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Dody
Member in Phase 2
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Posted: Sun Sep 7th, 2008 20:09 |
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Phase 2 meds
Beni 40 mg Q6 plus some in-betweeners and always Q4-5 during & after more light exposure.
Non-MP meds & measures: Lithium 600 mg QWk. Valium 3x for back spasms. Cold pack twice for back pain Tylenol. Neoprene support for right ankle. Acid reducer twice for reflux.
Symptoms (all tolerable)  :
Cardio: Silent.
Fatigue: Average 6
Muscle/Fibro Pain: Last winter’s sprained ankle 3-4, back pain and spasms 2-3 (lot of challenging activity). Leg & Foot cramps 5 once, 1 otherwise. Cramps base of both thumbs 3 throughout.
Sleep Disturbances: Frequent from mid-cycle on.
Neuro: Dreams less memorable. Mood good & stable. “Pins” 3 twice.in mid-cycle. Restless legs 3 throughout. Jerky legs when extra tired. Much more trouble making change for customers at the fair than a year ago (but raised more money ).
Joint pain: Back 2-4 related to activity. Thumbs, knuckle & fingers 3. Hips, knees, ankles avg 2.
Overall Achiness: 3 in evenings related mostly to activity during day.
Eczema: Continues 3-4, mostly on fingers
GI symptoms: “Jelly belly” twice. Reflux two days related to a lot of bending over.
Gritty Eyes 3, Skin 2.
Respiratory: Minor shortness of breath.
Photosensitivity: 2, continues to decrease.
Light Exposure: 3-8 depending on weather and activities. Enjoying the outdoors in the shade.
Exercise/Activity: High. Resting as needed, but needing much less than a few months ago.
Sleep: Average 9 hours.
Stress: 0-4, tolerating it well.
Adherence to MP Nutritional Guidelines: Good.
Comments:
Annual vacation.  First days very strenuous volunteering at 3-day fund-raising fair for agricultural youth. Another strenuous day helping a friend move. About to embark on 4 days in the north woods hoping to watch moose, will hike a little. Last year did this as a med vacation. This year not interrupting the meds. Tolerating light well so this possible with caution. 
Thanks and best wishes to all, Dody
see also: Dody: Lyme: quality of the life. camping activities.
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Lyme arrhythmia Lithium Valium Tylenol Calcium NoIRs zinc oxide mod low lux home mod lite exp cover up Mod Ph2Jul07 Ph2Apr08 D25 12 Feb08 18 Sept08
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Dody
Member in Phase 2
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Posted: Thu Sep 25th, 2008 02:04 |
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Ph. 2 meds, Beni 40 mg Q6 plus some in-betweeners and always Q4-5 during & after more light exposure.
Non-MP meds & measures: Lithium 600 mg QWk. Have upped Calcium to min. 600 mg QD after breaking second tooth in as many months. Valium once in 2 weeks for back spasms. Tylenol. Neoprene support for right ankle. Acid reducer twice for reflux.
Symptoms:
Cardio: Silent.
Fatigue: 3-4
Muscle/Fibro Pain: Last winter’s sprained ankle 3, back pain and spasms 1-2, 4 after afternoon of moutaint-climbing. Leg & foot cramps 1 except 4-5 few days mid-cycle after ramping Mino to 75. Cramps base of both thumbs 3 throughout.
Sleep Disturbances: Mild except 4-5 this mid-cycle.
Neuro: Mood good & stable. “Pins” 2, in head and foot, early this cycle. Tremor, tinnitus, mental fog unchanged. Jerky legs when extra tired.
Joint pain: Back 1-3 related to activity. Thumbs, hips, knees, ankles avg 3.
Overall Achiness, Stiffness: 3 evenings & on waking, 2 rest of time.
Eczema: Continues 3-4, still spreading slowly.
GI symptoms: “Jelly belly” or “jelly gut” three times, occasional reflux, anal pain max. 2 this mid-cycle. Loose stool following tiny taste of shredded lettuce, going to continue cooked-only regime awhile longer.
Gritty Eyes & skin 2-3.
Respiratory: Some shortness of breath climbing. Other respiratory symptoms cleared up while up north, reappeared on return to southern New England.
Photosensitivity: 1, has decreased still further.
Light Exposure: 3-8 depending on weather and activities. Have removed light-proof darkening from some north windows. Wearing NoIRs less (can’t see through them where previously could). Enjoying the outdoors in the shade.
Exercise/Activity: High. Walked every day to watch moose. Climbed a mountain summit one day. Continue craving more exercise every day than had on virtually any day in previous 18 months. Resumed singing in church choir.
Sleep: Averaged 6 hours while up north (moose are active dusk and dawn). Catching up now, averaging 8-9 hours.
Stress: Low on vacation, moderate on return (failed water heater, have been heating water on stove till new heater comes in, dogs sick, catching up at work).
Adherence to MP Nutritional Guidelines: Good.
Comments: Had a wonderful trip. Back to work. Feeling incredibly much better than a year ago. Profoundly grateful to the MP for giving me back a real life. Almost feel guilty after seeing an old Borellia friend who seems unchanged after another year on home IV antibiotics  --hoping she may dare buck her traditionally Lyme-literate doc and give the MP a try.
Many thanks & best wishes to all, Dody
Nov 08:
My good progress is earning more serious listening from friends with Th1 disease.
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Lyme arrhythmia Lithium Valium Tylenol Calcium NoIRs zinc oxide mod low lux home mod lite exp cover up Mod Ph2Jul07 Ph2Apr08 D25 12 Feb08 18 Sept08
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