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edj2001
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| Joined: | Tue Oct 18th, 2005 |
| Location: | Allen, Texas USA |
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Posted: Tue Sep 9th, 2008 03:15 |
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BUMP
My email and address are on my profile. If papal is not an option, personal check is OK.
Gene
Paul said:
"An announcement of sorts. Remember Amy's "Overview of the MP" video? It's an 85-minute presentation on the MP, and it reviews, among other topics, the science supporting the MP. The presentation can be found here:
http://bacteriality.com/2008/05/07/mpintro/
It's still on the web. For me, that remains the best way to view this presentation.
But, some of you have said it would be more convenient to watch this on television. It took a while but we finally have a DVD you can play in a typical DVD player.
Gene (edj2001) has very graciously volunteered to burn and send DVDs to people who want them. The cost, including shipping and handling, is $4.
For the sake of convenience, the easiest way to do this is to send $4 per DVD via PayPal. For those who are unclear about PayPal, it's fairly easy to use. Once your account is set up, all you have to do is say "send $4 to a particular email address."
I'll let Gene decide if he wants to put up his email address here. In the meantime, you can PM him and he'll tell you what it is.
Paul"
Last edited on Tue Sep 9th, 2008 03:23 by edj2001
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Sarc98 A.Fib uveitis sk cancer basal/melanoma colon tmr bladder tmr bph| propafenone Armour proscar Guaifensin | 1,25D=50 10/05| 25D=7 4/08| Gene's Story| avd l&D|
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edj2001
Moderator
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Posted: Sat Sep 20th, 2008 21:43 |
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| BUMP
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Sarc98 A.Fib uveitis sk cancer basal/melanoma colon tmr bladder tmr bph| propafenone Armour proscar Guaifensin | 1,25D=50 10/05| 25D=7 4/08| Gene's Story| avd l&D|
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Jeannine
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| Joined: | Sun Aug 28th, 2005 |
| Location: | USA |
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Posted: Sun Sep 21st, 2008 12:10 |
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Gene and Amy,
Thank you so much for this DVD! It is great ..I now will have something easy to understand that is all in one place to share with my family.
Jeannine
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CFS FM Lyme Morgellon's Depression/Anxiety 125D49 Ph1Aug06 25D <4(april 08)Prozac Valium Aleve ModPh2May07 Ph2Apr08 NoIRs limited outings covered lo lux home
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Ames
Board Staff
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Posted: Mon Sep 22nd, 2008 22:37 |
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Hi All,
I'm pleased to share that my post on the 2008 Congress on Autoimmunity is here:
http://bacteriality.com/2008/09/22/coa/
Included in that post is the video from my talk. I am to understand that the other talks should be up shortly.
AmyLast edited on Mon Sep 22nd, 2008 22:38 by Ames
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CFS/FMS/osteopenia/severe insomnia Non -MP meds: Gabitril (16 mg),Trazodone (150 mg),Tramadol (20 mg) for pain. Light: Noirs (outside and bright lights), thick layers, sunscreen
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Ames
Board Staff
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Posted: Thu Aug 13th, 2009 22:44 |
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Hi,
Paul and I wrote an article about our experience at the recent IOM workshop on vitamin D and calcium. The point of the workshop was to help a committee decide if the amount of vitamin D recommended to the average American should be raised.
Here is the article:
http://bacteriality.com/2009/08/10/iom/
Best,
Amy
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CFS/FMS/osteopenia/severe insomnia Non -MP meds: Gabitril (16 mg),Trazodone (150 mg),Tramadol (20 mg) for pain. Light: Noirs (outside and bright lights), thick layers, sunscreen
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paulalbert
Board Staff
| Joined: | Fri Jul 16th, 2004 |
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Posted: Sat Sep 12th, 2009 13:18 |
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Yesterday, I moved to Bacteriality to a different server. I don't know if the rest of you have had problems but I would often get notices that the site was down. So frustrating!!!
Anyway, if you notice any kind of functionality issues, please let me know.
Paul
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Diag CFS 6.03 / sympt since 9.02 / exercise, food intol, sleep prob / 1,25D: 16, 4.06; 1,25D:27, 25D:26 7.04; 1,25D:43, 25D:6 6.05; 1,25D:17, 25D:8 8.05; / MP: 7.04 / Ph. 3 / Bacteriality
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paulalbert
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Posted: Wed Sep 16th, 2009 20:07 |
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According to the prestigious electronic resource, Faculty of 1000, Amy's paper is a "must read." How about that!
Here is what Dr. Steven Witkin's review says:
The clear message of this article is that molecular genetic studies of diseases must include analysis of resident bacterial genomes and not focus solely on the human genome. The observations presented in this review are thought-provoking and offer new ways of thinking about the origin of diseases and possible novel treatments.
The essence of this eye-opening article is that 90% of the cells in the human body are bacterial, that bacterial genomes are expressed in humans and that they have profound positive or negative influences on health.
Compelling evidence is presented that humans are "superorganisms" whose molecular functions result from the sum of interactions between the human genome and a multitude of microbial genomes. The advantages of bacterial colonization and its profound influence on the diversity of the human metagenome are emphasized. The human genome is composed of about 30,000 genes, while the endogenous microbial flora contribute millions of genes. In addition, transcription of the human genome is altered by the presence or absence of bacterial products. Differences in bacterial colonization account for individual variations in gene expression. Lastly, the potential pivotal role of endogenous microbial genomes on the induction and persistence of autoimmune disease is emphasized.
Note that very few papers are selected to be discussed in F1000.
You have to register to see the full text (as of today, there's not much else but there may be comments over the next few days and months):
http://f1000medicine.com/article/id/1164263
Paul
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Diag CFS 6.03 / sympt since 9.02 / exercise, food intol, sleep prob / 1,25D: 16, 4.06; 1,25D:27, 25D:26 7.04; 1,25D:43, 25D:6 6.05; 1,25D:17, 25D:8 8.05; / MP: 7.04 / Ph. 3 / Bacteriality
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jrfoutin
Research Team
| Joined: | Tue Aug 9th, 2005 |
| Location: | Oregon USA |
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Posted: Thu Sep 17th, 2009 00:17 |
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Excellent work. Thank you.
A very nice professional arena, too, as a simple review of Global faculty experts navigation menu covers many chronic diseases/diseases of aging.
You deserve every kudo, Amy. Thanks for passing the word on Paul.
Side note: When I read Witkin's review, I thought it was too bad that the metagenomic conference folks are narrowing their focus to soil and seawater, but that isn't a total bust. Methinks they will find *some* of us along their way whether they want to or not. Or, of course, some of what they find will continue to turn up on someone's next joint replacement.
Just how did those hydrothermal vent bacteria get --there--?
Keep up the good work. Always good to read of your success.
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Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2, 10/08 25D6.9
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Dr Trevor Marshall
Foundation Staff
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Posted: Thu Sep 17th, 2009 11:33 |
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Amy's "Autoimmunity Review" on the metagenome has been honored with recommendation as a "Must Read" by the "Faculty of 1000" 
Click here for a link to the citation
And yes, like most medical articles these days, a subscription is needed to view the detailed text 
Obviously, also congratulations to Paul and myself as well as ChrisB, Joyce, Greg, Tom, and everybody who helps us frame and disseminate our scientific message.
..Trevor..
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Martin78
Member in Phase 1
| Joined: | Sun Jul 15th, 2007 |
| Location: | Oslo, Norway |
| Posts: | 194 |
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Posted: Thu Sep 17th, 2009 21:05 |
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| Great news!
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Sjøgrens Syndrome|Fatigue|wt loss|itch|night sweats|pain|ancle|legs|ches|irritat|depr| hypercalcemia|initial 125D 98|Probe Apr08|Valium| 25D30 Jan15.09|Ph1 Jan15.09|visit my site: http://www.youngsjogrens.com
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eClaire
Member in Phase 2
| Joined: | Mon Sep 25th, 2006 |
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Posted: Fri Sep 18th, 2009 04:57 |
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| Thank you all for working so tirelessly to get the word out. Claire
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38mo on MP; CFS FMS MCS COPD hypermob. IBS/GERD osteopor.; 125D48 25D<4;
NoIRs during most daylight outings & covered up; home w/o NoIRs
Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08 * Ph2.Oct-Nov08 * Ph1.Jan2009
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Ames
Board Staff
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Posted: Thu Oct 1st, 2009 14:33 |
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Hi Y'all,
It took enough time, but I have a new post up on Bacteriality. It shows photos of people in Chengdu and Hong Kong blocking sun with wanton disregard for their health.
http://bacteriality.com/2009/10/01/sun-blocking/
We could have taken more but we were rather short on time. Most of them were taken by Paul from a cab.
Each photo is clickable.
Best,
Amy
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CFS/FMS/osteopenia/severe insomnia Non -MP meds: Gabitril (16 mg),Trazodone (150 mg),Tramadol (20 mg) for pain. Light: Noirs (outside and bright lights), thick layers, sunscreen
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jrfoutin
Research Team
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Posted: Thu Oct 1st, 2009 21:14 |
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Blocking the sun is fun with the umbrellas.
Even with all the sun blocking, people in China still have chronic disease and diseases of aging or there wouldn't be a requirement for the study.
It will be interesting to see what the D's are for study participants (knowing women commonly block sun exposure), and of course, environmental changes that might be required (if not common Chinese supplements, then possibly other dietary sources? Maybe egg yolks, soy, fish oils? Who knows?)
Great pictures though, I'd fit right in with my umbrella (wink).--Janet
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Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2, 10/08 25D6.9
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paulalbert
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Posted: Wed Oct 21st, 2009 19:00 |
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Hi All,
A couple hours ago, I put up a video of a talk I gave at a conference, but there was a small error, so I took it down and put it up again. Thanks to Rob for pointing it out.
The topic was why some patients with chronic disease are disaffected and how online social networks have met some of their needs. I try to offer a balanced perspective – both the good and bad of online social networks.
You can view it here:
http://bacteriality.com/2009/10/19/networks/
Best,
Paul
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Diag CFS 6.03 / sympt since 9.02 / exercise, food intol, sleep prob / 1,25D: 16, 4.06; 1,25D:27, 25D:26 7.04; 1,25D:43, 25D:6 6.05; 1,25D:17, 25D:8 8.05; / MP: 7.04 / Ph. 3 / Bacteriality
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jcwat101
Research Professional
| Joined: | Tue Jul 20th, 2004 |
| Location: | Pasadena, USA |
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Posted: Wed Oct 21st, 2009 22:54 |
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Great talk! I think you touched on a lot of things that many people don't know about (those who have not entered into the world of chronic illness).
And it was good that you were able to get in some stuff about the MP and the role of bacteria at the same time.
Joyce
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20 yrs with CFS/FM/Lyme/IBS, food sensitivities; 1,25D/25D 8/04:64/11 http://SynergyHN.com
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paulalbert
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Posted: Thu Oct 22nd, 2009 00:57 |
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Thanks, Joyce.
If I had my way, I would spend almost all my time talking about the MP, but... the point wasn't to proselytize but to get medical librarians to think more deeply about online social networks. It was interesting that most in the audience agreed that web 2.0 was a "sea change" in medicine.
Paul
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Diag CFS 6.03 / sympt since 9.02 / exercise, food intol, sleep prob / 1,25D: 16, 4.06; 1,25D:27, 25D:26 7.04; 1,25D:43, 25D:6 6.05; 1,25D:17, 25D:8 8.05; / MP: 7.04 / Ph. 3 / Bacteriality
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k
Member in Phase 3
| Joined: | Fri Aug 10th, 2007 |
| Location: | Australia |
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Posted: Thu Oct 22nd, 2009 01:01 |
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Thanks Paul. On a really bad herx day, the "chain of logic" and "101 euphemisms" definitely gave me a pick up.
I was curious about the "Sources of Funding" slide. Is this funding for you personally?, for Bacteriality.com?, for the Autoimmunity Foundation?
Thanks.
regards, k
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CFS menorrhagia & dysmenorrhoea anxiety depression paxil 600mg calcium daily Ph1Oct07 Ph2Feb08 Ph3Sept08 25D:Jul07=50 Oct07=23 Jan08=13.2 Oct08=12.8 Sept09:10 NoIRs cover-up low lux home lite exp r/t to work
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paulalbert
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Posted: Thu Oct 22nd, 2009 01:06 |
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I probably should have been a little less subtle there. If you look at the slide, I am claiming a number of rather implausible sources of funding including all the major pharmaceutical companies, Tyson chicken, John Deere, etc. Basically, it was a joke.
That slide was inspired by a certain researcher I saw at the IOM meeting in D.C. who started his talk on vitamin D by saying essentially, "I am funded by tanning bed manufacturers and providers, but never mind how that affects my ability to speak objectively about vitamin D. On to the next slide!"
In case you're interested, the Foundation is working hard to get grants necessary for travel. presentations, running the study, etc.
Best,
Paul
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Diag CFS 6.03 / sympt since 9.02 / exercise, food intol, sleep prob / 1,25D: 16, 4.06; 1,25D:27, 25D:26 7.04; 1,25D:43, 25D:6 6.05; 1,25D:17, 25D:8 8.05; / MP: 7.04 / Ph. 3 / Bacteriality
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eClaire
Member in Phase 2
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Posted: Thu Oct 22nd, 2009 01:12 |
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I particularly liked your "does misery love company" portion (or does misery breed misery). One of the things I like about the MP site is that there are plenty of upbeat people. Sure some aren't and sometimes we need support for our misery, but there are plenty of people to befriend who have positive attitudes.
I belonged to a social network site for folk with chronic illness and I found the constant negativity to be a major drag. I'm looking for ways to not only feel not so alone but to be uplifted, and thank goodness there are others on the MP who feel the same. So we tend to have a nice balance here.
Claire
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38mo on MP; CFS FMS MCS COPD hypermob. IBS/GERD osteopor.; 125D48 25D<4;
NoIRs during most daylight outings & covered up; home w/o NoIRs
Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08 * Ph2.Oct-Nov08 * Ph1.Jan2009
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k
Member in Phase 3
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Posted: Thu Oct 22nd, 2009 01:33 |
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Thanks Paul. Sorry - I didn't get the joke.
Agree with Claire on 'misery loves company'. There's definitely a good mix of people here.
regards, k
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CFS menorrhagia & dysmenorrhoea anxiety depression paxil 600mg calcium daily Ph1Oct07 Ph2Feb08 Ph3Sept08 25D:Jul07=50 Oct07=23 Jan08=13.2 Oct08=12.8 Sept09:10 NoIRs cover-up low lux home lite exp r/t to work
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