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Aussie Barb
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Posted: Tue Sep 27th, 2005 09:43 |
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Thank You Patrick....
Tuesday September 27th 6.45pm cycle 7 of PHASE 2 / level 1 / cycle 1 / Day 3 / mino QOD > 25mg today / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID.
This is enough mino for this level.
gut herx and fatigue tougher today.
taking Q & Beni ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Frans
Member in Phase 2
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Posted: Tue Sep 27th, 2005 10:33 |
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Aussie Barb wrote: Have just decreased Thyroxine by half and Natural Progesterone by half, and no IM methyl cobalamin B12 anymore. (all of which had enabled me to come off max dose antidepressants PRE MP)
Wow Barb !
This really looks like a great step toward health !! Your body is starting to funtion again !!
Way to go !!
xoxoxox sincerely, Frans
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Burn-out/nervous breakdown Jan01 125D 48 25D8.48 Ph1Nov06 ModPh2Jan07 Ph2Apr08 Cipramil Seroquel NoIRs lite exp r/t work cover up 25D3.9(Oct07)
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shegeek
Member in Phase 3
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Posted: Wed Sep 28th, 2005 05:58 |
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Hi Barb,
What you said a few days ago about increasing boundaries... I have noticed this happening with me too, and it's amazing to me that it is so natural, as you said. I tried so many mental tricks and emotional exercises, and nothing helped, but now after some progress on the protocol it seems to happen all by itself.
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FMS,IBS,osteoarthritis,osteopenia, hypertension/ 1,25D/25D=45/44 (10/04), 44/13 (1/05), 36/8 (7/05)
25D<4 (6/06) 25-D=5 (4-08). Avoid light & D w/NoIRs 11/04 Benicar 40mg/q4h(since 1/27/05) Phase 3
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shegeek
Member in Phase 3
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Posted: Wed Sep 28th, 2005 06:00 |
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BTW, congrats on getting to lower your meds! That must be a victorious feeling. Way to go!
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FMS,IBS,osteoarthritis,osteopenia, hypertension/ 1,25D/25D=45/44 (10/04), 44/13 (1/05), 36/8 (7/05)
25D<4 (6/06) 25-D=5 (4-08). Avoid light & D w/NoIRs 11/04 Benicar 40mg/q4h(since 1/27/05) Phase 3
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Wed Sep 28th, 2005 21:36 |
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Thank you to Frans, Shegeek, and All for messages ....
Thursday September 29th 6.45am cycle 7 of PHASE 2 / level 1 / cycle 1 / Day 5 / mino QOD > 25mg today / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID.
I went to the Dentist yesterday. Took meds (Benicar, Q, mino 25mg) prior to protect and brighten me.. not far enough ahead though in hindsight I think.. I did well as far as avoiding the light went.. and no after symptoms. but I was very weak and the outing was disastrous in that way. I was out and back in around the hour.
Thank you All for Congratulations on the thyroxine decrease and the emotional stability.
However, physically it is very difficult, which of course affects me mentally, so I am having difficulty in acknowledging or celebrating anything while feeling so unwell.
I have no problem with keeping on going.. I live in the now. and all is bearable with meds. I am doing what I need to do. and I am happy to do so.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Wed Sep 28th, 2005 23:09 |
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PRE MP, Denial has been a great survival tool to keep me striving and to keep me going..
The further I progress into the MP the more I can really see how ill I have been.. and am.. I can see that it is incomprehensible how much I do have to deal with.
I have worked closely with people.. - and with cattle and goats and other animals and birds in farm management situations. and cleaning barns etc.. and all that entails. a lot of exposure to illness and toxic situations.
I have had trauma and operations, and blood transfusions in emergency situations, the one time with 4 local townspeople called in to give the blood for my immediate use..
I need to acknowledge that I have truly been in harm's way in my Life in many many ways..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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patrickburke
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| Joined: | Mon Jul 12th, 2004 |
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Posted: Wed Sep 28th, 2005 23:28 |
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Barb,
I am sure that the strength of character that carried you through life when you were ill (but denied it) will be more than enough to carry you through the healing process.
Pat.
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Sarcoidosis/lungs; Ph1 May05; Ph2 Jun05; Ph3 Dec05; No ABX 2/08; No D tests; covered since 6/04; Noirs off 6/07; Min light avoidance| Pat's Story|
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Fri Sep 30th, 2005 03:32 |
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Thanks Pat and All ...
Friday September 30th 12.30pm cycle 7 of PHASE 2 / level 1 / cycle 1 / Day 6 / mino QOD > 50mg @ 30H today / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID.
decided to increase NPS again to lift fatigue. seems some better.
dropped the other half of the Thyroxine. back to nil now..
clearing throat, not much herx, slight antbite cramps,
skin herxing oily continues. much fatigue
so took increased mino dose at 30H...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Sat Oct 1st, 2005 08:10 |
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Saturday October 1st 5.10pm cycle 7 of PHASE 2 / level 1 / cycle 1 / Day 7 / mino QOD > 50mg yesterday / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID.
No particular herx, general full body fatigue and sludge. pulsing felt throughout body at times.
Resting a lot today, but rest or sleep doesnt relieve.
Having dropped the Thyroxine now, I will just have to get thru this till I get thru it..
I have a Sense of Purpose for doing MP, for putting one foot after the other,
although I have no comprehension of what a better Life may be like. have not been feeling so great but I am strong in my resolve and where it matters.
I know that there was / is no purpose in doing nothing, or in doing anything else, as I have tried it all...
I don't like feeling physically awful, but I am content to do what I have to do for MySelf and for my Family's future, given their apparent Th1.
I have been able to give my Parents and Family some hope with these postings Energy level of MP Graduates
Thank you to Meg, Belinda, Guss, Dr Marshall, Sherry.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Sat Oct 1st, 2005 21:43 |
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Sunday October 2nd 6.45am cycle 7 of PHASE 2 / level 1 / cycle 1 / Day 8 / mino QOD > 50mg / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID.
I have been taking Benicar 20mg Q2H and 40mg Q4H night and that has helped some. I expect there will still be some adjustment time from coming off the Thyroxine completely.. or I may be better altogether for not having it...
10am Add: doing well today. nice upchange. antbite cramps at 46H took mino 50mg.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Sun Oct 2nd, 2005 23:00 |
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Monday October 3rd 8 am cycle 7 of PHASE 2 / level 1 / cycle 1 / Day 9 / mino QOD > 50mg yesterday / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID.
I am hoping to be on the up now that I am off the Thyroxine.
Yesterday was my best day for a while.
I could put the washing in the machine etc. I was slow but at least I could do it. I could feel it by night time too.. and this morning..
Have kept the Benicar going Q4H as I am wheezy coughing if I dont.
and I slept well last night between doses. although dreaming.
Mostly cant feel any particular herx.
Herx is General full body slow me down stuff.. and skin. gut sometimes.
.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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CLefelt
Member in Phase 3
| Joined: | Sun Oct 24th, 2004 |
| Location: | New Jersey, USA |
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Posted: Mon Oct 3rd, 2005 15:58 |
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Dear Barb,
I'm glad to hear some good news and hope you notice that relief return. 
Carol
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Lyme Bartonella CFS FM Chly Pneu; Klonopin Florinef Lexapro TriEst Prog 10/04: 25D=9 1,25D=70 4/05 4/06: 25D=6.2 1,25D=20.9 8/06:25D=<7 1,25=13; Mino 11/36/04 2Abx 3/19/05 3Abx 4/27/06
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Aussie Barb
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Posted: Mon Oct 3rd, 2005 20:25 |
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A Letter from Aussie Barb :
This letter is for my own future reference so that I may be able to really recall how very sick I do feel at this time.. and this letter is for those who are also struggling around the 12 month mark...
I have been on MP for 12 months. I was sick enough Pre MP, but I could sometimes drive my car, go to the Beach, go to a shopping mall, visit Family some.
It is no wonder other people have no comprehension of how sick we are... it is difficult to believe myself, and I am the one living this..
I am worse now physically, symptomatically, because of herx, than when I began MP. Yes it is difficult, and yes, it is difficult to see and or believe that there is a brighter day in sight.. I think of it as a Mid MP Crisis.... to have come so far and yet seemingly, with no end in sight, have so far to go..
I have not been feeling so great but I am strong in my resolve and where it matters. and I can do what I need to to survive (breathe and do the Board is about it ) and I am well taken care of by my husband. He works, manually outdoors ... and shops and cooks and cares for me.. he has to help me dress sometimes.
My body is swollen and heavy and sick.
I read eagerly all about Meg's and Belinda's recoveries.. I see that it was 18 months before Belinda could sustain any energy..
I have no actual comprehension of what the words Health and Future may even mean for me..
As the MP has gone on, I have been gradually coming out of the Denial that I have used as my survival tool... seeing more and more the Truth of how ill I truly am and have been..
and I despair for how long this is going to take for me.. and then I pull myself back to the now, and tell myself that it is doing what I was told it would do... that I would feel worse while the bacteria were being killed.. that this herxing is progress happening.
I tell myself that I will do what it takes.. I will do this until... For me, there is nothing else to do..
I am worth every effort it takes for me to get to a Life that I havent had yet.. a Life I do not want to be cheated of completely.. I have to fight for that unknown Life.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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DaveW
Member
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Posted: Mon Oct 3rd, 2005 21:52 |
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Good Post (((Barb)))!
I can so relate to your words, feelings and experience (and ongoing commitment in spite of little or no apparent or obvious progress to date).
Thank-you for your honesty, and thank-you so much for the daily unselfish help and support that you provide to me, and so many others.
I hope and pray that you will be rewarded with the experience of "health" that you have never fully understood, as you deserve it!
With Warm Regards,
- DaveWLast edited on Tue Oct 4th, 2005 03:11 by DaveW
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MP Aug14/04,Pre-MP D=19.6,1,25D=37 ratio 1.89 P2>12/27/04.Back to P1 fall/05.Back to P2 05/06. 21 yrs neuro-lyme not dx til 11/05. OlmesTR 40 mg/7hrs. Major: Weakness,IBS-C,pain,bad sleep,anxiety,depression,cognitive focus,memory,CMV,epilepsy & osteo
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Aussie Barb
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Posted: Tue Oct 4th, 2005 06:52 |
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Thank you Carol and Dave and All...
Tuesday October 4th 4pm cycle 7 of PHASE 2 / level 1 / cycle 1 / Day 10 / mino QOD > 25mg @ 34H yesterday 9pm / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID.
Became emotionally fragile and herx intolerable last night so took mino 25mg.
Have been continuing Benicar 20 mg at Q2H, went to Q3H and became nauseous and coughing and fragile etcc..
I am ok as long as on the mino 25mg and the Benicar Q2H at the moment.
I slept well last night between doses. although dreaming.
Same herx story: mostly cant feel any particular herx.
Herx is General full body slow me down stuff.. and skin. gut gets heavy herx sometimes.
.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Tue Oct 4th, 2005 18:01 |
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Wednesday October 5th 3am cycle 7 of PHASE 2 / level 1 / cycle 1 / Day 11 / mino QOD > 25mg @ 30H 3am / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID.
woke with hard gut herx. took Beni. had to get up. feels like I'd been punched.
Had to take 25mg mino.. going thru to back.. Right sided. lasted longest time.
things I forget to say: herxy body odor rising again last few days. feet ankles etc are always swollen. hands legs go numb. I am ok.. my determination never wavers.
10am ADD: had a rest.
have taken Benicar, Q, MT, Pbx
gut herx continues hard.
mino 25mg again @ 7H
going with the flow for now..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Wed Oct 5th, 2005 06:35 |
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Wednesday October 5th 3.35pm cycle 7 of PHASE 2 / level 1 / cycle 1 / Day 11 / mino QOD > 25mg @ 30H 3am & 10am & 50mg 3pm / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID.
Continued strong gut herx all day. Beni Q2H and Q etc and mino 25mg not having much effect.
took mino 50mg 3pm.
ADD: Strong gut herx beginning to come to tolerable 8pm.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Wed Oct 5th, 2005 19:57 |
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Thursday October 6th 5 am cycle 7 of PHASE 2 / level 1 / cycle 1 / Day 12 / mino QOD > 50mg Q12H 3pm & 4am just now / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID.
Took extra MT and PBX before bed.
Slept reasonably. silly dreams.
Woke for Benicar. gut herx beginning again (@ 13H) 4am so slammed it with a mino 50mg straight up to be sure to settle it. almost instant relief.
Factors influencing this increase in herx may have been the change in Thyroxine dosing.. I had expected there may be fluctuations requiring extra Benicar.
At the first half decrease, and then again after the 2nd half decrease / complete cease, the herx seemingly stopped, and then I went thru a bout of continuous herxing.. needing extra Benicar and more frequent mino 25mg, - this time taking mino 50mg to stop it.. looks to be stabilising with the mino 50mg.
.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Thu Oct 6th, 2005 05:09 |
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Thursday October 6th 2.10pm cycle 8 of PHASE 2 / level .5 / cycle 7 / Day 1 / mino QOD > 50mg 3pm yest.. & 4am & 10am / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID.
Herx building too much again 10am (6H).. frequent mino 50mg is not enough to slow it.
Time to begin a new cycle to see if it will slow this down.
Dropped back a level again and took 50mg mino.. settling.
tired but a little better.
.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Thu Oct 6th, 2005 21:51 |
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Friday October 7th 6.50am cycle 8 of PHASE 2 / level .5 / cycle 7 / Day 2 / mino QOD > 50mg 10am yest / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID.
some dry discomfort / coughing in throat.
Gut herx has settled. Benicar back to 20mg Q3H now..
slept well after MN.
tired debilitated all the time.
some back discomfort
when sitting.. thighs buttocks feel like they are drawing.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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