| Author | Post |
|---|
Sunbeam
Member in Phase 2
| Joined: | Thu Dec 14th, 2006 |
| Location: | Perth, Australia |
| Posts: | 216 |
| Status: |
Offline
|
|
Posted: Sat Jun 2nd, 2007 03:44 |
|
Thanks Barb,
I'll do that now,
Regards Sunbeam
____________________
CFS. gen neuro. muscular tightening whole body pulsates|ADL's limited| 125D 30 MP 4/07 Panadol Mersyndol Noirs. Low lux home homebound. ph 2 1/2/08 25D <6 8/08
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19444 |
| Status: |
Offline
|
|
Posted: Mon Jun 4th, 2007 21:22 |
|
Sunbeam
Thank you for filling your questionnaire. You are now able to read the Information in the Phase 2/3 forum.
We encourage you to begin a new progress report there in that forum to discuss the Staff recommendations re Modified Phase Two as most suitable to your individual situation, in preparation for discussing with your Dr so s/he can write the scripts. Thank you..
all best, Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
|
Sunbeam
Member in Phase 2
| Joined: | Thu Dec 14th, 2006 |
| Location: | Perth, Australia |
| Posts: | 216 |
| Status: |
Offline
|
|
Posted: Tue Jun 5th, 2007 04:31 |
|
Thanks Barb,
I'm looking forward to the next stage,
Regards Sunbeam.
____________________
CFS. gen neuro. muscular tightening whole body pulsates|ADL's limited| 125D 30 MP 4/07 Panadol Mersyndol Noirs. Low lux home homebound. ph 2 1/2/08 25D <6 8/08
|
Sunbeam
Member in Phase 2
| Joined: | Thu Dec 14th, 2006 |
| Location: | Perth, Australia |
| Posts: | 216 |
| Status: |
Offline
|
|
Posted: Sat Sep 20th, 2008 08:21 |
|
So far I have not wanted to post on this thread as any improvement in my condition seemed so subjective. I was never sure that I was improving although my family thought I was I could never be sure. It took some family needs for me to see that I can actually do things now that I couldn't do last Christmas time.
I have been on MP almost 18 months now. I began in April 2007. I am now in stage 2 and still have along way to go. Up until now anything I have tried to do has knocked me backwards and though I am still mostly in bed resting I can get up and so a few paced tasks.
Improvements have consisted of.
A little more light tolerance although I am still being very diligent about Noirs, blinds and coverings.
A few trips in the car and I now feel I can visit my Dr instead of having a phone consultation.
I am more sociable and my cognitive abilities have improved.
I can get up for a while and do small kitchen tasks then rest again and most of all I haven't gone backwards doing any of these things. I certainly used to.
Medications.
I have learned to use the palliative medications to my advantage. I still take 40mg Benicar 4hrly during the day less often at night. I use 20mg s/l when needed.
Quercetin if needed.
I take a 2 abx mix as recommended.
Analgesics at night to help with sleep.
Although I still suffer dreadful IP's I am happy to be part of this study and look forward to continued improvement not matter how long it takes.
Thank you Trevor and all who have encouraged me in my MP journey so far.
God Bless Lynn.
____________________
CFS. gen neuro. muscular tightening whole body pulsates|ADL's limited| 125D 30 MP 4/07 Panadol Mersyndol Noirs. Low lux home homebound. ph 2 1/2/08 25D <6 8/08
|
Sunbeam
Member in Phase 2
| Joined: | Thu Dec 14th, 2006 |
| Location: | Perth, Australia |
| Posts: | 216 |
| Status: |
Offline
|
|
Posted: Tue Sep 23rd, 2008 05:48 |
|
M.P Meds
Benicar 40mg 4hrly, 6hrly at night, plus extra 20mg sublinually PRN
Phase 2 started 1/2/08
Quercetin taken this cycle, Natural Calcium
analgesics to sleep Mersyndol 2 tabs. Then panadol 2 during the night. I have taken more palliative mino and increased Benicar with 20 mg in between doses this cycle.
Light Blinds . Low light. 10% noirs. Occasional dull light in living area curtains and blinds drawn. More light this cycle.
Sxs more tolerable when resting
Increased Mino to 75mg on day 9 last cycle. This increase was tolerated much better than when I tried last time.
Day 4 of incresed cycle worse so far. Mino 50mg taken day4 with 1 dose of 20mg S/L benicar inbetween doses.
I didn't need to wake for panadol last night so Benicar went to 71/2 hours over night.
I continue doing tasks I can manage and have had more light this cycle, about 2hrs over 10 days. I managed a little walk around the garden as the light dimmed.
Sxs this week.
Tightening, especially knees,ankles legs and hips 2-8
Throbbing comes and goes 2-6
Neuro especially feet, ankles, legs and knees, 3-8
Cellular all over makes me feel ill 2-8
Plan to continue at this level for another cycle.
Thank you all for your continued support,
Take care, Lynn.
____________________
CFS. gen neuro. muscular tightening whole body pulsates|ADL's limited| 125D 30 MP 4/07 Panadol Mersyndol Noirs. Low lux home homebound. ph 2 1/2/08 25D <6 8/08
|
Current time is 17:38 | Page:   1 2 |
|
