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jcwat101
Research Professional
| Joined: | Tue Jul 20th, 2004 |
| Location: | Pasadena, USA |
| Posts: | 1453 |
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Posted: Thu Feb 5th, 2009 21:08 |
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Lynn,
I would also ask, just in case this is relevant, what your calcium intake has been from food and supplements?
It is generally recommended to get near the RDA from food if one can, and if one can't , then using some calcium supplement without D can help make up the difference to achieve the RDA.
See:
Do I need to take a calcium supplement...
for more information.
Joyce Waterhouse
Last edited on Thu Feb 5th, 2009 21:09 by jcwat101
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20 yrs with CFS/FM/Lyme/IBS, food sensitivities; 1,25D/25D 8/04:64/11 http://SynergyHN.com
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Joyful
Board Staff
| Joined: | Sat Jun 9th, 2007 |
| Location: | Restville, Again |
| Posts: | 1771 |
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Posted: Mon Feb 16th, 2009 07:47 |
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The results of my first ever DEXA scan are in.
My doctor was very concerned and wanted me to supplement with vitD or take Fosamax. I was successful in getting him to consider:
(1) Fosamax is known to make bones brittle,
(2) since being ill I have had low estrogen (peri meno-pauseal) & but now my cycles were regular for last 5 months,
(3) I had high 1,25D prior to staring MP & this may have affected bone density,
(4) my risk of fracture is low because I am careful & mostly sedentary,
(5) I have not been taking my cal/mag supplement faithfully (hardly at all).
(Another important factor may have been untreated subclinical low thyroid function.)
So he agreed with plan to actually take (not just have on shelf) Cal/Mag @ RDA levels & retest in 2 yrs.
DEXA scan results: 2/9/2009 (at age 47)
L1-L4 Spine: 0.903 g/cm2 (T: -2.4, Z: -2.1).
Left Femur/Neck: 0.767 g/cm2 (T: -1.9, Z: -1.2).
Left Femur/Total: 0.793 g/cm2 (T: -1.7, Z: -1.3).
Right Femur/Neck: 0.683 g/cm2 (T: -2.6, Z: -1.8).
{note: right hip is only joint that has ever had pain}
Right Femur/Total: 0.742 g/cm2 (T: -2.17, Z: -1.7).
The right hip hurt quite a bit during my illness and at the beginning of the MP, but I can't remember the last time it did hurt, so I suspect that the MP has already been helping on that front.
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Lyme?1980 Lyme/Babs/Bart?05 CFS?06 | Start 125D(50) 25D(32) Jun07 | Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 | Latest 25D(9) Apr09 | ABC of MP
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Admin
Administrator
| Joined: | Sat Jul 10th, 2004 |
| Location: | USA |
| Posts: | 643 |
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Posted: Mon May 4th, 2009 02:15 |
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cathys2007 wrote:
My D25 results have decreased to 17. I am happy to report that my recent bone density results show a 2% INCREASE in bone density. I expected a slowing of bone loss and am excited that there was no loss but an improvement.
Not only do I feel better, but now I have tangible proof that MP is working.
Cathy 
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Dx Sarcoid-lymph node biopsy/neurosarcoid 12/06 FMS,IBS,fatigue brain fog,muscle pain,fevers, migraines,TMJ Narcolepsy Osteopenia Gerd, Raynauds /D125=48, D25=17(Apr09)/PH1 7-7-08/PH210-7-08/calcium supp/NOiRs covered 1.5hrs work commute low lux home
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*We can help you understand chronic disease, but only your physician is licensed to give you medical care *
Always consult your physician before commencing or changing any treatment he/she has prescribed for you
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Sunbeam
Member in Phase 2
| Joined: | Thu Dec 14th, 2006 |
| Location: | Perth, Australia |
| Posts: | 346 |
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Posted: Thu May 7th, 2009 08:37 |
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Thanks Joyce, I do take a supplement. Also Australia does not have vit D in dairy so I am able to have milk and yogurt. I eat greens, take blueberries every morning so I think I am on the right track. I hope so.
Take care, Lynn.
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CFS. gen neuro. muscular tightening whole body pulsates|ADL's limited| 125D 30 MP 4/07 Panadol Mersyndol Noirs. Low lux home homebound. ph 2 1/2/08 25D <6 8/08
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cathys2007
Member in Phase 3
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Posted: Thu Jul 30th, 2009 02:20 |
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These are my DEXA scan results. I’m including scans prior to being on the MP.
Before I started MP.
March 2007 no steroids
Scan Type: BMD T-Score Z-Score
AP Spine L2-L4 1.222 g/cm2 0.2 0.0
DualFemur/neck left 0.831 g/cm2 -1.5 -1.2
DualFemur neck right 0.847 g/cm2 -1.4 -1.1
I took steroids from March 2007 (after the first DEXA scan) until February 2008. I was also given high doses of Vitamin D in April 2007. I also was taking Boniva from April 2007 until May 2008.
May 2008
Scan Type: BMD T-Score Z-Score
AP Spine L2-L4 1.181 g/cm2 -0.2 -0.3
DualFemur/neck left 0.791 g/cm2 -1.8 -1.5
DualFemur neck right 0.800 g/cm2 -1.7 -1.4
Started MP 7/7/08: no Vitamin D, no Boniva, no steroids
April 2009
Scan Type: BMD T-Score Z-Score
AP Spine L2-L4 1.186 g/cm2 0.1 -0.1
DualFemur/neck left 0.807 g/cm2 -1.7 -1.3
DualFemur neck right 0.816 g/cm2 -1.6 -1.2
The radiologist report indicates a 2% increase in bone density!
Before starting MP, my scans show a decreasing bone density. I was on MP for 10 months and the DEXA scan showed improvements.
As indicated by my results…. MP works….
Cathy
Last edited on Thu Jul 30th, 2009 02:27 by cathys2007
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Dx Sarcoid-lymph node biopsy/neurosarcoid 12/06 FMS,IBS,fatigue brain fog,muscle pain,fevers, migraines,TMJ Narcolepsy Osteopenia Gerd, Raynauds /D125=48, D25=15(jun09)/PH1 7-7-08/PH210-7-08/calcium supp/NOiRs covered 1.5hrs work commute low lux home
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MERCOUMA
Health Professional
| Joined: | Wed Oct 31st, 2007 |
| Location: | Paris, France |
| Posts: | 41 |
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Posted: Mon Aug 3rd, 2009 15:24 |
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Hello,
I experimented 2 hypotensive crisis (once a year). They were both associated to an important changement of habbits; i mean of my day usual program. They both solved by themselves; when i felt them, i lay down, breathe deeply and slowly and wait time to recover, that happens after more or less 15 minutes.
I hope it can help
Mathiew
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Vascularitis early stage.Lymphopenia,joint pain, Neck and thyroid nodes,irritable bowel,...,1-25D=30 & 25-D=27,6.Began MP 28/11/2007.No other Meds.Wearing Oakley Glasses.First Mino dosis 3rd december.Phase II 15/01. Phase III 20/03. Last25D=10.
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Chris
Moderator
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Posted: Thu Oct 8th, 2009 03:27 |
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year where bmd t-score z-score
2007 L1-L4 1.058 87% -1.3 87% -1.3
2009 L1-L4 1.153 94% -0.5 96% -0.4
2007 left femur neck 0.870 81% -1.5 88% -0.9
2009 left femur neck 0.928 87% -1.1 98% -0.3
2007 right femur neck 0.777 73% -2.3 79% -1.6
2009 right femur neck 0.862 81% -1.6 98% -0.8
I've been taking (most days) 500mg SolRay chelated calcium.
I did have two previous scans done, but they were at a different hospital.
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sarcoid diagnosed 1991, probably started 1983
D25/1,25: Mar04 17/80, Sep04 12/50, Nov04 8/23, Jan05 9/39 May05 6/27; in phase3; fevers, muscle pain, tinnitus, depression, mental-fog, IBS, carpal-tunnel, fatigue, osteopenia
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Dr Trevor Marshall
Research Team
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Posted: Thu Oct 8th, 2009 04:48 |
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