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Bevin Black
member
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Posted: Mon Nov 22nd, 2004 00:21 |
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 What are the criteria for moving to the next stage of treatment? I am on 40mg Benicar, every 8 hours, minocycline 100mg every 48hrs. The herx, seems bearable now. I took the Benicar for the month of July. Thev I added 100mg mino every second day for August. Herx forced me to take 50mg mino for September. I have been on full MP since with the herx now getting to where I am not missing any work at all.
Bevin Black
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sarc heart lung skin liver lymph nodes etc| Phase 3| MP Oct 04| Allergies to all foods resolved. Slight reactions to some pollens only | Lower back muscle aches. probotics, Beni x4, 37.5mg Effexor.Sore right shoulder. Odd pains in hands, no pain medicatio
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Foundation Staff
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Posted: Mon Nov 22nd, 2004 02:49 |
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Hi Bevin,
Welcome to MP.com. Please fill out your signature line so we will have your data each time you post.
The information you are asking is in the phase one guideline. "11. Once your bacterial load is significantly reduced, as indicated by little or no Herxheimer reaction even when taking 100mg of minocycline every other day, it is time to progress to Phase 2 of the protocol, where other antibiotics will be carefully added to continue the bacterial killing process." There is also info about phase two in our FAQs forum.
It's great to see that you are progressing well and not missing work anymore. We have started a new forum for members in phase 2 and 3.
We look forward to hearing about your continuing improvement.
Best,
Meg
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Admin
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Posted: Mon Nov 22nd, 2004 02:53 |
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Hi Bevin:
Please see this announcement http://www.marshallprotocol.com/forum11/1379.html to find out how to request Phase 2 and gain access to the forum which Meg references above.
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Bevin Black
member
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Posted: Fri Jan 2nd, 2009 01:08 |
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July 2006:
I connected the light exposure and food intollerance in 1997, after comming off Prednisone. I cannot differentiat between my symptoms. If I eat corn or fruit, I get the same symptoms as, if I eat food with too much vit. D. I also feel the same sickness, if I have to go out in the sun. My food allergies have lessening with time, although I do seem to pick up new allergies, if I do not rotatate my diet enough.
It takes 12 hours after I eat, before I know if I am light sensetive, to that food. I don't experiment with food allergies, only find out by accident, so I'm not very scientific. I have been telling Trevor abou this for years. I'm overjoyed at the progress that is happening. After all the help from Trevor and the staff, (they saved my life I'm sure),I'm still not sure what came first- the food allergies - or the Sarcoidsis
I never tried organic. I would feel so much like I was going to die, that I would never go back to food that gave me a reaction. I had my heart remapped in Oct/96, was schedualled for pacemaker the next year. Then I figured out the food allergy. Before my procedure, the did a stress test. I did so well, Doc postponed the pacer. I never looked back. Started conversing with Trevor, about 4 years ago, felt healthy enough, but could relate to everthing posted by Dr. Marshall. Tried Mino, just to remind me how sick it made me, when I took it in 1987 for a suspected nasal infection. It was the only drug I ever quit.
When I react to a food now (I'm in phase 3 MP), I may get sick, but can function. Allergies have definitely backed off. Havn't taken Immitrex for Migrains for a couple years.
When I went for my Cardiac MRI, they were unable to obtain gating, and shipped me back and forth between 2 machines, for several hours. They never did get a good picture, and technicians couldn't explain why. I would think, that this probably was not good news. Anyway, I don't go to my heart specialist anymore, and am happy with the information I get from the sites. I can see big changes coming, in the way we are diagnosed in the future.
sincerely Bevin Black
April 2007:
I had allergies to all sorts of pollen, dust etc, but that was nothing compared to food allergies that developed, especially after Prednisone treatment. While on Pred, I had no allergies, that's why I wanted to stay on it. After coming off Pred, I really got sick. What ever I ate most, I started reacting to it. It has probably been 3 years, since Trevor told me, "My allergies would slowly dissapear." He desearves a Nobel Prize for this alone. My allergies are the best they have ever been, in my 56 years.
May 2007:
I think that my carpal tunnel, is not resolving with the rest of my aches and pains. It has awoken me every 20 minutes, all night at times. In desperation, I finally book surgery 3 months ago. Surgeon says to get off Celebrex 10 days prior to surgury. OH-OH! I've been on it since it was invented! So, after 2days my spine and knees are alread pretty much seized. I get the druggist to make me up some corn free pain killer. At about day 4, I come out of almost all my pains.I drop the special Tylenol. I think I may have broken free of my anti inflamatories. Is this possible? Day10, on my way to surgery, I find that my hands are NOT asleep! I meet my surgeon at the operating room. I mention to him, that I have been off work for 3 months for something else, and my hands are not numb (right now). Surgery cancelled. Now, I was out of work for 6 months last year, and the pain never left my hands. I have read in the past, that members on the MP, have found that reducing Celerex, increases immune response- or something to that effect. I also dropped the antibiotics from about day 2 to 6. I also read, that more than one cup of coffee per day, can interfere withe the antinflamitory effect of the Benicar. Hope I hope I havn't made any wrong decisions here!
I have recently stopped the anti depressant Cyprallex. I am still very forgetful, but am doing quite well,with little pain. I was recently refused hernia surgery, because they didn't like my EKG. It still shows second degree heart bloc, and a pulse of 32. It was far worse, years ago. My allergies to corn and fruit, are waning.Thanks for your patience and understanding.
July 2007:
Last week in May, first week in June has always been really bad for my pollen allergies. I've noticed a yellow film on my windshield, a little earlier this year. It didn't seem to be making my eyes itch, no sneezing etc. Anyway, I ended up going to the camp, before the Birch pollen got too bad. When I went down to the lake, it was "COVERED" in a yellow scum! There was a yellow bathtub ring around the whole lake. It was obviously the height of my allergy season. I had "NOT ONE SYMPTOM" this year. It was truly, as if I never had this allergy before. So hang in ther all, it just takes TIME, and the MARSHALL PROTOCAL.
June 2008:
Nothing outstanding to report, just checking in for my reminder. Allergies still waining, I'm eating almost anything now. I have been travelling more, going to restaurants for a while too. Still trying to maintain a fine ballance, extra Benicar when herxing too much. Had to skip Z a couple of times. Had chest pain once after eating Lake Trout. Never had any kind of fish again! Just plugging along, enjoying life.
January 2009:
Well, I think I have finally beat the allergies, or should I say that the Marshall Protocal has cured them. I can go to a restaurant, and order off the menu. I can go to a friends house for dinner. I can go grocery shopping, and not read labels. I can't remember the last time that I had a Migrain, and my memory is still improving. My lung x-rays are not better yet, but am aticipating they will improve along with my heart. Still following the Protocal, 4 years and counting. Have a safe and healthy New Year everybody. Bevin Black
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sarc heart lung skin liver lymph nodes etc| Phase 3| MP Oct 04| Allergies to all foods resolved. Slight reactions to some pollens only | Lower back muscle aches. probotics, Beni x4, 37.5mg Effexor.Sore right shoulder. Odd pains in hands, no pain medicatio
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Barney
Support Team
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Posted: Fri Jan 2nd, 2009 01:26 |
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Bevin,
What a beautiful report!! I can agree with you on the food allergies.
Hope you and yours have a HAPPY AND HEALTHIER NEW YEAR!!!!
HANG IN THERE, WE WILL MAKE IT!!!!BARNEY
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Sarcoidosis, asthma, fibromyalga, diabetes, left kidney only. Started MP 1/1/05. Benicar only since 9/2007. 11/11/12 had a heart attack, 1 81mg asprin, diabetes blamed for this. Heart is regenerating new veins to replace the ones that died. Doing great.
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Bevin Black
member
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Posted: Thu Mar 26th, 2009 14:59 |
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| Just had my appointment with the heart specialist. He was very skeptical about the Marshal Protocol at past appointments. He usually holds nothing back, and has made jokes about internet sourses of medical information. He seemed to look puzzled, that the scar from my pacemaker was almost nonexistant, after just 15 months, and remarked that the surgeon had done a good job. After reviewing my charts, medications and phsical examination, he said "Whatever you are doing, KEEP DOING IT" I told him that I thought that I was feeling younger. He said "See me when you are a YEAR YOUNGER" I don't know if it gets much better than this! I am wondering if I should try getting off the Marshal Protocol yet? When do we stop getting better? Its been four and a half years, since We started.
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sarc heart lung skin liver lymph nodes etc| Phase 3| MP Oct 04| Allergies to all foods resolved. Slight reactions to some pollens only | Lower back muscle aches. probotics, Beni x4, 37.5mg Effexor.Sore right shoulder. Odd pains in hands, no pain medicatio
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Dr Trevor Marshall
Foundation Staff
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Posted: Thu Mar 26th, 2009 17:51 |
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Bevin,
"When you are on a good thing, stick with it"
90% of the cells in your body are bacterial cells. Even after 4-5 years, there will still be bugs to kill.
Besides, you need to keep those years rolling back... 
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Barney
Support Team
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Posted: Fri Mar 27th, 2009 00:12 |
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I ditto what Trevor said!!!!!!!!!!!!!!!!!!!!
HANG IN THERE, WE WILL MAKE IT!!!BARNEY
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Sarcoidosis, asthma, fibromyalga, diabetes, left kidney only. Started MP 1/1/05. Benicar only since 9/2007. 11/11/12 had a heart attack, 1 81mg asprin, diabetes blamed for this. Heart is regenerating new veins to replace the ones that died. Doing great.
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Bevin Black
member
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Posted: Sun Mar 29th, 2009 02:30 |
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Thank You Trevor and Barney. I will stay with it for a while and report any new findings.
It was back in about 2002, that I was trying to get people to listen to my CORN/Sarcoidosis link. I was in almost constant Migraines at the time, and corn avoidance cured them. It was very difficult to track down this trigger, as corn is in everything.
As my mind cleared a little, it dawned on me. What was causing my corn allergy? The only solution on the sites was avoidance. When I became allergic to fruit, I switched to other foods. Pretty soon I was down to eating crackers and red meat.
If Trevor hadn't been there, I surely would have died back then! Now I eat in any restaurant, at any friends house any time. I still avoid foods with vitamin D.
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sarc heart lung skin liver lymph nodes etc| Phase 3| MP Oct 04| Allergies to all foods resolved. Slight reactions to some pollens only | Lower back muscle aches. probotics, Beni x4, 37.5mg Effexor.Sore right shoulder. Odd pains in hands, no pain medicatio
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Bevin Black
member
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Posted: Wed Dec 1st, 2010 14:56 |
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 Just posting, because I haven't updated lately. It must be 7 years since I first started the MP. Although I feel healthier, than I can ever remember feeling, I can still provoke a Herxheimer reaction at times. I do still get short of breath, and do still get tired, at times. I turn 60 in 2 months. I remember praying that I would live till 55. Now, there are times that I feel I will live much longer yet, an almost invincible high. I remember helping neighbours, about 20 years ago to clear brush on our camp road. I remember being in serious pain, with Bursitis in my shoulders, and Tennis Elbow, for up to a year after, from working too hard. Just an example, but now, most of the time I cut a cord of heavy birch logs, and split and pile them in one day, I don't even feel a little sore. My 20's was a long time ago, but I don't know, if I was even that pain free, back then. I took a lot of pain killers all my life, but find that I may take one or two Celebrex per month now, and that may be Herxheimer. My memory is still improving,, but languages and math are still weak. I have no allergies to anything anymore, and even second hand smoke doesn't bother me. I'm going to stay on a little longer, and see if I get any more lung capacity back. Bevin Black
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sarc heart lung skin liver lymph nodes etc| Phase 3| MP Oct 04| Allergies to all foods resolved. Slight reactions to some pollens only | Lower back muscle aches. probotics, Beni x4, 37.5mg Effexor.Sore right shoulder. Odd pains in hands, no pain medicatio
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Barney
Support Team
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Posted: Sat Dec 11th, 2010 08:14 |
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Bevin,
It is good to hear that your MP progress is good.
MERRY CHRISTMAS AND MAY YOUR NEW YEAR BE EVEN HEALTHIER!!!!
HANG IN THERE, WE WILL MAKE IT!!!!BARNEY
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Sarcoidosis, asthma, fibromyalga, diabetes, left kidney only. Started MP 1/1/05. Benicar only since 9/2007. 11/11/12 had a heart attack, 1 81mg asprin, diabetes blamed for this. Heart is regenerating new veins to replace the ones that died. Doing great.
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Bevin Black
member
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Posted: Sun May 1st, 2011 16:23 |
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I am thinking about wrapping up my treatment on the MP. The last 2 years, have showed some improvement. I have been with you since Oct 04, and consider myself cured. It's only my financial situation that would improve, if I try cutting out the antibiotics, no other reason. Are there any links to refer me to for guidance? My only symptoms left are carpel tunnel, which I now believe is worsening as I am so active. I take no pain medications whatsoever, but feel my allergies are returning somewhat with spring pollens (not to the point of medication though) I am in my 60's and as active as many in their 20's or 30's, but with less pain than I believe that I have ever had.
Thank You
Bevin Black
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sarc heart lung skin liver lymph nodes etc| Phase 3| MP Oct 04| Allergies to all foods resolved. Slight reactions to some pollens only | Lower back muscle aches. probotics, Beni x4, 37.5mg Effexor.Sore right shoulder. Odd pains in hands, no pain medicatio
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Sallie Q
Board Staff
| Joined: | Mon Jan 26th, 2009 |
| Location: | NSW, Australia |
| Posts: | 2006 |
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Posted: Mon May 2nd, 2011 00:23 |
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Bevin try this link for information on weaning
http://mpkb.org/home/mp/break/olmesartan
and for your reference, overview
http://mpkb.org/home/mp
you may wish to do a mini MP booster once in a while. The recommendations have changed somewhat since you were a beginner
MKPB recommends weeks for weaning and other measures
I happen to be on a total MP break for now: I am still on Mino at 100mg QOD but my doctor had me wean down Benicar over a 3 month period pending further tests (which I have just had done but not got the tests back.
I appreciate your recovery summary, hope to do likewise when I get a few more teaspoonfuls of mental energy 
Sallie
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MP Sept'08|depression'70, breast cancer'90, BCC?, Sjogrens| Sx stroke,CFS,mild RA, migraine, glare->neuro| 1,25=31pg/ml & 25D=7ng/ml(Dec'12) (MP conferences) MP break: Olm.20q8h, M100q2d
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terrylmcc
Member
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Posted: Mon May 2nd, 2011 01:23 |
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Congratulations, and Good Luck, Bevin.
Was nice to read your success on the MP.
Thank you for sharing. Best --Terry
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Sarcoidosis/lung &cutanious biopsy. uveitis Ph1,Jan07 ModPh2,Apr07 Ph2, Dec07 Ph3,Feb08 NoIRs avoid lite exposure, 25 D 6/08 = 5, 25D 3-09 4. 4-4-10 25D 9.
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Barney
Support Team
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Posted: Mon May 2nd, 2011 16:33 |
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Bevan,
The best to you....please stop in and let us know how you are doing.
HANG IN THERE, WE WILL MAKE IT!!!!
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Sarcoidosis, asthma, fibromyalga, diabetes, left kidney only. Started MP 1/1/05. Benicar only since 9/2007. 11/11/12 had a heart attack, 1 81mg asprin, diabetes blamed for this. Heart is regenerating new veins to replace the ones that died. Doing great.
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Deedee
Member*
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Posted: Fri Jun 3rd, 2011 01:34 |
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| Fantastic!
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06/08 Sarc in lymph nodes. Chronic high lipids. 2010 heath cat scan-zero plaque. 11/12 D8, 12/12 Normal CXR except scarred lymph node, normal PFTs 8/12 Off all MP meds. Metabolic Syndrome
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Barney
Support Team
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Posted: Fri Jun 3rd, 2011 04:54 |
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Bevin,
Thank you so much for posting your success! So many people want to hear from those who are able to recover.
Please check back in from time to time.
I am also in my 60's. I just need more energy.
Have a great life!!!!!!!!!!!!!!!!!!!!!!!
HANG IN THERE, WE WILL MAKE IT!!!BARNEY
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Sarcoidosis, asthma, fibromyalga, diabetes, left kidney only. Started MP 1/1/05. Benicar only since 9/2007. 11/11/12 had a heart attack, 1 81mg asprin, diabetes blamed for this. Heart is regenerating new veins to replace the ones that died. Doing great.
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Bevin Black
member
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Posted: Sun Jul 10th, 2011 15:11 |
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I'm still with you all. I just bought another 6 months of drugs, and will evaluate my progress then. I have been doing so well, I am curious as to what the future may bring. I have been helping friends shingle roofs, and do large cement pours, which I have not been capable of for a very long time. Starting back into the workforce, appears a distinct possibility, even at age 60. MP for 8 years and still counting!
Bevin Black
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sarc heart lung skin liver lymph nodes etc| Phase 3| MP Oct 04| Allergies to all foods resolved. Slight reactions to some pollens only | Lower back muscle aches. probotics, Beni x4, 37.5mg Effexor.Sore right shoulder. Odd pains in hands, no pain medicatio
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Deedee
Member*
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Posted: Sun Jul 10th, 2011 16:04 |
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| Great to hear of your progress. If you don't mind sharing--why did you decide to keep on keepin' on rather than discontinue the MP?
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06/08 Sarc in lymph nodes. Chronic high lipids. 2010 heath cat scan-zero plaque. 11/12 D8, 12/12 Normal CXR except scarred lymph node, normal PFTs 8/12 Off all MP meds. Metabolic Syndrome
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Bevin Black
member
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Posted: Fri Jul 15th, 2011 01:12 |
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I am healthy enough, to pick up a few odd jobs, so the drugs are paid for. More importantly, I am not sure that I have recovered fully. And that comes from being sick, all my life, and basically not knowing for sure what NORMAL is. It does actually scare me somewhat, thinking that I may slip backwards some if I quit too soon. I sure am enjoying this recovery, but will keep everyone posted, if it gets any better than this!
Bevin Black
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sarc heart lung skin liver lymph nodes etc| Phase 3| MP Oct 04| Allergies to all foods resolved. Slight reactions to some pollens only | Lower back muscle aches. probotics, Beni x4, 37.5mg Effexor.Sore right shoulder. Odd pains in hands, no pain medicatio
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