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XMRV retrovirus 'might be culprit' behind CFS
 Moderated by: Dr Trevor Marshall  

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jcwat101
Research Professional


Joined: Tue Jul 20th, 2004
Location: Pasadena, USA
Posts: 1453
Status:  Offline
 Posted: Thu Nov 12th, 2009 04:30

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If that was the talk by Dr. Coffin I'm thinking of, I think he said that it didn't show up in German prostate cancer patients.  Only U.S. CFS patients have been tested so far according to what I have heard.

Joyce



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20 yrs with CFS/FM/Lyme/IBS, food sensitivities; 1,25D/25D 8/04:64/11 http://SynergyHN.com
Bane
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Joined: Sun Jan 27th, 2008
Location: Norway
Posts: 35
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 Posted: Mon Nov 16th, 2009 14:06

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jcwat101 wrote: If that was the talk by Dr. Coffin I'm thinking of, I think he said that it didn't show up in German prostate cancer patients.  Only U.S. CFS patients have been tested so far according to what I have heard.

Joyce

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2770519/



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Oral Lichen Planus(mild)/Clubbed Finger (digital clubbing)|125D44|18th Feb. 25D14 in phase 2:)
elizabetha
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Joined: Sat Jul 4th, 2009
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 Posted: Tue Nov 17th, 2009 04:06

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Hi all,

I am getting in on the discussion quite late but have found the discussions interesting. Nothing earth shattering to share. My story - chronic fatigue syndrome for now over 20 years, 22 actually. Just on "K"'s discussion point. I used to think that I had recovered about 50 percent. However if someone were to have dug deeper, they would have found out that I had resigned my full time job as a community health nurse, and was working casual (meaning sporadically), even part-time work (half-time) if two days were together, I would be wiped out for the next 2 days. In looking at my patterns of energy in the past. I had about 2 months of okay(not fantastic) energy activity and then I would be side-lined sometimes by a flu/cold virus, too much physical work such as gardening or sometimes, no reason at all. So the next month or so would be symptomatic. So all my plans, activities, realigned relationships, interests would have to be stopped. Basically, it was a pattern of 2 months pretty good, then one month maybe more, very rough. And yes, I was taking all the fish oils,vitamins, etc.

As I have posted elsewhere, I did get very ill after a Measles, Mumps and Rubella vaccination at the age of 31. As public health folks, we were encouraged to be revaccinated because of a severe outbreak. That was the straw on the camel's back for me and as a former athlete, it was very noticeable, week after week, I just couldn't do any of the physical activities. The downfall all within a month after the vaccination. It may have contained a bacteria with a specific genome that fit in to down the whole system, who knows. Or it could have been the untreated Rickesstia from age 21.

As I study the posts of CFS folks, it does seems that recovery is longer and that our systems are somewhat more sensitive/complex.

All for now.

regards,

Elizabeth

Dr Trevor Marshall
Research Team


Joined: Sat Jul 10th, 2004
Location: Thousand Oaks, California USA
Posts: 7911
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 Posted: Tue Nov 17th, 2009 04:21

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As I study the posts of CFS folks, it does seems that recovery is longer and that our systems are somewhat more sensitive/complex
Maybe the non-CFS folk just put their heads down and concentrate on healing.

Look, most people coming here with a CFS diagnosis are very, very ill. But so are the sarcies who only have a little of their lungs left. The MS folk in wheelchairs. The ALS patients.

Please don't try to draw comparisons such as this. It will not help your recovery to separate yourself from the other members :)
 

k
Member in Phase 3
 

Joined: Fri Aug 10th, 2007
Location: Australia
Posts: 253
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 Posted: Tue Nov 17th, 2009 22:03

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As I study the posts of CFS folks, it does seems that recovery is longer and that our systems are somewhat more sensitive/complex.
I completely disagree with the above statement. 

I encourage you to read the posts of more non-CFS people on the MP, success stories on this site and stories on bacteriality.com.

regards
k




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CFS menorrhagia & dysmenorrhoea anxiety depression paxil 600mg calcium daily Ph1Oct07 Ph2Feb08 Ph3Sept08 25D:Jul07=50 Oct07=23 Jan08=13.2 Oct08=12.8 Sept09:10 NoIRs cover-up low lux home lite exp r/t to work
elizabetha
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Joined: Sat Jul 4th, 2009
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 Posted: Wed Nov 18th, 2009 19:13

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I hear where you are coming from, thank you for your input.


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