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Natalia
Member in Phase 3
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Posted: Sat Apr 14th, 2007 04:12 |
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I have had CFS for 8 years but for the past 1.5 years the condition worsened to the point that I am unable to work. I recently started the MP. (My Vit D ratio is 2.6). While I have had a problem with allergies while ill (indicating an over sensitive/ active immune system) and have frequently caught viruses, my immune system has taken a clear turn for the worse while on the MP. At the moment I am catching a virus at least once a week. I am fly paper for viruses- get whatever my parents and brother bring home. Sometimes it only knocks me out for a couple of days sometimes a week. These are not herx symptoms (which feel very different and flare independently). These involve sinus infections/ mucus and the like... Each time I am ill, I stop the antibiotics and allow my immune system to recover and then continue only to be knocked over again.
As you can imagine, this stop start treatment is very slow and frustrating. I have not be able to progress past the first stage of Phase 1 (half a minomycin every second day). Especially since, from experience, I have found that my overall condition deteriorates with each prolonged illness (ie. Viruses that last about a week with a sinus infection.)
Blood test results from a recent RAST test show the following gradings of IgE antibody for various allergens:
rye grass 4 wheat 3 soy 3
Dustmite 2 potato 3 gluten 1
0 = not detected 1= low level 2=significant level 3=high level 4=very high level
*note that I underwent a desensitization program last year for rye grass and dust mite which I have abandoned while on the MP.
As you can see my immune system is over active. I think that it is because my immune system is overwhelmed by the dying bacteria and all the allergens and thus is unprepared for any foreign invader. I am trying to calm it down by avoiding aggravating foods (all gluten, potato and soy products) as well as foods prohibited under the MP. I am trying to avoid light in so far as possible. I am not well enough to work so I am housebound. I don’t do anything outrageous: I can only walk 5 min a day and I try to do 10 mins of Qi Gong daily to stimulate my circulation.
My only sin is taking Melatonin 3mg for sleep each night. I know that melatonin is an immune stimulant, but without it I can’t sleep properly which guarantees that I fall ill (my immunity crashes without proper sleep).
So my questions are as follows:
1. Are there any ‘safe’ sleep inducing substitutes that would not stimulate my immune system or interfere with the MP?
2. Is there any additional way of calming down my over activated immune system so its stops crashing while I am on the MP and gets on with the job?
If you could advise me on these matters I would be very grateful as at the moment I feel that I am going in circles and that I will be on this protocol for many years. 
Many thanks
Natalia
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CFS 9.5 years| 4mg melatonin & 10mg Stilnox/night| 1-25D 6/06 51.25pg/ml, 7/07 29.6pg/ml| 25D Jun06 18ng/ml, Jun07 11.2ng/ml, Oct07 <8 ng/ml| Feb08 5ng/ml| Avoid light| NOIRs| 27Feb07 Ben q6h| Mino 12Mar07| Ph2 4Aug07|Ph3 24Sep08
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19444 |
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Posted: Sat Apr 14th, 2007 04:22 |
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Natalia
Welcome to MP.com..
It is helpful to Staff for assessing your situation and replying, and for other Members for reading and understanding .. and for your own reference at any time, if you will please list your MP meds doses and schedules in an index format at the beginning of your message when you post. thank you...
and when you can, please fill your signature line to help Staff and others reading and replying < see this link for details to include. Your details enable us to assist you. Thank You ..
I think I have a viral infection. What should I do?
Will the MP treat MCS?
Is it an allergy or is it an Immune response?
We are happy to assist you in further detail as soon as we can, once we have the details. Thank you, Barb ....
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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jcwat101
Research Professional
| Joined: | Tue Jul 20th, 2004 |
| Location: | Pasadena, USA |
| Posts: | 1066 |
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Posted: Sat Apr 14th, 2007 22:20 |
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I had to deal with a lot of colds for a while and allergies --maybe something on this site would help you in the short term (of course, the MP will eventually take care of both problems) : http://SynergyHN.com
Joyce Waterhouse
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20 yrs with CFS/FM/Lyme/IBS, food sensitivities; 1,25D/25D 8/04:64/11 1/05:22/6 9/05:1,25D=12 10/06:22/8, 4/07:25/<4 chewed Ben. 40mg q8h; Mod. P2: 2/23/05, P2: 4/06; P3: 1/1/07
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Natalia
Member in Phase 3
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Posted: Sun Apr 15th, 2007 10:09 |
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Revised question with signature line.
I have had CFS for 8 years but over the past 1.5 years the condition worsened to the point that I am unable to work. I recently started the MP. While I have had a problem with allergies while ill with CFS (indicating an over sensitive/ active immune system) and have frequently caught viruses, I am contracting viruses more frequently while on the MP and have had to suspend the antibiotics 3 times in a month because of illness. I am fly paper for viruses- get whatever my parents and brother bring home. Sometimes it only knocks me out for a couple of days sometimes a week. These are not herx symptoms (which are different symptoms and oscillate independently: inc fatigue, muscle pain, light sensitivity and sometimes nausea). The viral illness is always starts with rapidly deteriorating energy, heavy limbs moving onto mucous production in the nose and or sinuses which clears in a few days to a week. Each time I am ill, I stop the antibiotics and allow my immune system to recover. Triggers for sickness include overexertion, lack of sleep, temperature extremes and stress. I avoid triggers as much as possible, but a visit to the doctor, bank or medicare is sometimes unavoidable and will make me ill if I get tired.
As you can imagine, this stop-start treatment is very slow and frustrating. I have not be able to progress past the first stage of Phase 1 (half a minomycin every second day) which I started a month ago. (Over the month I have not been on the protocol for 16 days due to illness). This is concerning as my overall condition has always deteriorated with any illness that involves a sinus infection.
Blood test results from a recent RAST test show the following gradings of IgE antibody for various allergens:
rye grass 4 wheat 3 soy 3
Dustmite 2 potato 3 gluten 1
0 = not detected 1= low level 2=significant level 3=high level 4=very high level
*note that I underwent a desensitization program last year for rye grass and dust mite which I have abandoned while on the MP.
When last tested my iron and Haemoglobin levels and thyroid function were normal. As you can see my immune system is over active. I am trying to de-stimulate it by avoiding all gluten, potato and soy products as well as foods prohibited under the MP. I am trying to avoid light in so far as possible (there are lots of skylights in the house). I am not well enough to work so I am housebound. I don’t do anything outrageous: I can only walk 5 min a day and try to do 10 mins of Qi Gong daily to stimulate my circulatory and lymphatic systems.
My only sin is taking Melatonin 3mg for sleep each night. I know that melatonin is an immune stimulant but without it I can’t sleep properly which guarantees that I fall ill (my immunity crashes without proper sleep).
So my questions are as follows:
1. Are there any ‘safe’ sleep inducing substitutes that would not stimulate my immune system or interfere with the MP?
2. Is there any way of calming down my over activated immune system so its stops crashing while I am on the MP?
If you could advise me on these matters I would be very grateful as at the moment I feel that I am going in circles and that I will be on this protocol for many years.
Many thanks
Natalia
Last edited on Sun Apr 15th, 2007 10:20 by Natalia
____________________
CFS 9.5 years| 4mg melatonin & 10mg Stilnox/night| 1-25D 6/06 51.25pg/ml, 7/07 29.6pg/ml| 25D Jun06 18ng/ml, Jun07 11.2ng/ml, Oct07 <8 ng/ml| Feb08 5ng/ml| Avoid light| NOIRs| 27Feb07 Ben q6h| Mino 12Mar07| Ph2 4Aug07|Ph3 24Sep08
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jrfoutin
Research Team
| Joined: | Tue Aug 9th, 2005 |
| Location: | Oregon USA |
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Posted: Sun Apr 15th, 2007 15:36 |
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Natalia,
First, let me ask you a question. If you are taking "half a tab" of minocycline, are you talking about half of 50mg (25mg), or are you talking about half of 100mg (50mg)?
That can make a huge difference, so please list the mg of dose at the top of your post, and the day you are taking it, and specify every other day or otherwise.
Please check all precautions / instructions in the Phase One Doc.. some have it printed to check with regularly.
Also, before I answer your questions it would help you to know that you are using non-MP perceptions to make a judgement call on what is going on with your symptoms. This is pretty common early in the MP becuase we all came from a variety of medical processes that we trusted but weren't getting us well. We picked up perceptions from that experience and they can color what we think is going on with the MP. Immunopathology provokes a response.
1. Some use melatonin on the MP for sleep. You are correct, it can interfere but early in the MP some need interventions to get to the point they can give up non-MP medications. Here are some other ideas:
I have insomnia and fatigue. What should I do?
When and why should I use Valium?
2. Yes, there is a way to calm down the responses.
Tolerable is all that is required.
But knowing just what you mean by "half a tab" of minocycline will help moderators help figure out just what you are doing with MP medications. Please be clear. If you are taking 50mg of minocycline right now, then moving back to 25mg is part of a solution set you and your Dr can discuss.
Also, make sure of adequate rest, relaxation, and hydration etc.. Tools to check: Rest is a very important part of managing and healing.. By being pushed to the limit of the tolerable immune response our body is working to capacity.
Keeping maximum eye/body protection is helpful
Natural light > protect skin and eyes..
Artificial light > protect eyes / not skin..
Benicar Info: If your Dr agrees: to minimise symptoms - you can take extra half tablet (20mg) Benicar any time during cycle, or adjust dosage to 40mg Q4H. see also BenicarQuiklink many Members report chewing or sublingual gives faster absorption/relief..
.................
Please block the skylights:
Dr Marshall wrote: "The short-term consequences of not wearing adequate eye protection will be an increase in neurological symptoms caused by stimulation of the Amygdala in the brain. These neurological symptoms include fatigue, irritability, aggressiveness, lack of concentration, brain fog, photosensitivity, transient loss of memory, mood swings, confusion, anxiety, anger, neurosis and even psychosis." << Adequate eye protection will be particularly important for anyone with eye inflammation.
For those who are very ill, Dr Marshall says it is better to shut out all Natural light and use incandescent lights. see AVOIDING SUNLIGHT and BRIGHT LIGHTS for full information..
To increase your chances of success with the MP, those who are symptomatic should avoid unnecessary exposure to daylight.
Best to you Natalia--Janet
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Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2
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Natalia
Member in Phase 3
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Posted: Mon Apr 16th, 2007 02:16 |
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Dear Janet
Thanks for the advice. I'll nag my recalcitrant father to block the skylights, with the threat of sticking holes in the ceiling myself.
With regards to the dosage of minocycline I am on, I am only taking 25mg every second day as prescribed for the first stage (although at the moment I am not taking anything because I'm recovering from a nasty virus).
I understand that it is easy to interpret symptoms through an old lens but having had viruses very regularly for the past 8 years, the sensation of contracting a virus is all to familiar while herxing (at the moment) feels very foreign and behaves differently to viral infection.
Herxing changes from day to day and sometimes there is no correlation between one day and the next, but it does not tend to vary dramatically within the day. Viruses have a clear trigger (over exertion, being near someone ill, poor nights sleep). The onset is always sudden, the descent from wellness into illness can take only 2 hours. And viruses have a clear and predictable trajectory (or phases) which herxing does not, which play out over days until the body has recovered ie. sudden lethargy, then heavy limbs, then mucous production, then slow clearing of symptoms.
To play it safe, I will try behave in a manner that reduces the risk of herxing (ie. sort out the light issue), but I would also like to know about ways to calm down the immune system so I can be on the protocol continuously. Perhaps I need to go back to being on Benicar only for a while my crappy immune system recalibrates?
Natalia
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CFS 9.5 years| 4mg melatonin & 10mg Stilnox/night| 1-25D 6/06 51.25pg/ml, 7/07 29.6pg/ml| 25D Jun06 18ng/ml, Jun07 11.2ng/ml, Oct07 <8 ng/ml| Feb08 5ng/ml| Avoid light| NOIRs| 27Feb07 Ben q6h| Mino 12Mar07| Ph2 4Aug07|Ph3 24Sep08
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19444 |
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Posted: Mon Apr 16th, 2007 03:23 |
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Thank you Natalia
The aim or the key is for you to achieve and maintain tolerable symptoms (physically, mentally, and emotionally) by adjustment of your meds dosing and schedule as suited individually to you within the guidelines.
Phase One is the training ground for you to get the feel of your immune response - Immunopathology / symptoms and to gain personal experience in managing all aspects of MP. ie eg including your meds, and light exposure and D avoidance.
To minimise symptoms we recommend working in a certain order to eliminate the variables that may be the cause of symptoms.
First Check precautions:
have you had light or heat or stress exposure
ingested D or any interference from other foods, meds or supplements etc.
need rest, relaxation, hydration, food.
Tools to check:<< if having any problems please check if you need to make adjustments in any area, and feel free to ask on the Board. thank you.
We adjust the MP meds: We treat every symptom as immune response first to get the most benefit from your MP meds, and then with additional help if required.
: Benicar: If your Dr agrees: to minimise symptoms - you can take extra half tablet (20mg) Benicar any time during cycle, or adjust dosage to 40mg Q4H. see also BenicarQuiklink many Members report chewing or sublingual gives faster absorption/relief..
: adjust mino dose and schedule as per usual immune system dampener as suited individually to you. mino schedule can be extended or stopped if helpful. to assess symptoms level rising or falling.. for some: A single dose of mino 25mg may be enough to slow response /symptoms.
see FAQ My immune response / symptoms are too strong. What should I do? .. Any time that your symptoms are going past tolerable: please check the precautions and the options one at a time to assess: do not hesitate to use any of the adjustments suitable to you.
Some find:
3 day dosing achieves more tolerable symptoms.
or 3 day dosing may increase immune response.
dont let symptoms go to intolerable, take your dose at a shorter time if necessary to hold your symptoms at tolerable.
If you need further temporary relief of your symptoms after having adjusted your meds and etc as per the FAQ above, you may wish to contact your doctor or pharmacist for advice about palliative medications. Any medications that are not on the list of MEDICATIONS TO AVOID WHILE ON THE MARSHALL PROTOCOL are okay to take to relieve intolerable symptoms.
Extra tips:
We encourage all to read and post as regularly as possible to maximise chances of success..
Having a dosette and reliable alarm system.
Charting may be helpful.
(HERX) Immunopathology .... What is it?
all best, Barb ..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Natalia
Member in Phase 3
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Posted: Wed Apr 18th, 2007 01:06 |
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Dear Barb
Thank you very much for your advice- much appreciated. I have already had the skylights blocked and will be more cautious with the meds and my environment.
Thanks once again,
Natalia
____________________
CFS 9.5 years| 4mg melatonin & 10mg Stilnox/night| 1-25D 6/06 51.25pg/ml, 7/07 29.6pg/ml| 25D Jun06 18ng/ml, Jun07 11.2ng/ml, Oct07 <8 ng/ml| Feb08 5ng/ml| Avoid light| NOIRs| 27Feb07 Ben q6h| Mino 12Mar07| Ph2 4Aug07|Ph3 24Sep08
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Natalia
Member in Phase 3
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Posted: Fri Apr 27th, 2007 10:07 |
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Dear Moderator
I have two dietary questions that have been bugging me:
1. I know there is Vit D in animal fat and thus only low fat dairy is allowed in moderate quantities. But how safe are fat free dairy products? I have found a yoghourt that is zero fat, no added sugar or preservatives or Vit D or A (the only ingredients are skim milk, non-fat milk solids and live cultures). Is it safe to eat say 1 cup of this yoghourt day or are their inherent risks in consuming such quantities of dairy while on the MP?
2. Do raspberries contain chlorogenic acid? I have found conflicting information on the web (and I would really like to eat them!) 
Thanks
Natalia
____________________
CFS 9.5 years| 4mg melatonin & 10mg Stilnox/night| 1-25D 6/06 51.25pg/ml, 7/07 29.6pg/ml| 25D Jun06 18ng/ml, Jun07 11.2ng/ml, Oct07 <8 ng/ml| Feb08 5ng/ml| Avoid light| NOIRs| 27Feb07 Ben q6h| Mino 12Mar07| Ph2 4Aug07|Ph3 24Sep08
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19444 |
| Status: |
Online
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Posted: Tue May 1st, 2007 17:39 |
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Natalia
see FOOD TIPS has Links to All Food Topics
MP Food Choices Simplified
Dairy Products
A review of chlorogenic acid and genistein
Dr Marshall's comments.
Thanks, Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Natalia
Member in Phase 3
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Posted: Wed May 16th, 2007 04:15 |
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(Dosing schedule: 50mg mino/day (25mg noon, 25mg at night). Benicar 40mg every 6 hours).
Dear Moderator,
After avoiding light I have been proceeding through the MP rather well with regular herxs lasting about 24 hours which include fatigue, weakness, nausea, stuffy head, muscle and joint pain. On Sunday night I was laying down watching Eurovision, went to get up and found I could not. There was a strong pain in my lower back (lumbar, especially coccyx) which radiated out to the buttocks so I could not put much pressure on my legs (especially the right one). Hell it hurt to even sit. (I had no other typical herx symptoms). The next day it went from being a strong pain to rock'n'roll pain.
I thought this might be a symptom flare after accidentally ingesting some Vit D on Saturday night (last time I eat indian), but three days later I still can't walk or sit. It even hurts when I'm laying down and inteferes with sleep. I tried taking extra Benicar but it doesn't make an appreciable difference. My dad and brother take turns in carrying me on their back to the loo (dignified- I know). I had lower back pain last year but nothing which landed me in bed. I'm assuming that this pain is all caused by inflammation around the spine resulting from bacterial die back inside the spine. Is that correct? And do you have any ideas on:
- how long this sort of herx usually lasts and how common it is
- Is it OK to take pain killers? If so:
a) which pain killers are MP compatible
b) if I take pain killers, am I allowed to sit and walk around the house or would this aggravate the inflammation?
Painfully yours
Natalia
Last edited on Wed May 16th, 2007 07:33 by Natalia
____________________
CFS 9.5 years| 4mg melatonin & 10mg Stilnox/night| 1-25D 6/06 51.25pg/ml, 7/07 29.6pg/ml| 25D Jun06 18ng/ml, Jun07 11.2ng/ml, Oct07 <8 ng/ml| Feb08 5ng/ml| Avoid light| NOIRs| 27Feb07 Ben q6h| Mino 12Mar07| Ph2 4Aug07|Ph3 24Sep08
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19444 |
| Status: |
Online
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Posted: Wed May 16th, 2007 05:20 |
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Natalia
Your post has been merged into your progress report.. The aim or the key is for you to achieve and maintain tolerable symptoms (physically, mentally, and emotionally) by adjustment of your meds dosing and schedule as suited individually to you within the guidelines.
It is helpful to Staff for assessing your situation and replying, and for other Members for reading and understanding .. and for your own reference at any time, if you will please list your MP meds doses and schedules in an index format at the beginning of your message each time you post. thank you...
To minimise symptoms we recommend working in a certain order to eliminate the variables that may be the cause of increased symptoms.
First Check precautions:
: have you had light or heat or stress exposure
: ingested D or any interference from other foods, meds or supplements etc.
MP Food Choices Simplified
: need rest, relaxation, hydration, food.
: Then we adjust the MP meds: We treat every symptom as immune response first to get the most benefit from your MP meds, and then with additional help if required.
: Benicar: If your Dr agrees: to minimise symptoms - you can take extra half tablet (20mg) Benicar any time during cycle, or adjust dosage to 40mg Q4H. see also BenicarQuiklink many Members report chewing or sublingual gives faster absorption/relief..
My immunopathology symptoms are too strong. What should I do? ..
Any time that your symptoms are going past tolerable: please check these precautions and the options one at a time to assess: do not hesitate to use any of the adjustments suitable to you. Tools to check: << if having problems please check if you need to make adjustments in any area, and feel free to ask on the Board. thank you.
Phase One is the training ground for getting the feel of your immune response, your symptoms - and for gaining personal experience in managing all aspects of MP. ie eg including adjusting your MP meds, avoiding light and D and etc..
see Back Pain link in the PAIN CONTROL thread: If Doc has determined your pain medication is safe for you to take, it is not contraindicated on the MP.. We do not recommend the routine use of aspirin.
Why are my symptoms more intense after exposure to Light & / or Vitamin D?
noting in sig line: Started Mino:12 Mar. Now on 50mg/day. Do please let us know how you are proceeding with the MP re dosing etc so we may further assist you. Thank you, all best, Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Natalia
Member in Phase 3
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Posted: Mon Jul 9th, 2007 09:03 |
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Dear Research Team
I am having very broken sleep despite taking on 4mg Melatonin per night. ( I wake up after 5 hours and have difficulting getting back to sleep. It usually takes me at least 2.5 hours which is very frustrating and gobbles up my day). I would like to take something additional to help me sleep. I read on this site that Vallium is a relaxant and doesn't interfer with the MP but no doctor will prescribe it to me as it is considered too heavy (and I think they are worried I will get addicted).
My Chinese Doctor makes a great mix of crushed sea shells which (taken in conjunction with the Melatonin) knocks me out (the calcium in it seems to be the magic ingredient) but I am afraid that it may have Vit D in it.
My GP recommended taking Bark Flower, which is supposed to help with sleep. But I don't know if it interfers with the Olmesartan.
Any ideas? Do seashells have Vit D in them? Is Bark Flower safe? If not, what are some other options? (Preferably natural ones).
Natalia
Last edited on Mon Jul 9th, 2007 09:05 by Natalia
____________________
CFS 9.5 years| 4mg melatonin & 10mg Stilnox/night| 1-25D 6/06 51.25pg/ml, 7/07 29.6pg/ml| 25D Jun06 18ng/ml, Jun07 11.2ng/ml, Oct07 <8 ng/ml| Feb08 5ng/ml| Avoid light| NOIRs| 27Feb07 Ben q6h| Mino 12Mar07| Ph2 4Aug07|Ph3 24Sep08
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Meg Mangin R.N.
Research Team (on leave)
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Posted: Mon Jul 9th, 2007 15:28 |
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| I see that you are unable to work. Is there some reason you must get unbroken sleep at night and cannot sleep during the day? This would be the most "natural" thing to do.
____________________
Nothing contained in this site is or should be considered, or used as a substitute for, medical advice, diagnosis or treatment by your physician.
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Natalia
Member in Phase 3
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Posted: Tue Jul 10th, 2007 02:36 |
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I usually manage to get back to sleep around 8 or 9 am (after waking up at 4.30) and sleep untill midday or so. But I am trying to do background reading for my doctoral thesis (and hopefully start it part time when I am stronger!). Waking up around noon all the time means that I lose half the day before it has begun which is very irritating. Thus I am not doing much reading which is frustrating.
The broken sleep is also not very refreshing. When I do manage to sleep continuously I feel very refreshed on waking and have better energy levels throughout the day. It would be nice for this to be a more regular occurance. Thus any advice of a chemical nature would be welcome.
NataliaLast edited on Tue Jul 10th, 2007 02:38 by Natalia
____________________
CFS 9.5 years| 4mg melatonin & 10mg Stilnox/night| 1-25D 6/06 51.25pg/ml, 7/07 29.6pg/ml| 25D Jun06 18ng/ml, Jun07 11.2ng/ml, Oct07 <8 ng/ml| Feb08 5ng/ml| Avoid light| NOIRs| 27Feb07 Ben q6h| Mino 12Mar07| Ph2 4Aug07|Ph3 24Sep08
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19444 |
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Online
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Posted: Tue Jul 10th, 2007 02:39 |
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Natalia
I have insomnia and fatigue. What should I do? has links within.
all best, Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Natalia
Member in Phase 3
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Posted: Tue Jul 31st, 2007 23:10 |
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Dear Barbara
I have been on 100mg of minomycin for 4 weeks now, and I think I am ready to moved on to Phase 2. Could you please email me the questionaire for Phase 2?
Thanks
Natalia
____________________
CFS 9.5 years| 4mg melatonin & 10mg Stilnox/night| 1-25D 6/06 51.25pg/ml, 7/07 29.6pg/ml| 25D Jun06 18ng/ml, Jun07 11.2ng/ml, Oct07 <8 ng/ml| Feb08 5ng/ml| Avoid light| NOIRs| 27Feb07 Ben q6h| Mino 12Mar07| Ph2 4Aug07|Ph3 24Sep08
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19444 |
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Online
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Posted: Tue Jul 31st, 2007 23:29 |
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Thank you Natalia
It is recommended that you retest your 25D to check if it is near or below the therapeutic level of 12ng/ml. There is no need to retest the more expensive 1,25-D.. How often should I test D levels? What are the target numbers?
The Importance of Reducing 25-D. I cannot see a date for your Dtests: 25D: 18ng/ml, 1-25D: 51.25pg/ml in your signature line. Your details enable us to assist you. Thank You ..
see this FAQ Where can I find phase two and three? for information re sending an email for the Questionnaire to fill and return asap so that you have plenty of time to read and discuss the Information re which meds and doses with Staff in phase 2/3 forum before going to your Dr.
all best, Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Natalia
Member in Phase 3
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Posted: Wed Aug 1st, 2007 01:14 |
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Sorry,
I forgot to amend my signature line. I had my Vit D 25 measured on 24 May 07 and it was already below the 12ng/ml threshold at 11.2ng/ml so its probably even lower now. My doctor only measured my Vit D lately (07/07) and that is now 29.6pg/ml.
I imagine it would make more sense to measure them both at the same time at the next test so I can calculate the ratio.
Cheers
Natalia
____________________
CFS 9.5 years| 4mg melatonin & 10mg Stilnox/night| 1-25D 6/06 51.25pg/ml, 7/07 29.6pg/ml| 25D Jun06 18ng/ml, Jun07 11.2ng/ml, Oct07 <8 ng/ml| Feb08 5ng/ml| Avoid light| NOIRs| 27Feb07 Ben q6h| Mino 12Mar07| Ph2 4Aug07|Ph3 24Sep08
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19444 |
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Online
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Posted: Wed Aug 1st, 2007 02:40 |
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Thank you Natalia
The D ratio was only meaningful before the MP is started. There is no need to retest the more expensive 1,25-D.. How often should I test D levels? What are the target numbers?
Thanks, Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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