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wchshi
Health Professional
| Joined: | Sun Dec 21st, 2008 |
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Posted: Mon Dec 22nd, 2008 17:29 |
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Happy to see this and I am really enjoyed your visiting Dr Marshall. hope our collaboration will start very soon.
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Dr Trevor Marshall
Research Team
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Posted: Mon Dec 22nd, 2008 18:15 |
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I did really enjoy my first trip to China. It was amazing to see the changes which have taken place over the last decade.
I look forward to visiting again, as soon as I get the new travel Visa stamped into my passport!
Sincerely
Trevor
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paulalbert
Board Staff
| Joined: | Fri Jul 16th, 2004 |
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Posted: Mon Dec 22nd, 2008 18:59 |
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I have somebody in mind who may want to transcribe the second speech. I'll let you all know if it doesn't work out.
Paul
____________________
Diag CFS 6.03 / sympt since 9.02 / exercise, food intol, sleep prob / 1,25D: 16, 4.06; 1,25D:27, 25D:26 7.04; 1,25D:43, 25D:6 6.05; 1,25D:17, 25D:8 8.05; / MP: 7.04 / Ph. 3 / Bacteriality
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Martin78
Member in Phase 1
| Joined: | Sun Jul 15th, 2007 |
| Location: | Oslo, Norway |
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Posted: Tue Dec 23rd, 2008 06:38 |
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This is really starting to look good. Clearly the audience in China was more entusiastic, open, and not so narrow minded as many "know it all" audiences in the west.
All in all this leaves my very exsited. If I had a million bucks I would donate it all to the foundation!! At least I i will make a small contribution tonight  I just got so motivated from these two presentations!!!
I wonder, when will the financial statements from the foundation be included in the annual report? Transparency will motivate even more donations!
All the best!
BR
Martin
____________________
Sjøgrens Syndrome|Fatigue|wt loss|itch|night sweats|pain|ancle|legs|ches|irritat|depr| hypercalcemia|initial 125D 98|Probe Apr08|Valium| 25D30 Jan15.09|Ph1 Jan15.09|visit my site: http://www.youngsjogrens.com
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Dr Trevor Marshall
Research Team
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Posted: Tue Dec 23rd, 2008 07:20 |
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Martin,
The 2007 IRS Form 990, a disclosure which exempt non-profits make available for public access, has been on our website for sometime now.
You can find it at
http://AutoimmunityResearch.org/990EZ_2007.pdf
..Trevor..
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Martin78
Member in Phase 1
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Posted: Tue Dec 23rd, 2008 13:42 |
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Trevor
This was exactly what I was looking for.
I don't understand how you guys make a living besides, all the hours you spend working for the foundation (!) without compensation! I must also say that your travel expences are pricewardy low compared to the activity this year.
Respect!
Let me know if you need help (i guess its a matter of time and priorities you being a former CEO) in converting these numbers into the the next annual report in a more "professional" way...
This way we will eliminate statementes that members in the norwegian sarcoidosis org. has presented when talking about the protocol at their forum site:" They only do it to make money from you, selling books, dvds etc" .... crazy. Obvioulsy they havent understood a clue about what this is all about.
Luckily another member of the forum, who knows about the foundation and how its all based on volenteery work, and that the "revenues" involved are mostly medicines sold by pharmacists, asked if the poster if she could give one example of how the foundation charged patients for the treatment, besides donations, the poster went quiet and eventually after being explained realities said sorry...
When I get more "less sick" I will work hard to increase the amount of donations, the foundation clearly needs more funding.
Lets all contribute with a x-mas gift today!!
BR
Martin
____________________
Sjøgrens Syndrome|Fatigue|wt loss|itch|night sweats|pain|ancle|legs|ches|irritat|depr| hypercalcemia|initial 125D 98|Probe Apr08|Valium| 25D30 Jan15.09|Ph1 Jan15.09|visit my site: http://www.youngsjogrens.com
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wrotek
Member in Phase 3
| Joined: | Fri Dec 31st, 2004 |
| Location: | Wroclaw, Poland |
| Posts: | 1163 |
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Posted: Tue Dec 23rd, 2008 15:00 |
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Merry Christmas
China is very flowery country.
Pretty presentation. I especially enjoyed the statement that when innate immune system fails, the adaptive immune system tries to "guess" bacteria by forming unspecific antibodies. It sounds like it is trying to learn, evolve.
Can vaccines, that seem to cause diseases, do it not only by being contaminated with nano bacteria, but also by containing DNA that can be incorporated by human microbiota ?
I understand, that PXR activation leads to degradation of one of the enzymes CYP24A1 that degrades 1,25-D ? Thus PXR agonists can increase inflammation ?
I have read that coffee drinking is associated by increase in inflammatory markers, i wonder can it be traced to VDR http://www.ajcn.org/cgi/content/abstract/80/4/862
Last edited on Tue Dec 23rd, 2008 17:51 by wrotek
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Lyme reflux chronic pain fatigue depression 125D36 Ph1Sep05 Ph2Oct06 Ph3Apr07 homebound in low lux NoIRs 25D<7 Oct06
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Dr Trevor Marshall
Research Team
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Posted: Tue Dec 23rd, 2008 17:45 |
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wrotek wrote: Can vaccines, that seem to cause diseases, do it not only by being contaminated with nano bacteria, but also buy containing DNA that can be incorporated by human microbiota ?
I was essentially asked the same question in Guangzhou (the Gene conference) when I was asked if it was possible to alter the microbiota by adding outside organisms. I responded that Homo sapiens has already been doing that. Take another listen to the second question on that video
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wrotek
Member in Phase 3
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Posted: Tue Dec 23rd, 2008 18:21 |
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That is what inspired my question
There is a new technique http://en.wikipedia.org/wiki/DNA_vaccination
called DNA vaccination.
Last edited on Tue Dec 23rd, 2008 18:23 by wrotek
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Lyme reflux chronic pain fatigue depression 125D36 Ph1Sep05 Ph2Oct06 Ph3Apr07 homebound in low lux NoIRs 25D<7 Oct06
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Dr Trevor Marshall
Research Team
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Posted: Tue Dec 23rd, 2008 18:38 |
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That won't work. There are far too many gene mutations, even in simple diseases.
http://www.sanger.ac.uk/Info/Press/2008/080515.shtml
10,00 different mutations in cancer.
Wow - to protect myself from cancer I would need 10,000 of Jimmy's "DNA shots." I think I would choose the MP
The more you understand about human biology, the more you respect the complexity of the human body. That is why Engineers and Physicists, who are trained to deal with imponderable problems, often manage to form an overview which other scientists may not see...
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wrotek
Member in Phase 3
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Posted: Tue Dec 23rd, 2008 20:39 |
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I have noticed Dr Marshall that Your slides become wider and broader, representing even larger point of view, with every presentation 
Last edited on Tue Dec 23rd, 2008 20:40 by wrotek
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Lyme reflux chronic pain fatigue depression 125D36 Ph1Sep05 Ph2Oct06 Ph3Apr07 homebound in low lux NoIRs 25D<7 Oct06
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stuckpac
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Posted: Tue Dec 23rd, 2008 21:14 |
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Dr. Marshall,
Congratulations on your success on the China trip and presentations! I spent this morning watching the videos and several light bulbs went on.... I was diagnosed with uveitis by my ophtho several months ago and the only way he could think to save my sight was high-dose steroids. I still have some retinal scarring but the worst is over. He then went on to try to figure out "why uveitis?" and labs showed a slightly elevated ACE level and he suspects early sarcoidosis. A few granulomas on CXR (no hilar adenopathy), long-standing tinnitis, chronic sinusitis and recently three kidney stones and I'm thinking he's probably correct and this is ALL Th1 inflammatory disease. Googling your site and the MP protocol was a breath of fresh air for me in understanding all of this. So then I wonder, "where did all this come from?" in particular sarcoidosis in a white male aged 60. In your presentation from China you spoke of the role of BCG in promoting sarcoid. Then I remembered, in my early years (1988) as a health care provider, I worked in a tertiary care center Urology department and administered BCG to patients to combat superficial bladder CA. So the light bulb went on... I am now trying to find a physician in the area who will be willing to work with me on the MP. Closest I can find is 2 hours away. I look forward to the day when there is greater acceptance of your findings and work and it is easier to find someone who isn't "scared" to try something new. I believe our medico-legal environment in the U.S. isn't helping you one bit. That is where places like China can be more open to new paradigms and ways of dealing with chronic disease.
Thanks for your hard work on all of this, it is so appreciated!
stuckpac
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neldawhite
Member in Phase 2
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Posted: Tue Dec 23rd, 2008 22:53 |
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Martin,
Thank you so much for reminding all of us how hard Dr. Marshall et al, work on our behalf and how helpful a donation here and there would probably be. You have inspired me to donate today. We may think a $20, or $50 may not help but if we all do it I'm sure it would make a difference.
Merry Christmas to Dr. Marshall, and all of the volunteers who have given hope a whole new meaning!
Greatful Student of the MP
Nelda
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Fibromyalgia |swollen lacrymal glnd with blurred vision Dr. suspects Sjogrens|3 yr chron HFlash |arthritis | Deg Disc Disease | panic disorder| Chr. Sinusitis | Calcium Deposits in Breast | Ph1MP Oct 19 08 | Ph2 Feb 09 09 | 25D 28 on 2/09 |Tylenol | Sudaf
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Martin78
Member in Phase 1
| Joined: | Sun Jul 15th, 2007 |
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Posted: Wed Dec 24th, 2008 00:02 |
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Hi Nelda!
My point exactly. In 2007 the foundation received barely 63' $.
Imagine if all of us managed to contribute 200$ a year, not necessarily all at once, but now and again during the year...., with 1000 patients in the cohort, or at least following the treatment....that will tripple the foundations funds!
We are now 5-6 patients in Norway following the treatment and my ambition is to use my experience from business/sales/fundraising to contribute as much as possible to raise funds so Dr. Marshall can participate in all the congresses and seminars open for the science. I believe that is the best way to spread the word. Presentations, presentations, presentations!
BR
Martin
____________________
Sjøgrens Syndrome|Fatigue|wt loss|itch|night sweats|pain|ancle|legs|ches|irritat|depr| hypercalcemia|initial 125D 98|Probe Apr08|Valium| 25D30 Jan15.09|Ph1 Jan15.09|visit my site: http://www.youngsjogrens.com
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Dr Trevor Marshall
Research Team
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Posted: Wed Dec 24th, 2008 00:18 |
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Martin,
I am really appreciative of everybody who has sent a donation to keep our outreach alive. As you note, every penny is spent carefully.
I am also appreciative of any help from people (like yourself) who are able to organize events, etc, to help with our fundraising efforts.
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Martin78
Member in Phase 1
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Posted: Wed Dec 24th, 2008 00:37 |
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How do you feel about including financial data/fiscal reports to your next annual report?
I can help you with this, I have exprience with multinational companies... maybee it will ease our oppurtunities of attracting funds from institutions, NGOs, institutions or legats...
BR
Martin
____________________
Sjøgrens Syndrome|Fatigue|wt loss|itch|night sweats|pain|ancle|legs|ches|irritat|depr| hypercalcemia|initial 125D 98|Probe Apr08|Valium| 25D30 Jan15.09|Ph1 Jan15.09|visit my site: http://www.youngsjogrens.com
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Dr Trevor Marshall
Research Team
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Posted: Wed Dec 24th, 2008 00:40 |
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Martin,
I cobbled the annual report together (with help from Janet and Chris) when it became apparent that the person who had the responsibility of keeping up contacts with our donors, and eliciting donations for 2008, was not doing that job. So this year's report was a pretty hurried effort Thanks to all who helped
Next year we need to start planning in January, I think, rather than November
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Martin78
Member in Phase 1
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Posted: Wed Dec 24th, 2008 01:06 |
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OK... thats just how it is sometimes running and coordinating an organization with limited time, resources, contributors affected by disease and spread all over the world..... next year it will be better...
In Norway its quite easy to get governmental fundings for organizations like yours... if I start a Norwegian subsidary and if we make a "members list", which can be done online, chances are we can receive funds from the norwegian government.
I will speak with my doctor and ask if she is willing to be on the board of such a subsidary, making it even easier by adding the authority of a MD... I am already discussing it with the other Norwegians patients following the protocol. BUT to receive such a grant/funding we will need to submit a proper annual report including member numbers and fiscal data.
Lets keep this as a medium-term project. I am very commited to making this work as I am starting my Msc in Politics and Economics this autumn and some of the courses there cover the criterias needed to be fullfilled to receive governmental financial support and lobbyiong for NGOs in general.
BR
Martin
I am kind of moving away from the original subject of the thread, so when i getthis project going I iwll start a new one.
Last edited on Wed Dec 24th, 2008 01:08 by Martin78
____________________
Sjøgrens Syndrome|Fatigue|wt loss|itch|night sweats|pain|ancle|legs|ches|irritat|depr| hypercalcemia|initial 125D 98|Probe Apr08|Valium| 25D30 Jan15.09|Ph1 Jan15.09|visit my site: http://www.youngsjogrens.com
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paulalbert
Board Staff
| Joined: | Fri Jul 16th, 2004 |
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Posted: Wed Dec 24th, 2008 14:42 |
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Let me just throw this on top of the ol' to do list.
I came across a recent article in the Wall Street Journal on charities.
One of the 800-pound gorillas when it comes to charity assessment is called Charity Navigator.
Given that people locate and evaluate charities using tools like this - in fact, this is the primary such tool - it may be worth seeing if ARF can get a listing.
***
Also, the KB status update:
&chdl=Get+Content|Revise|Edit|Sourcing|Overseer|Ok+for+Pub&chl=Get+Content|Revise|Edit|Sourcing|Overseer|Ok+for+Pub)
Note on interpretation: articles go from red to purple. The "overseer" articles are pretty much done and now we're just waiting for an overseer to have a look at them.
PaulLast edited on Wed Dec 24th, 2008 14:50 by paulalbert
____________________
Diag CFS 6.03 / sympt since 9.02 / exercise, food intol, sleep prob / 1,25D: 16, 4.06; 1,25D:27, 25D:26 7.04; 1,25D:43, 25D:6 6.05; 1,25D:17, 25D:8 8.05; / MP: 7.04 / Ph. 3 / Bacteriality
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Dr Trevor Marshall
Research Team
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Posted: Wed Dec 24th, 2008 14:56 |
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Thanks, Paul Hopefully somebody will volunteer to follow that up for us
Anybody who can help Paul on the Knowledge Base project (in the few days you have spare over Christmas/New Year) please do so. There are a lot of folk who are still sick and are waiting for us to get our act together and start supporting them
Volunteer with Paul at:
http://marshallprotocol.com/forum43/12695.html
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