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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Thu Sep 15th, 2005 16:57 |
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Daughter is better than she was and has gone home. Grandson here for a few days and computer sharing..
Friday September 16th 6am PHASE 2 / level .5 / cycle 6 / Day 1 / mino QOD > 50mg today / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID.
Yesterday I managed the day with the more frequent dosing of Benicar and mino 25mg Q12H.. generally physically yuk. slept better last night.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Fri Sep 16th, 2005 20:53 |
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Saturday September 17th 9.40am PHASE 2 / level .5 / cycle 6 / Day 2 / mino QOD > 50mg / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID.
I have been very tired and feeling puffy.
Slept really well. very nice.
I think the stabilising symptoms from reducing the thyroxine may be less today.
clearing throat continuous. otherwise stable.
feet and ankles and generally very puffy again lately.
.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Sat Sep 17th, 2005 15:03 |
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Sunday September 18th 4am PHASE 2 / level .5 / cycle 6 / Day 3 / mino QOD > increase today to 75mg / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID.
tired and feeling puffy.
Awake & mild gut herx 3am so got up for a while till settled.
clearing throat continuous. otherwise stable.
I find out about the herx more when I walk (only in the house)
scalp herx some.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Sun Sep 18th, 2005 19:59 |
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Monday September 19th 9am PHASE 2 / level .5 / cycle 6 / Day 4 / mino QOD > increase to 75mg yesterday / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID.
I had been enjoying my Phase 2 experience:
This last month has been more difficult due to Family stress and the buildup of symptoms which I see as showing healing, and therefore the need to reduce Thyroxine and then the ensuing hormonal adjustment symptoms...
This aspect was only really difficult for a few days, and is settling now.
I am at half the Thyroxine and will have a blood test this week..
I am coming thru this now and am experiencing a feeling of change to a more flat/even place at this point.
Generally, moment to moment, I seem to be holding well emotionally. ie until I talk to someone on the phone.
sleeping is generally better.
clearing throat.
scalp herx some.
I think / feel that I may be able to increase the abx more now.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Mon Sep 19th, 2005 17:23 |
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Tuesday September 20th 6.25am PHASE 2 / level .5 / cycle 6 / Day 5 / mino QOD > increase to 100mg today / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID.
Still having less herxing. increased mino to 100mg.
ability no obvious change.
emotionally stable with less medicinal support.
slept well for 4H.
clearing throat.
scalp & skin herxing.
some itching under armpits.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Tue Sep 20th, 2005 21:38 |
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Wednesday September 21st 10.35am PHASE 2 / level .5 / cycle 6 / Day 6 / mino QOD > increase to 100mg yesterday / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID.
Still having less herxing. mino to 100mg.
I have been doing some slow movements of limbs, but it can cause extra chest pressure so only a minute or so at a time.
emotionally flat. could be tired.
slept well for 5H.
all much the same.
Dr this afternoon for Thyroxine level.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Wed Sep 21st, 2005 16:35 |
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Thursday September 22nd 5.35am PHASE 2 / level .5 / cycle 6 / Day 7 / mino QOD > 100mg today / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID.
Took mino 25mg and extra Benicar to be bright and bushy tailed to present to Dr.. was out and home within the hour. I felt a bit sick from the effort and the heat, but I was right again after being home & settled.
The meds brightened me up no end, and I was able to see how much I had been herxing when I thought I wasnt herxing much this last few days.
Continuing slow movements of limbs for 1 minute only at a time is what I can comfortably manage. I can do it while sitting.
I am happy that I am able to do this now.
slept well for 5H.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Wed Sep 21st, 2005 21:20 |
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Purpose:
A Friend said to me " What you are doing (ie MP) takes guts."
I hadnt thought of that..
While doing MP I do know that the symptoms are much easier to bear because of having a Purpose in mind..
Rather than putting up with discomfort for no purpose ie going further into disease.....
For me it is very easy to put up with some managed discomfort in this moment when there is the determined choice and Purpose in this moment, of taking me forward to Healing and Health with MP.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Thu Sep 22nd, 2005 22:35 |
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Friday September 23rd 11.35am PHASE 2 / level .5 / cycle 6 / Day 8 / mino QOD > 100mg yesterday / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID.
I feel to be making some progress.. I cant do any slow moving this morning... I had been managing 1 minute at a time.. is as much as I could manage without pushing myself.. and it is not worth pushing at this point yet..
I am happy to see that my body will do something as I can... when I have been so unwell that I have been unable, I started to think that I may not have any incentive / drive, but once again it has been proven to me that when I can I will.. and to keep trusting the process..
I have been healing in other areas of My Self as well.. I can feel some Inner Strength return.. a sort of expansion in my brain.. and or psyche..
I have a realisation of naturally observing more boundaries.. there is more of a limit to how much of myself that I can give away... ie a lessening of the manic ... able to observe this and say that is good / positive.
so there is / has been a lot going on.. a lot of good by the look of it..
As I get better I realise how sick I still am and how sick / unable I have been.. To look at me and to hear me, no-one could know what it has been like.. I am just beginning to have an appreciation of how strong I have been, of the depth of .... I have been in..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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TickTock
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Posted: Fri Sep 23rd, 2005 00:15 |
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I have a realisation of naturally observing more boundaries.. there is more of a limit to how much of myself that I can give away... ie a lessening of the manic ... able to observe this and say that is good / positive.
i'm so happy for you. it seems you're really healing! I'd love to know more about this quote, because i feel like it applies to me somehow, but i don't quite understand it.
Please take your time getting back to me!
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Dx: Lyme Disease,Bartonella 25yrs/ 9/26 25D=9 1.25D=79 4/05 25D=8 1,25D=44/ 10mg Lexapro,.5 Xanax / 9/04 start MP/ 5/21 Benicar40mgQ6H Q
8/7/05 Phase 2 10/24 Benicar 20mgQ6H
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jrfoutin
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Posted: Fri Sep 23rd, 2005 00:41 |
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| And this while giving so much strength to others! I see a heroine.
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Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2
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Aussie Barb
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Posted: Fri Sep 23rd, 2005 02:04 |
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Thank you TT and JRF... I think we are All Heroes..
This healing for me has been in being able to feel the boundaries more, and to be able to heed that, and to see the change in priorities as positive..
I think that coming down on the Thyroxine now may be letting me feel the improvements..
Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Fri Sep 23rd, 2005 08:10 |
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Friday September 23rd 9pm PHASE 2 / level .5 / cycle 6 / Day 8 / mino QOD > 100mg yesterday / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID.
This has felt to be the longest cycle yet.. dragging all the way thru to today/ day 8.
The herxing has changed. with not as much gut herxing and now a full body sluggish herx.
which I had thought was not really herx, till I medicated up with my Benicar, Quercetin, and mino 25mg + lipstick) to go to the Doc, and felt so much brighter in comparison.
skin still oily.
I was too tired today to do any slow movements .when I am able I will do some more.
doing the slow movements caused me detox effects..(extra fatigue, mucus, headache (usually no headaches any more), slowed body function, burn, itch)
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Sat Sep 24th, 2005 04:10 |
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Saturday September 24th 5pm PHASE 2 / level .5 / cycle 6 / Day 9 / mino QOD > 100mg today / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID.
So Very tired. unable to do movements. resting.
@ 39H / 8pm intolerably tired miserable. had taken Beni & Q. took mino 25mg.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Sat Sep 24th, 2005 17:54 |
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Sunday September 25th 7am / cycle 7 of PHASE 2 / level 1 / cycle 1 / Day 1 / mino QOD > 25mg today / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID.
Slept soundly between Beni
Woke some better this am,
although not at level of being able to do my movements again yet.
Antbite cramps start under arm / confirms for me it is time for abx.
Began new cycle with an increase.
...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Sun Sep 25th, 2005 03:47 |
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Posting a Note here for anyone wondering what is happening re tired etc..
I have decreased my Thyroxine to half and my experience has changed. The herx has gone from the more particular herx to an all over general body herx.
With the decrease, I expected to experience hormonal changes, and the Dr has told me it could be approx 6 weeks to adjust.. it is just part of the healing process.. all is well.. Thank you.. Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Mon Sep 26th, 2005 05:06 |
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Monday September 26th 6pm /cycle 7 of PHASE 2 / level 1 / cycle 1 / Day 2 / mino QOD > 25mg yesterday / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID.
slow physically but managable.
unable to do slow movements of limbs/ have to put that idea away till later I think.
Gut Herx is tolerable.. waxes and wanes.
can feel the body herx effect more when I get up from chair to walk.
emotionally staying fairly stable with far less NPS than previously...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Mon Sep 26th, 2005 18:07 |
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Tuesday September 27th 7am cycle 7 of PHASE 2 / level 1 / cycle 1 / Day 3 / mino QOD > 25mg today / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID.
I am tempted to increase the mino as there are times (when I am sitting down), when I feel like I am not herxing enough.. and then when the gut herx comes, I think, " no increase needed, that is quite enough".....
I think I am coming out of the fatigue again. is not as bad.
I have a Dentist appointment tomorrow afternoon, and I have rung ahead and asked if, due to Light sensitivity, I may be taken to a room away from the Natural Light coming in the from windows and doors.. cordial reply ... "certainly, I will make a note. just remind us when you arrive.."
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Mon Sep 26th, 2005 19:20 |
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around the 12 month mark: Noting improvement in emotional stability.
Have just decreased Thyroxine by half and Natural Progesterone by half, and no IM methyl cobalamin B12 anymore. (all of which had enabled me to come off max dose antidepressants PRE MP)
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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patrickburke
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Posted: Mon Sep 26th, 2005 20:19 |
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Well done Barb,
You are a real "battler". You are starting to win now. 
Pat.
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Sarcoidosis/lungs; Ph1 May05; Ph2 Jun05; Ph3 Dec05; No ABX 2/08; No D tests; still covered since 6/04; Noirs ended 6/07; Minimal light avoidance.
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