factor V Leiden| armour probiotic|lowlux home NoIRs 6/30 Beni q4+prn 8/28 mino| 6/30 1,25D-58.3 25D-33.6| TSH-10.6 12/16/06 25D-9.6 TSH-8.63 8/06-25D=7|
CFS South Africa
Member in Phase 2


Joined: Sat Mar 8th, 2008
Location: Johannesburg, South Africa
Posts: 50
Status:  Offline
 Posted: Mon Sep 15th, 2008 11:37

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Hi There

 

I'm about to start Phase 2 on MP and I'd like to give a recap on the past few months on MP.

I started staying off all foods with Vitamin D in March 2008 which really helped me feel better before I started MP in May 2008. As a whole I have definately felt better then pre MP. I couldn't go out and socialise pre MP as I would get tired and moody with every move I made - not great as I used to be extremely social and excerise frequently.

I would feel fatigued all the time and couldn't sleep without waking up about 20-30 time a night - no jokes. However since starting MP I have been sleeping great albeit with 1mg dormanoct a night which I'll slowly wean myself off. The pain I used to feel in my neck has pretty much gone which is such I relief and only flares up if I exert myself to much and stay in the sun for quite a while. I'm able to do a 30 mins of exercise twice a week with no adverse or after effects of feeling fatigued and having swollen glands. I am however taking it very easy and my progress is slow and ready and I'll keep it that way.

I really have found that there are moments where I have had more energy then I have had in years which is awesome - however I have to use it constructively and make sure I don't overdo things. I have had quite a bit of herx in the four months on MP - it usually comes when I increase the mino - then after a week or two on that specific dose it goes away and I increase the dosage. I must however say that the herx I have had has never been as severe as the symptoms I felt before MP - maybe my mind reminds me that it's only temporary and that it won't last for long which really helps. My whole mindset has been great through MP - I have always believed in the literature and that it would make me better and that's exactly what is happening. The mind is extremely powerful and I believe that and MP have helped to make me feel better quicker.

My D25 was 54.1 when I had it tested pre MP and after 3 and a half months it's gone down to 21,7. I aim to decrease that further and know I can do it by being extremely disciplined.

As I sit here today I feel great - sure I have my tough days but they are getting fewer and fewer and there is a much bigger picture in site and that's altimate health. I believe I'll get there and I'm not in a huge rush. I'm looking forward to Phase 2 and believe I can handle anything it throws at me.

Regards,

Ross



____________________
CFS 2 Years - Swollen Glands - Chest Pain - Flu like symptoms - Sleep problems - Sinus congestion - Headaches. 25D 21.7 ng/mL(15 Aug) - 1.25 52.4 pg/mL(30 March) - Non MP meds - 1mg dormanoct tablet each night

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