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Ron
Member in Phase 2
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Posted: Fri Nov 6th, 2009 00:51 |
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Today is my one year anniversary on the MP and I want to celebrate by sharing my experiences here on the Alumni forum. Up till now I've only posted for my Dad in the non-public forums. My Dad has severe RA and is recovering on the MP.
After investigating the MP science to help my father it became obvious to me that I could benefit myself from doing the MP, although I have no formal diagnosis of anything.
So I went to my GP and gave her the opportunity of gaining knowledge about the MP science but she turned it down. (Of course the reality was that she did not think of the MP in any positive terms at all and made that very clear.) Well, I quickly found a Doc that was happy to work with me. He's a great guy, I wish there were a lot more of them.
My D-values were: Date: 24 September 2008
1,25-D: 118pmol/L = 49.1 pg/ml
25-D: 51.7 nmol/L = 20.7 ng/ml
Getting the labs done properly was a big hassle. See my post on CureMyTh1.
The immediate effects of taking olmesartan:- Nausea (only a day or so, probably hormone rebalancing)
- Light sensitivity
- MCS, Multiple Chemical Sensitivity
The MCS reminded me of how I used to feel as a little kid, awful. Things like cigarette smoke and diesel fumes always made me sick. The first day on the MP was the worst re. MCS. Taking an extra olmesartan helped. Now, after a year, the MCS has completely cleared up. It's strange to be able to just smell cigarettes and not feel sick anymore from the scent. Actually I never felt pain in my joints, just a sore feeling. I am sure it were infections being cleared. Yes, I had that hypovitaminosis-D symptom. Never realized it was a medical condition though. Bringing down the 1,25-D was enough to make it go away. No more nightly visits to the bathroom, even after drinking a beer or two.  Yep, I had that too. While on the MP it came back sometimes in Phase 1 as immunopathy. It's gone now.
At 1 Augustus, a few months into Phase 3, I went to a concert. Stood right in front of the speakers all night (George Clinton visited our town, he was great!). It was only after the concert had finished that I realized the very loud noise had not bothered me at all. Hardly any ringing of the ears the day after either.- CTS, Carpal Tunnel Syndrome
Just like my Dad, I had CTS in my left hand. And the MP made me aware of CTS in my right hand as well. I can still provoke it when I take a high enough dose of ABX. The most serious health problem I had before starting the MP was being unable to work underneath the low temperature ceiling radiators in the new and very high tech office building. Instead of hot air blown in, these ceiling integrated things heat the office by radiation during the winter. I hated the system, couldn't escape the radiation. But why was I the only one in the office having such serious trouble with it? Sure there was something wrong with the system as it got way too hot from time to time. But only I had cheek bones that looked like I had spent too much time in the sun. I felt overheated, brain fogged, irritated. It all went away instantly after taking the 1,25-D down by using olmesartan. In my late teens I developed mild myopia and always wondered about the cause. Tried to correct it using the methods of Dr. Bates. That worked up to a certain extent and I wonder how much further the MP will take it. No spectacular improvements yet but it's definitely going in the right direction. My dentist has sent me to the dental hygienist for the first time in my life. It's common on the MP to have easier staining and faster tartar buildup. But what was more interesting was the confusion when my dentist was unable to find the decalcifying spot that she expected to turn into a cavity. A year or so before starting the MP I had a big wart on my left hand. The GPA made it much worse by applying dry ice to it. So I bought a big bottle of Vitamin C and took mega-doses of it. After all it's said to be a virus and vitamin C helps. Indeed, the wart disappeared within four weeks. But it came back. Different spot, same hand. And it wouldn't go away with the Vitamin C this time. Well, six months into the MP it was gone. Forever I'm sure.
The MP also cleared some other spots on the ball of the thumb after discharching pus for two days. Not entirely sure whether that would have been the diagnosis had I gone to a GP with it but it matched the description perfectly. Of course the MP really cleared that up. This is my most significant form of immunopathy. It's triggered by light hitting the eyes and I'm sure it's a form of neuropathy. Maybe clearing the neck muscles and also the ones in the back of my head of infection will affect the muscle tone enough to improve eyesight. In the last couple of years I was developing serious hay fever. Haven't experienced that this summer.Gone! I can ride a boat and just feel it move. I spent a whole day in an amusement park doing all the rides and did not get sick. Great!
So far my experiences after one year of MP. I almost feel guilty having a rather easy ride on the MP while seeing all the suffering of others who have become so seriously ill before finding the MP.
I just hope it will inspire others to take the right measures and prevent them from becoming so sick in the first place.
Best to all,
Ron
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Dad with RA, MP 01/08| 25D-16.8| Apr08 7.1 Sep08 11.6 Mar09 7.6 Jul09 17 Dec09 10.4| oxycodon, NoIRs, limited outings covered up
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Limburg
Member in Phase 2
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Posted: Fri Nov 6th, 2009 07:42 |
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Great report Ron! 
Annemarie
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MS,DX 1997,Auto-immune hepatitis,DX 2008, MP start jan.2009. 25D: 20.4 (october 7,2009)25D: 12.5 (november 23,2009)
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Freddie Ash
Member in Phase 3
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Posted: Fri Nov 6th, 2009 13:38 |
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HI RON
This is Fred in WV. I want to wish you a great big HAPPY FIRST MP ANTIVERSITY.
Thanks for the great report. We never knew we were so sick until we started the MP did we???
Remember, we are all in this together and I am pulling for us.
Your friend in Sarcoidosis
Freddie
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Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
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Dr Trevor Marshall
Foundation Staff
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Posted: Fri Nov 6th, 2009 14:40 |
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Thanks for all your help, Ron. May there be many more happy anniversaries
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Carole
Board Staff
| Joined: | Tue Jul 20th, 2004 |
| Location: | Indiana USA |
| Posts: | 676 |
| Status: |
Offline
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Posted: Fri Nov 6th, 2009 15:07 |
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| Congratulations, Ron, on your MP anniversary! Your milestones for someone who had most likely been seen to have "normal D values" are very impressive! Take care! . . . Carole
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PWC 50+ yrs| 20+ CFS FM Pituitary Thyroid IBS Cardiac OA Migraines +ANA Osteoporosis 2/04 Mediastinoscopy ~Sarc Story |1/04 1/06: 125D=85,34; 25D=41,14| AC
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Frans
Member in Phase 2
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Posted: Fri Nov 6th, 2009 18:37 |
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Ron,
Your mentioning of problems with teeth reminded me of a paper published only a few weeks ago.
Normalisation of calcium status reverses the phenotype in dentin, but not in enamel of VDR-deficient mice.
Zhang X, Rahemtulla F, Zhang P, Li X, Beck P, Thomas HF.
Department of Prosthodontics, School of Dentistry, University of Alabama at Birmingham, Birmingham, AL 35294-2170, USA.
OBJECTIVE: To determine the effects of vitamin D receptor (VDR) deficiency on mouse dentin and enamel mineralisation, and how normalisation of serum calcium level affects dentin and enamel phenotypes in VDR knockout mice. MATERIALS AND METHODS: Groups of VDR wild-type (VDR+/+), VDR deficient (VDR-/-) and VDR-/- rescued mice were sacrificed at 70.5 days of life. The rescued group was established by a high-calcium diet feeding the VDR-/- mice from postnatal 19 days. Micro-CT was used to compare enamel and dentin mineralisation density (MD) at different levels of mandibular incisors among the groups. The scanning electron microscope (SEM) was used to examine the ultrastructure of the enamel and dentin in the corresponding levels and of surface enamel after acidic treatment. RESULTS: Micro-CT showed that in VDR-/- rescued group, dentin phenotype was reversed and dentin MD was reversed to normal; however, enamel mineralisation was not reversible, and remained as hypermineralisation in molar region and apical region of the incisors. SEM also revealed enamel hypermineralisation in the VDR-/- rescued group. This early enamel hypermineralisation was more susceptible to acidic erosion. CONCLUSION: Vitamin D affects dentin mineralisation systemically, and it regulates enamel mineralisation locally.
PMID: 19850279 [PubMed - as supplied by publisher]
I hope someone can work through that paper and see if it has any bearing on the teeth on the MP.
Maybe this has some bearing on your child's amelogenesis imperfecta ?
I understand HealingJason's dad is also concerned about Jason's teeth, so if this paper helps to understand what is going on, maybe it helps.
Great report Ron, keep killing them buggies
Frans
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Burn-out/nervous breakdown Jan01 125D 48 25D8.48 Ph1Nov06 ModPh2Jan07 Ph2Apr08 Cipramil Seroquel NoIRs lite exp r/t work cover up 25D3.9(Oct07)
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Ron
Member in Phase 2
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Posted: Fri Nov 6th, 2009 23:43 |
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Thank you all for your kind encouragements!
Carole: indeed, my GP told me my D-values were "fine". 
Frans, thank you for alerting me to the Pubmed-report, looks very interesting.
Wishing everybody a good weekend!
Ron
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Dad with RA, MP 01/08| 25D-16.8| Apr08 7.1 Sep08 11.6 Mar09 7.6 Jul09 17 Dec09 10.4| oxycodon, NoIRs, limited outings covered up
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BARNEY
Moderator
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Posted: Sun Nov 8th, 2009 02:55 |
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CONGRATULATIONS ON YOUR MP ANNIVERSARY, RON!!!!
HANG IN THERE, WE WILL MAKE IT!!!BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
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