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JohnMcC
Member in Phase 2
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Posted: Wed Sep 30th, 2009 20:19 |
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Day 368 MP 
117 Days Phase I
175 Days Mod phase II
76 Days Phase II
Benicar Q6hrs - Q4hrs during office hours
Valium - 2mg to help sleep/restless legs/anxiety
Pain meds tylenol/advil as required
Light Sensitivity in the house is improved, still have major issues with Flouro tubes & sunlight
One year .....doesn't time fly....
Good stuff - As an annual report kinda thing, I can say that the neurological symptoms of my illness has been the biggest change. Overall (if I get some sleep and keep hydrated) I feel like a calm version of myself compared to a year ago, better organisation, logic and not so angry. The level of violence in my day to day head has diminished from a level that was terrifying and not really fit to be produced on a public forum (I'd be hearing sirens and seeing white coats) to a more controllable and infrequent rush. The actual intensity is down to wanting to give really stupid people a right good shake (or kick on the butt) - usually the people I was working for or my staff...... .
I am doing things now that I found really difficult before the MP (my business is in hibernation because I simply couldn't think clearly to create databases, web applications any more)....I have started getting interested in my work again. I am back at school and actually find it a challenge to study and learn again - challenging, not because I can't, but because I get a boost from the challenge. It has been several years since I was able to sit and absorb material which really annoys me as I had an impressive memory back in the day.....
Enjoying cooking again......really enjoying!
Physically not too many changes, my arthritic fingers no longer have pain and I can play guitar without incident - the first time in 5 years or so.......now if I can just play in tune....
I have a knee that really needs surgery (torn ACL, meniscus and Baker's cyst) but I don't want to remove the MP meds to get the surgery and have to restart. The cyst actual shrunk shortly after starting the MP and only swells when I am standing for too long (several hours). I will wait to complete the major part of the MP before deciding to proceed or not - after phase III and I'll see how my body is. In the meantime I will continue being careful and taking pain meds.
I did some physical labour last week, building some new walls in my basement and some plumbing....this is a dramatic change in motivation. I managed to work for several hours, sweating bending, lifting and I didn't feel like I was about to die although the house smelled like a bengay factory for a day or two afterward...which brings me to Cardiac IP. That has been the most constant reminder of being on the MP (and one of the most scary at times) - this has diminished to a barely a background flutter and some days, none existent... ..
During my labours it was barely evident...my Wife thinks that maybe (more surprising that I actually have a heart) that it may be signs that it is healing/responding to the MP.....as if there was any doubt (that I have a heart that is...)
Most IP now seems to be tiredness and flu like - predominantly when stressed, but that is passing too.
Bad stuff - looking at the bigger picture...it's all good I am getting healthy and getting my lfe back.
My eyesight has deteriorated since starting Phase II meds - I had my eyes tested a while ago and my vision hadn't changed in 3 years (still 20/20), now I need my reading glasses for everything and have to carry a pair at all times......this only started getting bad in the past 2 months....old age or IP...
I am over the hump in phase two....because I have learned that regardless of what happens, I can slow everything down and still keep moving forward.
Regards
John
Thank God (and the Marshall Team) for the MP...
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Diagnosed Sarc by biopsy Jan93
25/04/05(25D-41 1,25D-94 ACE 35)
25/09/08(25D-30 1,25D-63 ACE 35) Phase1 28/09/08
3/12/08 (25D 10.8 1.25D 27.5) Mod Phase 2 22/01/09
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laura1814
Member in Phase 3
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Posted: Thu Oct 1st, 2009 22:55 |
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Congrats, John!
I can really relate to "I used to be smart" and wanting your brain back. I have moments, occasionaly hours, when it's back, but there's no way I could handle school or working. It's really great to hear that you're there already. I'll get there eventually too, and enjoy learning and doing again. 
Fluourescents still really bother me too, and sunlight.
Last edited on Thu Oct 1st, 2009 22:56 by laura1814
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CFS, EBV, PCOS, POF, TMJ, hypoglycemia, hyperlipidemia, MP Ph1 1/08, Ph2 4/08, Ph3 1/09; enzymes, & ranitidine PRN, NoIRs, low lux home, limited outings, covered up, 1,25D=37, 25D=9.
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BARNEY
Moderator
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Posted: Sun Oct 4th, 2009 05:09 |
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Oh John,
What a very inspiring and wonderful post..........I am very happy for you at all your improvements on MP. I understand what you are saying about the violent feelings you used to have calming down. I experienced the same thing.
Keep up your good work and enjoy your life.
Sometimes we just need reminding that it's not about winning the race, it's about just crossing that finish line. (Karna’s thoughts)
Drink plenty of water, xtra (sea) salt (regular salt is mostly chemicals) as needed, lots of rest while avoiding the sun and avoiding Vit D in your foods!!!!!
HANG IN THERE, WE WILL MAKE IT!!!!BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
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