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Dr Trevor Marshall
Research Team
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Posted: Mon Sep 29th, 2008 23:32 |
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Oprah is showing an interest in chronic Lyme.
We all know that Lyme is just part of the infective picture but that is a hard sell to a Medical community that was brought up on the Postulates of Koch (one pathogen gives one disease).
Dr Oz is showing an interest in the Lyme-oriented documentary "Under Our skin" and has created a page for people who suffer from Lyme to write to him.
IMO it is critical that you keep your writing SHORT. Very SHORT (<100words).
I think you should just say you had Lyme for X years, you tried X treatments, and then you found one that worked, found a Doctor to treat you, and you are now recovering/recovered.
Then just give a link to Cpt Tom Perez's transcript from Porto
http://AutoimmunityResearch.org/transcripts/ICA2008_Transcript_TomPerez.pdf
The more you write, the less likely anybody will read it
The special page Mehmet Oz created for you to leave your letters is at URL:
https://www.oprah.com/plugform.jsp?plugId=255279&referer=http://www.oprah.com/oafhost/moz
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Dr Trevor Marshall
Research Team
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Posted: Mon Sep 29th, 2008 23:56 |
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FYI:
Dr. Mehmet Oz is professor and vice chairman of surgery at Columbia University in New York City, director of the Cardiovascular Institute and founder and director for the Complementary Medicine Program at NewYork-Presbyterian Hospital.
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Dr Trevor Marshall
Research Team
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Posted: Tue Sep 30th, 2008 05:49 |
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Michele wrote to me, concerned that Lyme was not mentioned on the chart which Tom Perez presented at Porto.
The message I think we need to get across to Dr Oz is that 'Chronic Lyme' has proven to be due to the same metagenomic microbiota which cause the other chronic diseases, and it responds to exactly the same 21st Century antibacterial therapy as do the 'autoimmune' diagnoses.
I doubt the Dr Oz is 100% convinced that Chronic Lyme is due solely to Borrelia, and I don't think it will be a problem for the results Tom presented to not mention Lyme. If anybody is contacted by Oprah's staff for more info, we can refer them to Joyce's article in the Townsend Report, for example. But right now I want us to be citing Mainstream Medicine journals ONLY.
ps: Thanks for all your help
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Kacey
Member in Phase 3
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Posted: Tue Sep 30th, 2008 19:30 |
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Dr. Marshall
Just sent my story to Dr. Oz. Was very concise as you suggested. Let's pray that one of us is contacted. Maybe a door is finally opening.
Kacey
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Lyme Meniere's D12553 D2529 Ph1Feb08 Ph2Apr08 Ph3Sep08 ibuprofen NoIRs med lux work/home D2517Apr08 D2512June08 D2509Aug08 D2507Oct08
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mercuryspice
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Posted: Wed Oct 1st, 2008 08:04 |
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hi,
i sent in a brief short story as well to oprah's site. I live right here in the chicagoland area where the show is taped. I hope one of us is called and dr. marshall is called too.
lisa
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Lyme 25d 11, 125D44 25D11 Ph1 Sep06 ModPh2Jan07 Ph2Oct 07 Ph3May08 motrin flexeril wellbutrin prozac ativan NoIRs lite exp r/t to school
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LH1953
Member in Phase 3
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Posted: Wed Oct 1st, 2008 14:46 |
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I too have sent in a short essay. Can you please list Joyce's article for quick reference if needed. Thank You and GOOD LUCK! Lori
Here is my post: I was sick for 10 years with undiagnosed Lyme Disease. Medical conditions due to late diagnosis: Ulcerative Colitis, Interstitial Cystitis, Reflux, Asthma, Hypothyroid and Acute Multiple Chemical Sensitivity, (exacerbates my Asthma). I was treated 4 years with very high doses of oral antibiotics, also two IV treatments 1 month, 1 year apart. This left me with drug induced hepatitis. I had no success . Then, I found the Marshall Protocol. I have been doing this treatment for 3 years, under Doctors care. I am on the road to recovery. http://AutoimmunityResearch.org/transcripts/ICA2008_Transcript_TomPerez.pdf
Last edited on Wed Oct 1st, 2008 21:17 by LH1953
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Lyme, MCS, IC, asthma, reflux, UC, osteopenia, hypothy, EBV, 1,25D48, MP 8/05, alupent inhaler, PBX, diazepam, fioricet, Ph3 7/06, NoIRs, limited outings covered up, low lux home, 25D4, 1,25D24
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firefly11
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Posted: Wed Oct 1st, 2008 15:36 |
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I just posted...let's hope this works!
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CNS Lyme 8yrs/Disk Herniation/P2 began
04.05/P3 began 6.07/Benicar 40mg q8h/Mino 75mg q48h/clindy 150mg q48h/zith 31mg e10days/Avoid D & Lit/P1 11.04-25D=16/1,25D=85/current 25D=13, 1,25D=75
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GeorgeinRollaMO
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Posted: Wed Oct 1st, 2008 17:14 |
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This is my entry...
Subject: Lyme is only the first/acute stage of a pleomorphic bacterial attack.
Thankfully, I was bitten by a tick at the end of March 2000, and was diagnosed with Lyme by a LLMD shortly thereafter. I had three titers on the Wb test, including the noteworthy # 31, and was Positive for Bb at the highest dilution ratio on a Bowen RIBb test. I was treated with his usual, often, heavy dosage antibiotic protocol for about four years, and at the end of that time, showed the same dilution ratio. I was getting nowhere fast. Then, I discovered the MP (pathogenesis or protocol depending upon context used). The MP described my chronic illnesses (symptoms or sets of symptoms) better as soup or stew of pleomorphic bacteria causing a soup or stew of symptoms than the orthodox view of one bacteria causing one disease (as postulated by Dr. Robert Koch, M.D. in circa 1867). And looking back over decades of my llfe, even before the dx of Lyme, the MP answered the "Why?" of certain symptoms that were ascribed to unknown cause, or possibly "an autoimmune condition".
Since doing the MP, I have gotten over a diagnosis of osteopenia by DEXA with an increase in BMD of the left femur of 31%. Gotten over a dx of granulomatous disease by chest xray. Gotten over Wilson's Temperature Syndome of lower body temperature, so now have a normal 98.X body temperature. Gotten over rh. arthritis in my hand. Decreased my hsCRP test score from an average of 0.6 to 0.8 to "less than zero point one (0.1)". And may have nipped an outbreak of cancer, to boot, according to a set of A.M.A.S. test done by Oncolab of Boston, MA. Oh, I also had cataracts that were removed six months before learning of the MP. Those cataracts may have been nature's way of reducing my production of 125D hormone within the eye. The 125D hormone is dysregulated by the pleomorphic bacteria, and usually goes high. Two other close persons have been dx with cataracts, and have the high 125D hormone described by the MP. One of those two persons is now doing the MP, and gotten over a dx of diabetes 2 and many allergies, in the little over one year of doing the MP.
Medical thinking has hobbled itself with Koch's Postulates since 1867, instead of allowing itself free expression of thinking when Louis Pasteur, a chemist, not a medical doctor, showed it was bacteria that caused certain diseases instead of the bad ethers coming out of the swamps. One only needs to think that certain forms (like butterflies and caterpillers, but same DNA) of bacteria may love our bodies more than they do lab conditions. Not only may the MP be a "curative" protocol, but may also be a "preventative" one.
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Borreliosis:7/14/04--125D=57,25D=61. Ben 9/1/04. Mino 10/5/04. 4/13/05--125D=58,25D=43. 8/17/05--125D=52,25D=36. April 06=125D=38,25D=29. 8/29/06--125D=37,25D=29. June 07 25D=23. Oct31'07,25D=19.
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Neesie
Member in Phase 3
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Posted: Thu Oct 2nd, 2008 06:43 |
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| The link doesn't work... but I just got an message about it today.
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Lyme fatigue weakness headaches nerve pain body aches irritability neuro sx 125D81 Lexapro levora Excedrin Ph1Sep07 lite exp r/t school NoIRs Ph2Jan08 25D45
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natalie17
Member Advocate
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Posted: Thu Oct 2nd, 2008 08:05 |
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| It looks like they have taken it down.
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CFS/ME| Inderal Clonazepam OC Protein Powder Calcium| Sept06 1,25D=75 Jan07 25D<4.4| avoid light D, NoIRs, always indoors| Ph2-Feb08 | ABCofMP
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Dr Trevor Marshall
Research Team
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Posted: Thu Oct 2nd, 2008 10:11 |
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Thanks for sending off the stories while we could. Hopefully they got enough to whet their interest...
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jlunn247
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Posted: Thu Oct 2nd, 2008 17:40 |
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It would be great if you got a PBS special done on this highly controversial knowledge.
Last edited on Thu Oct 2nd, 2008 17:43 by jlunn247
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Sarcoidosis/lungs/joint pain TMJnerve pain 125D56 25D16 Ph1Mar07 ModPh2Jun07 Ph2Nov07 ph3Feb08 albuterol NoIRs covered up low lux stayin home.
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Knochen
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Posted: Thu Oct 2nd, 2008 20:11 |
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Well, Dr. Oz has his own web page at http://www.oprah.com/oafhost/moz and there's a link where you can email him.
I don't know if he's been bombarded enough, but if you've got a really good recovery story to share, it might be worth it.
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Reiter's Syndrome 25+ yrs, fatigue, joints, muscles, migraine, brainfog| 25D 6 ng/ml |Benicar May06|Ph1 June06|Ph 2 Sept06|Ph 3 Jan 07|NoIRs K-Cream Zinc Oxide cream - Always covered!
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jlunn247
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Posted: Thu Oct 2nd, 2008 22:07 |
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I have tried but the Oprah site is closed.
I think the many parts of the story about all the mp patients would be intriguing.
I am going to ask a media expert in New York If he could make a documentary about the MP. We could use You Tube for broadcasting.
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Sarcoidosis/lungs/joint pain TMJnerve pain 125D56 25D16 Ph1Mar07 ModPh2Jun07 Ph2Nov07 ph3Feb08 albuterol NoIRs covered up low lux stayin home.
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natalie17
Member Advocate
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Posted: Fri Oct 3rd, 2008 02:11 |
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Well, Dr. Oz has his own web page at http://www.oprah.com/oafhost/moz and there's a link where you can email him
Also looks to have been taken down. Suspect he was bombarded by all sorts of people.
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CFS/ME| Inderal Clonazepam OC Protein Powder Calcium| Sept06 1,25D=75 Jan07 25D<4.4| avoid light D, NoIRs, always indoors| Ph2-Feb08 | ABCofMP
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jlunn247
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Posted: Fri Oct 3rd, 2008 08:18 |
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When I was redirected to the Oprah home page I did a few searches for
Prof. trevor marshall and Trevor Marshall also lyme diease.
I think thats one way to voice an opinion or at least let them know what people are interested in.
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Sarcoidosis/lungs/joint pain TMJnerve pain 125D56 25D16 Ph1Mar07 ModPh2Jun07 Ph2Nov07 ph3Feb08 albuterol NoIRs covered up low lux stayin home.
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davbrkr
Member in Phase 3
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Posted: Sun Oct 5th, 2008 22:42 |
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I tried to post the message below, but could not get access to the suggested link:
I’ve been sick for 50 years, bedridden for 10+. Even when I couldn’t walk into a doctor’s office unaided, 30 consecutive doctors, finding nothing wrong, eventually got around to labels: Fibromyalgia, Rheumatoid Arthritis, Polymyalgia Neurotica, and finally, Lyme Disease.
Two years ago I found a very ill, “Lyme-infected” doctor who was treating 500 patients for “Lyme disease”. After a year on various oral and IV medications, I was written off as terminal. Fortunately, in the interim I had found the MARSHALL PROTOCOL which takes the position that autoimmune diseases are always: (1) complex infections, caused by a many different, intracellular, bacterial species that: (2) disable the immune system through the: (3) disregulation of the steroid - Vitamin-D. Unfortunately, because the Lyme bacterium is often in the bacterial mix, once identified, no one looks any further. My doctor now has exactly one patient on the Marshall Protocol, and I am no longer terminal. He has 500 others, even after years on IV antibiotics, who are never quite able to get off the recover & relapse merry-go-round.
Last edited on Mon Oct 6th, 2008 03:01 by davbrkr
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Lyme, polymyalgia, RA, bedridden w/back pain 10yrs, MP7/07, Ph2 1/08, 25D20 12/07, 25D12.1 8/08, alprazoloam, Soma, Flomax, NoIRs, limited outings covered, low lux home,
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Rico
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Posted: Sun Oct 5th, 2008 23:41 |
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You'd think that considering you are no longer considered terminal, your doctor might just think of putting some of his other 500 patients on the MP, especially if he doesn't see any improvements with them!
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No diagnosis/some symptoms; wife with Sarc on MP; Olm 40mg q6h| avoid D| 1,25D=63 25D=32 (May 2006) 1,25D=44; 25D=10(Dec 2006)PhaseI(May06) PhaseII(Aug06) PhaseIII(Aug07)
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melinda
Member in Phase 3
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Posted: Sun Nov 2nd, 2008 15:20 |
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I was away all month so missed the chance to send in a report. Hope Dr Oz does explore the MP. He is such a great educator and always seems open minded to new ideas.
I could send in the following excerpt if Dr Oz or the show get back in touch.
I am patient 2 on Joyce Waterhouse's paper.
"Patient 2 is a 58-year-old woman who was diagnosed with Lyme disease in 1999. She had been treated with oral doxycycline in 1999 and 2001. She relapsed after beginning extra vitamin D supplements and increasing sun exposure. Many symptoms have greatly improved in the 29 months since she began the MP,including muscle pain, stiffness and weakness, fatigue, headaches, panicattacks, colitis attacks, nausea,bloating, indigestion, and insomnia.She reports that on the MP, her lowback pain has gone from a level 8to a level 1 on a ten-point scale(attributed to bulging discs at L4and L5 on MRI), despite decreasing her use of pain medication."
Sincerely Melinda
PS. I continue to improve and this month my dream of riding a horse again came true! Thanks to Dr Marshall's MP
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Lyme, parathyph86, hepB73, MP 9/04, 125D58, 6/07 D2514, Ph2 02/04, Ph3 3/06, ambien, zanax, NoIRs
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melinda
Member in Phase 3
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Posted: Sun Nov 2nd, 2008 15:20 |
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I was away all month so missed the chance to send in a report. Hope Dr Oz does explore the MP. He is such a great educator and always seems open minded to new ideas.
I could send in the following excerpt if Dr Oz or the show get back in touch.
I am patient 2 on Joyce Waterhouse's paper.
"Patient 2 is a 58-year-old woman who was diagnosed with Lyme disease in 1999. She had been treated with oral doxycycline in 1999 and 2001. She relapsed after beginning extra vitamin D supplements and increasing sun exposure. Many symptoms have greatly improved in the 29 months since she began the MP,including muscle pain, stiffness and weakness, fatigue, headaches, panicattacks, colitis attacks, nausea,bloating, indigestion, and insomnia.She reports that on the MP, her lowback pain has gone from a level 8to a level 1 on a ten-point scale(attributed to bulging discs at L4and L5 on MRI), despite decreasing her use of pain medication."
Sincerely Melinda
PS. I continue to improve and this month my dream of riding a horse again came true! Thanks to Dr Marshall's MP
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Lyme, parathyph86, hepB73, MP 9/04, 125D58, 6/07 D2514, Ph2 02/04, Ph3 3/06, ambien, zanax, NoIRs
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