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Dr Trevor Marshall
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Stop-Press:
The HD video of my keynote presentation at WCG 2008  is now online. You can find it at:
http://www.vimeo.com/2585394

The written transcript can be downloaded from:

http://AutoimmunityResearch.org/transcripts/WCG2008_Keynote_Transcript.pdf

The presentation I gave at West China Hospital consisted of a repeat of the WCG 2008 science overview (above), and a presentation focusing on clinical issues. This is the first time I have reviewed the Protocol itself for several years, and I hope you enjoy taking a fresh look at what we have all achieved:

http://www.vimeo.com/2599416
The transcript of the West China Hospital Presentation is important to print for Doc, as it deals with clinical aspects I usually don't cover in the scientific presentations:

http://AutoimmunityResearch.org/transcripts/WCH_2008_seminar_transcript.pdf
 

Thanks to all who worked so hard producing these transcripts:)
 
--------------------------------------------------------------------

I am sorry I did not get time to write from China. I was swept around from event to event with Dr Hershko, the 2004 Nobel Laureate in Chemistry, and only got to see a total of one hour of the conference presentations. Everywhere we went it was photographers, flashing, whirring cameras and the bevy of shoulder-carried video cameras with sound-men wielding pole-mounted boom microphones.

Here is a picture taken in the VIP room just before the Keynote I gave at the 'World Gene Congress 2008'. Next to me (left to right) is Dr Hershko, and next to him is the Governor of Guangdong Province. A province of 79 million people...





Here is a photo of me shoveling some dirt during Saturday's tree planting ceremony to mark the dedication of the new Nobel Research Institute. Next to the tree we were planting was one, decades old, planted by the late Chairman Deng Xiaoping. This was a great honor.





Finally, we flew to Chengdu, to give a seminar at the West China Hospital, the largest clinical center in the world. WCH has 4600 beds, and looks after more than 2 million patients a year (including outpatients). I have put together a short video from the promotional DVD distributed by the Hospital, you can view it at

http://curemyth1.org/flash/WCH.html

Here I am with Liz and some staff from the WCH Rheumatology Department, who had invited me to visit (the full Rheumatology Dept is huge, having 73 dedicated beds):




The seminar at WCH covered extra ground, not just the new 'Science' presentation I gave at the Gene conference keynote, but a brand new presentation on the Clinical Issues which need to be addressed when introducing the MP into a hospital environment.

The videos last for 80 minutes, and it will take me another week to finish editing, and put them online --- watch this space ---

Following the seminar, I signed, on behalf of the Foundation, a Letter of Intent to collaborate with West China Hospital to help them bring the Marshall Protocol to their patients in China.

All in all, an amazing journey, and we met an amazing group of people. I suspect I will be making the 16 hr trip to Guangzhou, and the 2 hr connection to Chengdu, rather frequently over the coming years :)
 

Last edited on Thu Feb 26th, 2009 03:42 by Dr Trevor Marshall

Rico
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Wow, Trevor, this sounds very promising. How the heck did they come to know about, understand and accept the MP so quickly? Are they already treating patients on the MP?

Congratulations!

Last edited on Sat Dec 13th, 2008 16:57 by Rico

Dr Trevor Marshall
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Rico,
They were looking for new ways of understanding and treating diseases like Lupus and Ankylosing Spondylitis, and they came across our work in a Google search. They were pleased to find our Science so well developed...

WCH read the Patient Alumni reports that have been posted, and decided that the MP was something they definitely needed to look into...

As it happened, when I got their email, I was already planning the conference trip, and so I cut the visit to Guangzhou a few days short, and scheduled the seminar at WCH :):)

They are not using the MP yet, there are a number of steps we must take first, to fully understand how they will successfully implement the MP in such a huge group of patients, most of whom do not read English, and who cannot therefore share with us at this Internet study-site :):)
 
 

Rico
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Wow. A Google search ... and some reading, thinking and open-mindedness ... kind of like all of us patients :)  Bravo to them for taking this bold move. This is really very good news, indeed.

Ruth Goold
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Congratulations, Trevor.  This is as fascinating as it is impressive.  And for anyone who needed further proof that we are living through the decline of the American empire....

Lottis
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:)
Saturday's tree planting ceremony to mark the dedication of the new Nobel Research Institute. Next to the tree we were planting was one, decades old, planted by the late Chairman Deng Xiaoping. This was a great honor.

I understand the huge implication this means, and I am so happy and grateful right now that I lack words to express myself!:D 
http://en.wikipedia.org/wiki/Deng_Xiaoping

May you always, Dr Trevor Marshall, stay as humble, patient and persistent, as you have been in order to come to this moment in life!
:dude:

One more thing, is this right?;
(the full Rheumatology Dept is huge, having 73 dedicated beds):
Did they only have 73 beds in that department? Why is that? Do they not have rheumatism in in West China???:shock:

/Lottis

Aunt Diana
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What a wonderful Christmas present. This is excellent news. Congratulations Dr. Marshall.

carol
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This reminds me of the story of W Edwards Deming, whose work in the field of quality control was embraced by the Japanese after WWII.  He couldn't get anyone to listen in this country.  That's why the Japanese have Toyota and Honda and the US has GM.

Trevor, this is thrilling.

Carol

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The  BIT Life Sciences have put up a report and some pictures from the World Congress of Gene-2008.

http://www.bitlifesciences.com/wcg2008/event_report.htm

Last edited on Mon Dec 15th, 2008 15:00 by Lottis

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Excellent exposure for Dr. Marshall, the Autoimmunity Research Foundation, and for the understanding of the pathogenic cause of chronic inflammatory diseases (along with approaches for cure). :)

Thanks for that link Lottis. These photos confirm that Dr. Marshall's signature attire--yellow shirt & red tie--influences event organizers ... did you notice the photos showing the beautiful yellow swags with red bow ties around the tables. :D

Dr Trevor Marshall
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Thanks for the link. It was certainly an amazing experience. As was the West China Hospital in Chengdu. I am working on getting the video of the presentations online, there is a lot of video, and it will take me a week or so to get it all processed.

Here is a copy of the conference hotel foyer, with Christmas decorations in place (click for larger image).
A Merry Christmas to all...





jlunn247
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Now I know there is a Santa Clause.
 You must have been bitten by a reindeer tick originally aye?

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Dr. Marshall, I had the pleasure and privilege to work and study personally with Dr. W. Edwards Deming.  It was an incredible experience.  I can say his work though it helped revolutionize the way we conduct business in the global economy today, will not match the benefit to mankind your MP will do to relieve the suffering of millions.

I am behind your noble work 100% in whatever way you feel will be most helpful.



Veny W. Musum

Senior Vice President

John Paul Mitchell Systems

Dr Trevor Marshall
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The video of my keynote presentation is now online. The middle of the presentation is rather similar to my Porto presentation, but it has extra material at the beginning and end:)

http://www.vimeo.com/2585394

Would anybody like to volunteer to produce a transcript?
 

patrickburke
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Superb work as usual Prof M :)

Ron
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Great key note, really enjoyed watching it!

Yes, I would like to volunteer.

Ron

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Ron,
If you could suggest a section of the speech which you would like to transcribe, and then email me the ASCII text, hopefully others will help with the rest of the presentation.

In the past, Janet Raty (jtfoutin) has transformed the text and slides into the beautiful transcripts we place online, hopefully she will have some time spare to help with this project, too.

If you can understand the Indian, Chinese and European accents during the questions, it would be a great help if you could work with them first, as many of our members will have trouble with these, I fear :) I myself wasn't able to decipher every word, but I will add what I can.

Trevor

garyv
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I have a few days off from work and would be happy to help out with the transcription!:)

Ron or Dr. Marshall, just let me know where to start. In the meantime, I'll view the presentation!:cool:

Ron
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Gary,

Thanks for joining. You can start at the beginning while I try to decipher the questions as Dr. Marshall suggested.

Ron

Dr Trevor Marshall
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The presentation I gave at West China Hospital consisted of a repeat of the WCG 2008 science overview (above), and a new presentation focusing on clinical issues. This is the first time I have reviewed the Protocol itself for several years, and I hope you enjoy taking a fresh look at what we have all achieved:

http://www.vimeo.com/2599416

There is a short overview of West China Hospital itself at:
http://curemyth1.org/flash/WCH.html
 

wchshi
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Happy to see this and I am really enjoyed your visiting Dr Marshall. hope our collaboration will start very soon.

Dr Trevor Marshall
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I did really enjoy my first trip to China. It was amazing to see the changes which have taken place over the last decade.

I look forward to visiting again, as soon as I get the new travel Visa stamped into my passport!

Sincerely
Trevor
 

paulalbert
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I have somebody in mind who may want to transcribe the second speech. I'll let you all know if it doesn't work out.

Paul

Martin78
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This is really starting to look good. Clearly the audience in China was more entusiastic, open, and not so narrow minded as many "know it all" audiences in the west.

All in all this leaves my very exsited. If I had a million bucks I would donate it all to the foundation!! At least I i will make a small contribution tonight :) I just got so motivated from these two presentations!!!

I wonder, when will the financial statements from the foundation be included in the annual report? Transparency will motivate even more donations!

All the best!
BR

Martin

Dr Trevor Marshall
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Martin,
The 2007 IRS Form 990, a disclosure which exempt non-profits make available for public access, has been on our website for sometime now.

You can find it at

http://AutoimmunityResearch.org/990EZ_2007.pdf

..Trevor..

Martin78
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Trevor

This was exactly what I was looking for.

I don't understand how you guys make a living besides, all the hours you spend working for the foundation (!) without compensation! I must also say that your travel expences are pricewardy low compared to the activity this year.

Respect!

Let me know if you need help (i guess its a matter of time and priorities you being a former CEO) in converting these numbers into the the next annual report in a more "professional" way...

This way we will eliminate statementes that members in the norwegian sarcoidosis org. has presented when talking about the protocol at their forum site:" They only do it to make money from you, selling books, dvds etc" .... crazy. Obvioulsy they havent understood a clue about what this is all about.

Luckily another member of the forum, who knows about the foundation and how its all based on volenteery work, and that the "revenues" involved are mostly medicines sold by pharmacists, asked if the poster if she could give one example of how the foundation charged patients for the treatment, besides donations, the poster went quiet and eventually after being explained realities said sorry...

When I get more "less sick" I will work hard to increase the amount of donations, the foundation clearly needs more funding.

Lets all contribute with a x-mas gift today!!

BR

Martin

 

 

wrotek
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Merry Christmas

China is very flowery country.

Pretty presentation. I especially enjoyed the statement that when innate immune system fails, the adaptive immune system tries to "guess" bacteria by forming unspecific antibodies. It sounds like it is trying to learn, evolve.

Can vaccines, that seem to cause diseases, do it not only by being contaminated with nano bacteria, but also by containing DNA that can be incorporated by human microbiota ?

I understand, that PXR activation leads to degradation of one of the enzymes CYP24A1 that degrades 1,25-D ? Thus PXR agonists can increase inflammation ?

I have read that coffee drinking is associated by increase in inflammatory markers, i wonder can it be traced to VDR http://www.ajcn.org/cgi/content/abstract/80/4/862


Last edited on Tue Dec 23rd, 2008 17:51 by wrotek

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wrotek wrote: Can vaccines, that seem to cause diseases, do it not only by being contaminated with nano bacteria, but also buy containing DNA that can be incorporated by human microbiota ?
I was essentially asked the same question in Guangzhou (the Gene conference) when I was asked if it was possible to alter the microbiota by adding outside organisms. I responded that Homo sapiens has already been doing that. Take another listen to the second question on that video :)
 

wrotek
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That is what inspired my question :)
There is a new technique http://en.wikipedia.org/wiki/DNA_vaccination
called DNA vaccination.

Last edited on Tue Dec 23rd, 2008 18:23 by wrotek

Dr Trevor Marshall
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That won't work. There are far too many gene mutations, even in simple diseases.

http://www.sanger.ac.uk/Info/Press/2008/080515.shtml

10,00 different mutations in cancer.
Wow - to protect myself from cancer I would need 10,000 of Jimmy's "DNA shots." I think I would choose the MP :)

The more you understand about human biology, the more you respect the complexity of the human body. That is why Engineers and Physicists, who are trained to deal with imponderable problems, often manage to form an overview which other scientists may not see...
 

wrotek
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I have noticed Dr Marshall that Your slides become wider and broader, representing even larger point of view, with every presentation :D

Last edited on Tue Dec 23rd, 2008 20:40 by wrotek

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Dr. Marshall,

Congratulations on your success on the China trip and presentations!  I spent this morning watching the videos and several light bulbs went on....  I was diagnosed with uveitis by my ophtho several months ago and the only way he could think to save my sight was high-dose steroids.  I still have some retinal scarring but the worst is over.  He then went on to try to figure out "why uveitis?" and labs showed a slightly elevated ACE level and he suspects early sarcoidosis.  A few granulomas on CXR (no hilar adenopathy), long-standing tinnitis, chronic sinusitis and recently three kidney stones and I'm thinking he's probably correct and this is ALL Th1 inflammatory disease.  Googling your site and the MP protocol was a breath of fresh air for me in understanding all of this.  So then I wonder, "where did all this come from?" in particular sarcoidosis in a white male aged 60.  In your presentation from China you spoke of the role of BCG in promoting sarcoid.  Then I remembered, in my early years (1988) as a health care provider, I worked in a tertiary care center Urology department and administered BCG to patients to combat superficial bladder CA.  So the light bulb went on... I am now trying to find a physician in the area who will be willing to work with me on the MP.  Closest I can find is 2 hours away.  I look forward to the day when there is greater acceptance of your findings and work and it is easier to find someone who isn't "scared" to try something new.  I believe our medico-legal environment in the U.S. isn't helping you one bit.  That is where places like China can be more open to new paradigms and ways of dealing with chronic disease.

Thanks for your hard work on all of this, it is so appreciated!

stuckpac

neldawhite
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Martin,

Thank you so much for reminding all of us how hard Dr. Marshall et al, work on our behalf and how helpful a donation here and there would probably be.  You have inspired me to donate today.  We may think a $20, or $50 may not help but if we all do it I'm sure it would make a difference. 

Merry Christmas to Dr. Marshall, and all of the volunteers who have given hope a whole new meaning! 

Greatful Student of the MP

Nelda

 

Martin78
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Hi Nelda!

My point exactly. In 2007 the foundation received barely 63' $.

Imagine if all of us managed to contribute 200$ a year, not necessarily all at once, but now and again during the year...., with 1000 patients in the cohort, or at least following the treatment....that will tripple the foundations funds!

We are now 5-6 patients in Norway following the treatment and my ambition is to use my experience from business/sales/fundraising to contribute as much as possible to raise funds so Dr. Marshall can participate in all the congresses and seminars open for the science. I believe that is the best way to spread the word. Presentations, presentations, presentations!

BR

Martin

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Martin,
I am really appreciative of everybody who has sent a donation to keep our outreach  alive. As you note, every penny is spent carefully.

I am also appreciative of any help from people (like yourself) who are able to organize events, etc, to help with our fundraising efforts.
 

Martin78
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How do you feel about including financial data/fiscal reports to your next annual report?

I can help you with this, I have exprience with multinational companies... maybee it will ease our oppurtunities of attracting funds from institutions, NGOs, institutions or legats...

BR

Martin

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Martin,
I cobbled the annual report together (with help from Janet and Chris) when it became apparent that the person who had the responsibility of keeping up contacts with our donors, and eliciting donations for 2008, was not doing that job. So this year's report was a pretty hurried effort :) Thanks to all who helped :)

Next year we need to start planning in January, I think, rather than November :)
 

Martin78
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OK... thats just how it is sometimes running and coordinating an organization with limited time, resources, contributors affected by disease and spread all over the world..... next year it will be better...

In Norway its quite easy to get governmental fundings for organizations like yours... if I start a Norwegian subsidary and if we make a "members list", which can be done online, chances are we can receive funds from the norwegian government.

I will speak with my doctor and ask if she is willing to be on the board of such a subsidary, making it even easier  by adding the authority of a MD... I am already discussing it with the other Norwegians patients following the protocol. BUT to receive such a grant/funding we will need to submit a proper annual report including member numbers and fiscal data.

Lets keep this as a medium-term project. I am very commited to making this work as I am starting my Msc in Politics and Economics this autumn and some of the courses there cover the criterias needed to be fullfilled to receive governmental financial support and lobbyiong for NGOs in general.

BR

Martin


I am kind of moving away from the original subject of the thread, so when i getthis project going I iwll start a new one.

Last edited on Wed Dec 24th, 2008 01:08 by Martin78

paulalbert
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Let me just throw this on top of the ol' to do list.

I came across a recent article in the Wall Street Journal on charities.

One of the 800-pound gorillas when it comes to charity assessment is called Charity Navigator.

Given that people locate and evaluate charities using tools like this - in fact, this is the primary such tool - it may be worth seeing if ARF can get a listing.


***

Also, the KB status update:



Note on interpretation: articles go from red to purple. The "overseer" articles are pretty much done and now we're just waiting for an overseer to have a look at them.

Paul

Last edited on Wed Dec 24th, 2008 14:50 by paulalbert

Dr Trevor Marshall
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Thanks, Paul :) Hopefully somebody will volunteer to follow that up for us :)

Anybody who can help Paul on the Knowledge Base project (in the  few days you have spare over Christmas/New Year) please do so. There are a lot of folk who are still sick and are waiting for us to get our act together and start supporting them :)

Volunteer with Paul at:
http://marshallprotocol.com/forum43/12695.html
 
 

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I looked into Charity Navigator's inclusion criteria and I'm guessing ARF doesn't qualify. Here it is:


What types of charities does Charity Navigator evaluate?
Because our goal is to help individual givers make informed giving decisions, we use the following guidelines to ensure that we are only evaluating charities that depend on support from individual givers:

Tax Status:
We only evaluate organizations granted tax-exempt status under section 501(c) (3) of the Internal Revenue Code and file a Form 990. 501(c) (3) organizations are considered public charities and all donations to them are tax-exempt.
  • We don't evaluate 501(c) (4) organizations. 501(c) (4) organizations, like the Disabled American Veterans or the National Rifle Association of America, are allowed to spend a substantial portion of their revenue on lobbying our government and not every donation to them is tax-deductible.
  • We don't evaluate charities that are exempt from filing the Form 990. Many religious organizations, like the Salvation Army, are exempt under Internal Revenue Code from filing the Form 990. As a result, we lack sufficient data to evaluate their financial health.
  • We don't evaluate private foundations. Private foundations, like the Avon Foundation, receive the majority of their money from only one individual, family or corporation. This differs from the public charities that Charity Navigator evaluates. Public charities have a broad-base of support from the general public as well as variety of other funding sources. The IRS requires that private foundations file a Form 990-PF which differs from the document public charities file. This makes it impossible for us to compare the financial performance of private foundations to public charities.
Sources of Revenue: We require public support to be more than $500,000 in the most recent fiscal year. Because our goal is to help individual givers, we evaluate only those charities that depend on support from individual givers.

Length of Operations: We require 4 years of Forms 990 to complete an evaluation.

Location: We only evaluate charities based in the U.S. and registered with the IRS. However, the scope of a charity's work can be international.

Type of Programs: At this time we are not adding any hospitals, hospital foundations, universities, colleges, land trusts, community foundations, or PBS stations.


If the ARF does fit these criteria let me know and I'll pursue it.

Renee

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Well, we are an IRS 501(c) 3 charity, however, we can but dream of having $500,000...

Maybe in 2009 :):)
 

Martin78
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I believe that European socialdemocratic governments are more generous with funding NGOs.

We should concider establishing a European subsidary both because more and more european patients are given the treatment and because it will strenghten our global position.

 I will, with Trevor's permission, investigate the possibilities of establishing a subsidary. irst I will gather more details about the inclusion criterias (and if members abroad can be included in the "member mass" needed to apply.

BR

Martin

Lottis
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I am with you, Martin! :)
I also repeat my suggestion in doing a comparative cost example of a patient on current traditional treatment versus the MP treatment over a period.

Back to reflections on the China visit;

Dr Trevor Marshall wrote: The more you understand about human biology, the more you respect the complexity of the human body. That is why Engineers and Physicists, who are trained to deal with imponderable problems, often manage to form an overview which other scientists may not see...
I believe we can include the eastern philosophies among those dealing with imponderable problems. :)

It seems like The Chinese approach knowledge with a different kind of respect.
There are an endless source of wisdom that they have collected in China, and still use. Here is a link with examples;
http://www.brainyquote.com/quotes/category/chinese_philosopher.html

One quote from China tells us for example;
“The more you know, the less you understand”

I deeply admire the humble attitude they have towards learning!


/Lottis

Last edited on Fri Dec 26th, 2008 12:25 by Lottis

Martin78
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Lottis, lets discuss some kind of scandinavian/norther european collaboration over x-mas! :)

I understood that you finally found an MP-doc in Island??

goyop
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With the myriad of things to work on and try to prioritize I greatly sympathize with Dr. Marshall the staff and volunteers.

The charitable status and marketing could be critical but only if that avenue is being considered as a major vehicle for fund raising.  Successful charitable fund raising is only accomplished by very intentional and directed efforts.  Most of us dream of the rich person who will hear about our spectacular solution for whatever problem we are fixing and they will write a gigantic check.  This all but never happens.

It also seems that the vital work of the MP cannot advance on a budget of $50,000 per year. 

So it appears that a strategic and forward looking plan should include a substantially larger budget and a fully staffed development position to raise and organize the raising of needed funds.  All non profits come to this point if they want to increase their work and influence.

I was taught to be a part of the solution and not the problem so I again offer my assistance in these efforts.  This year, 2008, the non profit which I founded and run was awarded four stars by Charity Navigator which is their highest rating.  This in turn put us into the selection process of some foundations which we had no prior relationship.  So while all of this requires years of planning and effort it gains momentum and allows the work to be done.


Dr Trevor Marshall
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This year, 2009, we have Directed-fundraising for the first time. We will be funding the collaboration with West China Hospital, in an amount that still is being defined, and we will need to raise money to put the new software systems in place, so that we can continue to serve the growing demand here on the web.

My guess is that during 2009 we will be looking for upwards of one quarter million dollars to fund those initiatives.

If you have any ideas about how we could improve our fundraising efforts, then please send me a plan with goals, budget and performance benchmarks.

Our Board of Directors has recently been enlarged, bringing additional management and fundraising expertise, and I know they would welcome any concrete suggestions :)
 

goyop
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I would be happy to assist in whatever way I am able.  For me to present any plan I would need to know what your goals and budget are for the next several years.  It would also be necessary to know who has what type of fund raising experience and at what level.  (How much have people actually raised and in what circumstances).  Do any of the board members or staff have any formal fund raising training.  Are you willing to hire a director of development. (If no one on the board or staff have education and experience raising large sums of money then most non profits hire a development director once you get to $400,000 or so.)

So it is not as simple as me submitting a plan.  I wish it were.  The fund raising effort serves the master.  The master is the strategic plan.  The strategic plan comes from the board and staff and basically asks the question, "Where do we want to be in ten to fifteen years?"  The master plan then breaks the strategic plan into smaller bites and the budget flows from that.

I am willing to assist in any of those steps if it would be helpful.

Greg

Dr Trevor Marshall
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First, before we talk any more about these large sums of money, let me make it clear to those members who are reading this, and who have donated their $10, $100, and thousands of dollars, all your contributions are extremely valuable to us. We know that not all our members are capable of giving, and many are capable of giving only a very little. Not only do those very little amounts add up, but your support makes it clear that many, many, people rely on our work, and many, many, people contribute to that work. This is the very nature of a 501(c)3 charity, and every contribution is valuable, no matter what the size.

This year we were very slow at getting out receipts to everybody, and your Board of Directors is working to fix that ASAP. As you know, there has been a lot of 'dropping the ball' these last few months. So if you are wondering where your receipt has gone, please be patient. If you need a receipt right now, then please email me and let me know :):)

Now Greg, as for strategic plan, I think that is better followed up off the main board, where we can detail some of the issues which might sound like jargon to most of our members. I will phone you about this within the next few days, if I may :)
 

Dr Trevor Marshall
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I deleted some off-topic discussion here this morning. Please keep the discussion civil, and the focus on "my visit to China" :)

wchshi
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Hi,Dr Marshall, I've got extremly busy in these days. sorry for the delayed response. I am going to back to you right after the new year (around Jan 4) to further discuss about our collaboration on the MP protocol.

Dr Trevor Marshall
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Excellent,
I will be getting the site moved to a bigger server by 4th January, so that would be a good time for me, too:):)

Happy New Year :)
 

TikBitten
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Dr Trevor Marshall wrote: I deleted some off-topic discussion here this morning. Please keep the discussion civil, and the focus on "my visit to China" :)



Being from the NY metro area, not entirely sure what you're talking about, the thread seemed pretty civil to me...:P:P 

On a more serious note, I was comptroller of a 501(c) for 8 years, with an annual budget just under a $1M and all the trustees and managers were volunteers.  So I disagree entirely that the fund raising threshold of $500k requires a fully staffed position.  And in light of the incredible effort put forth by yourself and MP staff of volunteers I was completely offended by his posturing to be compensated for his efforts in anyway shape or form, and for no other reason then the fact it's fund raising.

I wanted to make sure he knew exactly how I felt and in no uncertain terms...

From the bottom of my heart I would like to thank you for all you do.  It is the result of your work, insight and effort that allows me to say for the first time in almost 20 years that I am truly looking forward to the prospect of a healthy and happy new year. 

Best wishes for a health and happy new year to both you and your loved ones.  

Most sincerely,

TB

Last edited on Thu Jan 1st, 2009 01:20 by TikBitten

Dr Trevor Marshall
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I was comptroller of a 501(c) for 8 years, with an annual budget just under a $1M and all the trustees and managers were volunteers
Ah - now I understand your interest in the topic of fundraising :) Thanks for sharing that with us :)

There are a number of advantages to this Community in being non-profit, quite apart from the 501(c)3 IRS tax benefits. As you would know, a non-profit is generally considered less partisan, and may well be in a better position to push change than organizations being funded by Pharmaceutical companies :) Also, interaction with Government agencies (like the FDA) has been considerably eased by our non-profit status :)

As you say, the down-side is that we have to rely on generosity and philanthropy of members and volunteers for our very existence :) I am extremely thankful to our members and volunteers, who have been helping us keep our head above water these past 4 years, and who enabled us to be so successful during 2008, not only at Karolinska, in April, the home of team Nobel, and thus of some of the most forward-thinking medical minds in the world, but also at the International Congress on Autoimmunity in Portugal in September, and then China in December.

Thank you all.

And many Happy New Years to you and yours,
Trevor

goyop
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For TikBitten and Dr. Marshall,

While I also did not feel that our exchange was harsh, perhaps it appeared that way to Dr. Marshall and of course I respect his desire to keep things civil.  No worries.

Finally, to clarify, I am not certain what led you to believe I was "posturing to be compensated" especially when it says several times "I am willing to help in whatever way possible."  Dr. Marshall already knows of my willingness to help without charge.  I have done so several times already including a couple of charts for Dr. Marshall's China trip, and am contributing regularly to the Wiki project.  Maybe you misunderstood my question about whether the board would be ready to hire a development director.  I am not looking for work I am looking to help.

Happy holidays.


Dr Trevor Marshall
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TB, Greg, now that we are on the same wavelength, please let's follow-up offline.

Greg, it is a while since we last spoke, and I haven't had a chance to personally thank you for these wonderful graphs (which I used in China):

http://project.mp-dev.com/doku.php?id=content:patient_data

TB, can you drop me an email, PM, or give me a call? We are going to need to gather together all the expertise we can muster as we move forward into the collaboration with West China Hospital over the coming months :)
 

Dr Trevor Marshall
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Janet has finished the Transcript of the Keynote presentation at the World Gene Congress. You can download a copy from:

http://AutoimmunityResearch.org/transcripts/WCG2008_Keynote_Transcript.pdf

Thanks to all who worked so hard producing this transcript:)
 

paulalbert
Board Staff


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The transcript and video are reproduced here:
http://mpkb.mp-dev.com/doku.php/home:publications:marshall_conference_gene_2008

Paul

p.s. Trevor: if you send me your presentation I can cannibalize it for images.

wchshi
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Hi, Dr Marshall, sorry for the delay to contact you, i got extremly busy in approching end of the year (Chinese new year, half month away). I'll get back to you as soon as I can, hopefully before chinese new year.

Dr Trevor Marshall
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Excellent, Dr Shi, Happy New Year!
 

paulalbert
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The transcript of the clinical talk is up on the KB:
http://mpkb.mp-dev.com/doku.php/home:publications:marshall_westchina_2008

Thank you very much to Margaret who did this. If you notice mistakes in the transcription, feel free to change them.

Paul

Frans
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Interesting study, finding P. Acnes in Sarc and also correllating it to ACE levels:

The number of genomes of P. acnes in BAL cells was correlated with the serum angiotensin-converting enzyme (ACE) level and the percentage of macrophages in BAL fluid from patients with sarcoidosis. CONCLUSIONS: The amount of P. acnes DNA in BAL cells from patients with sarcoidosis was significantly higher than that in BAL cells from patients with other pulmonary diseases. P. acnes may be involved in the pathogenesis of sarcoidosis.

(PMID 19070256)

Best, Frans

Last edited on Sat Jan 10th, 2009 17:25 by Frans

Gus
Member in Phase 1
 

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Also in SLE. P acnes is of course a cell-wall deficient bacterium

see http://www3.interscience.wiley.com/journal/119555659/abstract

Gus

Dr Trevor Marshall
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Janet has finished a printable transcript of the West China Hospital Presentation. This is an important one to print for Doc, as it deals with clinical aspects I usually don't cover in the scientific presentations.

http://AutoimmunityResearch.org/transcripts/WCH_2008_seminar_transcript.pdf
 
(the video is at http://www.vimeo.com/2599416 )
 

neldawhite
Member in Phase 2


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Hello Dr. Marshall,

I'm in Phase 2 and just sat down with my very supportive husband and read the transcript on your visit to China. I had already watched the video.  My husband focused on an answer you gave and was curious about all the IP that I have been professing.  The question we have is where you say "Therefore, the dietary VD has to be kept below 15nan, or there won't be any immunopatholgy, there won't be any bug killing".  We were under the assumption there  would be less bug-killing if the VD levels were not low but  not any bug-killing.

So the question is; Am I really experiencing IP from bug-killing if my VD is at 28nan?  I'm still assuming there is great benefit in activating the VDR with Benicar, but have I been killing any bugs so far?  And if not what is causing my IP like symptoms? 

Thanks you,

Nelda

Dr Trevor Marshall
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That is a case where I was being over-zealous to get my message through.

Indeed, even if the 25-D is in the 30's it is capable of being displaced by a sufficient Benicar dose.

My point was that 25-D does not leave the arena until it falls below about 12 ng/ml :):)
 

neldawhite
Member in Phase 2


Joined: Thu Feb 21st, 2008
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:) Thank you now I can go back to being pampered through my very real IP.



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