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Big John
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Posted: Tue Oct 26th, 2004 06:27 |
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October 25, 2004, Day #33. Day #24 Mino.
Time 0700 BP 160/95. Pulse 73. Back to sleep.
Time 1500 BP 151/89. Pulse 80. Today was supposed to be a Mino day, however I had much to get caught up on so I extended till tomorrow. I shopped today, went to one of those big warehouse club stores. Walked the whole place, just about every isle. I used the shopping cart to support me some, but all in all I was quite please with myself. I have not had the motivation or energy to do that in 6 months.
Time 2300 BP 163/102. Pulse 85. This evening I was quite stiff, however the pain was only when walking, rather than when I was sitting, this is a good sign for me. I feel pretty comfortable that I did not over stress today. Although I was tired when I was finished my energy recovered within a hour or so. Neck stiffness was noticeable, pain and hip were painful when I walked. Will take Mino tomorrow at 37.5.
 Day!
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Reiters Syndrome, Benicar 9/23/04. Mdx: Sotolol, atenolol, spironolactone, amlodipine,alprazolam, lexapro, Benicar q8. Ph2 12/05. Ph3 5/06
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Reenie
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Posted: Tue Oct 26th, 2004 19:05 |
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John,
Glad to hear... all good. 
Were you covered up in the store? I notice in our local warehouse store, there are lots of huge skylights, so I only go at night, since I hate to cover up that much or be outside alot, when I don't have to be.
If you notice much change in the way you feel and weren't covered up alot, it may due to increase in light, rather than overdoing it.
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Big John
Guests visiting Phase 1/2/3
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Posted: Wed Oct 27th, 2004 05:27 |
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Hi Reenie!
All the time I was walking around the store I was hearing your voice, LOL! Yes I even wore my 10% NOIRS. People got out of my way when I came through pushing my cart. Even had a guy that let me go before him, guess He was feeling sorry for me or worried that I was some kinda of weirdo.. Hmmm maybe I am.
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Reiters Syndrome, Benicar 9/23/04. Mdx: Sotolol, atenolol, spironolactone, amlodipine,alprazolam, lexapro, Benicar q8. Ph2 12/05. Ph3 5/06
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Big John
Guests visiting Phase 1/2/3
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Posted: Wed Oct 27th, 2004 05:29 |
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October 26, 2004, Day #34. Day #25 Mino.
Time 0700 BP 160/93. Pulse 76. Back to sleep.
Time 1500 BP 160/88. Pulse 91. Took 37.5mg. Mino today. Constant pressure behind eyes started before Mino dosage. Eyes continue to be blurry, drops are back to every hour. Frustrating to say the least. Left eye is ok right is fogged out. Normal waking pain & stiffness.
Time 2300 BP 161/101. Pulse 87. Tonight was quite uneventful, pain behind eyes was less distracting. Still blurry though. Continuing Predforte every hour. Neck stiffness is less pronounced today. Slight fatigue late this evening. Going to try and drop Allipurinol shortly, be one less med I am taking.
Day!
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Reiters Syndrome, Benicar 9/23/04. Mdx: Sotolol, atenolol, spironolactone, amlodipine,alprazolam, lexapro, Benicar q8. Ph2 12/05. Ph3 5/06
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Reenie
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Posted: Wed Oct 27th, 2004 18:47 |
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Big John says, "October 14, 2004, Day #22. Day #13 Mino.
"Time 0730 BP 146/88. Pulse 78. Back to sleep.
"Time 1500 BP 156/92. Pulse 81. Woke in the middle of the night with some shortness of breath, gassy belly and anxiety. Got up for about an hour while I settled down. May have been hex or might have been dinner. Either way when I awoke I was rested and except for the usual morning stiffness was fine. Energy level today was off a bit, pain about normal. Today was an off Mino day."
This is the day after your LAST DOSE of 25mg, John. You were still getting quite a bit of herx, even though you increased to 37.5mg. 
I point this out because the next dose on Oct 15th, of 37.5, caused you to have more eye pain, and add in more eye drops. This was about the same time you had your eyes dilated, but now you're having to add more drops. IMO, I would drop back to the 25mg, so you can LOWER (and hopefully wean off) your use of cortisone drops from your eyes.
As for the Allpurinol, this may have to be more closely monitored to wean by your Dr. I looked it up, and it's used for gout and to lower serum uric acid. I would imagine your Dr would want/need to do some lab work to help you wean from that med.
As long as your still herxing at 25mg, there's no need to ramp up and have to add cortisone, which would affect your immune system, via, your eye drops.
What do ya think?
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Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
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Posted: Wed Oct 27th, 2004 22:30 |
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John,
just letting you know that there is a new, updated version of *How to Start the MP* with much more information.
You may wish to read the updated instructions, and it is a good idea to print and provide a copy for your MP Dr.
from http://www.sarcinfo.com/phase1.pdf ....
There are other new documents as well.
Letting all MPers know to please keep an eye out for all new information posted on the MP site as you keep in touch with us in your Progress Reports, so that we may help you to do MP with the utmost efficacy...
Thank You John, Barb....
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Big John
Guests visiting Phase 1/2/3
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Posted: Thu Oct 28th, 2004 05:11 |
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Hi Reenie!
Thanks for the input! Actually I am going to chalk the incident you quoted up to spicy food and dreaming. I Remember dreaming, just don't remember what  . I have often awoken with cramps and fast breathing, last wek for example I awoke with calf cramps and I was dreaming about pushing the gas pedal to the floor. I was also hyperventillating. Might say I get into my dreams . I am continuing to be cautious with respect to my ramping, fact is I had another 36 hours without any significant hexs (herxs) at 37.5. I appreciate all your help and interest!
John
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Reiters Syndrome, Benicar 9/23/04. Mdx: Sotolol, atenolol, spironolactone, amlodipine,alprazolam, lexapro, Benicar q8. Ph2 12/05. Ph3 5/06
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Big John
Guests visiting Phase 1/2/3
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Posted: Thu Oct 28th, 2004 05:12 |
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Thanks Barb!
I reviewed the material and will copy for my MP Dr.
John
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Reiters Syndrome, Benicar 9/23/04. Mdx: Sotolol, atenolol, spironolactone, amlodipine,alprazolam, lexapro, Benicar q8. Ph2 12/05. Ph3 5/06
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Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
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Posted: Thu Oct 28th, 2004 05:24 |
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John,
My turn to do the Bopping
we are wondering if the reason you are not having signif herxing is because of the increased eyedrops.
which you are taking when & because of the increased eye pressure from the previous herx.
This is what it looks like from here looking in
just from watching the bopping 
But, it is your Body & your Dream  Barb.... xx
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Big John
Guests visiting Phase 1/2/3
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Posted: Thu Oct 28th, 2004 05:41 |
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Hi Barb
Actually, I am increasing the drops so that I can see! Pain is secondary. I have decreased the drops today and am what many would consider "visually challenged". I can barely see the keyboard. This was a problem prior to MP as was the pressure behind the eyes. probably pressure is caused by the damn Predforte every hour also. seems as I decrease eye drops pressure feeling decreases too. Just hope that as I ramp up I can taper the drops and still see. With respect to hexing (herxing) being decreased or controlled by the drops it is possible, however moving to every 2 hours today has not caused any hex. I am going to move to 50mg. tomorrow and see what happens I am going to try to stay with every 2 hours for eye drops as long as I can navigate.
Thanks for caring!
John
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Reiters Syndrome, Benicar 9/23/04. Mdx: Sotolol, atenolol, spironolactone, amlodipine,alprazolam, lexapro, Benicar q8. Ph2 12/05. Ph3 5/06
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Big John
Guests visiting Phase 1/2/3
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Posted: Thu Oct 28th, 2004 05:43 |
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October 27, 2004, Day #35. Day #26 Mino.
Time 0700 BP 163/86. Pulse 82. Back to sleep.
Time 1500 BP 161/101. Pulse 87. Awoke rested today, Right eye was quite blurry. Fortunately left was good enough to navigate. I will go to every 2 hours on drops today. Neck and shoulder stiffness are tolerable. Energy level was good, baked 2 hours.
Time 2300 BP 166/104. Pulse 87. Decreasing eye drops to evry 2 hours has caused a increase in blurring. However I am still able to navigate inside and see the puter keyboard. Energy level was good today, Neck and shoulder stiffness increase this evening due to baking, and 4 hours on the puter. Eye pressure was noticeable this evening, but tolerable. Will be moving to 50mg. Mino tomorrow, time to bust more bugs..
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Reiters Syndrome, Benicar 9/23/04. Mdx: Sotolol, atenolol, spironolactone, amlodipine,alprazolam, lexapro, Benicar q8. Ph2 12/05. Ph3 5/06
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Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
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Posted: Thu Oct 28th, 2004 06:03 |
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| Thanks John for reply and we want the best for you xxx Barb
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Big John
Guests visiting Phase 1/2/3
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Posted: Fri Oct 29th, 2004 05:33 |
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October 28, 2004, Day #36. Day #27 Mino.
Time 0700 BP 166/104. Pulse 87. Back to sleep.
Time 1500 BP 148/94. Pulse 93. Busy morning, had several errands to run, covered up well. Took 50mg. Mino at noon, Kinda nice not having to play with capsules. Within an hour I was whipped, probably some from exertion and some from hex. Both knees swelled up pretty good today, eyes continue about the same with dosing every 2 hours. Hip pain has increased and the brain fog is rolling in. Chest discomfort has increased, took probiotic and fiber drink.
Time 2300 BP 152/88. Pulse 87. Fell asleep in the chair today, woke feeling rested, energy level was up a bit. Knees still swelled and hip pain continues, brain fog has subsided a bit and eye pressure is gone, blurriness continues. Nasal drainage has started again and neck stiffness continues. Chest discomfort has gone. My chest discomfort seems to be caused by gas build up.
Day!
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Reiters Syndrome, Benicar 9/23/04. Mdx: Sotolol, atenolol, spironolactone, amlodipine,alprazolam, lexapro, Benicar q8. Ph2 12/05. Ph3 5/06
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Big John
Guests visiting Phase 1/2/3
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Posted: Sun Oct 31st, 2004 04:41 |
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October 29, 2004, Day #37. Day #28 Mino.
Effective today I am going to discontinue BP & Pulse readings, By now they have been established pretty well. Today was an off Mino day. My swelling in the knees has subsided a bit, Hip and knee pain is pretty high about 7 on a scale of 10. Eyes are blurry, but not no worse. Drops every 2 hours. Throat felt like I had a lump in it, not sore just uncomfortable. Brain fog is clearing as is fatigue. Sinus continue to drain, sinus pain has abated. Slept well.
Day!
Last edited on Sun Oct 31st, 2004 04:50 by Big John
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Reiters Syndrome, Benicar 9/23/04. Mdx: Sotolol, atenolol, spironolactone, amlodipine,alprazolam, lexapro, Benicar q8. Ph2 12/05. Ph3 5/06
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Big John
Guests visiting Phase 1/2/3
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Posted: Sun Oct 31st, 2004 04:49 |
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October 30, 2004, Day #38. Day #29 Mino.
Took 50mg. Mino at noon, within 1 hour fatigue increased, sinus drainage increased. Noticed increase in eye drainage as well. Eyes are still blurry, drops every 2 hours. Neck stiffness is very noticeable today. Knee and hip pain has increased over the evening. Fell asleep for 2 hours today while watching TV. Fatigue is quite high, although tolerable, as long as I don’t do much. Noticed some dizziness and loss of balance today. Swelling in cartilage in sternum and tips of ribs on left side. Also some tenderness on right Achilles tendon where it connects to bone.
day!
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Reiters Syndrome, Benicar 9/23/04. Mdx: Sotolol, atenolol, spironolactone, amlodipine,alprazolam, lexapro, Benicar q8. Ph2 12/05. Ph3 5/06
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Big John
Guests visiting Phase 1/2/3
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Posted: Mon Nov 1st, 2004 04:01 |
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October 31, 2004, Day #39. Day #30 Mino.
Today was an off Mino day. Breathing discomfort on several occasions lasted for less than an hour. Pain on both knees today, haven’t had pain in my left knee in over a year. Also increased hip pain, something is definitely going on. Pain in sternum and neck continue, as does the pain in the Achilles tendon on the right foot. Had some pain in my left kidney area where I originally had a stone 3 years ago. Interesting how this protocol finds all the old trauma. Things that I had forgotten about until they start kicking up again. Every case where I have of a pain, or discomfort is an area that has had trauma of one kind or another sometime in my life. All discomfort is tolerable, just a lot of them. I will consider holding off on Mino tomorrow, depending on how I feel in the AM.
Day!
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Reiters Syndrome, Benicar 9/23/04. Mdx: Sotolol, atenolol, spironolactone, amlodipine,alprazolam, lexapro, Benicar q8. Ph2 12/05. Ph3 5/06
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Big John
Guests visiting Phase 1/2/3
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Posted: Tue Nov 2nd, 2004 04:21 |
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November 1, 2004, Day #40. Day #31 Mino.
Oh what a wonderful morning, woke up without hex, enjoyed several hours of all around comfort, must be time to take my Mino! Took 50mg. At noon and within 2 hours I was having hex. Tight chest, sore ribs, pain in the kidney area, fatigue set in this evening about 9:00 pm. Knee and hip pain was moderate, eyes continue to be blurry with drops every 2 hours. Neck stiffness increased and shoulders are tight. Nice Day!
Day!
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Reiters Syndrome, Benicar 9/23/04. Mdx: Sotolol, atenolol, spironolactone, amlodipine,alprazolam, lexapro, Benicar q8. Ph2 12/05. Ph3 5/06
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Big John
Guests visiting Phase 1/2/3
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Posted: Wed Nov 3rd, 2004 06:05 |
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November 2, 2004, Day #41. Day #32 Mino.
Today was an off Mino day. Pretty much an uneventful day. Morning pain was evident, slight fatigue all day, eyes are still blurry. Neck stiffness increased as evening progressed . Ability to focus was good and little brain fog. Was able to get some things done around the house.
Day!
____________________
Reiters Syndrome, Benicar 9/23/04. Mdx: Sotolol, atenolol, spironolactone, amlodipine,alprazolam, lexapro, Benicar q8. Ph2 12/05. Ph3 5/06
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Big John
Guests visiting Phase 1/2/3
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Posted: Thu Nov 4th, 2004 06:13 |
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November 3, 2004, Day #42. Day #33 Mino.
Took 50mg. Mino at noon and within 2 hours I felt like I had been drinking for a week. I had the worse hangover I have ever experienced. I don’t even remember the party... Just sat around and tried to stay still until the headache passes. Finally about 6:00 PM the headache stopped, however I still had stiffness throughout my whole body. I did notice relief starting about 3:00 PM after I took the Benicar. By 1100 PM I am back to my old self, some stiffness in neck & shoulders, but nothing compared to earlier. Hips and knees are still swollen. Fatigue increased today also. Gassy tummy this evening, took some more probiotic.
I Promised I when I was able I would discontinue my Predforte eye drops and see if the cortisoid was influencing my hexs (herxs). I have been off of drops for about 24 hours prior to taking Mino today and can definitely verify a much more pronounced Hex today. My opinion so far points to the fact that the drops did influence my hex to a certain extent, it didn’t keep the hex from happening it just caused it to be less intense. I will attempt to stay off the drops for a while longer to see what 24 hours is like, however Eyes are already blurring.
Day!
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Reiters Syndrome, Benicar 9/23/04. Mdx: Sotolol, atenolol, spironolactone, amlodipine,alprazolam, lexapro, Benicar q8. Ph2 12/05. Ph3 5/06
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Reenie
inactive member
| Joined: | Wed Jul 21st, 2004 |
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Posted: Thu Nov 4th, 2004 19:35 |
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Hi John,
Good job on trying to stop drops. You may need to wean off, maybe not stopping cold turkey.
Also, you may need to lower your mino dose, due to increase in herx, since the drops are prob interfering and when you don't use them, the herx increases.
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