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Paulafay
Member in Phase 3
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Posted: Thu Jun 1st, 2006 15:55 |
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I've recieved the Phase II questionaire and I have a couple questions on the eyewear - both sets of my big bulky totally plastic uncomfortable Noir glasses have broke - I've worn them with tape all over them and feel I'm worthy of a better fit/style not to mention comfortable pair of glasses at this point (smile) - Meg had asked the question on the questionaire which type of glasses am I using - NOIRS/BOLLE/OAKLEY/ZIESS - I'm wanting to know exactly which Oakely's and which Bolle's are recommended for the MP - I'm ready to order or go over to the Oakley store TODAY - I'm in desperate need of new glasses but want to make sure I get the one's Meg might've been refering to...
I'm currently just wearing regular sunglasses outside and have noticed more neurological herxing ...
Thanks
Paula
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Sarcoidosis/lung biop thyroidectomy CA 125D74Feb05 25D30Mar05 25D12Oct06 25D9Feb07 Ph1Oct05 Ph2Feb07 Ph3Nov07 levothyrox Valium Tylenol PM Aleve Bolle100 limited outings covered
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19444 |
| Status: |
Offline
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Posted: Thu Jun 1st, 2006 18:45 |
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Paula
see PROTECTING YOUR EYES
These are the specifications to ask for.
dark amber for outdoors
100% UV Protection.
100% Blue Light Protection (the amber is the blue block)
100% Infrared Protection
2% visible light for outdoors
medium amber for indoors
100% UV Protection.
100% Blue Light Protection (the amber is the blue block)
100% Infrared Protection
10% visible light for indoors
see also Topic: New style of NoIRS!
Customized Prescription NoIRs
all best, Barb ....
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19444 |
| Status: |
Offline
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Posted: Wed Jun 14th, 2006 02:45 |
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Paula
You now have access to the Phase 2 forum..
The ‘Phases Two and Three Forum’ (located in the PROGRESS REPORTS section) is designated only for members in Phases Two and Three. There are Information Posts at the top of the forum and a wealth of support.
We recommend starting a new progress report thread there and discuss the meds, dosing etc with Staff before you start.
and please let us know if you have ANY questions. all best, Barb ....
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Leesa
Member in Phase 3
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Posted: Tue Jun 20th, 2006 20:38 |
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Paula, are you still posting here or have you gone to the phase 2 forum? I was wanting to keep up on your progress...let me know!
Leesa
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Sarcoidosis(12-04 biopsy):Uvitus-eyes, Swollen- Parotid Glands, Granulomas-arms, some joint pain & fatigue; Started MP 1-06;Phase 2 03-06 Phase 3 07/06 NO MORE Eye Drops! D test 11-04:1,25D-70 & 25D-46;(9-06)25D-17 (1-07)& 16(2-2008)
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Paulafay
Member in Phase 3
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Posted: Tue Jun 20th, 2006 21:11 |
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I will continue to post here until I begin phase 2 the first week of July after we return from vacation.
Take care and God bless,
Paula
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Sarcoidosis/lung biop thyroidectomy CA 125D74Feb05 25D30Mar05 25D12Oct06 25D9Feb07 Ph1Oct05 Ph2Feb07 Ph3Nov07 levothyrox Valium Tylenol PM Aleve Bolle100 limited outings covered
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Paulafay
Member in Phase 3
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Posted: Thu Sep 11th, 2008 18:31 |
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Hi to all -
MP MEDS: Benicar - 40mg. upon waking and at bedtime - 20mg. every 2-3 hours (as needed) the rest of the day
Phase 3
NON MP-MEDS: 100mcg levothroid (I've always forgotten to mention this one - due to cancer of my thyroid gland when I was 14 I had it removed and have been on thyroid supplement ever since - please note that the dosage has not changed at all throughout my MP treatment process) -
benedryl capsules for sleep, tylenol, alleve and 2mg. valium - all occasionally for pain...
SYMPTOMS: Low BP (low 60's over low 40's - sometimes it will even get to high 50's over high 30's). Muscle aches and pains, fatigue, etc...
Light/ Vitamin D Avoidance - mostly covered at all times when out of house - thank God the weather is starting to cool off a bit I don't ingest any vitamin D knowingly - but truly I would love to eat a scrambled egg with the YOLK... and some shrimp...(smile)....
Just checking in - I had a Dr. appointment yesterday with my Kaiser Pulmonary Dr. He doesn't treat me with the MP but has followed my progress and is very interested and supportive. I had chest x-rays and he said that he would interpret them as NORMAL and he also stated that he has many sarcoid patients and has never seen anyone (not being treated with prednisone) improve like this - noting my xrays from 2006 to the one I had yesterday - !!!!!!!!!! He was very impressed. We discussed that my SOB and occasional wheezing is most likely due to sarc bronchial inflammation at this point. He said my taking the benedryl frequently for sleep is fine...as I told him that it is rare for me to be able to sleep without it.
My right shoulder still persists - very painful but to be honest I've been slacking on my exersises for it and I think it was feeling better when I was doing them regularly - so I will get back to that.
It has been a big couple weeks and I'm treating myself to some additional "down time" as my body and mind need it - my husband was in and out of the emergency room all last week and finally had surgery Friday evening for a kidney stone, daughter with a painful boil in her ear canal and my son not feeling well and dealing with migraines, and my older son moving out... it has just been CRAZY.... but things seem to be settling down now with the school year getting underway, etc....
Thanks for "listening" - hope all is well....
God bless,
Paula
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Sarcoidosis/lung biop thyroidectomy CA 125D74Feb05 25D30Mar05 25D12Oct06 25D9Feb07 Ph1Oct05 Ph2Feb07 Ph3Nov07 levothyrox Valium Tylenol PM Aleve Bolle100 limited outings covered
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