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Barney in phase 3
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BARNEY
Member in Phase 3


Joined: Tue Dec 21st, 2004
Location: Deming, New Mexico USA
Posts: 1273
Status:  Offline
 Posted: Sun Feb 6th, 2005 23:11

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Reenie,

PS  The swelling in my lymph nodes in my neck had gotten almost the size of a pinpong ball, but  the swelling has subsided quite a bit, almost down to what I consider normal.  Barney (sorry, I forgot to mention this).



____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
Reenie
inactive member
 

Joined: Wed Jul 21st, 2004
Location: Phoenix, Arizona USA
Posts: 3373
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 Posted: Mon Feb 7th, 2005 23:15

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All sounds good.  :cool:

Are you drinking alot of water?  My chiropractor mentioned that to me when I told her my neck was swollen.  She said sounded like my lymph nodes were working hard and to drink alot of water.  It was odd that I was also thirstier than usual around that time. :shock:  Coincidence?  Maybe... In My Opinion, I think my thyroid was acting up; maybe herxing going on in there. 

PS Thanks for the updated sig line.  When you post again, pls be sure to remind me of your mino dosing/herxing, so we can "keep track" of how it's going.

BARNEY
Member in Phase 3


Joined: Tue Dec 21st, 2004
Location: Deming, New Mexico USA
Posts: 1273
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 Posted: Tue Feb 8th, 2005 01:27

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DAY 38  B/P 124/71 P94

Reenie,

I drink more water than anyone I know. At least a gallon or more a day. It seems like I never quit drinking, plus everything else that I drink, tea etc. They just checked my thyroid less than a year ago. It was fine, but I go back to the doc in March, I can ask her to check it again. I have swollen lymph nodes in a lot in the past but not as big as this time. I figured it was big time herxing. I am sure there are lots of bugs in the nodes. I also have a rash in my mouth on the right side. I had a good day except for a little swelling left in the right side of face and mouth is still a little sore, did feel a little tiny pain in ear for a while otherwise just the usual fatigue.

Things got all messed up and I did not get to go get supplies today and I had skipped my 25mg Mino dose last night for that reason. I am going tomorrow (Tuesday), I will take 25mg Mino when I get home. If you need any more info, please let me know.  Barney



____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
BARNEY
Member in Phase 3


Joined: Tue Dec 21st, 2004
Location: Deming, New Mexico USA
Posts: 1273
Status:  Offline
 Posted: Tue Feb 8th, 2005 15:24

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DAY 39    B/P 108/74  P 78

I HAVE SOME QUESTIONS. I WENT TO GET MY COMMODITIES THIS MORNING. IT WAS INSIDE A BUILDING BUT HAD TO DRIVE THERE (COVERED/NOIRS) AND WALK A QUARTER BLOCK TO THE BUILDING (AND BACK), SAT INSIDE FOR 2 HOURS WAITING (FORGOT THE BUILDING HAD WINDOWS NEAR THE CEILING AND THE FRONT DOOR WAS OPEN. MY EYES REALLY HURT. I UPPED MY 20 MG BENICAR TO EVERY 2 HRS. IS THIS CORRECT? WON'T BE GOING TO COMMODITIES ANY MORE, IT WAS NOT WORTH THE PRICE I PAY HEALTHWISE.

WHEN I GOT UP THIS MORNING, I FELT SORT OF ITCHY ALL OVER, MOUTH IS STILL A TINY DAB SORE, NOTHING LIKE IT WAS. NODES STILL A LITTLE TOUCHY BUT NOT ANY WORSE THAN USUAL, EAR IS NOT HURTING. LEFT EYE IS ITCHY TO SOME DEGREE. IS THIS A HERXING AFFECT? AM GOING OUT TONITE TO GET THE SUPPLIES I WAS UNABLE TO GET LAST NIGHT. WITH ALL THIS, SHOULD I GO AHEAD AND TAKE MY 25MG MINO I HAVE BEEN PUTTING OFF (WHEN I GO TO BED TONIGHT)? 

HOW MUCH QUERCETIN SHOULD I TAKE TODAY? 

PLEASE ADVISE IF I AM CORRECT IN ALL OF THESE THINGS? I ALSO NOTICED THAT AFTER SITTING IN THAT BUILDING, I RESEMBLED A DRUNK WALKING.

I WILL TELL YOU ONE THING, I THINK I WILL JUST LEARN TO STAY IN EXCEPT FOR DOCTOR APTS OR PICKING UP MEDS THAT I CANNOT GET SOMEONE TO PICK UP FOR ME.

THANKS,    BARNEY



____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
Reenie
inactive member
 

Joined: Wed Jul 21st, 2004
Location: Phoenix, Arizona USA
Posts: 3373
Status:  Offline
 Posted: Tue Feb 8th, 2005 15:40

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Barney,

From the amount of light exposure you must have gotten, I would say you've increased your 1,25-D quite a lot.  You won't be able to tell the full effect until about 6hrs after the exposure and you'll feel it for at least the next two days. :(

Yes, taking your Benicar 20mg, q2h, would be a good idea, until you feel the negative effects of the light wear off. (check w/Dr of course)

Although the light exposure feels like herx, it's not.  Do NOT take Quercetin, as it will only make you feel worse, until you get your Benicar blockade stabilized again, after the effects from the light exposure wear off. 

It would also be a good idea to skip mino for the next couple of days. 

Take a look at, Why is my 'herx' more intense after I go outdoors or get more light?  and THE EFFECT OF SUNLIGHT/DAYLIGHT AND BRIGHT LIGHTS

BARNEY
Member in Phase 3


Joined: Tue Dec 21st, 2004
Location: Deming, New Mexico USA
Posts: 1273
Status:  Offline
 Posted: Tue Feb 8th, 2005 15:52

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Reenie,

Thanks for the info, I will do as you say and see what happens from the light exposure. I will check with my doc also, re: the 20 mg. benicar q2hrs.

I will not do a stupid trick like that again. It is not worth it. Thanks again. Barney



____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
BARNEY
Member in Phase 3


Joined: Tue Dec 21st, 2004
Location: Deming, New Mexico USA
Posts: 1273
Status:  Offline
 Posted: Wed Feb 9th, 2005 15:28

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DAY 40  BP 123/74    P80

Yesterday after the light exposure, I took a pain pill and rested for several hours and took a short nap.  By 4pm, I was feeling a lot better, eyes not hurting, no pain anywhere else. Went back to q3hr Benicar schedule. Had a good time with my friend shopping and had a great meal out. It was devine (Texas Roadhouse). Got home around 11pm. It was 120 mile round trip after dark.

Had a great night's sleep, got up at 6am, have felt great all day so far. I feel like I am teetering on a fence just waiting for the double whamy from the light exposure. If I am still feeling fine at midnight tonight, I think I will try the mino again.

I am so thankful for what MP has done so far. I have not had the severe headaches and neckaches I had before I started MP. They were harindous and I did not think they would ever stop. I have not even had to go back to the Chriopractor all of January and none of February so far.  I also have had such a drastic reduction in smell sensetivites, it is unreal. I can handle almost any scent I come in contact with and some of them actually smell 'normal' and good. WHAT A BLESSING. IF I GOT NOTHING ELSE FROM THE MP, IT WOULD BE WELL WORTH ANYTHING I HAVE GONE THRU.

THANKS TO ALL OF YOU ON THE RESEARCH TEAM AND ADMIN AND STAFF. COULD NOT DO IT WITHOUT ANY OF YOU. THANK YOU FOR YOUR TIME AND KNOWLEDGE.   BARNEY

 



____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
BARNEY
Member in Phase 3


Joined: Tue Dec 21st, 2004
Location: Deming, New Mexico USA
Posts: 1273
Status:  Offline
 Posted: Thu Feb 10th, 2005 20:43

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DAY 41  BP 139/76  P 84

Well, I chickened out at midnight, even tho I felt okay, I did not take the mino. But, I did get up at 6 am and took 25 mg mino. It is about 5:40pm, and all is well so far, just waiting for the ball to drop, to see where the bugs are going to put up a fight next.

Sort of an uneventful day. Raining here, no sunshine. We usually have 354 days of sunshine here, this has been a very unusual winter. We were in a drought for several years and now we almost have caught back up on water levels. That is nice because I love my well water (no cholorine, no flouride).

Hang in there, we will make it!!!!!!  Barney



____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
BARNEY
Member in Phase 3


Joined: Tue Dec 21st, 2004
Location: Deming, New Mexico USA
Posts: 1273
Status:  Offline
 Posted: Sat Feb 12th, 2005 01:16

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DAY 42  BP 120/65  P 82

Still raining. We may need to borrow Noah's Ark real soon.

I will be taking more mino tonite. 25 mg. at midnight with my 40mg Benicar.

Not needing a nebulizer any more, just realized I have not touched my nebulizer  in quite a while. This is getting better daily.

About to go to bed as I am very sleepy.

Hang in there, we will make it!!!!



____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
BARNEY
Member in Phase 3


Joined: Tue Dec 21st, 2004
Location: Deming, New Mexico USA
Posts: 1273
Status:  Offline
 Posted: Sun Feb 13th, 2005 00:09

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DAY 43  BP 123/81   P88

Nothing happening, no herxing. Will take 50 mg tomorrow night at midnight.

Been a very boring day. Nothing good on TV. So much rain, our streets are soggy, decided best not to go out.

Barney



____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
BARNEY
Member in Phase 3


Joined: Tue Dec 21st, 2004
Location: Deming, New Mexico USA
Posts: 1273
Status:  Offline
 Posted: Mon Feb 14th, 2005 01:13

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DAY 44    BP 128/79  p85

No herxing today. Planning to up the mino to 50 mg in the morning. Should get some results then.   Barney



____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
BARNEY
Member in Phase 3


Joined: Tue Dec 21st, 2004
Location: Deming, New Mexico USA
Posts: 1273
Status:  Offline
 Posted: Wed Feb 16th, 2005 00:31

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DAY 45 = FEBRUARY 14, 2005 BP 117/86 P 95  BP 130/82 P82    BENICAR 20 MG Q3HRS, MINOCIN 50 MG

Had to run an errand which required me to cover and go out until 12 noon.

Reactions: puffy feeling around eyes for about 3 hrs and then seem to go away.

Feel asleep in recliner watching tv - got up - checked emails and went to bed after taking 50 mg minocin with my 9 pm Benicar 20 mg. Was just to sleepy to think enough to write my post for the day, sorry. BARNEY

 

 



____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
BARNEY
Member in Phase 3


Joined: Tue Dec 21st, 2004
Location: Deming, New Mexico USA
Posts: 1273
Status:  Offline
 Posted: Wed Feb 16th, 2005 00:44

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DAY 46, PHASE 1  FEB 15, 2005, BP 114/90  P 81  BENICAR 20 MG Q3HRS, 40 MG MIDNIGHT (FORGOT TO PUT THIS ON MY POST FOR LAST NIGHT) .

Up at 5:40 am, ate breakfast and could stay awake, Went back to bed after taking pain pill, shoulders huring real bad. Pain pill did not even touch the pain. Got up at 12 noon, pain still in shoulders bad, tried to tough it out for a while, but ended up taking another pain pill around 3pm. I noticed a real cold feeling for a little while (noticed this before when taking minocin but not relate it to this until today). Got the pain down to bearable.

Went to Walmart and Peppers after dark. Sweated the whole time I was out. That subsided after I arrived home.  Doing well and not herxing as bad as I had anticipated.

I have been reading Reenie's site today, was glad to know that I am not the only one who does not get dressed some days (stay in night clothes). I am not having any problems with being in my 'cave', no depression, although, some bordem. If I would just do something (which I have plenty to do), I would not have bordem but some days just do not want to do anything I should do. Not really fond of doing housework some days and since I live alone, I figure if I can stand the dirty dishes etc. there is no one else to complain. Besides I get the remote control all to myself.

Guess that's all folks!  Hang in there, we will make it!!!!  Barney :D



____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
Aussie Barb
Research Team


Joined: Thu Jul 22nd, 2004
Location: Australia
Posts: 19252
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 Posted: Wed Feb 16th, 2005 01:43

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Hi Barney

from reading your post I am wondering if the pain was from the light exposure the day before?

and I was wondering if you remembered that you could increase the Benicar 20mg to Q2H re the outing time and for 12 hrs after to minimise the symptoms..

as you say why do the housework or get dressed up.. the Queen is allowed to do what she likes.. :dude: Barney...

all best, Barb ....



____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
BARNEY
Member in Phase 3


Joined: Tue Dec 21st, 2004
Location: Deming, New Mexico USA
Posts: 1273
Status:  Offline
 Posted: Wed Feb 16th, 2005 02:22

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Hey Aussie Barb,

I do not know whether to lay the pain onto the sun exposure or herxing. Since I've never had that symptom to light exposure, I assumed it was herxing. Your opinion?  How do you determine herxing vs. light expos.?

Actually after I pushed the send button, I realized I did not post the Benicar correctly. I was trying to keep all in mind for 2 days posting and did not look at my journal correctly. I probably did this wrong but I uped the Benicar to 40 mg an hour before I went out and when I got back at approx 12 noon I took another 40 mg Benicar. Did I blow it?

If this was light expos only, why am I not herxing at 50 mg minocin?  Barney



____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
Aussie Barb
Research Team


Joined: Thu Jul 22nd, 2004
Location: Australia
Posts: 19252
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 Posted: Wed Feb 16th, 2005 02:27

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Hi Barney

both herx and light exposure cause a rise in the 1,25D. >. some info for you >

Why is my 'herx' more intense after exposure to Light & / or Vitamin D ?

When and why should I vary my Benicar schedule?  says >>

Dr Marshall says, "I used to make sure that I was never more than 4 hours from my last Benicar whenever I had to go outdoors. Then, after the exposure, I needed to keep the 4 hour going for 12 hours after the final exposure. Beyond that I could slip back to normal dosing, as the 1,25-D had dissipated (6 hour half-life)."

These options should help keep the 1,25-D down to minimize symptoms and help avoid any unnecessary lifestyle interruptions.<<<<<  eg interruptions to washing up and housework..

all best, Barb ...



____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
BARNEY
Member in Phase 3


Joined: Tue Dec 21st, 2004
Location: Deming, New Mexico USA
Posts: 1273
Status:  Offline
 Posted: Wed Feb 16th, 2005 02:47

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Barb,

Let me start over again:

6am  20 mg Benicar, 9am  40 mg Benicar, 12noon 40 mg Benicar, 3pm 20 mg Benicar, 6pm20 mg Benicar, 9pm 20 mg Benicar, 12 midnight 40 mg Benicar and 50 mg. Minocin.  This was more often than every 4 hours.  Am I correct in dosage and times as related to your last post? Barney



____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
Aussie Barb
Research Team


Joined: Thu Jul 22nd, 2004
Location: Australia
Posts: 19252
Status:  Offline
 Posted: Wed Feb 16th, 2005 03:08

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Barney

I have copied it here

6am  20 mg Benicar,

9am  40 mg Benicar,

12noon 40 mg Benicar, << HOME > keep the 4 hour x 40mg going for 12 hours after the final exposure

3pm 20 mg Benicar,

6pm20 mg Benicar,

9pm 20 mg Benicar,

12 midnight 40 mg Benicar

You have done well, and what the FAQ explains is >> When herxing and being exposed to light simultaneously, these two phenomena can cause a much more elevated rise in 1,25-D than either would independently, causing what feels like a  more intense herx. <<

so that is to say the light exposure can cause the herx to be more intense than the herx on it's own.. could be why the symptoms were more difficult..

hope that helps Barney, all best, Barb ..



____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
BARNEY
Member in Phase 3


Joined: Tue Dec 21st, 2004
Location: Deming, New Mexico USA
Posts: 1273
Status:  Offline
 Posted: Wed Feb 16th, 2005 03:24

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Barb,

I hope I don't sound as dense to you as I sound to myself.

Two more questions, Should I have done 40 mg at 9pm also?

Should I have waited to take the minocin tonight instead of last night?

THANKS ,    BARNEY  



____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
Aussie Barb
Research Team


Joined: Thu Jul 22nd, 2004
Location: Australia
Posts: 19252
Status:  Offline
 Posted: Wed Feb 16th, 2005 03:34

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Hey Barney

not at all. I can talk about it all night with you and I am fine.. as long as you are xox

as you know the 40mg x 4 hrly is equal to 20mg x 2hrly,

and I think you have taken 20mg x 3 hrly for some of that... that you thought to take it frequently is great.. that is 200mg for the day.

Taking the mino the next day instead, may have also given you a little more time to get thru the rise in 1,25D..

If you think of it as the light causing the rise in 1,25D

and the herx causing a rise in 1,25D (same) (which is an add on to the light)

and that Benicar 40mg x 4hrly x time can lower the 1,25D to relieve herx and light symptoms.

keep asking if need be, Barb ....



____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP

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