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Shadowfeet
Member in Phase 2
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Posted: Thu Nov 29th, 2007 10:01 |
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I saw my doctor yesterday, and he is now prescribing Benicar/Olmesartan on an Authority PBS script! 
Still doesn't look like I will get anything back from HCF for my other scripts, but I am VERY happy to now be getting Olmesartan on PBS!
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CFS Thyroiditis Endometriosis Raynauds 125D34 25D<7Dec07 Effexor Lyrica thyroxine clonazepam OCP NoIRs limited outings covered up Ph1Sep07 ModPh2Dec07 Ph2May08
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OurMiraculousHealing
Banned
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Posted: Fri Nov 30th, 2007 09:23 |
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Hi Shadowfeet,
Somewhere on this thread (I haven't been able to find it back yet) Claudia explains how she received some refund from HCF. I don't know if they have changed their policy since then, but it's worth a shot. Let us know how you go, I'll have another look for the post. Congrats on the authority script.
Amelia
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’95 Numerous medical(mis)diagnoses/ No sun, NoIRS, coverup (hat,gloves,blockout)/40mg Olmetec 6hrly/D-free diet/1,25D31, 25D18
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OurMiraculousHealing
Banned
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Posted: Fri Nov 30th, 2007 10:00 |
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Thank you for all that info, that is super helpful for patients to take to their GP. What I don't understand is why would a GP still be reluctant to prescribe the required dose if the use is unrestricted and the authority people say you don't need to have hypertension? Where is the scary part in getting an authority script for the right amount? // Olmesartan is an unrestricted benefit on the PBS, ie its cost is subsided by the Australian Government, and its use is not restricted to a particular condition. // I believe the intention of the Authority system is also to allow a levelling of the cost for patients on larger than normal doses. // //I just checked with the Authority approvals people by phone to confirm this. It is not necessary for you to have hypertension//. My question may seem superfluous after all this info, yet my (very kind and helpful) GP is still reluctant to get an authority script for the necessary dosage (120/150 month) eventhough he can see it is clearly working for us and without it both my daughter and I got little hope, if any to get on top of it all.
Thanks all
Amelia
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’95 Numerous medical(mis)diagnoses/ No sun, NoIRS, coverup (hat,gloves,blockout)/40mg Olmetec 6hrly/D-free diet/1,25D31, 25D18
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Den
Member in Phase 3
| Joined: | Tue Sep 12th, 2006 |
| Location: | Sydney, Australia |
| Posts: | 91 |
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Posted: Wed Dec 12th, 2007 07:58 |
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I FINALLY got it from my doctor. I have three packets in my cupboard (and minocycline) with 5 repeats ready to start Phase 1. I just have to get my vitamin Ds tested. I have been waiting to be able to afford this stuff for three years now. It was out of my reach to import it.
It cost me nothing because I have reached my PBS safety net limit.
My doctor had no bother with getting the authority.
Denise
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Sarcoidosis, hypothyroid, psoriasis, ? psoriatic arthritis Ph1Jan08 Jul08-Ph2 Jul09-Ph3 Imigran Oroxine Endep NoIRs low lux home Most Recent 25D 8 ACE 141. SedRate 33.
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Moxie
Guests visiting Phase 1/2/3
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Posted: Sun Dec 23rd, 2007 08:01 |
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I am still questioning the availability of Olmetec on PBS.
The Australian Prescriber Volume 30/Number 3 of June 2007 states that Olmesartan medoxomil (Olmetec - Schering Plough) has an Approved Indication for hypertension.
I am delighted that people are accessing this drug for the low cost but I wonder how things will be in 12 months time? Perhaps if things change, you will know why.
Moxie
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CFS 25 years - FMS. Benicar 3 daily - Ph 2 16/5/05 - Ph 3 10/5/06 Metformin 500mg 1/2 bd. Vit D 45nmol/L (18ng/ml) 1,25 D 92pmol/L (38.3pg/ml)
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SI
Member in Phase 3
| Joined: | Fri Sep 21st, 2007 |
| Location: | Sydney, Australia |
| Posts: | 46 |
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Posted: Fri Dec 28th, 2007 10:17 |
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Hi,
my last lot of olmesarten cost me around $30 for a months supply from my local pharmacy. We can get an authority script from the GP which can be used at any pharmacy, the GP can prescibe however many tablets you need for the month, mine being 4 boxes.
regards,
Sue
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FM, fatigue, asthenia, insomnia, RLS, 09/09 25D <5.2, Ph1Oct07, Ph2Dec07, Ph3Mar08, ibuprofen, working, NoIRs, covered
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lionel forbes
Member in Phase 3
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Posted: Tue Jan 22nd, 2008 07:18 |
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| i rang the authority saction of pbs of medicare australia, and they said olmetec can be prescribed for any condition and at any dose or frequency the dr pleases. my dr rang and says can only do 5 repeats. this means one would have to get a 5 repeat script every month.we have come a long way since i did all the mp over the last 26 months.for the first15 months i was paying 700$ per quarter,from germany, and the last10 months 360$ per quarter from compoundia. now it is 75$ per quarter on pbs. good news.
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sarcoidosis phase 1 jan 2006,phase 2 march 2006, phase 3 september 2006
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headsuppoka
Member in Phase 2
| Joined: | Fri Mar 28th, 2008 |
| Location: | New Zealand |
| Posts: | 8 |
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Posted: Sat May 31st, 2008 03:36 |
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I'm not sure where to post this but thought this would be a good spot.
I am a new zealander and I'm going to aussie for weeks vacation on the 20th of june. Importing benicar into NZ is really tough so I was thinking of just buying some in australia and bringing it back with me. How would I go about doing this?
Thanks
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CFS Ph1June08 NoIRs covered up low lux home light exp commute 25D26(April08)
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Vicki SA
Member in Phase 3
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Posted: Sat May 31st, 2008 04:48 |
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G'day headsuppoka,
I assume you would need to see an Australian Dr to get a prescription and then you could puchase via a pharmacy or compounding chemist (such as Compoundia). My understanding is that Australian pharmacies are not able to fill scripts written by NZ Drs.
I also believe that there are some negotiations happening for bulk Olmestartan to be supplied to a NZ compounding pharmacy. I am not sure where these negotations are up to or what the complications/difficulties are.
Australian Compounding Pharmacy
16 St Mangos Lane
Docklands VIC 3008
email : bertfrigo@compoundia.com
Website http://www.compoundia.com
Phone 03 96702882
Fax 03 9670-9615
Cheerio Vicki
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ME/CFS 2000, Splenectomy, 8/05 - 1,25D51,25D16.5, Ph1 12/05, Ph3 1/07, Zoton 30mg, 2008 - cover with light r/t Work 3/7, NoIRs, hat, cover well, invis. zinc for outside, low lux home, Sept08 25D - 8
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headsuppoka
Member in Phase 2
| Joined: | Fri Mar 28th, 2008 |
| Location: | New Zealand |
| Posts: | 8 |
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Posted: Sat May 31st, 2008 13:01 |
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thanks for the quick reply.
I hope that the negotiations work out (do you have any idea of the time frame for this?) as it is proving incredibly difficult to
1) find a source that will ship benicar into NZ
2) get benicar in through customs.
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CFS Ph1June08 NoIRs covered up low lux home light exp commute 25D26(April08)
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Grace
Member in Phase 3
| Joined: | Tue Sep 14th, 2004 |
| Location: | Australia |
| Posts: | 396 |
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Posted: Sat May 31st, 2008 15:32 |
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Hi Headsuppoka,
When you are in Australia, you should be able to buy olmetec / benicar on a private prescription at just about any chemist. Although it won't be cheap. I've got no idea how much you could buy and try taking back eg 120 tab for 1 month ? or 3 months supply?
You just might be able to get it on the PBS eg for one box per month ? , i e not an authorise PBS script.
PBS Safety Net
http://www.medicareaustralia.gov.au/public/services/msn/pbs.jsp read last point on page
Taking and sending PBS medicines overseas
http://www.medicareaustralia.gov.au/public/migrants/travelling/medicines.jsp
I don't know how it will work for you when you travel back, but if you have a copy of the script and a travel letter from doctor with list of medications it should help
Let us know, how you go with it........Grace
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CFS, oct04 Ds=26/48, 4/07=7/24 MP PHI 2/05, PhII 6/05, PhIII 6/06, beni Q6H, Noirs rarely inside no nature light low watt, outside 40%10%, Hat, all covered, no gloves, paracetamol
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RobertTownsend
Health Professional
| Joined: | Wed Oct 19th, 2005 |
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Posted: Sun Jun 1st, 2008 05:06 |
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Re Availabiliity of Olmesartan in New Zealand
1 To get olmesartan when you are over in Australia on a trip you will need an Australian doctor's prescription, not a prescription you bring over from NZ
2 As to getting olmesartan on our PBS - this is only available to Australian residents with an Australian Medicare card and number.
3 However you can buy olmesartan here on a non PBS scrip - providing of course the scrip is written by an Australian registered doctor. The non PBS price is about AUD 0.90 per 40 mg tablet or capsule.
4 As to being able to take the olmesartan back to New Zealand with you, you would need to check locally in NZ as to what are the local NZ import rules for personal use. In Australia for example we can bring into Australia only three months supply of only those prescription drugs which are not commercially available in Australia.
5 As to local avaiability of olmesartan in NZ, about two weeks ago I ( on behalf of the AAF) asked one of the Australian olmesartan wholesale importers to look into the possibility of them supplying one of the Auckland compounding pharmacies.
I have no idea as to the NZ regulatory hurdles that have to be gone through to get this channel working. There was a plan in 2004 to harmonise drug registration between Australian and NZ, under which any drug registered for use in Australia was automatically deemed to be registered for use in NZ ( and vice versa) - but this plan was aborted only months before the intended start date of July 2007.
Later this month I shall be following up with our contacts who are looking into the possibility of bulk importation of olmesartan into NZ - and a possibility is all it is at the moment.
Robert Townsend
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CFS 4yrs,crippled knees;Oct05 Phase 1;Feb 06 Phase 2 ; Mar06 1,25D-61pMol/L 25D-23nMol/K;Jul06 Ph3 start ;July 08 dose tapering some abx,daytime fatigue much lower, skin still very light sensitive ;knee mobility very constrained with limited walking
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Shadowfeet
Member in Phase 2
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Posted: Sun Jun 1st, 2008 06:40 |
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Hi Headsuppoka,
If you are able to get a private prescription written by an Australian doctor, the best price for Olmesartan is probably at Chemist Warehouse (around $25 for 40mg x 30 tablets). There is a list of their store locations here: http://www.epharmacy.com.au/aboutus/storelocations.asp
Good luck!
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CFS Thyroiditis Endometriosis Raynauds 125D34 25D<7Dec07 Effexor Lyrica thyroxine clonazepam OCP NoIRs limited outings covered up Ph1Sep07 ModPh2Dec07 Ph2May08
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headsuppoka
Member in Phase 2
| Joined: | Fri Mar 28th, 2008 |
| Location: | New Zealand |
| Posts: | 8 |
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Posted: Mon Jun 2nd, 2008 05:13 |
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Thanks for all the replies, very helpful indeed.
I am able to bring with me a 3month supply into NZ. I will try to find a doctor in aus who will be willing to write the rx. I have a doctor in NZ who is monitoring me so I dont think it should be all that difficult to get ab rx if I explain the situation.
If anyone has a good MP doctor who would consider doing this please send me a PM.
Thanks
Last edited on Mon Jun 2nd, 2008 05:14 by headsuppoka
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CFS Ph1June08 NoIRs covered up low lux home light exp commute 25D26(April08)
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Guss Wilkinson
Member in Phase 3
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Posted: Tue Jun 3rd, 2008 01:08 |
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Hi Headsuppoka
If you do go to AUZ to get some Olmesartan, you will be coming back through NZ customs with a significant quantity...enough to give them a severe sense of humour failure!
Make sure that you are armed with phone numbers, letters and prescriptions from your NZ doctor, otherwise it will be confiscated and you will be in trouble.
Cheers
Guss
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Dx Sarc May 2002 Stage 2. Estimate Sarc since 1987. Lungs, Joints, Kidneys & GI. Two failed Prednisone courses. (Started MP: Oct 2003 - D25...31ng/ml, 1-25D...76 pg/ml), Phase III since July 2004; BP 100/60. Feeling pretty good!
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Zars
Member in Phase 3
| Joined: | Sun Dec 3rd, 2006 |
| Location: | Perth, Australia |
| Posts: | 120 |
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Posted: Tue Jun 10th, 2008 15:44 |
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Hi Headsuppoka,
When I went back to NZ for holidays at the end of 2007, I also took a photocopy of "Issue 7, Fall 2004: A new protocol for autoimmune illnesses, chronic fatigue syndrome, fibromyalgia and lyme disease:combating cell wall deficient bacteria and excessive inflammation (Marshall Protocol)", Waterhouse, J.C. - you'll find it on the MP website.
+ copies of phase 2 info and other stuff.
what with all the benicar for 6 weeks, paracetamol, panadeine, etcetcetc I truely thought that my bags would be gone over - but didn't happen either way!!!
Good luck,  and I hope that NZ gets it soon. I have a sister over there who has looked into the MP for herself and my neice, but couldn't do it due to the lack of benicar.
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ME/CFS Ph1May07 ModPh2Jul07 Ph2Jan08 Ph3Aug08 stopped andn starte x3; currently BDS and C benicar 40 mg q6h paracetamol magnesium beconase,NoIRS, outings covered + zinc, 25D 13.2 Aug08m 14 Jan2010
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