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Meg Mangin R.N.
Research Team (on leave)
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Posted: Thu Sep 11th, 2008 09:04 |
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Hello to everyone from the crew at Porto. The opening ceremonies last evening were very impressive and we are geared up to present our poster and presentations today. The conference is well organized and attended by 1500 so we should have many opportunities to engage scientists and clinicians.
More later.......
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Nothing contained in this site is or should be considered, or used as a substitute for, medical advice, diagnosis or treatment by your physician.
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Jeannine R.N.
Board Staff
| Joined: | Sun Aug 28th, 2005 |
| Location: | Louisiana USA |
| Posts: | 901 |
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Offline
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Posted: Thu Sep 11th, 2008 10:15 |
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Can't wait to see and hear all that went on at the confrenece! We are all here rooting and cheering you all. Knock their socks of with the poster presentations!!! I am praying you get to network and collaborate with like minded individuals which will allow the Mp science to be embraced by mainstream medicine.
Jeannine
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CFS FM Lyme Morgellon's 125D49 Ph1Aug06 25D <4(april 08)Prozac Valium Aleve ModPh2May07 Ph2Apr08 NoIRs limited outings covered lo lux home
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Aunt Diana
Member Advocate
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Posted: Thu Sep 11th, 2008 11:23 |
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| Great!! Dittos, Jeannine. How exciting it must be....have fun!
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Lyme 1987, neuro cardio fatigue achiness brain fog depression, anxiety. Pacemaker, D.1,25 32; D <5; 12/07 <6, Oxycodone, lorazapam, benedryl, zantac, colase, Noirs, cover-up or avoid sun, house <30lux. Feb 08 Phase 3. 6/08 D <4, D1,25 21
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Meg Mangin R.N.
Research Team (on leave)
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Posted: Fri Sep 12th, 2008 09:45 |
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Our oral presentations went very well yesterday and there was a lot of interest in my poster. The sessions by other speakers continue today and we hope to have many opportunities for networking during the breaks.
Hope all is well with everyone......
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Nothing contained in this site is or should be considered, or used as a substitute for, medical advice, diagnosis or treatment by your physician.
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Scarlett
Member in Phase 3
| Joined: | Mon Mar 3rd, 2008 |
| Location: | Ohio USA |
| Posts: | 48 |
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Offline
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Posted: Fri Sep 12th, 2008 21:12 |
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Meg,
Thanks for more good news from Porto. Continued good luck to all and tons of gratitude to each of you!!!! Know you are missed in your old post, but grateful for your continued push for MP.
Scarlett
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Sarcoidosis, gastric paresis, osteopenia, hypotension, migraines, dry eye,insomnia, transient global amnesia,endometrosis. Initial (2/08) 125D48, 25D58, 4/18/08 25D37, 6/5/08 25D 30, 7/22/08 25D 32, 9/30/08 25D 26 MP-3/3/08, PhaseII-3/28/08 Ambien, NoIRS
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Meg Mangin R.N.
Research Team (on leave)
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Posted: Sat Sep 13th, 2008 14:42 |
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Hello to everyone!
This is Belinda.. posting under Meg's name, to get a quick note off.
It's a beautiful, sunny Saturday afternoon in Portugal and the conference sessions are ongoing. This conference is quite well attended. It's the largest I've ever attended. All the taxi drivers in town know about the conference, which makes it easier to find our way to the meeting hall.
Last night several of us walked a ways to the funicular, which is a sort of cable car transport that takes you up or down the hill. We rode the funicular down the hill to the side of the Duro River. We saw open boats loaded with huge wooden kegs going down the river. That must have been Port Wine!
After strolling along the river, we found the restaurant that our hotel had recommended, the Chez Lapin.
We were quite surprised that no one at the restaurant was interested in seating us. The workers were busy tidying up. We finally asked if we could eat there, and were told that the restaurant didn't open until 7:30 pm. It was 7:00, which would be peak dinnertime in the USA. When we returned to the place at 7:35, it was already getting full. One of the house specials was rabbit, so several of us tried the stewed rabbit. Pork is another favorite in Port, we've found, but all the food has been tasty.
We rode the funicular up the hill and walked back to our hotel. Everybody walks here. There is a plaza across the street from our hotel, and it seems to be full of people hurrying to one place or another during daylight hours.
You will get to see our presentations from Thursday as soon as possible. The whole crew did very well.
Gotta get back to the sessions..
Belinda
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Nothing contained in this site is or should be considered, or used as a substitute for, medical advice, diagnosis or treatment by your physician.
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Aunt Diana
Member Advocate
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Posted: Sun Sep 14th, 2008 06:26 |
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Thank you for the update, Belinda. Sounds like a beautiful place. I think we are all waiting with great anticipation to hear how things have gone.
Go team!!
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Lyme 1987, neuro cardio fatigue achiness brain fog depression, anxiety. Pacemaker, D.1,25 32; D <5; 12/07 <6, Oxycodone, lorazapam, benedryl, zantac, colase, Noirs, cover-up or avoid sun, house <30lux. Feb 08 Phase 3. 6/08 D <4, D1,25 21
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ggauthier
Member
| Joined: | Sat Apr 23rd, 2005 |
| Location: | Albi, France |
| Posts: | 5 |
| Status: |
Offline
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Posted: Mon Sep 15th, 2008 10:47 |
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Bonjour de France,bravo d'avoir été à ce grand congrès, j'espère que votre participation au congrès à été apprécié.
Pourra t-on avoir des traductions de documents d'abstracts pour l'association de France, ceci nous intéressent de pouvoir expliquer aux malades les diverses recherches effectuées pour nos maladies.
Encore merci.
Georges
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ggauthier
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Martin78
Member
| Joined: | Sun Jul 15th, 2007 |
| Location: | Norway |
| Posts: | 142 |
| Status: |
Offline
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Posted: Sun Sep 21st, 2008 19:24 |
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Hello
Will there be posted any news/reports/videos from the team's presentations at the congress in Porto?
Br
Martin
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Sjøgrens - Fatigue "B-sxs" wt loss itch night sweats pain ancle/legs/chest irritation depression hypercalcemia 125D98 Ph1Apr08 Valium 25D56 (April08) ON BREAK UNTIL JAN/FEB 09
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Rico
Member in Phase 3
| Joined: | Wed May 31st, 2006 |
| Location: | |
| Posts: | 248 |
| Status: |
Online
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Posted: Tue Sep 23rd, 2008 00:01 |
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Here are 2 conference videos...
http://vimeo.com/1787405
http://vimeo.com/1788640
Very keen on seeing the other presentations and curious as to how well material was received.
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No diagnosis/some symptoms; wife with Sarc on MP; Olm 40mg q6h| avoid D| 1,25D=63 25D=32 (May 2006) 1,25D=44; 25D=10(Dec 2006)PhaseI(May06) PhaseII(Aug06) PhaseIII(Aug07)
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terrylmcc
Member in Phase 3
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Posted: Tue Sep 23rd, 2008 01:50 |
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Welcome Back Dr. Marshall, Meg, Amy.
I hope you gained some ground at the autoimmune conference.
Is the audio ok on the videos? I have a Mac computer and i don't know if it's a computer problem, or if the echo in the room is causing the audio to cut in and out? I've been anxious to watch the new videos from Porto. If it seems ok on other peoples computer. You can PM me or post here. I hope its just my computer. Thanks --Terry
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Sarcoidosis/lung &cutanious biopsy. uveitis Ph1,Jan07 ModPh2,Apr07 Ph2, Dec07 Ph3,Feb08 NoIRs avoid lite exposure, 25 D 6/08 = 5
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Dr Trevor Marshall
Research Team
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Posted: Tue Sep 23rd, 2008 01:51 |
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It has been a lot of work putting these videos together, as the venue was not ideal, and so I am running a little late. I should finish Cpt. Tom Perez and Dr Greg Blaney's presentations tomorrow..
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Dr Trevor Marshall
Research Team
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Posted: Tue Sep 23rd, 2008 01:53 |
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Terry,
Your Mac may not be keeping up with the HD data rate. There is a Button on the right edge of the video display saying "HD On." Toggle it to "HD Off" and let me know if that helps
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terrylmcc
Member in Phase 3
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Posted: Tue Sep 23rd, 2008 01:53 |
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Thank you so much, The HD was on, and i turned it off, and it is perfect!
I know how hard you have worked to help all of us. My best to you. --TerryLast edited on Tue Sep 23rd, 2008 01:57 by terrylmcc
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Sarcoidosis/lung &cutanious biopsy. uveitis Ph1,Jan07 ModPh2,Apr07 Ph2, Dec07 Ph3,Feb08 NoIRs avoid lite exposure, 25 D 6/08 = 5
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Dr Trevor Marshall
Research Team
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Posted: Tue Sep 23rd, 2008 06:54 |
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I just uploaded Captain Tom Perez's presentation to http://vimeo.com/1789735
It may take an hour or so to be processed by Vimeo.
Thanks to Joyce, Joyful, Janet, and everybody else who helped gather and process to the data which Tom presented at Porto. And especial thanks to Joyce for taking on such an active support role in Porto.
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Cpt. Tom Perez has joined the Board of Directors of the Foundation, and is taking an active part in our planning of ongoing activities. Once I finish these videos I will be putting together an announcement letting everybody know how the Foundation will be moving forward over the next few years, capitalizing on its emerging acceptance by mainstream Medicine
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ggauthier
Member
| Joined: | Sat Apr 23rd, 2005 |
| Location: | Albi, France |
| Posts: | 5 |
| Status: |
Offline
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Posted: Tue Sep 23rd, 2008 07:26 |
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| Thank you, merci pour les liens.
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ggauthier
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Frans
Member in Phase 2
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Posted: Tue Sep 23rd, 2008 13:26 |
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Dr Trevor Marshall wrote: I just uploaded Captain Tom Perez's presentation
Trevor, is this the same cpt Perez we see at your presentation at the FDA?
Frans
PS No need to answer, just heard it in the presentation itself, cool !! Last edited on Tue Sep 23rd, 2008 13:36 by Frans
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Burn-out/nervous breakdown Jan01 125D 48 25D8.48 Ph1Nov06 ModPh2Jan07 Ph2Apr08 Cipramil Seroquel NoIRs lite exp r/t work cover up 25D3.9(Oct07)
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Ron
Member in Phase 2
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Posted: Tue Sep 23rd, 2008 13:43 |
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Dr Trevor Marshall wrote: Cpt. Tom Perez has joined the Board of Directors of the Foundation
That is great news!!!
Can't wait to get home and watch his presentation.
Thank you team for all the hard work!
Ron
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Dad with RA, MP 01/08| 25D 16.8| Apr08 25D-7.1 Sept08 11.6| oxycodon, NoIRs, limited outings covered up
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paulalbert
Board Staff
| Joined: | Fri Jul 16th, 2004 |
| Location: | USA |
| Posts: | 667 |
| Status: |
Offline
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Posted: Tue Sep 23rd, 2008 15:15 |
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Note Amy's report on Bacteriality:
http://bacteriality.com/2008/09/22/coa/
Paul
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Diag CFS 6.03 / sympt since 9.02 / exercise, food intol, sleep prob / 1,25D: 16, 4.06; 1,25D:27, 25D:26 7.04; 1,25D:43, 25D:6 6.05; 1,25D:17, 25D:8 8.05; / MP: 7.04 / Ph. 3 / Bacteriality
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joedegs
Member
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Posted: Tue Sep 23rd, 2008 16:44 |
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Sorry for my ignorance but who is Cpt. Tom Perez and what doex this mean for the future of the MP? Thanks in advance.
Joe
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Res MP, Pulmonary and Cardiac sarc, avoiding sunlight/vitamin D.
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