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Chris
Member Advocate
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Posted: Sun Sep 7th, 2008 02:55 |
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Lee,
I don't know if it's the storied phase 5 I've hit. But I do know that my response to sun has changed. Instead of a general feeling of misery, it's quite specific. It starts with a sharp back ache, alleviated by heat & fluids, and then builds to an uncomfortable fever, up to 102, with a nasty ice-pick in the eye migraine. The interesting thing is that it scales back overnight, almost like the daily herx cycle that mino gave back in phase 1. Pre-MP, the misery after too much light was weeks long.
I suppose it could be that the 1,25-D is working as it should, turning on the immune system, killing a lot, and creating lots of cytokines, which flood the kidneys and cause backaches. But, that kind of science is above my paygrade. I'll just stay in the dark, until such time as I no longer need to. 
One interesting note about coffee, is that as I get better I just drink less and less of it. It really appears to be a self-medication thing for me. I guess Starbucks is another on the list of things to short if the MP takes off.
-- Chris
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sarcoid diagnosed 1991, probably started 1983
D25/1,25: Mar04 17/80, Sep04 12/50, Nov04 8/23, Jan05 9/39 May05 6/27; in phase3; fevers, muscle pain, tinnitus, depression, mental-fog, IBS, carpal-tunnel, fatigue, osteopenia
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expate
Member in Phase 2
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Posted: Sun Sep 7th, 2008 03:36 |
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I hope you don't mind me butting in here, but this week I've been thinking about giving up coffee. The uncomfortable jitters that I used to get after drinking too much coffee are coming upon me after just 3/4 cup. But then this morning, it was OK again and I was able to drink a large mug, no effect.
 dette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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Lee
Member in Phase 3
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Posted: Mon Sep 8th, 2008 19:54 |
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Hi! I think it may depend on your IP level at the time? Not sure ....I just know I am in a very tough combo right now and cannot tolerate my beloved coffee or teas. I do decaff only so it is not the caffine. I have found a tiny piece of apple with a little sea salt helps me through a strong IP .... Lee
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2003 SARC w/COPD Hyper-Flex Fibro.
D ratio-2.13 Ph1-2/05 Benicar| 4/05 PH2| 06 Ph3| 2008 D25-9.7 silymarin/sunlight w/noirs
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Chris
Member Advocate
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Posted: Mon Sep 8th, 2008 21:07 |
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Coffee drinking does seem to be dependent on the bugs, and the current abx/herx. At one point, I was able to completely stop coffee without any withdrawal pangs. The need for it just stopped. Then, a change in abx, and a longer herx cycle meant I needed it in the morning to get moving. Now, after a couple of months, I'm finding a half-empty cup at the end of the day - it just stops tasting good after a half-cup and I don't finish it.
My wife has different problems, she has always gotten jittery (or at least for the last 25 years) from the full strength stuff. I don't think that has changed, and it might not. I'm finding that I can no longer tolerate the extreme levels of caffeine that used to be needed to get through the day.
I'm pretty convinced that a lot of 'bad habits' we get nagged about are really self-medication attempts.
-- Chris
____________________
sarcoid diagnosed 1991, probably started 1983
D25/1,25: Mar04 17/80, Sep04 12/50, Nov04 8/23, Jan05 9/39 May05 6/27; in phase3; fevers, muscle pain, tinnitus, depression, mental-fog, IBS, carpal-tunnel, fatigue, osteopenia
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Lee
Member in Phase 3
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Posted: Mon Sep 8th, 2008 21:27 |
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| I agree Chris! But I also will take an apple slice over a lortab anyday .... Lee
____________________
2003 SARC w/COPD Hyper-Flex Fibro.
D ratio-2.13 Ph1-2/05 Benicar| 4/05 PH2| 06 Ph3| 2008 D25-9.7 silymarin/sunlight w/noirs
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expate
Member in Phase 2
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Posted: Mon Sep 8th, 2008 21:30 |
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Chris wrote:
I'm pretty convinced that a lot of 'bad habits' we get nagged about are really self-medication attempts.
-- Chris
*nods in agreement*
 dette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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